Levothyroxine for Hypothyroidism, After Thyroid Removal User Reviews (Page 3)

• Wil...
• Taken for 6 months to 1 year
• July 20, 2015

Levothyroxine "Due to variances in generic medications, I kept experiencing thyroid fog until my doctor changed me to Synthroid. My stats immediately stabilize, and it has worked well. I found I must take it as prescribed and at the same time daily to avoid the fog."

• Luv...
• Taken for 1 to 6 months
• September 2, 2020

Levothyroxine "22 yrs since my cancer. Finally, I am doing well on Tirosint. Been on it for 8 weeks and 1 dosage change since my 6 wk TSH blood test. Feel better so far. I have been on many different dosages of Synthroid and levothyroxine, and there was never the same dosage for longer than 6 months. I am hopeful in finding the correct Tirosint dosage. Too many fillers in Synthroid/levothyroxine. My new endocrinologist and last endocrinologist suggested Tirosint."

• Jac...
• Taken for less than 1 month
• February 27, 2020

Levothyroxine "I took my first dose of Tirosint in the morning, and within a half hour, my ears started ringing, and I got a bad headache. By the time it was bedtime, I felt so nervous and shaky that I never fell asleep. It was an awful experience. The next day, I went back to my Synthroid."

• Jan...
• January 29, 2016

Levothyroxine "I'm not sure how to rate Levoxyl, honestly. I had thyroid cancer and a full thyroidectomy 2 years ago, and I still have yet to feel like me again. I'll be good for a few months, then the weight goes back on. I'm exhausted, brain fog, and anxiety. I'm on 176 mcg and 10 mcg T3. I still feel like crap and am unable to lose weight. I used to do bikini competitions for bodybuilding, so I know how to be motivated to eat clean and hit the gym. I'm doing all of this with zero results. I'm beyond frustrated."

• Que...
• February 17, 2017

Levothyroxine "I was diagnosed with papillary thyroid cancer and had a total thyroidectomy and also lost one parathyroid. The doctor used high levels of iodine during my surgery, and my endocrinologist had to put me on an iodine-free diet for four months to clear it from my body. During this time, I wasn't allowed to take any thyroid meds at all. I spent that entire time in bed under an electric blanket turned on high during a Vegas summer. Nothing normal there. I was a zombie. I had to have help to use the bathroom, shower, and everything, I was so weak. After RAI, I started Synthroid. A few months later, I noticed small improvements but gained 50 pounds within the first year. It's been seven years now, and I'm worse all the time. I've lost my life to this. I'm switching to Armour."

• Del...
• August 16, 2016

Levothyroxine "Thyroid was removed 3 years ago due to Hashimoto and nodule hyperplasia. Surgery discovered a substernal thyroid. Prior to surgery and attempts to reduce goiter with Synthroid, felt terrible every day. Multiple diagnoses due to muscle pain, fatigue, insomnia, stomach upset, rapid heartbeat, irrational blood pressure. Take Synthroid every morning 1 hour prior to breakfast. Feel great. No negative side effects. All above symptoms are gone. Age 59!"

• tmi...
• April 9, 2015

Levothyroxine "I had a goiter in my teens that was treated with radioactive iodine. I've been on Synthroid for almost ten years, having trouble finding the right dose. I was on 125 mcg for a few years, but my TSH jumped around a lot. Last time I checked, it was around 30, so not good. I decided to try 150 mcg. At first, I had a bit of insomnia, but otherwise, I felt great. Going to find out on Saturday if it's been working as good as I thought. I ran out 3 days ago, and I've already gained a bit of weight (looks like I'm bloated) and woke up this morning depressed. Oh well, I get more on Saturday."

• Not...
• July 20, 2021

Levothyroxine "I had a thyroidectomy, and I'm on Synthroid. This medicine just doesn't work like they told me it would. It doesn't work! My nails are falling off and ripping more easily. My hair, which was always so beautiful and long, is looking like a dollar store mop. It has breakage really bad, and it's so thin and just yucky. Also, gained 70 pounds."

• Sle...
• February 17, 2012

Levothyroxine "This is the third medication I have been on since my thyroid removal. Tirosint seems smoother than Synthroid. However, I have had a lot of gastrointestinal issues and sleep issues while on Tirosint. My quality of life is now very poor. Since Tirosint is better than the other two medications I tried, I will remain on it."

• Bor...
• June 20, 2015

Levothyroxine "I was taking Levothyroid 75 mcg. Lost 15 pounds, stomach pain, unable to eat, shaky, unable to think or exercise. Also have dark, stone-hard stools. Will see my endocrinologist next week. When in my 30s, took Synthroid for 16 years with no problems, then all went as above. Took Levothyroid by Forest for 4 years with no problems until it was taken off the market about 2 years ago."

