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User Reviews for Xarelto

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16%(5)
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Xarelto Rating Summary

6.6/10 Average Rating

33 Ratings with 37 User Reviews

What next?Compare all 25 medications used in the treatment of Pulmonary Embolism.

Reviews for Xarelto to treat Pulmonary Embolism

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"I had a PE in 2014. Will be on blood thinners for life. Specialist switched me from warfarin to Xarelto last February and life has been three shades of hell ever since. Weight gain, pain, headaches, hair loss, ridiculous fatigue ... my period was out of control- like Carrie (stephen king) style until I finally got an IUD device (which I have never really wanted to do but at least my iron stores have recovered.) I found a new family doctor who agreed to put me back on warfarin but the specialist talked me out of it this winter. I'm so weak and tired I can't stand it. Started on warfarin yesterday and get to quit the Xarelto in two days. Can't wait."

   
1.0

Jabba The July 15, 2017

6 users found this comment helpful.

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"I feel terrible taking this medication. My ankles are swollen, my back aches, my headaches, I have a BM after I eat anything, the shower spray feels like pinpricks on my arms, and I am tired and morose. I felt better with the pulmonary embili."

Preck (taken for 1 to 6 months) June 4, 2017

7 users found this comment helpful.

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"Long story short--left hospital in continual pain labelled as anxiety only to return two days later. They found the clot thanks to CT with contrast. Had no problems with Lovenox at the hospital but during treatment someone decides to put me on Xarelto. I've been sick every day--felt as if I'm dying. Pleaded with hospital to switch medications now labeled a drug seeker--for seeking a different blood thinner? Pleaded with doctors and PCP & they're sticking with the Xarelto. I have a visible rash on my face & excruciating pain in limbs and back. After Spitting up blood & swollen tongue, discontinued. Tossed the medication. Was told to start back on the Xarelto. The problem isn't Xarelto. It's the doctors who refuse to listen to their patients."

   
1.0

SESA (taken for 1 to 6 months) May 10, 2017

22 users found this comment helpful.

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"Just started on xerelto"

Linda3569 February 22, 2017

0 users found this comment helpful.

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"In answer to change of health after going from 30mg a day to 20mg: I was diagnosed with a massive saddle PE on May 1, 2016 after having uncontrolled sweating with subsequent shortness of breath. 911 call, ER, BP 60/40 w/pulse 130-160. Doctor said surprised I made it to the hospital. Healthy, active 56yr old released after overnight stay with 6mos Xarelto therapy. Was fine with 21 day 15mg 2x day; 20 mg change made me feel like I was dying. Realized it was too much for my system at one time; cut the pill in half & took 1/2 2xday--still got my 20mg & felt good again. Finished with treatment for moment; since was unprovoked they've done extensive tests to find I have Factor 5. Waiting to see how 2.5mg Eliquis 2x dy 6mos works; just started."

   
8.0

QuickRecovery (taken for 1 to 6 months) January 30, 2017

16 users found this comment helpful.

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"I take xarelto for pulmonary embolisms and for dvt. My son takes it for dvt. We both have Factor 5. We both experience really bad leg pain, we both have chest pains, pains in hands and arms. We both feel very cold all the time. There are more symptoms but that is the worse symptoms. I have been on xarelto for only 5 months. My son has been on it for 2-3 years. Without insurnce it is $375.00 a month. My insurance covers mine but he has no insurance. He keeps losing his jobs because he can't work due to blood clots and or his leg pain."

Tina Spaulding (taken for 1 to 6 months) January 11, 2017

14 users found this comment helpful.

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"Have been on Xarelto for 2 1/2 yrs after pulmonary embolism. First 20mg, then 15mg, now 10 mg. Have experienced a lot of negative side effects. Muscle and skeletal pain, intense burning pain in legs and other parts of body. Limits my movement tremendously and has had a very negative effect on my lifestyle. Am in pain everyday even with pain killers. If I stop Xarelto for a few days feel a lot better and am able to walk without little pain. My doctor says it's my imagination. That pain is not coming from Xarelto! Frustrating."

   
5.0

survivorbels September 21, 2016

33 users found this comment helpful.

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"i have had 2 incidences with DVT and PE in 2012 first one both, leg and lung, leg swelled was being told everything but DVT, went to hospital they found it. all the hospital things interventional radiology went in and shot PE with clot busters, icu 4 days heparin drip then lovenox shots came home on coumadin for 9 months, 3 years later massive PE only symptom with this was SOB, seen all the Dr's heart, hematologist, vascular, pulmonary, can't find the WHY this happened, taking Xarelto now for 10 months will be on it for life, i do not have any side effects that i am aware of, or that bother me,taking it religiously every night , only scary thing is no antidote as of now, and afraid it will come back, cat scans showed it has improved"

   
10

joanib August 5, 2016

20 users found this comment helpful.

