Repatha and Pain: What Users Say (Page 3)

• Sai...
• Taken for 1 to 6 months
• January 26, 2019

For High Cholesterol "Took injections for three months, last one Nov. 15, 2018. Leg pain, weak, walk like 90-year-old bag lady for three weeks afterwards. Then, shoulder pain for three weeks. Could not roll over in bed. Now, Jan. 25, have had four weeks of hand pain. Have a shoebox full of creams, horse liniment. Only relief, 10 mg opioid and 4 aspirin, good for 4 hours of sleep. One hand swollen, one burning nerve, both swollen, painful joints. Doctors have no suggestions, maybe a cortisone shot in the wrist, ouch! or surgery. To my body, this Repatha is poison!"

• Sai...
• Taken for 1 to 6 months
• January 26, 2019

For High Cholesterol "Took injections for three months, last one Nov. 15, 2018. Leg pain, weak, walk like 90-year-old bag lady for three weeks afterwards. Then, shoulder pain for three weeks. Could not roll over in bed. Now, Jan. 25, have had four weeks of hand pain. Have a shoebox full of creams, horse liniment. Only relief, 10 mg opioid and 4 aspirin, good for 4 hours of sleep. One hand swollen, one burning nerve, both swollen, painful joints. Doctors have no suggestions, maybe a cortisone shot in the wrist, ouch! or surgery. To my body, this Repatha is poison!"

• Bri...
• March 15, 2018

For High Cholesterol "After taking Repatha for several months and developing intense neck and shoulder pain, I discontinued the medication for several months. The pain got better. My doctor convinced me to try it again. After two injections, I developed extreme muscle weakness, pain in my shoulders, knees, rash, sinusitis. After an extremely embarrassing experience at Disneyland where I couldn't get out of the Matterhorn ride because I had absolutely no strength in my legs, I discontinued Repatha. I will never take it again. Extreme pain and muscle weakness vs high cholesterol. I'll take my chances with the high cholesterol."

• Sar...
• December 15, 2017

For High Cholesterol "I cannot take statins due to allergies as well as flu-like symptoms, so I was hoping Repatha would be a godsend. Well, that didn’t happen. Soon after taking Repatha, after each injection, I experienced the following debilitating reactions: severe lower back pain, knee pain, extreme pain under both feet, and severe dry eyes! And what’s crazy is the fact that I had to get cortisone injections as a nerve block in my lower back to counteract this medication. And it didn’t work! This really conveys what Repatha can do to your body and its negative side effects! Seek alternatives, please."

• sai...
• Taken for 1 to 6 months
• July 27, 2019

For High Cholesterol "I took Repatha injections for 3 months. I then had weak, painful legs. I dropped my Harley. Leg pain for a month. Hard to walk. Went to Dr. for pain meds, which were not effective. Pain went to shoulders for a month. Could not roll over in bed, hard to get out of bed for a month. Pain went to hands and fingers, tried all pain meds sold OTC. Went to six Drs. Only a 10 mg hydrocodone and 4 aspirins would give me 4 1/2 hrs sleep. Fingers on fire. Had to doctor shop for opioids, did electro nerve test, back to Dr., gave me a shot in both wrists, almost painless Tulsa Dr., finally sleep all night! Carpal tunnel surgery on left hand in April, left hand is about 50%, weak, stiff, sore. Right hand healed up okay. About 90%. Heart Dr. and his nurse say no side effects. I take no other drugs. Mid-Nov. last injection, now end of July. Left hand still stiff, sore, weak eight months. Yep, had other symptoms also, raised BP, etc. Maybe permanent nerve damage."

• sai...
• Taken for 1 to 6 months
• July 27, 2019

For High Cholesterol "I took Repatha injections for 3 months. I then had weak, painful legs. I dropped my Harley. Leg pain for a month. Hard to walk. Went to Dr. for pain meds, which were not effective. Pain went to shoulders for a month. Could not roll over in bed, hard to get out of bed for a month. Pain went to hands and fingers, tried all pain meds sold OTC. Went to six Drs. Only a 10 mg hydrocodone and 4 aspirins would give me 4 1/2 hrs sleep. Fingers on fire. Had to doctor shop for opioids, did electro nerve test, back to Dr., gave me a shot in both wrists, almost painless Tulsa Dr., finally sleep all night! Carpal tunnel surgery on left hand in April, left hand is about 50%, weak, stiff, sore. Right hand healed up okay. About 90%. Heart Dr. and his nurse say no side effects. I take no other drugs. Mid-Nov. last injection, now end of July. Left hand still stiff, sore, weak eight months. Yep, had other symptoms also, raised BP, etc. Maybe permanent nerve damage."