• Jew...
• Taken for 1 to 6 months
• July 27, 2018

Levothyroxine "Had started on Synthroid after thyroidectomy. Felt terrible for 2 years. Went on WP Thyroid & was doing fairly well on that for 2 years until the shortage. Started out on 112 dose. This was too high, but so far I'm feeling good on 100 dose. Better than when I was on any of the 3 desiccated thyroid meds I had tried (WP, NP, Naturethroid). So glad they make this! My only comment is 28 pills in a refill. I get mine every 90 days, so I'm shorted. It's not logical."

• Ang...
• Taken for 1 to 2 years
• January 29, 2020

"I had a total thyroidectomy in June 2018 after being diagnosed with cancer. I was put on levothyroxine. Ever since, I have felt absolutely horrible. I feel the worst possible. Anxiety, tremors, mental confusion, shaky legs, hyperventilating, chest pain. Hand cramps. Feeling like I'm going to pass out. Can't drive without feeling disoriented. Several trips to the ER, MRIs, CTs, dozens of trips to the doctor. Chalked it up to just not having a thyroid until I read others had the same symptoms. My levels keep coming back too high. They keep lowering every six weeks. I feel like I'm poisoned. I have asked my doctor to switch to Synthroid from levothyroxine. If that doesn't work, we'll try something else. We will see how it works. Just want to feel normal again. Please...."

• Jak...
• April 27, 2017

Levothyroxine "After my thyroid surgery, I was put on Synthroid. I continued to get worse until I was nearly totally bedridden. I did some research, and after several months, found a doctor who prescribed medications other than Synthroid. I started taking a natural desiccated thyroid (NDT) medicine. Within two weeks, I woke up and felt like getting out of bed. I continued to improve, however, my strength never came back. I am totally confined to a wheelchair now."

• Lad...
• Taken for 2 to 5 years
• July 11, 2023

Levothyroxine "I've been on Tirosint for roughly 3 years. I was on NP before, and Synthroid before that. I had a TT 8 years ago. I've lost nearly 50 pounds. This is the most normal I've felt after my surgery. I still have some dislikes about Tirosint, but I choose this over the others. One of the things on Tirosint is if my levels are off, even just a smidge, my menstrual cycle will go haywire. Sometimes stopping altogether. I also feel I deal with more anxiety. This was something I noticed after my surgery but is more prominent on Tirosint. I try to counteract that by taking an omega supplement. Also, I started to develop hives just a few hours after taking it. The endo said Tirosint wasn't the cause, but I had literally fasted from everything but water for 48 hours to try to figure the hives out. After speaking with the pharmacist, they advised me to take it with coffee first thing in the morning. That did the trick. Tirosint is very potent, so have labs checked every 4-6 months."

• Dan...
• December 13, 2010

Levothyroxine "I have used Levothroid and Synthroid. I am currently on Levothroid. It does okay, I have been able to maintain a normal life, although I have bad joint pain now after 18 years of use. I have more memory problems now than I did before, especially names. And I have lost bone height. I am over an inch shorter now than I was before. I am only 52 and had my thyroid removed due to cancer 18 years ago."

• hwu...
• November 25, 2013

"One month after being on levothyroxine (only 25 mcg), my hair started to fall out like crazy. (Did not have hair loss problem before). I lost 40% of my hair volume in the 4-month period. I took my courage to stop taking it. Two days after stopping, my hair loss has gradually subsided. Three weeks after I stopped the medicine, my hair loss has started to go back to normal. I am hoping my hair will grow back. Another side effect I suggest from the medicine is that I have a 'burning & dry mouth.' That made me very uncomfortable. I feel like a normal person without the medicine. I still have issues with the dry mouth sensation, but a lot better. I hope it will go away."

• Vin...
• Taken for 1 to 6 months
• June 6, 2016

Levothyroxine "I had my thyroid out in Feb. of 2016. I was put on 125 mg of generic Synthroid. My blood sugar was dropping below 50 on a daily basis. I looked the problem up on the internet and found that people had the same problem and advocated that I take the brand-name drug to correct the problem. For the past two months, I have been on the name brand, and I seem to be leveling out in the high 60s with my sugar, which is okay. I am stuck paying the extra charge not covered by my insurance, roughly $32 per month for 30 pills. Have had no weight gain yet, which I am very happy about. I am going to ask my doctor at the end of this month to increase my dosage to bring my sugar up into the 80s or even 90s where it belongs."

