User Reviews for Prolia
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Learn more about Prolia.
Reviews for Prolia to treat Osteoporosis
"1 shot, due another in August and wondering. Constipation very severe, fatigue, hip pain, upper arm pain and shooting pains in head. I do not know if there are other options available and scared to take second shot in case things get worse."
G109 July 20, 2016
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"Can anyone tell me how long it stsys in your system please? Had only one injection, won't have another but want to know if these awful side effects will subside in time now that ive decided to stop them. Thankyou."
C.Moore. July 10, 2016
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"Various side effects including fractures in both feet and bad pain and aching in right leg making it almost impossible to walk and keeping me awake and in pain. It is time for my third Prolia shot and I have suffered from this for two months and am no better. This has not been a positive experience but a bad and painful one leaving me unable to get out and preform any daily task or functions."
Lake woman (taken for 1 to 2 years) July 10, 2016
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"After getting my 2nd Prolia injection, I've had the worst 4 months of my life!! Within a couple weeks, I went from a very young 70 yr old to a 90 year old woman. My back and hips have been so painful, that I have to wear a stiff back support to be able to move. Even with this, I can't stand up straight. I am awakened at night because of the pain and I can't turn over in bed. I am constantly achey and tired. Before Prolia, I was extremely active. I worked with a personal trainer twice a week for six months, before the 2nd injection, but now, I have probably lost all the muscle, strength and flexibility I gained. I put my gym membership on hold, until I can move, again, without pain. Prolia is the worst!!!!!"
GramJ2many (taken for 6 months to 1 year) June 27, 2016
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"I am having severe jaw pain, almost unbearable. It is one of the most horrible experiences I have ever gone through. Will not take this drug again. What is strange is that I didn't have a problem until after the second shot. Since then have not only teeth pain but sick with sore throat and cold. Also bad digestive problems."
Jude j June 13, 2016
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"I did not know nor was I given any information on this injection. About 1 month in I experienced hair loss in places. Have a tingling around the lips. I felt very nauseous on and off out of the blue. Am very tired and just cannot get rid of chest infection/cough which just seems to be on loop... I think it's clearing up then it hits again. I will not get this injection again. Nothing is conclusive about the cause of what I am experiencing."
Prolix May 30, 2016
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"This has been the worst experience of my life. Two shots of Prolia and nothing but constant pain. Every bone in my body hurts, literally. I feel just awful all day long. Tired, washed out, constant pain that has been, at times, debilitating. Had to use crutches for two days when I developed severe hip pain and again when I developed sever knee pain. I am eating ibuprofen like it was a bag of M & M's. My cholesterol went high and I have never had a problem with cholesterol in my life (found out that it was yet another side effect). I have been to the ER twice and the walk-in clinic three times since starting Porlia. Two shots and I am done with it, no more."
Oucheeeee! May 28, 2016
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"From the start I began to experience side effects. The most bothersome are the extreme sweating episodes followed by chills at least 12 times a day or more. In addition other side effects are more pain in my lower back and hips as well as a rash with associated itch on my upper back. I will never get another Prolia shot!!! Wish I knew there would be so much discomfort!"
MaryAnn468754 (taken for 1 to 6 months) May 26, 2016
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"I have been on Prolia for approximately two years. Just this year ( my 5th injection) I did experience sore muscle/joint pain in my hips. About 4 months ago I developed dermatitis around the corners of my eyes, nose, mouth, and along both sides of my neck. I've never had allergies before. Also, I'm dealing with a feeling of deep exhaustion. I'm not sure whether this is due to Prolix. If my next bone density doesn't show marked increase, I will ask my physician for a change in med. one note--I faithfully exercise 3-4 times weekly with a trainer, take calcium, and eat green veggies and foods with calcium/D."
Oh M May 1, 2016
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"This drug has been a nightmare . I have experienced unexplained bone pain in lower left leg and a breakout of bleeding gums and mouth sensitivity. I did not get any info from prescribing endodocrinologist except that it was a safe drug and that he had prescribed it to his mother! This has been a very expensive lesson in terms of dental cost and extremely detrimental to my health and well- being."