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"Was rushed to the hospital with pulmonary embolisms in both lungs - one pressing on the right ventricle of the heart - platelets so low after heparin drip they didn't think I would survive. After a two hour trip in ambulance for an 11 day stay in major hospital, I was put on Xarelto twice a day for a week, then 20 mg daily. That was the beginning of Feb. - 4 months ago - I have been on Xarelto daily since then with no side effects at all. I was told I would have to be on it for life. I don't have any diet restrictions, but I do stay away from grapefruit - that is my own choice. I actually don't even realize I'm on this med when I don't think about it."

   
10

Bunnyt61 (taken for 1 to 6 months) May 31, 2016

17 users found this comment helpful.

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"I've been on Xeralto now for a month now and I'm sure it's working quickly, as I noticed within 24 hours of my incident ( small PE in left lung.) I couldn't believe the sharp pains subsided and breathing improved in that short amount of time. Since I've been taking this for a month now and actually lowered dose from 30mgs. to 20mgs. daily, I feel worse and worse. I feel like I have the hangover of the century, all the time, no alcohol, cannot tolerate it on this drug. Burning eyes, constant headache, extreme headach and fatigue, exhausted, in bed by 6:00 PM usually. I have two teenagers and a job, finding it hard to carry on with my life. I'm so depressed. It's bad enough to have this happen but this Xeralto is making me miserable!"

   
3.0

Charro68 May 7, 2016

39 users found this comment helpful.

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"Hair very thin -shedding lots. Had a hysterectomy in June 2014 and had to use a wound vacuum. Once I started on Xarelto, this wound bleeds every day an won't heal. Almost two years. Most of my fingernails and toe nails fell off ( dried out). Not all have grown back. Bruise easilt plus round red marks appear every day."

   
1.0

Anonymous (taken for 1 to 2 years) April 13, 2016

15 users found this comment helpful.

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"I was put on Xarelto after a small P.E. in the lower lobe of my right lung and have not felt right since. I am tired all the time, have no energy, migraines, dizzy, and also increased anxiety. The reason I decided to take Xarelto over the other blood thinners was because of not having to go to the doctor monthly which I believe is the only good thing about this medication. Can't wait to go off of it in a month. I'm so thankful to read the comments and see I am not the only one suffering these side effects."

   
3.0

Frustrated 35 yr old female April 12, 2016

42 users found this comment helpful.

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"I developed a pulmonary embolism following a partial hysterectomy. I was given Xarelto for six months. It worked well for me. As a 35-year-old mom with young children, I appreciated the convenience, since it doesn't require injections or weekly blood tests. It can be rough on your stomach if you have previous stomach issues. (I have GERD.) But taking an acid blocker like Zantac helps relieve symptoms. Talk to your doctor if you have any stomach concerns. This was an excellent drug for me."

   
10

Anonymous (taken for 6 months to 1 year) April 2, 2016

12 users found this comment helpful.

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"I have had joint pain, tiredness,insomnia, and fluid retention. I can't wait to get off of this medicine. It's like taking poison."

   
2.0

Mamapug (taken for 6 months to 1 year) February 24, 2016

25 users found this comment helpful.

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"I developed multiple blood clots in my lungs after a trip to Canada and America. It wasn't until I returned home that I found out I had them and was put on the 15mg twice a day for 3 weeks before switching to 20mg once a day. I have just stopped taking Xarelto after 6 and a half months and found no problem with it! Aside from bruising easily, it sure beat the alternative (injections), so I am very grateful for all it has done. I am 20 years old and am happy to say I only have a bit of scar tissue left over."

   
10

BreCheToo (taken for 6 months to 1 year) February 21, 2016

17 users found this comment helpful.

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"Don't like this drug - been on it for 3 months having bad rash affecting my breathing , my joints be glad when I come off it"

   
7.0

Pokolbin February 20, 2016

15 users found this comment helpful.

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"I had my first PE in both lungs after having myomectomy surgery. Did not know I had a clotting condition. Was experiencing shortness of breath and low energy which I thought was iron deficiency so I went to the ER. CT scan proved PE. After being on a heparin drip 24hrs, the Hematologist prescribed Xarelto and I was released the next morning. Side effects so far after 4 days are: tingling in calves and knees, heavy menstrual bleeding. My period ended 2 days prior and this drug brought it back extra heavy. Bummer!"

