Skip to Content

User Reviews for Sunitinib to treat Renal Cell Carcinoma

Also known as: Sutent

Sunitinib has an average rating of 7.3 out of 10 from a total of 28 ratings for the treatment of Renal Cell Carcinoma. 68% of those users who reviewed Sunitinib reported a positive effect, while 21% reported a negative effect.

Sunitinib Rating Summary

7.3/10 average rating

28 ratings from 28 user reviews.

Compare all 43 medications used in the treatment of Renal Cell Carcinoma.

10
39%
9
11%
8
18%
7
7%
6
0%
5
4%
4
0%
3
4%
2
4%
1
14%

Reviews for Sunitinib

Guru13 · Taken for less than 1 month December 25, 2020

Sutent (sunitinib): “Also from Mumbai Also my dad has started taking sutent For his RCC condition 37.5mg dose 2 weeks and 1 week off But he experienced fatigue and temperature and high BP , loss of taste and flatulence . Would like to know what diet plan you followed to cope up with your side effects And will the side effects subside with time ?”

Was this helpful?YesNo
Joaquim · Taken for 2 to 5 years November 18, 2020

Sutent (sunitinib): “Right kidney removed in 2009 due to Renal Cell Carcinoma (RCC). 2016 July 4 started Sutent 14 days on 7 days off 50 Mg per day. Still good bit of ups and downs but moving on.”

10 / 10
Was this helpful?YesNo
joaquimgodinho2008 · Taken for 2 to 5 years November 18, 2020

Sutent (sunitinib): “This Joaquim from Mumbai India, I been on Sutent from July 4, 2016, completed about 75 cycles. 2 Weeks ON 1 week OFf. 50mg per day. There has been ups and downs as sometimes the metastatis on my lungs used to grow then shrink. I changed my diet pattern its working on me till now. Share me your experiences too if you have completed more than 75 cycles i think one guy from UK has crossed 100 cycles later started immunotheraphy.”

10 / 10
Was this helpful?YesNo
Jim Bob · Taken for 2 to 5 years July 11, 2019

Sutent (sunitinib): “I have been on Sutuent for 3.5 years now with minor side effects. I tried the 4 week on and 2 week off but that did not work for me. Now on 2 weeks off 1 week and that is tolerable. So far this drug has caused my tumor in the surgery bed to shrink. The left kidney was removed 4.5 years ago. Quality of life is good and I am living a full and happy life. I thank the company that produces this targeted therapy drug for patients like me. There is hope after a kidney cancer diagnosis. For all of those who are currently going through this just remember that years ago drug therapy was not yet available and life expectancy was short. A positive attitude and great family support all help when fighting an aggressive disease like cancer.”

Was this helpful?YesNo
barbie billings · Taken for 6 months to 1 year June 9, 2012

Sutent (sunitinib): “On Sutent for 9 months and was extremely fatigued but minimally nauseous. Doctor guesstimate is an additional 9 months. Original diagnosis was clear cell cancer and removed right kidney. Annual exam revealed it metastisized to left adrenal gland. Pet scan reveals some tumors have disappeared and remaining ones are shrinking. No new tumors seem to have appeared. My quality of life has not seemed to have decreased and I feel blessed everyday that Sutent therapy is working for me.”

10 / 10
Was this helpful?YesNo
mariavero October 5, 2011

Sutent (sunitinib): “I've been on Sutent since December 2008. First at 50 mg for 3 cycles then due to side effects dose reduced to 37.5 mg for about 3 more cycles but still had problems with my blood counts. Then the dose was reduced to 25 mg so since about 2 years ago I have been on Sutent 25 mg, 2 weeks on 1 week off. My tumors shrunk 30% since the beginning and now I've been stable. Side effects are mild, sometimes a little bit harder but I am grateful I am still here and living a full life.”

7 / 10
Was this helpful?YesNo
conradclark February 26, 2014

Sutent (sunitinib): “I have been on Sutent for 4 months. My cancer is shrinking and it is not bad. I am on Oxycontin as well because the cancer had gotten into my bones and spine. Degradation of my spine. So I now have a brace in my back. Side effects. Sutent has almost a narcotic effect on me. Bad gas and my taste buds are all messed up. Constipation. My biggest complaint comes during the 2 weeks off. Its like I go through withdrawals that are really intense. Shaking, pain all over. And I'm so weak for those two weeks its hard if not impossible to get out of bed. But all in all Sutent has been doing its job many of the tumors are smaller if not gone. And the large masses went from baseball to golf ball size. Pleased with Sutent.”

