Repatha and Headaches: What Users Say (Page 2)

• kei...
• Taken for 1 to 6 months
• July 16, 2022

For Cardiovascular Risk Reduction "I'm from the UK. I wasn't tolerant to statin tablets. I had started on 80 mg atorvastatin, then my dose went down to 40 mg. I then got changed to pravastatin 10 mg - still no joy, joint pains all the time. I was then put on Repatha, and within 2 weeks, my cholesterol went from 5.3 down to 3.4, no side effects. That was early days, but then over the weeks, my joints started to hurt, I had constant headaches, UTI infections, collapsed lung, throat infections, post-nasal drip, severe low back pain. I can't walk from one end of the house to the other without pain. I have chest pain, but I also suffer musculoskeletal issues, so hard to say if it's Repatha causing that pain, but it probably is. I got blurry vision, now a tingling in my left arm and leg, and sometimes in the face. I've done urine tests that have shown my liver has issues. Now 16/7/2022, 3:28 am, and I haven't slept properly for months due to my anxiety and depression being at an all-time high. I just don't know which way to turn. I get no help from GP or hospital and don't know who to report it to."

• Ira...
• Taken for 6 months to 1 year
• January 4, 2022

For High Cholesterol "While Repatha did lower my cholesterol significantly, I suffered from severe fatigue, headaches, low backache, and an overall feeling of being not well. My symptoms slowly cleared up after about six weeks post my last dose."

• sno...
• Taken for 1 to 6 months
• September 1, 2019

For High Cholesterol "I took Repatha every two weeks for 9 doses. Labs were much better for cholesterol. But developed headaches, which lasted 3 weeks, and a runny nose, aching joints in the right elbow and right knee. Right elbow better since the medication was stopped, but right knee and leg still very painful after 3 weeks off the medication."

• Ron...
• December 7, 2017

For High Cholesterol "It was suggested that I try Repatha, as I had issues with Lipitor, Advicor, Crestor, and Zetia. I have had multiple heart stents, with the last stent installed in Dec of 2016, and was considered high risk. My cholesterol was at 192, HDL 39, and LDL 70. After taking Repatha, cholesterol was reduced to 96, HDL raised to 44, and LDL lowered to 52. Along with the good change in the blood test numbers, I have found myself with the following issues: mild headache, runny nose, scratchy throat, leg and stomach cramping, lower back and neck pain, flu-like symptoms, and heart palpitations. I just feel really lousy. I took three injections (two weeks apart), and then stopped. Five weeks later, I took another injection, and this is how I feel."

• LLL...
• Taken for 1 to 2 years
• August 12, 2018

For High Cholesterol "I started taking Repatha 140 mg every 2 weeks in 2016. My cholesterol was 320. I had been taking other cholesterol drugs, but they did not reduce my numbers. I’m 71, and when I started Repatha, I did not connect my headaches, neck pain, and fatigue to the drug. Around three weeks ago, I started having leg pain, knee pain, leg cramps, and leg weakness. The pain is so bad I can hardly walk. Tomorrow, I see my cardiologist, I will ask if there is something else I can take. The Repatha did bring down the cholesterol back to normal."

• Kat...
• Taken for less than 1 month
• November 9, 2021

For High Cholesterol "I took Repatha Pushtronex on Feb. 15, 2021. I had to go to the ER, with leg swelling, itching face, had an X-ray of lungs, coughing, couldn't breathe or swallow, my face was bright red, headache, and high BP. In the following days, I could not urinate, had back pain, hard bladder, went to urologist, and urine was clear, put on cranberry, probiotics, prebiotics. Saw gynecologist because of pain in belly and ordered a sonogram, but it was still bladder/back pain. My face broke out, DRAINING visits to the dermatologist went through 4 tubes of hydrocortisone valerate, no relief. Went to GP, she sent me back to the dermatologist and on clindamycin face gel and pills for my face as it looks to be bad acne. Never had my face look like this. On Benadryl, itching, burning since Feb. and it's Nov. 9th! I am suffering. Cardiologist has no answer. Repatha 800# says, 'We don't know when it will get out of your system, it lingers.' 9 months? POISON."

• Suc...
• Taken for less than 1 month
• November 13, 2021

For High Cholesterol "On July 31st, 2021, I had triple bypass surgery. My cardiologist has been wanting me to take statins. I have tried them all, and all had bad side effects. Finally, I was sent to see a doctor that dealt in basically just medicine. I took my one and only injection of Repatha on October 11, 2021. I am still trying to recover. Blood pressure went from 120/70 to 189/88. I hurt all over. I could hardly climb stairs. My back hurt, sinus infection, extreme headache, blurred vision, felt terrible, and my injection is still sore. It is November 11th, and I still have a headache. I was told there were little side effects. Do your research if you consider this medicine. I feel worse now than I did before I had the bypass. Repatha set me back at least a month. It took my primary care physician to get me back on the road. It takes 60 to 90 days to get this mess out of your system."

