Roflumilast for COPD User Reviews (Page 2)
Brand names: Daliresp
Reviews for Roflumilast
- Anonymous
- Taken for less than 1 month
- February 6, 2013
Roflumilast "I have been using Daliresp for 1 week now. It appears to have improved my breathing, but I have several of the side effects. Now I'm having problems with diarrhea, anxiety, and trouble sleeping. I've got a call into my doctor now to see if the side effects will go away. If they don't, I'll have to go back to Advair."
- pau...
- Taken for 6 months to 1 year
- June 7, 2023
"I started taking roflumilast in August of 2022 after experiencing several severe bouts of exacerbations and bronchitis, one of which required hospitalization. I also use Flovent and albuterol inhalers occasionally, as well as Anoro on a daily basis. I have been using roflumilast for almost a year. I am in my early seventies, retired from being a steelworker, and am a smoker. Pros: roflumilast has practically eliminated my constant bronchitis and reduced the frequency of catching colds and the flu. I have been able to return to nearly normal activities. Cons: I experienced loose bowel movements for the first month, but they eventually subsided. I also lost around twenty pounds. Roflumilast affects my muscle aches, pains, and strength. I sometimes experience occasional severe muscle spasms and cramping. Additionally, I have occasional sleep problems and insomnia, as well as a loss of appetite. There is also some mild depression, which may be related to both age and the medication. These side effects come and go, with good and bad days that can sometimes last for a week. Roflumilast is expensive without insurance. Despite these side effects, the benefits of roflumilast outweigh them. However, there are days when I feel like discontinuing its use. I hope this information helps you make a decision."
- Mis...
- Taken for less than 1 month
- January 12, 2022
Roflumilast "I've been on Daliresp for 2 weeks now. I've had back-to-back flare-ups for the last year. The last one put me in bed for 16 days. My pulmonologist retired and I went to a new pulmonologist for the first time. He described Daliresp as a miracle drug for COPD. He started me on it. I've seen improvement in 14 days. The only side effect I've had is nausea and a slight headache in the morning. I started taking it at bedtime and the nausea stopped. A couple of Tylenol stops the headache in the morning. I can already see improvement in my breathing. God sent me a miracle! I really thought during this last flare-up I was going to die. I could stand to lose some weight. I am 30 lbs overweight starting out, so I don't foresee being a problem. I go to 500 mg after the first 30 days. I am thrilled about Daliresp."
- Sis...
- Taken for less than 1 month
- August 4, 2020
Roflumilast "Been on Daliresp 500 mcg for about a week. I have to agree with the majority of reviews - this med will give you stomach pain, but if it keeps me from having an exacerbation of COPD, I'll continue it! For stomach pain, I tried soda crackers and ginger ale, but the only thing that helped is 'Gin Gins,' which are a ginger 'candy' that is great for stomach pain/upset."
Are you taking this medicine?
Your review helps others make informed decisions.- Sta...
- Taken for 1 to 6 months
- January 9, 2022
Roflumilast "Reading reviews of people starting with 500 mg and getting really sick should talk to their doctor. Mine started me with half the dose of 250 mg for a week, then up to 250 mg for 3 weeks before I went to the 500 mg maintenance dose. Just a few side effects like diarrhea that really isn’t that bad. Just an idea."
- Ton...
- Taken for less than 1 month
- July 27, 2024
"When I first started using roflumilast, I suffered from brain fog, anxiety, nausea, and a rise in heart rate. I wasn't having a problem with breathing, but I did have frequent flare-ups. I took 250 mg for 8 days, was told by my doctor to stop it, but continued to day 13. I had no flare-ups, but the side effects finally beat me down, so I stopped. However, I started again 4 days later, but the side effects came even harder, though I had no flare-ups. It's great in controlling flare-ups, but the side effects just get to be nagging."
- Mis...
- December 12, 2015
"Roflumilast had completely turned my life around. From being on oxygen therapy and having frequent exacerbations, my breathing has improved so much that I no longer need oxygen or inhalers and haven't had to take steroids or antibiotics for over a year now. I feel sorry for anyone that experiences side effects that makes them stop taking it. In my opinion, it is a lifesaver, and the quality of my life has improved greatly, luckily with no side effects. Everything is good. If you can, persevere with it. The side effects will lessen as your body adapts."
- dan...