9 / 10
Was this helpful?YesNo
Cheryl C November 4, 2010

Sutent (sunitinib): “I am here to tell you 2 years after having my left kidney removed I am stable, and have been on Sutent since February 2009. I am the Cheryl that commented December of 2009. I am still grateful to the makers of Sutent. I am now on 37.5 instead of the initial 50mg and it is more tolerable. I have been stable for the last 6 months. I have one tiny nodule left in my liver. I started with 14 nodules in the lungs and 3 in the liver. ”

10 / 10
Was this helpful?YesNo
Anonymous December 23, 2010

Sutent (sunitinib): “I am a 72 year old male that had a kidney removed six years ago. Since then the cancer reformed in my hip causing a partial hip replacement, then on to my breast bone (radiation treatment) and finally my lung and adrenal gland. At that point I was put on Sutent 50mg which caused white count issues. We dialed down to 37.5 which stabilized the blood and now after three months my tumors have shrunk by half. Side effects are not pleasant but tolerable. Bottom line I am still alive thanks to Sutent.”

9 / 10
Was this helpful?YesNo
Eliezer b Y · Taken for 1 to 2 years June 3, 2012

Sutent (sunitinib): “I have been on Sutent now for 13 months. The full monty at 50 mg. It seems to be doing its main job which is to shrink and freeze the metastasis I have in lungs. I am told my own side effects are mild compared with most. The ones with medical significance and danger are under control - these are the high blood pressure, which is under control with additional blood pressure pills, and the messed up thyroid, also under control with pills. The main things that bothers me are the gastro side effects. I cannot get the diarrhea under control. The painful violent gas now seems controllable using Simethicone. I get a very acidy stomach with heartburn in last two weeks of cycle. Sometimes can relieve with milk.”

9 / 10
Was this helpful?YesNo
Jim Bob November 14, 2019

Sutent (sunitinib): “Sutent is still a very good drug to use for treating kidney cancer. To follow up from a previous post, Sutent continues to have a great success for me personally, but as of late the drug dosage was reduced due to some new side effects. While SCANs remain good there seems to be a delicate balance for exactly how much of the drug is necessary. While the normal dosage for me was set at 50 mg once a day for 14 days on 7 days off, my oncologist has reduced the dosage to 37.5 mg. It appears that this new dosage is easier on my body while doing its targeted therapy to control cancer cells. It will be 5 years since radical surgery (removal of left kidney, spleen, and the adrenal gland) this coming February, and the quality of life has been great. No huge side effects from the onset but some bumps in the road that I was able to overcome.”

10 / 10
Was this helpful?YesNo
Timmy Tucker February 14, 2010

Sutent (sunitinib): “I've been on Sutent for 18 months, I had my primary tumour removed but have 7 metastities on my aorta, these have all reduced in size by approx. 70%. I have had very managable side effects and put this down to diet change: no sugar, low carb and minimal alcohol. I'm 42 and I'm leading a very active life thanks to Sutent. The only downfall is that I know it stops working after a time but until then I'll cherish every moment with my family.”

7 / 10
Was this helpful?YesNo
Cheryl C or Sherie again! · Taken for 2 to 5 years September 1, 2013

Sutent (sunitinib): “I am still on Sutent. 50mgs due to slight growth in the left lung otherwise stable. I have battled Ecoli this summer, that I got eating cooked seafood out of town. Otherwise I will celebrate my 5 year cancer Birthday 11/2/2013!”

10 / 10
Was this helpful?YesNo
Sherie Cash December 1, 2009

Sutent (sunitinib): “I just celebrated my 1 year Cancer Birthday in November thanks to Sutent. The side effects are all treatable, although I had to stop working full time I have an excellent quality of life! I am very grateful to the makers of Sutent!”