• Bea...
• Taken for 1 to 6 months
• February 11, 2021

For High Cholesterol "I’m 68, active female. High cholesterol of 350. I’ve taken the Repatha shot twice after trying Praluent a year ago. The injection stung more than Praluent. Small headache most days, but not terrible. Runny nose and small cough every day. Started with dizziness within three days. Vertigo soon after. Hard bumps, rash on my back. Within ten days, I had fatigue and malaise. Stopped my daily walks. Muscle soreness, not terrible. Breathing difficulty sometimes, like I was at altitude. Weird pangs in my heart started the third week. Sleep apnea during afternoon naps. I'm not taking my scheduled dose this week. It’ll take 60-90 days to be out of my system. I can’t wait. I’m sure it helps with my LDL as the Praluent did a great job too, but at what cost? I’ll go back to Crestor and deal with its side effects again. This drug is scary. Monoclonal antibodies for my liver? No thanks."

• Raz...
• Taken for less than 1 month
• March 10, 2022

For High Cholesterol "Took one injection last Saturday for 5 days. I had a headache, lost 13 lbs, no appetite at all, leg tingling, stuffed-up nose at first, then nose ran like a faucet. Felt weak, no stamina, and my cardio doctor thinks I’m a hypochondriac! Praulent never bothered me for the past 5 years. The insurance company won’t cover Praulent, so I got stuck with this terrible drug! WTH, it’s all about money, not patient care."

• Zar...
• September 13, 2021

For High Cholesterol "I started having body aches with severe headaches, coughing, and chills, back pain. My blood pressure went high, been weak all day, and I'm going through the second day, not sure how long this will last, but I hope you don't delete my comments."

• Anonymous
• Taken for 6 months to 1 year
• August 23, 2021

For High Cholesterol "I started Repatha about six months ago. I have had bronchitis, an infected cyst, and this weekend I was sick in bed with fever, headache, and chills, and a large lump under my chin from the left side. I am tired of being sick and am stopping it immediately."

• Jay...
• Taken for 1 to 6 months
• August 2, 2021

For High Cholesterol "My LDL reading in Canada was 2.22. I was on 30 mg of Rosuvastatin. This is the max I could tolerate without severe screaming leg cramps. Two days after my first Repatha injection (one every two weeks), I had a list of side effects: severe sinus issues, bad headache, especially if bending down, severe sore throat, heart palpitations. This went on for 7 to 10 days. After my fourth injection, it got bad. The cholesterol that protected my nerves was depleted, and my nerves lit up like a Christmas tree. I had major nerve neuropathy in my feet and hands, and my nerves in my muscles would spike in pain. My heart murmurs went to atrial defibrillation. I had my LDL tested, and my LDL went from 2.22 to 0.54. My cardiologist was targeting 1.5. The Repatha had stripped out all the cholesterol the body needs to protect my nerves and organ function. I am off Repatha and Rosuvastatin until my body can recover. I was told there were mild side effects. Thank you."

• dog...
• Taken for 1 to 6 months
• January 11, 2016

For High Cholesterol, Familial Homozygous "Fatigue, headaches, muscle aches."

• DJW...
• Taken for 1 to 6 months
• March 12, 2025

For High Cholesterol "While this drug does what it is supposed to do, lower cholesterol, the side effects were unbearable. Back pain, shortness of breath, headache, muscle pain, severe fatigue."

• Dan...
• Taken for less than 1 month
• December 17, 2019

For High Cholesterol "I used it once, and now I have constant neck pain and headaches. It's terrible, and I think a heart attack would be better than feeling this pain for the rest of my life."

• ray...
• April 9, 2023

For High Cholesterol "Tried a 140 mg injection the first time. I felt very sick that night, with foul gas and nausea, and now left with back and leg pain and a constant headache."

• Anonymous
• Taken for 6 months to 1 year
• March 21, 2024

For High Cholesterol "Having lots of the side effects: dry mouth, runny nose, sore throat like a cold, ears, dizzy, leg pain, fainting. Diarrhea, headache, backache."

• Ger...
• Taken for less than 1 month
• June 23, 2024

For High Cholesterol, Familial Heterozygous "Raised blood pressure, raised sugar levels, and headaches, blurred vision."