• sai...
• Taken for 1 to 6 months
• July 27, 2019

For High Cholesterol "I took Repatha injections for 3 months. I then had weak, painful legs. I dropped my Harley. Leg pain for a month. Hard to walk. Went to Dr. for pain meds, which were not effective. Pain went to shoulders for a month. Could not roll over in bed, hard to get out of bed for a month. Pain went to hands and fingers, tried all pain meds sold OTC. Went to six Drs. Only a 10 mg hydrocodone and 4 aspirins would give me 4 1/2 hrs sleep. Fingers on fire. Had to doctor shop for opioids, did electro nerve test, back to Dr., gave me a shot in both wrists, almost painless Tulsa Dr., finally sleep all night! Carpal tunnel surgery on left hand in April, left hand is about 50%, weak, stiff, sore. Right hand healed up okay. About 90%. Heart Dr. and his nurse say no side effects. I take no other drugs. Mid-Nov. last injection, now end of July. Left hand still stiff, sore, weak eight months. Yep, had other symptoms also, raised BP, etc. Maybe permanent nerve damage."

• Bar...
• Taken for 6 months to 1 year
• March 20, 2018

For High Cholesterol "Since my doctor told me there were no side effects with this drug, I was convinced that my back pain, hip, and leg pain must be from some other problem. When the pain became so severe, I went to an orthopedist who took X-rays and couldn’t find any abnormality other than severe weakness in my left side and suggested I use a cane! Nothing helped with pain. I started developing hand weakness and even had trouble opening jars! I started to suspect that maybe my doctor was wrong, but he insisted that there were NO reports of these side effects with this drug. I stopped the drug anyway, and after 8 months of pain, my symptoms are subsiding! Hopefully, this drug has not caused any permanent damage."

• Ref...
• Taken for 1 to 6 months
• October 31, 2019

For High Cholesterol "Using Repatha for approx 6 months because me, statins, and my kidneys weren't friends. Pain in my shins (feels like shin splints), excruciating hip pain especially when sleeping (I'm a side sleeper). Pain in thighs as well, hard to walk and get up from sitting. Always feel sore, like I've been beaten up. Back pain, not just lower back but all over. Shoulder and neck pain, could barely turn head far enough to check oncoming traffic when making a right turn. Night sweats. Heart palpitations in the middle of the night. Increased bathroom trips at night. Intermittent diarrhea. It just kept getting worse. As I read the reviews, I have to believe this has been brought on by the bi-weekly injections. Testing for Lyme disease to rule that out. Repatha was great for my numbers, but it's much too painful to continue."

• Ref...
• Taken for 1 to 6 months
• October 31, 2019

For High Cholesterol "Using Repatha for approx 6 months because me, statins, and my kidneys weren't friends. Pain in my shins (feels like shin splints), excruciating hip pain especially when sleeping (I'm a side sleeper). Pain in thighs as well, hard to walk and get up from sitting. Always feel sore, like I've been beaten up. Back pain, not just lower back but all over. Shoulder and neck pain, could barely turn head far enough to check oncoming traffic when making a right turn. Night sweats. Heart palpitations in the middle of the night. Increased bathroom trips at night. Intermittent diarrhea. It just kept getting worse. As I read the reviews, I have to believe this has been brought on by the bi-weekly injections. Testing for Lyme disease to rule that out. Repatha was great for my numbers, but it's much too painful to continue."