10 / 10
Was this helpful?YesNo
Peachy March 4, 2019

Sutent (sunitinib): “I have started my chemo journey 7 years ago dealing with stage 4 kidney cancer. They removed my left kidney and filled a hole in my left knee with cement bone and 2 weeks of radiation treatment then I went on remission for a period of 4-5 years. A lump appeared just below my right jaw so 2 biopsy was performed and found out that it was the same cancer cell so, I was put on Votrient 200 mg per tablet and took 3 per day for almost 22 months. I couldn't take the Votrient any more. My oncology doctor suggested for me to take a holiday and I did for almost 5 months. So in November 2017, a catscan was ordered and the results was I have a tumor on my left side. I have been taking Sutant 50 mg since December 2017 and it did shrink my tumor. I was very happy and now off the Sutent and waiting to have another catscan to make sure that there is no surprises. I found this chemo drug Sutent works better for me and I my body can tolerate it. Your chemo friend, PEACHY C”

8 / 10
Was this helpful?YesNo
Jarface, England · Taken for 6 months to 1 year February 12, 2015

Sutent (sunitinib): “I've been on Sutent 50mg for eight months and it's working for me, thank you! It does knock the stuffing out of me, but I'm loathe to drop to 37.5mg. I never get sick or have diarrhea, just exhaustion. I'm planning to go on for a long time yet, my biggest problem is myself not responding fast enough to my body, which is screaming at me to rest. When the clock is ticking, you don't want to stop do you?”

10 / 10
Was this helpful?YesNo
Crazyhorse · Taken for 5 to 10 years January 23, 2019

Sutent (sunitinib): “I'm speaking for my Husband. In 2002 he lost his right kidney, he's a Marine from Vietnam. In 2013 I thought he had pneumonia, when I took him to the Doctor the xray showed his whole right lung was occluded with a tumor, not operable. We went to his Oncologist and they started him on Sutent . Two collapsed lungs , two lazer treatments for bleeding but his right lung is now wide open, he is frail but upright. Why it's his attitude, he said I'm a Marine and I'll beat this. So please hang in there, keep a positive attitude. I believe he is the longest living person right now on this drug. No taste buds, diarrhea yes but he's here and that is what we want. God bless you all and keep you safe...”

10 / 10
Was this helpful?YesNo
Very grateful September 15, 2016

Sutent (sunitinib): “Thanks to God, my dr and the makers of sutent, I'm still here. I got my left kidney removed and three years later I discovered a mets in the spine and liver which was treated with radiation followed by sutent. I started with 50mg but couldn't tolerate so it got reduced to 25mg. The condition is stable for 8 months now and the side effects are bearable. I'm very grateful and recommend this medication to anyone who needs it”

10 / 10
Was this helpful?YesNo
Hotmuck July 26, 2016

Sutent (sunitinib): “Left Kidney removed by radical nephrectomy Dec 23, 2014, after 3 blood clot caused heart attacks and ablation operation and Follow up in August revealed 7 tumor in lungs and 2 enlarged lymph nodes. Started 50 mg Sutent 28 day cycle on Dec 26, 2015, very harsh side effects including severe diarrhea, vomiting, dry mouth, bleeding teeth and gums, hyperthryroidism, after 3 months. 6 weeks rest and reduced to 37.5 mg and 14 day cycle. After 5 months tumors in left lung had doubled in size and slight growth in right lung. On July 21, 2016 CT showed growth had stabilized but side effects remain severe. Going to 25 Mg 14 day cycle on 27 August.”

3 / 10
Was this helpful?YesNo
Jim bob 2 · Taken for 1 to 6 months March 5, 2020

Sutent (sunitinib): “Been on Sutent 3 months my dose is 50mg 2 week on, 1 week off. Initial side effects are fatigue, some small sores on tongue, taste buds off, hair thinning, some diarrhea and dry skin. They are subsiding a little as time goes by. All in all nothing I can’t deal with for a while. So far scan is good. Very expensive drug but after some doing I got on patient assistance program.”