Diamondye April 28, 2016
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"Prolia shot given July 26, 2012!. Immediately had every dermatological problem listed in the ad:Itching, rash all over body except for face, extreme pain, dry skin, repeated biopsies, thousands of dollars for doctors, prescriptions, lotions and potions. Left calf's skin completely peeled off like the bark of a tree and has never recovered four years later!! Even now it is again broken out in oozing rashes around the ankle, but the entire leg hurts. I must keep the hair on my legs shaved very close or when I am exercising in the Y pool, the leg is painful just with the movement of the tiny hairs in the water. The pain is inside as well as on the surface of my skin. These bad side effects continue! Have pictures of early rash available."
Mary Faris Hazelworth (Actual) (taken for 1 to 2 years) April 17, 2016
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"I will never have this shot again. It made my skin loose & wrinkled. Researchers don't have a clue if this helps bones or not. I can tell you I completely reget trying prolia.And hate seeing Blythe Danner doing this commercial."
Jan Adams (taken for 1 to 2 years) April 8, 2016
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"I had my first injection Oct 2015 and due again in April. Is the 2nd shot any better than the first one. Flu like systems the first couple of days, then constant constipation, acid reflux, extremely tired, itching. My Doctor told me I could not have any dental work done while on this drug, such as root canal. What other drugs can you take ? or is natural the best way. If you speak to naturopaths they claim these drugs throw your entire immune system out. Stay away from injections."
Patricia McLaughlin (taken for 1 to 6 months) April 7, 2016
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"About 3 days after my Prolia shot, I had severe pain in my lower back, right side. Very different from regular lower back pain due to aging. My doctor prescribed physical therapy ( not believing it was due to the Prolia injection) which provided temporary relief. But guess what!!! At the 6 month point, when the Prolia was out of my system, THE PAIN WENY AWAY. Duh. In the past I took fosamax (for 6 yrs) with no side effects. But...I am done with patent medicines. Am reading the book Your Bones, and plan on following their "natural" approach. I did report my experience to the FDA; my doctor (who I really like) didn't react very seriously to my concerns, only listed it as an an allergy on my chart. Don't docs ever talk to the FDA????????"
DMD88 February 20, 2016
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"I had my second shot last April and have had problems ever since. I now have TMJ jaw bone pain. Cannot eat without pain and crunch sounds. Have to use a hot water bottle on my jaw area.I have had severe bladder pain and severe acid reflux 2 weeks after getting the shot. I also have hip and bone pain. Itching has been horrible. I don't want this shot any longer. I will take my chances. I have osteoporosis but so did my mother and she never took this stuff and she did fine."
fuckit January 15, 2016
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"I had 2 shots (1 every 6 months) for 2 years, then skipped 6 months. I plan to begin again next March for bone preservation. I want to avoid fracture risks. I had no bad side effects."
Scoliosis Granny (taken for 2 to 5 years) December 28, 2015
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"Prolia has the worst side effects of any medication on the market because it tampers with the immune system. I have had to call Amgen and the FDA numerous times for very serious side effects. This drug should be taken off of the market until Medical Doctors learn how to combat it. Once it's in, there is nothing they can do. In all reality, it is a chemo drug as it's twin Xgeva just has more of the active ingredient in it."
Pood October 28, 2015
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"HORRIBLE side effects! Loose tooth, needed extraction. Dentist found a healthy root, no problem with tooth. Lumps formed in several places. Rashes, shortness of breath. Hoarseness, headaches, joint pain...many more complaints."
angry in n.m. August 25, 2015
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"So far I have had two shots and am due for my third one next week. I have not had any side effects at all. In fact, strangely, before my first shot I would have constant dull aching and soreness/pain in my hips and pelvic area. Within a month of my first shot that was gone. It returned a month before my second shot and again left once that shot got into my system. Again, this last month the pain has returned and I am due for the shot next week so I hope the pain goes away again. I know that Prolia isn't meant to help with pain, but it seems to be doing something there for me. I am not due for a DEXA until 2016 so I don't yet know how effective it is for my bones yet."
Robinwomb (taken for 1 to 2 years) June 12, 2015
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"I , too, had the constant itching and felt like something was crawling on me. I used Gold Bond extreme moisture lotion which helped somewhat. I gained 15 pounds in a matter of 2 weeks, shortness of breath on exertion, and confusion. This was only my first injection and I am due for a second in 2 months but not sure I want to go this route again. This is a monoclonal antibody not a drug and it affects the body differently than a drug. There is no antidote for this if you have a reaction, so you are stuck with the problems for quite some time."
Aussiemom May 27, 2015
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More about Prolia (denosumab)
- Other brands: Xgeva