Topamax and Tingling: What Users Say (Page 5)

• ash...
• July 17, 2010

For Migraine Prevention "I have been on 50 mg of Topamax for one year now. I am still on the fence. I still have the tingling/numb hands and feet (sometimes so bad, it wakes me up at night). My neurologist recommended increasing my potassium levels. That seems to help sometimes. I lost some weight and I sleep better now taking this. I do have a few migraines a month, but I do not want to take a pill the rest of my life."

• Kel...
• March 16, 2017

For Migraine Prevention "To be honest, I can't tell you if it helped with the prevention of migraines or not. I have had chronic migraines for 15 years now. They are accompanied by a loss of feeling in my hands, aura, and sometimes my words come out as gibberish. I have tried just about everything from medications to natural remedies for my migraines. When my new neurologist suggested I take Topamax, I thought that I would finally be rid of my migraines. I didn't even last a week on this medication, though. I couldn't stand for more than thirty seconds without being dizzy and having shortness of breath. My stomach ached, and I had a tingling sensation in my hands. I also had a slight fever. My doctor wanted to attribute all of these things to the start of a cold."

• Anonymous
• November 18, 2011

For Migraine Prevention "I have been taking 25 mg of Topamax before bed daily for the prevention of my migraines with aura. Been taking it for almost 2 months. I haven't had an aura or a migraine since I started taking it. I love this medicine! The only side effect I have noticed so far is tingling in my feet sometimes, but so far not bad. The one thing that is bothersome about this medicine is that birth control pills are less effective, and it's recommended to use a different form of birth control. IUD is what I think I'm going to try."

• Anonymous
• January 6, 2010

For Migraine Prevention "The side effects of this medication far outweighed any benefits. I honestly didn't notice any decrease in migraines or other types of headaches. Besides that, I couldn't eat a thing (lost tons of weight), my face felt numb, my hands and feet tingled, and I was so tired during the day that I found it impossible to be productive at work. Plus, it makes you forget words! I know another girl at work who went on this, and she's fine! I guess I just couldn't tolerate it. My doctor ended up putting me on Cymbalta, and it prevented migraines for me. Cymbalta is a great antidepressant because it has given me no side effects whatsoever! And normally, I get the sexual side effects from them (I've tried a lot)."

• Anonymous
• June 1, 2009

For Migraine Prevention "The main issue I had with this is the side effects. It caused my hands and feet to tingle and feel numb for hours on end. It made me drowsy and extremely moody due to it. I'm not sure if it really worked because after two weeks, I stopped taking Topamax because the side effects were so intense."

• Anonymous
• May 8, 2009

For Migraine Prevention "I just took my first dose of Topamax last night and have already started to notice some of the side effects. I normally am addicted to Red Bull. Now I can't even stand the taste, just after one dose. My mouth has also been tingling all day, and I ate just one Pop-Tart and got extremely full. Reading everyone else's reviews is comforting. I am also still on propranolol because my migraines were coming back."

• Cup...
• Taken for 1 to 6 months
• October 26, 2021

For Weight Loss (Obesity/Overweight) "I started Topamax 25 mg at night and Lomaira 8 mg in the day. All was fine with Topamax until I hit the 1-month mark and my cycle came. I was passing a crazy amount of huge blood clots and had the heaviest period I had ever had in all my years, so I stopped taking it. The bleeding was just horrible. Other than that, I had tingling feet sometimes, and it made me cranky the first 2 weeks. It did curb my appetite, but not sure if it or Lomaira made me lose the weight."

• Anonymous
• September 6, 2011

For Migraine Prevention "I have suffered from migraines for about 14 years. Took Topamax for 8 weeks. At 100 mg a day, I was having moderate headaches every single day, but no migraines. BUT the side effects were just too much: terrible anxiety, irritability, diarrhea, complete brain fog, intense tingling in fingers, numbness in feet, extreme sensitivity to cold, very frequent urination, changes in taste leading to disinterest in food. I also would not recommend this medication if you are also on birth control pills to alleviate menstrual cramps. That was one of the worst side effects for me - daily cramps for over 3 weeks. If it weren't for that and the anxiety, I may have tried to wait it out."

• New...
• Taken for 1 to 6 months
• March 12, 2021

For Migraine Prevention "For the first few weeks, I suffered the typical side effects of brain fog, tiredness, tingling in hands and feet, and occasional stomach issues. However, after a month, these largely disappeared, as have my migraines. I plan to carry on for a few more months, as my doctor said it can take 3 months for the benefits to be fully realized."

