User Reviews for Prolia
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Learn more about Prolia.
Reviews for Prolia to treat Osteoporosis
"Had mild hip pain before , but after the prolia injection it increased to a full blown 10 in pain :( feels like my bones actually have gotten weaker while on this medication."
Esvergara21 (taken for 1 to 6 months) June 10, 2017
4 users found this comment helpful.
"I submitted my first review on April 13. Today it's June 4 th and still SUFFERING with daily pain from the drug."
Suse 50 (taken for 6 months to 1 year) June 4, 2017
47 users found this comment helpful.
"Three days after receiving my first Prolia injection I developed a cough, which turned into bronchitis & was treated with antibiotics - bad luck, a coincident I thought. A month later my life change with severe bone pain in my right jaw, I had lock jaw 5 times. Pain in my right shoulder, ribs, my neck was so stiff, but worse was my lack of immobility, my morning walk to the bathroom was just like watching Frankenstein walk, I couldn't move any faster because of the pain. Getting on the toilet one off the toilet was a major event. Turning in bed was excruciating and sometimes impossible, this lasted the whole of the summer 2015, which eventually tampered off to where I am today. Worst experience of my life. No more Prolia for me."
Tillygirl May 30, 2017
29 users found this comment helpful.
"Insomnia, fatigue, confusion"
Bug woman May 25, 2017
12 users found this comment helpful.
"Leg pain & back pain, constant: relieved somewhat with Aleve due for repeat Dexascan next month: will not continue this medication regardless of results of Dexascan!"
MonroeB (taken for 1 to 2 years) May 20, 2017
14 users found this comment helpful.
"After taking fosamax for 5 years I was prescribed Prolia in June 2013, I have been hospitalised on 4 occasions with back spasms so severe it took over 2 hrs to get me in the ambulance fully medicated, I then spent 8-10 days in hospital each time waiting for the spasms to stop, after being discharged each time had to use a walker for a week because I couldn't stand longer than a few steps because of the damage the spasms had caused. No doctor has been able to give me answers until 4 days ago after spending another day in hospital because I spent 2 hrs on the floor in a shopping centre that Prolia is more than likely the reason. I also have ankles which are the size of the tops of my legs, this too has only been in the last 3yrs"
mia from melbourne aus (taken for 2 to 5 years) May 3, 2017
31 users found this comment helpful.
"Days after receiving my Prolia injection, I experienced vertigo, high blood pressure, and fatigue. Now I am on meds for the high blood pressure, and vertigo. It has been a month,and the vertigo is not controlled enough for me to continue my Yoga classes. I will never get another shot."
CannM April 20, 2017
37 users found this comment helpful.
"Have had 3rd injection. No side effects what so ever. Bone density in hips increased 6.5% and 1.9% in spine. 57 yr old. with osteo since 52 yo. Have had gum disease since 30's. Maybe some increase in symptoms, but would rather have bad mouth than break hip. Other than cost, highly recommend."
JEvansRogers April 20, 2017
16 users found this comment helpful.
"For Osteoporosis: In 2014 the Dr. prescribe me Prolia due to its stronger potency, along with the continued Cal-VitD tablet. Though my bone density increased some % since taking Prolia, starting one year ago I was feeling a constant back pain, from right to left of my hip, now and constantly 90% on the left side, I was diagnosed with weakness of the last 5 lumbar vertebrates. I do pilates reformer since 4 years ago as a therapy three times a week, walk almost every day 4-5 Km and play golf 1-2 x week, I used to be very actvive, but this back pain is really hurting and making me depressed. "
RBCbenito April 5, 2017
38 users found this comment helpful.
"I was diagnosed with Osteo in 2010 and was put on Fosamax, along with a daily dose of calcium-VitD. tablet. In 2014 the Dr. changed my prescription to Prolia due to its stronger potency, along with the continued Cal-VitD tablet. Though my bone density increased 10% since taking Prolia, I feel the side effects may out weigh any positive bone density increases. With constant jaw pain, I also have unusual problems with my teeth; constant infections, pain in one tooth or another, and Root Canal Treatments needed. I suffer insomnia, something I never had pre Prolia. With no warning or trigger I have constant blood blisters in my mouth, some as big as 5cent pieces. My cholesterol has increased. I feel unusually tired & have regular leg cramps."
