Xarelto for Pulmonary Embolism User Reviews (Page 2)

• Ind...
• Taken for 6 months to 1 year
• September 28, 2021

"Had COVID/PE/pneumonia. Prescribed Xarelto. Couldn’t walk for three weeks due to leg pain and then felt extreme fatigue for months after, with consistent lower back pain and weight gain. The fatigue has been devastating. Unable to work or fully function as a parent. Forgot to take my pills with me on holiday last week and felt great. Took one pill on return and fatigue, nausea, GI issues, and brain fog are back. I will not take another. Stops today."

• Bab...
• Taken for less than 1 month
• August 30, 2018

"I was admitted to the hospital for anemia, also PE in both lungs. I was given Xarelto 15 mg 2x a day. I also have internal hemorrhoids. Well, the first day home, I bled from my hemorrhoids and it would not stop. I lost a lot of blood. I am seeing the doctor and coming off this horrible drug."

• joa...
• August 5, 2016

"I have had 2 incidences with DVT and PE in 2012. First one, both leg and lung. Leg swelled, was being told everything but DVT. Went to the hospital, they found it. All the hospital things, interventional radiology went in and shot PE with clot busters. ICU 4 days, heparin drip, then Lovenox shots. Came home on Coumadin for 9 months. 3 years later, massive PE, only symptom with this was SOB. Seen all the doctors: heart, hematologist, vascular, pulmonary, can't find the WHY this happened. Taking Xarelto now for 10 months, will be on it for life. I do not have any side effects that I am aware of, or that bother me. Taking it religiously every night. Only scary thing is no antidote as of now, and afraid it will come back. CAT scans showed it has improved."

• mro...
• Taken for 1 to 6 months
• October 23, 2014

"Have been on Xarelto now for 2 months without any complaints. I've not had the out of the ordinary dreams that others have reported. I am an endurance athlete, and other than deconditioning from a forced no-exercise restriction for 4 weeks, I cannot say that this medicine limits my performance. I must say I have had some very short-duration dizzy spells on occasion, but definitely not the norm. My insurance required that Xarelto be preauthorized prior to getting it. So far, I am very happy with its performance and convenience."

• Can...
• Taken for 1 to 6 months
• May 4, 2019

"I had a doctor that did not tell me about a PE and DVT. So one morning I felt like I ran a 50-yard dash and could not catch my breath. I waited too long and went to the ER. They gave me TPA and heparin. Had the branch blocked and the right side of my heart was stressed. ICU for 3 1/2 days later I got out. I was on Xarelto twice a day and have just finished them now on once a day. I have not seen hair loss because I am already follicly challenged. I don't see anything that causes me to worry about life. I do look forward to being off it. They said 3 months and I'm done. Although my primary doctor wants me to be on it for 6 months. That will be a conversation I will tell her no! I am very active and can't afford to worry about bleeding if I fall. In conclusion, I am very happy that the technology is what it is today."

• Qui...
• Taken for 1 to 6 months
• January 30, 2017

"In answer to the change of health after going from 30 mg a day to 20 mg: I was diagnosed with a massive saddle PE on May 1, 2016, after having uncontrolled sweating with subsequent shortness of breath. 911 call, ER, BP 60/40 w/pulse 130-160. Doctor said surprised I made it to the hospital. Healthy, active 56 yr old released after an overnight stay with 6 mos Xarelto therapy. Was fine with 21 days 15 mg 2x a day; 20 mg change made me feel like I was dying. Realized it was too much for my system at one time; cut the pill in half & took 1/2 2x a day--still got my 20 mg & felt good again. Finished with treatment for the moment; since it was unprovoked, they've done extensive tests to find I have Factor 5. Waiting to see how 2.5 mg Eliquis 2x a day 6 mos works; just started."

• Pre...
• Taken for 1 to 6 months
• June 4, 2017

"I feel terrible taking this medication. My ankles are swollen, my back aches, my headaches. I have a BM after I eat anything, the shower spray feels like pinpricks on my arms, and I am tired and morose. I felt better with the pulmonary emboli."

• Tin...
• Taken for 1 to 6 months
• January 11, 2017

"I take Xarelto for pulmonary embolisms and for DVT. My son takes it for DVT. We both have Factor V Leiden. We both experience really bad leg pain, we both have chest pains, pains in hands and arms. We both feel very cold all the time. There are more symptoms, but those are the worst symptoms. I have been on Xarelto for only 5 months. My son has been on it for 2-3 years. Without insurance, it is $375.00 a month. My insurance covers mine, but he has no insurance. He keeps losing his jobs because he can't work due to blood clots and/or his leg pain."