• kin...
• September 14, 2011

For Migraine Prevention "Although it did work for reducing my migraines, I found that the side effects outweighed the treatment. I had almost all of the side effects mentioned: confusion, irritability, diarrhea, tingling hands and feet, vision changes, loss of appetite and weight, change in sex drive, and worst of all, hives. The people around me were glad I stopped taking it, as it made me act differently than I would normally."

• Anonymous
• January 15, 2010

For Migraine Prevention "This is the best thing that ever happened to me. I suffered through migraines starting at about age 12. Tried Inderal, Imitrex, among a host of other drugs. I've been on it for over 4 years and no more migraines. Yes, there was some tingling for the first few months, but it was not a big deal, just felt like my toes had fallen asleep and were 'waking up.' Since I was already on a weight loss plan, I don't know if it helped in that area or not. I can't say that I had any other side effects. I've always stumbled with my words and this hasn't increased that issue. I certainly didn't notice it changing the way things taste!"

• tyt...
• Taken for less than 1 month
• March 7, 2015

For Migraine Prevention "I was on Topamax for a month and lost 6 lbs. I could handle the tingling in my hands and feet, but I stopped taking it because my period never stopped! It started the day after my first dose and ended three days after I stopped taking Topamax. I do have the birth control Implanon implanted in my arm. So maybe those drugs combined don't work well. I still had migraines, but they weren't intense."

• Anonymous
• December 8, 2008

"After 25 years of suffering with migraines, I've finally found something that works, bearing in mind I'm only 27. Although when my dose is increased, I have really bad gastroenteritis and my taste has completely changed, not to mention my weight loss, this is a really powerful drug. I believe it is working for me. Ok, I am now updating my review... I am now 37 years old and I still take the Topamax daily, 25 mg in the morning and 50 mg at night. It works for me really well. Maybe 1 migraine a month, and it is very manageable with Relpax. I still get a little bit of tingling in my hands and feet, and my weight has stabilized. I love Topamax. The only complaint I have is the price."

• Kri...
• Taken for 1 to 6 months
• June 17, 2023

For Weight Loss (Obesity/Overweight) "Well, if you’re willing to put up with all the side effects, it works for weight loss. My doctor prescribed it to me for weight loss because I have a problem binge eating. However, the side effects of depression, mood swings, contemplating where my life is going, and overall feeling like a cancer patient outweighed the want to feel the need to cheat in my weight loss journey. I understand there are people out there who truly benefit from a drug such as this for health reasons. However, for my doctor to prescribe me, a 22-year-old female, mostly healthy, was questionable because she did not mention the serious side effects it can cause. Within a couple of days, I noticed a change in my vision for the worse. I also had no idea this medication was sued at one point due to birth defects due to mothers taking the medication while pregnant with a child, and as a person who definitely wants a healthy baby in the near future, I will not take this chance just to be thin. The tingling in feet!!!"

• Ant...
• Taken for 1 to 6 months
• July 10, 2021

For Migraine Prevention "I have this for cervicogenic headache. I had waves of lightheadedness the first week on this drug, starting from the first day I took it. I also experienced tingling in my hands, but other than that, the drug really worked well for me. The headaches disappeared, and my head just felt much lighter. I didn't experience anything severe, nor loss of appetite, no changes in taste or concentration, etc. After tapering down off of Topamax, the constant headaches are back, and I'm back to feeling miserable. I chose to quit because I don't like being dependent on such a potent drug, and I don't want to eventually raise my dose because the drug has some scary potential side effects. Topamax is also dangerous in pregnancy, and I'm worried about becoming pregnant unintentionally and having this drug in my system. But the drug itself was pretty great for me."

• nik...
• March 9, 2010

"My neurologist started me off on 75 mg a day. I started with migraines about 2 months ago. I have never suffered from migraines before. Topamax has helped me quite a bit with the pain, but I'm still new to the drug, so I will keep you guys updated. I hope I can lose some extra baggage I have too. I have some tingling in my hands and feet. I get tired during the day too. I forget some words, and my communication has decreased somewhat. But it's okay. I am not feeling the pain I was feeling before Topamax."

• tnl...
• Taken for 2 to 5 years
• November 15, 2012

For Seizure Prevention "Confusion, forgetfulness, tingling, lights in the corner of the eye shining, drops of water dripping on my head at times, but the weight loss was good, but it's not worth it for me."