Xarelto for Pulmonary Embolism User Reviews

• SESA
• Taken for 1 to 6 months
• May 10, 2017

"Long story short--left hospital in continual pain labelled as anxiety only to return two days later. They found the clot thanks to CT with contrast. Had no problems with Lovenox at the hospital but during treatment someone decides to put me on Xarelto. I've been sick every day--felt as if I'm dying. Pleaded with hospital to switch medications now labeled a drug seeker--for seeking a different blood thinner? Pleaded with doctors and PCP & they're sticking with the Xarelto. I have a visible rash on my face & excruciating pain in limbs and back. After Spitting up blood & swollen tongue, discontinued. Tossed the medication. Was told to start back on the Xarelto. The problem isn't Xarelto. It's the doctors who refuse to listen to their patients."

• Frust...
• April 12, 2016

"I was put on Xarelto after a small P.E. in the lower lobe of my right lung and have not felt right since. I am tired all the time, have no energy, migraines, dizzy, and also increased anxiety. The reason I decided to take Xarelto over the other blood thinners was because of not having to go to the doctor monthly which I believe is the only good thing about this medication. Can't wait to go off of it in a month. I'm so thankful to read the comments and see I am not the only one suffering these side effects."

• survi...
• September 21, 2016

"Have been on Xarelto for 2 1/2 yrs after pulmonary embolism. First 20mg, then 15mg, now 10 mg. Have experienced a lot of negative side effects. Muscle and skeletal pain, intense burning pain in legs and other parts of body. Limits my movement tremendously and has had a very negative effect on my lifestyle. Am in pain everyday even with pain killers. If I stop Xarelto for a few days feel a lot better and am able to walk without little pain. My doctor says it's my imagination. That pain is not coming from Xarelto! Frustrating."

• Jim
• Taken for 1 to 6 months
• September 26, 2019

"On Xarelto 15mg for 4 weeks twice a day and now 20mg once a day. I have one month left. I went to ER after one month of treatment for what felt like another PE ...only to find out that my original PE site was clear and I have nothing else. Therefore, I’m convinced the symptoms I’m experiencing are side effects from the drug. Constant tiredness, lightheadedness, bouts of shortness of breath followed by random body aches and anxiety. The anxiety is body anxiety where I get shakey... I can’t deal with any type of interaction or social stimulation or I get short of breath and anxious. Prior to this I was a very socially active person but now I cannot withstand a short visit from anyone. from the infarctions from a PE I still have lingering side effects with physical exertion but I still do believe that they are intensified from this drug especially the neurological side effects. Xarelto does have horrible side effects (not for everyone) but it saved my life so I hate to complain about it."

• Zlsmith
• Taken for 1 to 6 months
• February 22, 2019

"At 17 years of age my daughter was admitted in the ER for breathing discomfort. She was diagnosed with pulmonary embolism on both lungs and DVT. Cause of the embolism was from taking birth control pills for only one week. She gave herself Lovenox injections for one year with no side effects but bruising. She was then put on Xarelto for 6 months. The first couple weeks of taking Xarelto she started experienceing hair loss, leg pain, head aches and severe anxiety. She has lost more than half of her hair and she hardly has any eyebrow hair. We are absolutely certain the medication is the cause. She takes 25mg once daily. The Dr. Will not take her off of the Xarelto. Thankfully she only has 2 more months to go. But with all the bad reviews such as uncontrolled bleeding, stroke and death it has me worried sick all day and night."

• Charro
• May 7, 2016

"I've been on Xeralto now for a month now and I'm sure it's working quickly, as I noticed within 24 hours of my incident ( small PE in left lung.) I couldn't believe the sharp pains subsided and breathing improved in that short amount of time. Since I've been taking this for a month now and actually lowered dose from 30mgs. to 20mgs. daily, I feel worse and worse. I feel like I have the hangover of the century, all the time, no alcohol, cannot tolerate it on this drug. Burning eyes, constant headache, extreme headach and fatigue, exhausted, in bed by 6:00 PM usually. I have two teenagers and a job, finding it hard to carry on with my life. I'm so depressed. It's bad enough to have this happen but this Xeralto is making me miserable!"