• Ref...
• Taken for 1 to 6 months
• October 31, 2019

For High Cholesterol "Using Repatha for approx 6 months because me, statins, and my kidneys weren't friends. Pain in my shins (feels like shin splints), excruciating hip pain especially when sleeping (I'm a side sleeper). Pain in thighs as well, hard to walk and get up from sitting. Always feel sore, like I've been beaten up. Back pain, not just lower back but all over. Shoulder and neck pain, could barely turn head far enough to check oncoming traffic when making a right turn. Night sweats. Heart palpitations in the middle of the night. Increased bathroom trips at night. Intermittent diarrhea. It just kept getting worse. As I read the reviews, I have to believe this has been brought on by the bi-weekly injections. Testing for Lyme disease to rule that out. Repatha was great for my numbers, but it's much too painful to continue."

• Ref...
• Taken for 1 to 6 months
• October 31, 2019

For High Cholesterol "Using Repatha for approx 6 months because me, statins, and my kidneys weren't friends. Pain in my shins (feels like shin splints), excruciating hip pain especially when sleeping (I'm a side sleeper). Pain in thighs as well, hard to walk and get up from sitting. Always feel sore, like I've been beaten up. Back pain, not just lower back but all over. Shoulder and neck pain, could barely turn head far enough to check oncoming traffic when making a right turn. Night sweats. Heart palpitations in the middle of the night. Increased bathroom trips at night. Intermittent diarrhea. It just kept getting worse. As I read the reviews, I have to believe this has been brought on by the bi-weekly injections. Testing for Lyme disease to rule that out. Repatha was great for my numbers, but it's much too painful to continue."

• Lvp...
• Taken for 1 to 6 months
• February 7, 2018

For High Cholesterol, Familial Heterozygous "Drug definitely works if you can live with horrible side effects. They started after the 3rd injection and progressively worsened, including severe back and shoulder pain, fingers, and joints. Also, upset GI tract. Two weeks after the last injection, I am still in great pain and hope this has not ruined my quality of life. I have stopped the med and notified the company and FDA of these side effects."

• Lu ...
• Taken for 1 to 6 months
• January 13, 2019

For High Cholesterol "I took a total of 6 injections of Repatha beginning in the middle of March 2018. It is the worst mistake I ever made. Yes, it lowered my cholesterol, but the side effects it gave me are intolerable. It is now the middle of Jan 2019, and my pain in my neck, back, and legs keeps getting worse. I was told it would leave my body in 3 months, but that has not happened. I’m afraid I will have to live like this."

• Cyn...
• September 21, 2019

For High Cholesterol, Familial Heterozygous "The worst experience. Don’t take it. Am going to report to FDA. Bad drug, can’t use left leg, gives out on me, severe muscle pain all over, pelvic pain where leg joins body, affected area back and severe nerve pain, tremendous pain over the last 3 months, causes tremendous issues with muscles. Apparently, a lot of trials not reliable. Is appalling! Don’t know if I will ever get better. So debilitating."

• Anonymous
• Taken for 1 to 6 months
• July 27, 2022

For High Cholesterol, Familial Heterozygous "I have taken 7 injections of Repatha. I started with the 2-week injections, which caused side effects of leg, ankle, shoulder pain, and also a runny nose. I decreased the injection to once a month. I have muscle pain, and now severe diarrhea, nausea, which started within 12 hours of injection. I'm weak, and my legs hurt. I will never take this poison again. I hope I get through this."

• Anonymous
• Taken for 1 to 6 months
• July 27, 2022

For High Cholesterol, Familial Heterozygous "I have taken 7 injections of Repatha. I started with the 2-week injections, which caused side effects of leg, ankle, shoulder pain, and also a runny nose. I decreased the injection to once a month. I have muscle pain, and now severe diarrhea, nausea, which started within 12 hours of injection. I'm weak, and my legs hurt. I will never take this poison again. I hope I get through this."

• Anonymous
• Taken for 1 to 6 months
• July 27, 2022

For High Cholesterol, Familial Heterozygous "I have taken 7 injections of Repatha. I started with the 2-week injections, which caused side effects of leg, ankle, shoulder pain, and also a runny nose. I decreased the injection to once a month. I have muscle pain, and now severe diarrhea, nausea, which started within 12 hours of injection. I'm weak, and my legs hurt. I will never take this poison again. I hope I get through this."

