Lithium for Cluster Headaches User Reviews

Brand names: Lithium Carbonate ER, Lithobid

Lithium has an average rating of 8.8 out of 10 from a total of 8 reviews for the off-label treatment of Cluster Headaches. 88% of reviewers reported a positive experience, while 13% reported a negative experience.

Lithium rating summary

8.8 average rating out of 10

8 ratings from 8 user reviews.

Compare all 25 medications used in the treatment of Cluster Headaches.

10		75%
9		0%
8		13%
7		0%
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3		0%
2		13%
1		0%

Ano...
October 13, 2011

"I have been suffering from horrible daily chronic cluster/migraine for 30 years with absolutely no relief. My neurologist refused to put me on lithium. According to him, it's an out-of-date medicine that belongs in the past. I have been on lithium for 2 weeks and have had my first headache-free period in so many years. I went to my PCP, and he gave me lithium. If you are not satisfied with current treatment, I do recommend this for chronic clusters/migraines."

10 / 10

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46 Report

Ani...
April 2, 2013

"Lithium saved my life. Nothing worked on my cluster headaches until my doctor prescribed lithium. It was miraculous and worked within 24 hours. It broke the cycle. Subsequently, I have also used oxygen therapy, and it too has been very effective. Just not as easy as taking a pill, but fewer side effects."

10 / 10

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39 Report

roa...
December 23, 2010

"My GP thinks the symptoms of what I thought was Parkinson's are, in fact, side effects of lithium. I take 1,200 mg of lithium daily. I gave it a low score for the side effects: the shakes and poor balance. It's very effective in preventing clusters. I took a chance this fall and quit all my medicines. The day after I did this, I got slammed by clusters. Clusters are too painful to live with, so it's better to live with lithium and its side effects than with the pain of cluster headaches."

2 / 10

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41 Report

Frequently asked questions

What is a proper diet to go on with lithium?

drk...
February 3, 2014

"This is a godsend for daily cluster headaches."

10 / 10

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40 Report

spa...
July 6, 2011

"I suffer from chronic clusters. Lithium has me pain-free, so compared to the pain I would be suffering, I can live with the side effects."

10 / 10

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31 Report

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Roc...
December 26, 2018

"900 milligrams completely got rid of my chronic cluster headaches."

10 / 10

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12 Report

Tea...
Taken for 10 years or more
January 4, 2017

"I have also used lithium to control my cluster headaches. I usually start on a high dose of prednisone until the lithium kicks in. It literally has been a 'job' and 'life' saver."

8 / 10

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15 Report

Ski...
Taken for 1 to 6 months
June 5, 2017

Lithium Carbonate ER (lithium) "I've suffered clusters for 30 years and have tried most meds. This is the first that has worked without massive doses of prednisone, indomethacin, and O2."

10 / 10

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10 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.