L.Stone (taken for 2 to 5 years) April 4, 2017
48 users found this comment helpful.
"I was prescribed Prolia by my endocrinologist 4 years ago for osteopenia. My experience with it is 90% positive; it has completely reversed my bone loss, and my bones are continuing to improve (I'm in my mid 60s and have experienced declining bone density since menopause in 2004). No side effects, except for possible lower back pain which my specialist did say may happen. Not sure whether Prolia caused this, as it only happened once; I spend a lot of time working out and may have hurt my back then. Great drug! Fantastic for bone loss; highly recommended if you don't experience side effects. Beats nasty bisphosphanates hands down! Downside is the cost; this drug isn't covered by Medicare (in Australia) unless you have had a fracture."
SandyKatz (taken for 2 to 5 years) March 27, 2017
26 users found this comment helpful.
"My Mom got this shot a month ago and her life has been hell. Extreme pain that she ended up in the hospital getting injections for pain and on morphine. Extreme headaches to where she can not function along with god awful headaches. Jaw pain, muscle cramps, fevers, stomach issues, bladder issues. short time memory issues, and with all this happening she is now depressed from all the issues which now gives her anxiety wondering if these will go away or not. The sad thing is that not all the symptoms right after the shot. They show up weeks later and no one can tell you how long they will last,"
shaylealynn March 11, 2017
69 users found this comment helpful.
"I will be getting 4th shot next wk thus far I have had no side effects. My dexas can shows some improvement. I hope continues as I have had numerous broken bones an would be grateful for it to work"
Biller March 4, 2017
26 users found this comment helpful.
"Have had other medications but to no avail. But was put on Prolia and so far have had 2 injections and feel very good in myself. But like others l also take other vitamins every morning which has been prescribed, and along with these l feel fine. Will need another in six months,"
Have osteoporosis (taken for 2 to 5 years) February 22, 2017
27 users found this comment helpful.
"Had first Prolia shot 9 days ago and it has been debilitating. Will not get another! It is not worth the pain and discomfort. I have had major bladder problems, chills, fatigue, all the bones in my back ache, I can't sleep at night. I have to take Advil to relieve back pain or I can't function. Can't leave the house for long because of bladder issues. I called my Oncologist about possible bladder infection and was promptly advised that was not a side effect of Prolia even though bladder issues was listed as a possible serious side effect! I hope I don't have to suffer from this one shot as long as others have - it is truly life style restricting. I wish I had read these reviews before getting my 1st (and ONLY) shot."
Judith S (taken for less than 1 month) February 14, 2017
73 users found this comment helpful.
"I received two Prolia shots because I was prescriped Femara after breast cancer. Prolia was supposed to offset the bone loss caused by Femara. I had a lot of pain in my muscles and bones after the first injection but thought I would get used to it. After the 2nd injection I could hardly walk. It has been 7 months since the injection and if anything the pain is debilitating. I can't walk without a walker or cane, cannot turn over in bed at night. As far as the bone loss I have no idea if it helped but one thing I do know I will never take another injection of Prolia. I would prefer the bone loss to the constant pain. I believe if I took the 3rd I would die. I was a very active 71 year old, mowed the yard, trimmed bushes, NOT NOW .."
firecrackergranny February 6, 2017
78 users found this comment helpful.
"I love the twice a year shot. The company is.awesome and very helpful. But....1st shot no side effects, 2nd shot left groin pain for about a week, 3rd shot and now right sided groin pain since October that goes to my thigh, hip and pelvic bone. Pain is severe at times. Also thyroid problem is worse (not sure if related) and right side lower back pain. I can no longer take the medication."
Terrie227 January 28, 2017
59 users found this comment helpful.
"I been on prolia for 2.5 years Just this last one I have noticed more pain in my arm. Going on 2 weeks. Other than that I have had no problem prior. I will continue taking it as long as I can afford it."