• Pat...
• November 12, 2018

For Cardiovascular Risk Reduction "I was one of the original people in the blind study. At the time, I was a caretaker, and I started getting terrible back pain, but I attributed it to lifting my husband. The pain continued. After a year, my husband passed, and my back pain got worse, and then the leg pain started. I went to many doctors, and no one could find a problem. I even had cortisone shots, which did not help. After researching all my medications, I finally came to the conclusion that it might be Repatha. I decided to stop it for a few months. It didn’t seem to stop, but it did get a little better, but not enough for me to stop it altogether. I decided to go back on. Two months later, after four shots, it is worse than ever. I can hardly walk. After reading some more, I realized that I didn’t give it enough time. I am going off it again. Hopefully, the pains will go away. I read that it could take up to a year to completely go away, if at all. When I was on the drug, the expense was covered by the study. I am still on it."

• Rub...
• Taken for less than 1 month
• October 28, 2019

For High Cholesterol "I have taken 1 injection of Repatha, it's been 6 days now. I have had the worst cold and flu for the first 3 days. I never have the flu or cold, which was unusual for me. Since Repatha, I have had pain in the back of my head, behind my ears, in my jaws, the pain comes and goes. Also, I have had raised blood pressure, which I have never had. I have been getting frequent dizzy spells and cold chills every day since the injection 6 days ago. Won't be taking the second injection. Hope the side effects stop soon."

• Maj...
• Taken for less than 1 month
• August 2, 2018

For High Cholesterol "1 shot Repatha 3 months ago, and at first I didn't feel I had any side effects. Then I started having pain in my hip and groin area and kept getting pain, which I thought was my lower back that was acting up. I couldn't afford the $1,800 copay, so I couldn't afford it. My family doctor gave me another sample injection 2 weeks ago. This time, all my joints are painful, I can hardly move my hip at all. The pain in my groin is much worse, my wrists and knees, which never hurt, are in pain, and I realize now it's this drug. I'm worried how long it's going to take to get out of my system and if all of this is reversible. I absolutely can't take this one. It is not any better than anything else I've tried. On the positive side, my cholesterol went down the first time I took the injection by around 80 points, so it does work, but the side effects are not worth it. I don't want to be a cripple, I can hardly get out of bed."

• hel...
• Taken for less than 1 month
• May 22, 2023

For High Cholesterol, Familial Heterozygous "This is said to be the wonder drug, however, my past with statins and non-statin shows otherwise. Shortly after the second injection, I had flu-like body aches and generally felt unwell. I feel it affected the quality of my life. I'm stopping immediately. I'm hoping there is something else that can help me."

• JoH...
• Taken for 6 months to 1 year
• April 28, 2018

For High Cholesterol "I am an active and youthful 65-year-old woman with a history of high cholesterol (high of 270) since menopause. Tried all the usual drugs, but had severe symptoms of foggy brain. In the interim, I had a cardiac cath, and they found my widow maker already had 30% plaque. Dr. recommended Repatha, which I have been injecting for 9 months. I have started experiencing muscular issues around my knees and feet, which cause pain, weakness, and joint pain. Symptoms are very noticeable the first week after the injection and then decrease somewhat. I am going back to the doctor this week and contemplating going off this drug. This has really affected my mobility - I feel like my legs are that of an 85-year-old. I am curious about my ligaments and tendons after reading some of the previous patient experiences. I am very sad that I was told this drug was without side effects. Patient - beware."

• Anonymous
• Taken for 1 to 6 months
• September 4, 2021

For High Cholesterol "I had tried different statins with terrible side effects, and my doctor recommended Repatha. I have taken it for 3 months, and I can hardly walk or move my arms without pain. I am wondering why this drug was ever put on the market. I know many people with the same side effects. Can the medical world find something for high cholesterol that is tolerated without having to deal with painful side effects?"

• Bet...
• Taken for 1 to 2 years
• March 5, 2018

For High Cholesterol "So much pain after I started taking Repatha. Lowered my cholesterol, but you have to decide if you want to die from pain or high cholesterol. So many side effects from this stuff, but heart doctors only see cholesterol numbers, they don't worry about pain."