- Taken for 1 to 6 months
- October 9, 2014
"Daliresp has been a game changer for me. My COPD symptoms have been substantially reduced as I became quite winded after a short walk of 100-125 feet. Now, after about four months on this medicine, my shortness of breath has been reduced and is sometimes non-existent. During the four months, I had to deal with severe bouts of insomnia. This was solved by taking 1/2 pill per day. I notice no difference in symptoms between one or 1/2 pill."
- Anonymous
- Taken for less than 1 month
- July 19, 2021
Roflumilast "I've been on Daliresp 500 mcg for 3 days. My breathing was clear and good until I took my first dose of this medication. My breathing went plum out and had to put oxygen on. Inhalers and nebulizer treatments weren't helping. Ended up in the ER. The ER doctor ran lots of tests because of my COPD, and he told me to stop the Daliresp. I was having an allergic reaction to it and to see my lung doctor ASAP."
- Liz...
- Taken for less than 1 month
- November 17, 2023
"The first couple of weeks, I had no problem, but it’s made my chronic insomnia worse to wear. I’m typing this at 1:06 AM, and I can’t sleep before that. I was sleeping 3 to 4 hours before taking this medication. I was sleeping through the night, so it’s affecting me, so my doctor’s taking me off of it, 'cause I cannot sleep, but it does work on the lungs."
- Bea...
- Taken for less than 1 month
- April 19, 2019
"I started roflumilast a month ago, and for the first few days, I was thrilled at how much better my breathing was (I have COPD). I was started on half a tablet daily, to increase after a week to taking 1/2 a tablet twice a day to minimize the side effects I had read about. I’ve lost 6 kg in a month and have frequent mild headaches. I have been a bit breathless the last few weeks, but possibly because my usual inhalers were not prescribed. I suspect this drug works better for patients with severe COPD rather than mild COPD. I hope with my inhalers being re-prescribed, I will be able to rate this drug as a 10."
- Bil...
- Taken for 2 to 5 years
- February 20, 2017
Roflumilast "I have severe COPD. I cannot walk around. I was coughing up lungers daily, but for the last 2 years with this, I have had maybe 2 or 3 times. Life saver."
- Anonymous
- November 2, 2011
Roflumilast "Have been on Daliresp for one month now, no problems and seems to help. Can feel a difference in my shortness of breath. So far so good."
- Hac...
- October 20, 2011
Roflumilast "No side effects at all."
- 63a...
- July 17, 2014
Roflumilast "Made a huge difference in breathing and lessened exacerbations!"
- Spa...
- September 5, 2016
Roflumilast "This drug has worked wonders for me. It's too bad we can't afford it."
- JO...
- April 25, 2013
Roflumilast "I started it 3 days ago. I felt better on the 2nd day."
- Anonymous
- March 11, 2012
Roflumilast "My husband learned about Daliresp 50 mcg after being in the ICU for a month. Breathing has improved a great deal."
- fer...
- Taken for less than 1 month
- May 31, 2018
Roflumilast "I have been on Daliresp for five days and noticed great improvement. I wish I started earlier."
- Tam...
- July 31, 2017
Roflumilast "Daliresp did cause me nausea and diarrhea, but... Doctor prescribed Zofran for the nausea, and Zofran causes constipation. Problem solved."
- Boo...
- Taken for less than 1 month
- November 26, 2019
Roflumilast "Daliresp side effects are that I have very bad anxiety, and am hot and cold."
- Lpi...
- Taken for 1 to 6 months
- January 16, 2017
Roflumilast "Breathing great, diarrhea not so great. Not worth it."
- Lis...
- Taken for 1 to 6 months
- November 7, 2020
Roflumilast "Daliresp has been a lifesaver for me. I have less cough, feel so much better all around. No exacerbations. It's the best. So glad my insurance pays for it."
- Suz...
- Taken for less than 1 month
- November 30, 2020
Roflumilast "I have been on the Daliresp medicine for COPD for a month. Sorry to say it has not helped me at all! Very disappointed, was really hoping it would work."
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Roflumilast "I started taking Daliresp in July 2016. I have to quit taking it. I’ve lost 30 lbs. in 1 1/2 years. Also, I haven’t noticed any change in my breathing. Daliresp just didn’t work for me. Now that I quit taking it, my appetite is back and I’m sleeping better. I wish I had quit it sooner."