8 / 10
Was this helpful?YesNo
Deg · Taken for 1 to 6 months March 1, 2018

Sutent (sunitinib): “I collected my brothers ashes y/day. He was on sutent for sarcomatoid kidney cancer. Sutent made him so very very ill, it destroyed any quality of life he had left before he died (6 months from diagnosis to his passing). He died after 5 days in hospital vomiting blood, possibly from perforated stomach/ intestine/bowel. This drug is so cytotoxic my local pharmacy refused to accept the remaining tablets we had after he died. Sutent, I called it an evil drug as that's what it is.”

1 / 10
Was this helpful?YesNo
West Highland Fan. · Taken for 1 to 6 months August 4, 2014

“I was diagnosed with Renal Cell Carcinoma on the 30/1/14 stage 4 with tumors on my lymph nodes and around my stomach and was told I had 9/12 months to live, my left kidney was removed in Sept 13 but this was my downfall and the Cancer spread. After starting Sutent in February I can honestly say it has helped me, the tumors on my lymph have shrunk and the cancer in my stomach has not changed, the side effects were harsh on my first cycle which was 50mg , the usual side effects, sore tongue, hands, feet, etc. so I went on 37.5 mg and this has helped also. I have had 4 cycles now and have just started my 2 week break to detox but I feel the first week of this I do suffer withdrawal symptoms. I hope this helps.”

8 / 10
Was this helpful?YesNo
Boyley · Taken for 2 to 5 years October 12, 2016

“I was diagnosed with stage 4 RCC in July 2016 which has spread to both lungs one the size of an egg and many others the size of a penny. They took my kidney out (the size of an American football) in the October. I have been on Sutent for three years in December 2016. Started on 4 weeks on 2 weeks off on 50mg. Then after nine months went onto 2 week on 1 week off. I now self medicate between 50 and 37.5 mg. I know of people that go up to 75mg for a period to make it work. The first CT, will be a good indicator if it is going to work. Masses should reduce a lot I have had and still get most of the side effects so if anyone wants to know what I do let me know. By the way empower yourself and get a plan B. Do research.”

8 / 10
Was this helpful?YesNo
Vic · Taken for 1 to 6 months December 20, 2019

Sutent (sunitinib): “This was my 2nd line of treatment. I did not response to this medicine. I had many side effects. The worst being low platelets that caused me twice to stopped treatment temporarily. I dose reduced from 50 to 37.5 but it did not help. I had nausea that was tolerable for the most part thanks to a nausea patch. I had to get one transfusion due to blood counts. My hair thinned and turned white but that's mild. Hair has since returned to prior thickness and color.”

5 / 10
Was this helpful?YesNo
DaBabysDaddy · Taken for less than 1 month November 27, 2017

“I was set to retire after 21 years of active duty Army (05/2012), when the retirement physical accidentally discovered a large tumor on my right kidney. 5 days later, they removed my right kidney. Retired 11/2012 4 years later, with no symtoms or signs of any cancer, I opened a car door with my left arm, and my arm broke in 3 places. (large tumor) They resected a 4” piece of my radial bone, in my arm. Again, they found cancer... they removed cancer! In June of this year (2017), all scans clear! October 2017. 3-1/2” tumors on Pancreas, 1-3/4” tumor on remaining left kidney, a very small spot on lung, and 1-1/2” tumor on backside of left tibia bone. 1st Sunitinib, 50mg capsule today! Scared! Hope and Faith that I survive this!”

Was this helpful?YesNo
krogersuk May 14, 2009

Sutent (sunitinib): “I have been on Sutent for three years and my renal tumor has been reduced by half and the metastasis almost eliminated. Side effects are not as bad as when I first started on the drug.”

8 / 10
Was this helpful?YesNo
v123 July 20, 2010

Sutent (sunitinib): “Unfortunately, sutent did not work on me, I used 2 cycles without any positive results.”

1 / 10
Was this helpful?YesNo
Shuttlegirl · Taken for 1 to 6 months July 5, 2016

Sutent (sunitinib): “On Sutent 5 months tumer has has halved in size, side effects are unpleasent but bearable. Hair thined out a bit for the first 3 months.”

10 / 10
Was this helpful?YesNo

This information is NOT intended to endorse any particular medication. While these reviews might be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare practitioners.

Learn more about Renal Cell Carcinoma

IBM Watson Micromedex

Symptoms and treatments

Mayo Clinic Reference