• Bre...
• Taken for 6 months to 1 year
• February 21, 2016

"I developed multiple blood clots in my lungs after a trip to Canada and America. It wasn't until I returned home that I found out I had them and was put on 15 mg twice a day for 3 weeks before switching to 20 mg once a day. I have just stopped taking Xarelto after 6 and a half months and found no problem with it! Aside from bruising easily, it sure beat the alternative (injections), so I am very grateful for all it has done. I am 20 years old and am happy to say I only have a bit of scar tissue left over."

• Anonymous
• Taken for 6 months to 1 year
• April 2, 2016

"I developed a pulmonary embolism following a partial hysterectomy. I was given Xarelto for six months. It worked well for me. As a 35-year-old mom with young children, I appreciated the convenience, since it doesn't require injections or weekly blood tests. It can be rough on your stomach if you have previous stomach issues. (I have GERD.) But taking an acid blocker like Zantac helps relieve symptoms. Talk to your doctor if you have any stomach concerns. This was an excellent drug for me."

• Nic...
• August 27, 2020

"I had a DVT, and I threw a clot after being in the hospital as a young adult for 2 weeks. I was put on Warfarin for about 6 months, then came off it. 10 years later, I had a massive PE and was put back on Warfarin. I hated having to stick to a level amount of greens and constant check of my INR. So when I was able to try Xarelto, I was happy those issues went away. I'm not sure if I have other side effects. I'm older now, and sleep doesn't come easily. I'm also heavier, but as we age and slow down, so does our metabolism. It does take me a little longer to stop bleeding if I am cut, I'm on a 20 mg dose. But I can deal with it. No more street brawls for me, I guess. The only real issue I see with this drug is the insane price and the way insurance companies handle it. You either have to pay nearly $500/mo for the drug or get insurance that is over $500/mo that covers it. I saw the patent information. There are no unicorn tears in the chemistry, so I'm not sure why it's so expensive."

• gty...
• August 12, 2019

"I've been on 20 mg Xarelto for 6 months after a pulmonary embolism, short of breath when walking up hills still. Very occasionally, an elbow joint will hurt, and a few times I've had a sore throat. Swelling pretty much gone in left ankle. I think it works for me. I'm still alive."

• Pol...
• August 3, 2015

"I am taking Xarelto for a small PE (right lower lobe) detected upon a battery of testing for the origin of a 'blackout' I experienced. (The PE just happened to be detected and is considered not to be the source of the blackout.) So, I am sensitive to drugs in general. I am on the second week or so of 1/day of 30 mg. I experience bizarre dreams and seem to be in a light sleep. I have insomnia with the drug. I also feel 'whacked out' post even 20 hours after ingesting it. In essence, I KNOW that I have taken a drug. I sometimes have to take a nap; I feel better after doing this. I am hoping that my body acclimates to X, but am realistic. I am also hoping/praying that I only have to be on X for 6 months. I know that there are alternatives."

• Bur...
• Taken for 2 to 5 years
• October 17, 2022

"Fell/twisted my left calf on a month-long backpacking trip. A blood clot formed on a two-day drive home from the Northeast to Colorado. I am concerned that long-term Xarelto use is not necessary when the clot was the result of trauma."

• Anonymous
• Taken for 1 to 6 months
• February 16, 2014

"I've been taking Xarelto for 1 month now for pulmonary embolism and deep vein thrombosis. I haven't experienced many side effects. It seems to be working great, except my period is extremely heavy, and I'm taking an iron supplement."

• Can...
• Taken for less than 1 month
• December 20, 2021

"I really do not like this medication at all. It makes me feel so sick and tired. It gives me panic attacks, especially at night. I get dizzy, foggy, tired, nausea, heartburn, chest pain, back pain, leg pain. I’m supposed to be on this for 6 months, but I don't know how bad this medication will be for me before then. I guess it’s keeping my clots at bay, that’s the only positive about this med so far."