• SPA...
• Taken for 6 months to 1 year
• April 16, 2020

"Total thyroidectomy following Graves' substernal goiter 8 months ago. On 175 mg Levothyroxine. Felt good, but as the months go by, a host of symptoms: intense moods/anger, depression, spinning thoughts; hair loss, brittle, no curl, dry; diminished eyesight, dry, irritated; bone pain; hot poker nerve pain in feet; muscle cramps; tendon disturbances; Charlie horses in legs/rib cage!!; hot/cold flashes; itchy skin; swollen, itchy neck; diarrhea; joint pain swelling; and now shoulder blade hot poker pains. Insurance forced Levothyroxine first... I want to switch. Would love to have recommendations. I'm 70 but have always felt pretty good until now. Supplements of calcium and D3 have helped some. Also taking zinc, magnesium, and potassium - helping? Hurting?"

• Jos...
• August 1, 2016

Levothyroxine "After trying three different medicines and a countless number of dosage combinations, we found out that my body was not absorbing the tablets properly, and the gel capsules allow my body to absorb the proper amounts. After having thyroid cancer at 15 and not being able to find anything that really worked, I'm glad we tried this. The only downside is the cost since it is almost triple what I have been paying for every other medication."

• Jen...
• Taken for 1 to 6 months
• September 16, 2012

"I've been on this medicine for more than 4 months. Not feeling any better at all. More tired, and more hair loss is what I've been experiencing. Still feeling no motivation, lethargy, and depressed/isolated."

• Red...
• Taken for 1 to 6 months
• February 16, 2020

Levothyroxine "I started on levothyroxine after my thyroidectomy due to cancer. After about 7 months, I decided to switch to a brand name, and my doctor picked this. While my body adjusted to the new stuff, I felt awful. I had a couple of days I felt really good, and then, boom, it all went downhill. My period was four days early and horrible. I also became extremely anxious and depressed. This med is not right for me, and I am hopeful to get to switch and try something new. If I have to be on it for life, better make sure it suits my body."

• Ear...
• August 7, 2011

Levothyroxine "Synthroid seems to work well, but still working to get to the correct dosage. Currently, my dose is too high and I see my doctor next week to adjust. Feel fine, but have daily armpit and back sweat. Will be really glad when that stops as it's difficult to work at client sites when your shirt is soaked."

• Dre...
• Taken for 5 to 10 years
• November 27, 2017

Levothyroxine "I've had my thyroid removed for over ten years now. I've taken generic thyroid medicine, Synthroid, and now Tirosint. The dye in my Synthroid kept me from getting regulated. My body responded well to Tirosint for about 5 consecutive years. Due to insurance changes, I got off of it last year and got back on this year when my physician made a few calls to assist me. To my dismay, Tirosint is not working for me, even with me taking Cytomel to help me digest and absorb it. I'm tired, have thinning hair, levels are at 8.999, and I'm sweating with every movement. I'm quite disappointed that I can't get regulated."

• fir...
• Taken for 2 to 5 years
• October 2, 2016

Levothyroxine "I was 1st diagnosed with hyperparathyroidism. The doctor said it wasn't bad to just watch it. After a couple of years, it got worse - I saw another doctor, and he did 6 biopsies - found that I had papillary cancer. Following month, I had my thyroid and 2 parathyroids removed. The surgeon put me on 100 mcg of generic Synthroid - seemed to be doing okay until I had the RAI, twice, then everything messed up. I was still having hair loss, ears ringing, teeth getting bad, bathroom habits were never the same, cramps, affected my salivary glands permanently, so I'm dry all the time. Plus, I've put on 25 lbs. I eat, I don't eat, it doesn't matter, the weight will not come off. The endocrinologist changed my dosage to 112 mcg, and I seemed to be doing better. I am back to 100 mcg with previous symptoms."

• Dar...
• Taken for 1 to 6 months
• September 4, 2021

Levothyroxine "I have Hashimoto's, and I've had half my thyroid removed (thanks to Midwest doctors who never even tested for Hashimoto's before assuming it was cancerous and removing it…). Anyway, I've had a horror story of a life with my thyroid. I went years after they removed half with no medication at all because they told me my other side would work on its own. It didn't. Lost babies, felt like rubbish for years. I read all the stories on the internet that said Armour was the best, and I was pregnant and didn't want to lose another baby, so that's what I did. I was on Armour from 2010-2021, and for some reason, Armour just stopped working for me in 2020 despite huge dose increases. Switched to Tirosint and Cytomel combo, and it's been 5 weeks, and I don't think my dose is perfect yet, but I'm becoming more regular and less constipated, my breasts aren't sore all the time, and it's day 28 of my cycle, and I don't feel like a run-down mess!!! Tirosint is awesome!!!!!"