   
8.0

Maryland31 (taken for less than 1 month) December 15, 2015

10 users found this comment helpful.

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"I am taking Xarelto for a small PE (rt. lower lobe) detected upon battery of testing for origin of a "black out" I experienced. (The PE just happened to be detected and is considered not to be the source of blackout.) So, I am sensitive to drugs, in general. I am on the 2nd week or so of 1/day of 30mg. I experience bizarre dreams and seem to be in a light sleep. I have insomnia w/ the drug. I also feel "whacked out", post even 20 hrs. after ingesting it. In essence, I KNOW that I have taken a drug. I sometimes have to take a nap; I feel better after doing this. I am hoping that my body acclimates to X, but am realistic. I am also hoping/praying that I only have to be on X for 6 mos. I know that there are alternatives."

   
5.0

PolishGirl2 August 3, 2015

13 users found this comment helpful.

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"I was in the hospital this weekend for a PE left lung and pneumonia in my right. Completely unsymptomatic except for a very unusual episode of vomiting with chest pain. Have a PICC and doc was concerned it may have become dislodged, so to the ER we went. The whole PE / pneumonia thing is still utterly unreal to us - still in a daze, trying to figure out what it means for lifestyle changes. Since they switched me from Coumadin IV to Xarelto in the hospital I have had a non-stop awful migraine, upper back and neck pain (muscular), some upset stomach. My lower jaw and teeth hurt - something I've never experienced as I have no cavities at age 47; I can empathize with my husband's toothaches a bit now, unfortunately. Awful."

   
1.0

PoohyBear (taken for less than 1 month) July 28, 2015

24 users found this comment helpful.

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"I have been on Xarelto for 8 months after a PE experience due to thrombin 3 deficiency. My only issue is heavier that normal bruising - I am very active."

   
7.0

Bud 63 July 9, 2015

11 users found this comment helpful.

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"Had bilateral acute PE. Barely a month has passed but I think I am doing okay with Rivaroxaban. I experienced a very heavy menstruation and still have laboured breathing here and there but apart from that, I am happy with the medication. I am now back to work on a part time basis (very supportive employer) and hopefully will be strong enough to be back on full time soon."

   
7.0

Milly Picton (taken for 1 to 6 months) May 27, 2015

11 users found this comment helpful.

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"I am 39 and was given Xarelto for Pulmonary Embolism. I have experienced nausea, dizziness, dreams and mild headaches. Not sure this medicine is for me. Back to doctor on Monday."

   
3.0

tameads (taken for 1 to 6 months) May 1, 2015

20 users found this comment helpful.

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"I had knee surgery on October 13 ,2014, not even two weeks later on October 24, I collapsed in my kitchen struggling to breathe. The paramedics thought, because of my age, that I overdosed on pain meds. Once they got me to the hospital I went into cat scan and ended up coding and dying. I was dead for 25 minutes. Obviously they found out both of my lungs were FULL of blood clots, they couldn't understand how I was even still alive or had made it that long without having any symptoms or problems. Dr. Barton of Thibodaux, Louisiana saved my life by putting me on Xarelto. It is now April 21, 2015, and my insurance won't pay for it anymore so now I'm switching to Warfarin. I'm very unhappy with the switch, no complaints about Xarelto though."

   
10

Miranda age, 18 (taken for 6 months to 1 year) April 21, 2015

24 users found this comment helpful.

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"After a visit to emergency with pain from left abdomen to shoulder, after many tests and a two-day hospital stay I was diagnosed with a pulmonary embolism in my left lung. My hematologist prescribed Xarelto and it seems to be working so far. I will be on this medication for 6 months along with iron supplements."

   
8.0

Tiamo123 February 8, 2015

12 users found this comment helpful.

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"A warning for menstruating women... I am a 28 year old female who was prescribed Xarelto for a Pulmoary Embolism. My menstrual period lasted 10 days with extremely heavy bleeding and clots. Normally it lasts 3-4 days and is very light. Soaked through an ultra tampon AND overnight pad every 2 hours. I went through a box of tampons every 2 days. I was not able to function at work, and it was ruining my relationship. I held my meds for a day and boom! Period went away. I believe that Xarelto prevented my endometrial lining from forming and staying in place."

   
7.0

CM113 January 15, 2015

24 users found this comment helpful.

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