HolyTrinidad December 30, 2016
33 users found this comment helpful.
"My mom has been given Prolia twice, 6 months apart. Each time, she had a series of mini strokes a week after the shot were administered. Her face and left arm would go numb, accompanied by nausea. The mini strokes would last 1-2 minutes, and repeat 4-5 times a day. She was put on blood thinners after the first episodes. Any testing done did not reveal anything. is this yet another side effect of Prolia? Has anyone else experienced this? She will not take this drug again!"
Anonymous (taken for 1 to 6 months) December 8, 2016
65 users found this comment helpful.
"While the bone test indicated a slight improvement, I don't feel it is worth it. The first time I had the Prolia shot, I had no reaction. After the second shot, my hair began to fall out in bunches. It has continued to fall out and it looks as though I will have to wear a wig. Has anyone else had this problem and does it go away after the drug wears off? I will never take another dose of Prolia and would not recommend it after reading all the negative posts on this site. It would seem that my problem is small compared to others."
George Schlink (taken for 1 to 2 years) November 18, 2016
89 users found this comment helpful.
"one shot in march 2016 and have experienced the worst seven months of my life, begun with a headache so bad i had an MRI three weeks after the shot another two weeks before the headache stopped then the infections started ear ,bladder ,kidneys and chest it has been a living hell ,cost a fortune and i cant even translate the pain and suffering, it would take a book that no one wants to read and its not done with me after seven months have a chest infection now that i can not get rid of ,worst experience of my life !!!"
Anonymous October 16, 2016
123 users found this comment helpful.
"had 3 shots shot #1. the provider knew nothing other than she was supposed to administer the shot. #2. did explain some what info of the shot. #3. did not know where on the arm for the injection......Should have not taken #3. several days after each shot sweated at night,. the bone between knee and hip hurt tremendous for several days, had heasdaches......it has been 2 years since last prolia shot. MAYBE THINGS WOULD HAVE BEEN DIFFERENT IF ALL HAD STARTED CORRECTLY. EXPLAIN, EXPLAIN IS IMPORTANT FOR ADMINISTING ANY DRUGS TO PATIENTS"
j free October 8, 2016
80 users found this comment helpful.
"This drug is a life saver. I tried Actonel and Fosamax with poor results. I experienced bone pain and flu like symptoms for weeks on end. After seeing an endocrinologist it was decided I try Prolia. NO side effects at all. Not even soreness at the injection site. I just received my 3rd injection and 2nd bone density test. Density is up 7-8% in spine and hip. I am thrilled."
AnnieNemous (taken for 1 to 2 years) October 1, 2016
102 users found this comment helpful.
"58 years old. Had the Prolia injection for newly diagnosed osteoporosis 3 months ago. Experienced flu-like symptoms for 2 weeks; muscle aches, constant burping, loose stools, extreme fatigue in thigh muscles. The manufacturer side effects list included depression. I wouldn't classify it as that, but, I definitely felt very exasperated for a couple of weeks, and, just not my usual cheery self. Then it all went away. I have no symptoms now & I don't know if it's helped my disease or not."
Shorty! (taken for 1 to 6 months) September 21, 2016
77 users found this comment helpful.
"Please do your homework before taking this awful drug. My Dr. never told me about any potential side effects and I got them ALL. So sick for months with severe lower back pain radiating around the front. Severe upper GI issues with nausea and haven't been able to eat for months. Lost 15 lbs so fast that my skin is all wrinkles and lose. I look 20 years older than before taking this drug. Spent so much time at Dr's trying to figure out what was wrong with me and all tests came back negative. Only possible thing is Prolia shot. Headaches, chronic fatigue, poor sleep. Ended up in ER thinking I was having a heart attack...pain was debilitating. At least I found out my heart is good. Have had 3 additional episodes like this. BEWARE"
Jill cookie September 17, 2016
115 users found this comment helpful.
More about Prolia (denosumab)
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- 59 Reviews – Add your own review/rating
- Drug class: miscellaneous bone resorption inhibitors
Other brands: Xgeva