• Tdo...
• Taken for less than 1 month
• June 30, 2021

"I found out about my PE 1 week after having an emergency C-section. I had chest pain, and that was it. Went to the ER, and they did a CT with contrast and found a blood clot in my left lung. I was on Lovenox for 2 weeks and bridged to warfarin. The warfarin was causing numbness in my arms, face, hands, legs, and back, and I didn’t like it, so my doctor switched me to Xarelto about 2 1/2 weeks ago. It is a nightmare…my vision is messed up, it feels like I have a thick layer of film over my eyes. I've had my eyes checked 2 times, and my prescription definitely changed. I also experience numbness and tingling in my arms, hands, and face. My PCP is not worried about it. I also have pain in my calf and arms, extreme pain in my upper back and neck, and sometimes my collarbones. I wake up, and my legs and ankles feel stiff. I should be coming off Xarelto soon, hopefully."

• Anonymous
• Taken for 1 to 6 months
• December 25, 2024

"I ended up in the ER for a PE on my right lung. I stayed a night and was sent home on Xarelto the next day. 15 mg during the day and 15 at night for 21 days. Now I am on week 8 on just 20 mg per day. Within 2 weeks, I had no weird heart palpitations like before, and I was able to work out within the first week. The only issue I have is a lot of extremity pain, especially when I first wake up, everything feels sore. Once I am moving around, it feels better, but it's a daily feeling. I feel that it saved my life, so I am now getting used to being on it. Follow-up CT soon to find out what my next step is."

• Mil...
• Taken for 1 to 6 months
• May 27, 2015

"Had bilateral acute PE. Barely a month has passed, but I think I am doing okay with Rivaroxaban. I experienced very heavy menstruation and still have labored breathing here and there, but apart from that, I am happy with the medication. I am now back to work on a part-time basis (very supportive employer), and hopefully will be strong enough to be back full-time soon."

• Mar...
• Taken for less than 1 month
• December 15, 2015

"I had my first PE in both lungs after having myomectomy surgery. Did not know I had a clotting condition. Was experiencing shortness of breath and low energy, which I thought was iron deficiency, so I went to the ER. CT scan proved PE. After being on a heparin drip for 24 hours, the hematologist prescribed Xarelto, and I was released the next morning. Side effects so far after 4 days are tingling in calves and knees, heavy menstrual bleeding. My period ended 2 days prior, and this drug brought it back extra heavy. Bummer!"

• Tia...
• February 8, 2015

"After a visit to the emergency with pain from the left abdomen to the shoulder, after many tests and a two-day hospital stay, I was diagnosed with a pulmonary embolism in my left lung. My hematologist prescribed Xarelto, and it seems to be working so far. I will be on this medication for 6 months, along with iron supplements."

• Bri...
• Taken for 1 to 6 months
• July 22, 2021

"So I started Xarelto on Jan 18th, 2021, due to a PE caused by birth control pills. I was taking 20 mg daily. The only con about this pill was it made my period super heavy, and I had about 3 nosebleeds within the whole time taking them, and a few bruises on my thighs from lifting heavy boxes at work. Other than that, I had no other issues. I just came off the drug on July 9th, 2021. About 5 days off of it, I had an episode at work where my heart started beating fast out of nowhere. It stopped after 20 mins. Then again, 3 days later (for about 10 mins) after taking a shot of Bacardi. Hoping these symptoms fade with time as my blood gets back to normal. But overall, I have no doubt it saved my life."

• Anonymous
• Taken for 1 to 6 months
• July 24, 2023

"For me, it is not that bad. I am experiencing tingling in my legs. I had a fast heartbeat, but now I am not experiencing that. I can eat anything, no restrictions. I love Xarelto. I was afflicted with PE (a small clot on my lung) with no known causes, and they prescribed Xarelto for 6 months. I can walk 2 hours non-stop. I try to stay away from grapefruit."

• Pre...
• Taken for less than 1 month
• November 15, 2024

"I’m very happy with Xarelto. I only got sick for a week after starting, now I feel fine, no shortness of breath or any discomforts. I was diagnosed with PE on the 19th of October 2024, and I’m slowly getting back to my normal self. Just minor anxiety attacks, but my doctor prescribed something for me to manage it."

• Lin...
• Taken for 1 to 2 years
• March 9, 2025

"Started on Xarelto 10 mg in 12/2023. Tolerated well. Dose increased to 20 mg once daily after 1 month. I read that side effects were insomnia and fatigue. I worked for years on the night shift because of insomnia, so I really didn't notice. Fatigue increased, and I needed a nap during the day. Sometimes I do fall asleep, and other times, I lie there and rest the body. Not a bad thing. I'm retired, so napping doesn't interfere with my life. The huge plus of Xarelto is that it does not require regular blood tests."