• Nessn...
• Taken for 1 to 6 months
• May 25, 2020

"Absolutely hate Xarelto. Hate it. I PEs in both lungs discovered in Dec 2019 when I had severe shortness of breath. 22 at the time, female. Had started birth control two weeks prior, was dehydrated, and was doing a lot of sitting down due to finals. 15mg twice a day worked for me, only had fatigue and night sweats to deal with. I've been on the 20mg once a day for about 5 months now, and I feel worse every day. Headaches all the time, fatigue, excessive sweating, rapid heart rate, leg pains that give me anxiety about more possible clots, heavy periods, chest pains that make me feel like I'm not getting better. It's hard for me to sleep at night with how uncomfortable I always am. Off it mid-June. Can't wait."

• PBano
• Taken for 1 to 6 months
• September 10, 2019

"HORRIBLE side effects from this drug. I have a page full of side effects experienced but the worst of it was rapid heartbeat, no energy spells, feeling like passing out, and anxiety with some sleepless nights. Been off of it for a little over a week and still feeling some effects from it! Stay away from this drug if you can."

• black...
• May 27, 2014

"Had a Pulmonary Embolism in March 2014, I am happy with Xarelto in that it is a pill I can take without weekly blood work. My only complaint is that I am losing my hair in clumps! I tell you it is like I am taking chemo or something. I used to have very thick long hair and now my hair falls out horribly in the shower, when I brush it, all day long on my clothes, in the car whatever. Hair loss is not currently listed as a side affect but I called the 800 number of the company and put in a complaint about it as many others have."

• Wilma...
• December 2, 2018

"Never had a PE, but I became sedentary, sitting for hours working on my laptop. I also stopped drinking lots of water. Only reason hospital found for my saddle PE was LONG HOURS OF SITTING & REDUCED WATER INTAKE. Water keeps blood flowing; so does exercise. I passed out & woke up with sweating, nausea, couldn't breathe, then my heart went into a fib. The ER did a CT scan & found a 6 inch clot! Took Xarelto 15 mg./twice daily, then 20 mg./once daily. My AWESOME hematologist ordered a battery of 19 separate blood tests after I'd been on Xa for 6 mos. With good test results & NO further clots, dosage reduced to 10 mg./once daily. Side effects: Hair loss (I HAD thick, long hair; over 60% now gone), bizarre dreams, muscle twinges, headaches, dizziness, increased skin/nerve sensitivity & bruising, TIREDNESS, extreme weight gain. I barely eat 2 meals daily, BUT gained 40 lbs. since taking Xarelto! I HOPE to be weaned from this drug, but I know GOD & Xarelto saved my life!"

• Zardine
• Taken for 1 to 6 months
• March 3, 2013

"My embolisms were discovered November 1. I was put on Warfarin but it was hard to get my blood to regulate and I didn't like the blood work. I began Xarelto on December 7, 2012. I have had success and my doctors are very pleased. No new embolisms have formed. I did have upper stomach pain this week but I also suffer from irritable bowel syndrome. Today I feel fine. I have not had any bleeding or bruising ."

• Anonymous
• Taken for 1 to 2 years
• June 9, 2020

"When I became ill over a year ago and developed blood clots in my lungs P.E. my doctor put me on XARELTO 20 MG. I have not developed any more blood clots Xarelto as took care of the blood clots. Occasionally I do get some side effects dizziness short of breath and aches and little bit of pain on my legs. I can over look these considering that Xarelto takes care of the blood clots in my lungs so I'm still here living a normal life doing the things that I enjoy. All medications have side effects."

• Snagz
• Taken for 2 to 5 years
• July 30, 2019

"Lots of people focus only on the negative of being on a blood thinner, if it wasnt for xarelto, I would most likely of been dead. I can't take warfarin, I had a bleed on that. I've had no clots since being on xarelto. Been on it, 20 mgs a day for over two years. Thanks for giving me an alternative blood thinner. You most likely saved my life, and definitely increased my life span."

• Anabe...
• Taken for less than 1 month
• August 20, 2013

"Was placed on Xeralto 15mgs twice a day for my pulmonary embolism on 7/30/2013. The one thing that no one informed me about was how it was going to change my menstrual flow. It was so heavy that I began to get concerned as I was soaking an overnight pad every two hours. Try going to work with that business happening and trying to be productive. It is a good thing that the first time I went through it I was still on leave from the initial hospitalization."

• Eddie...
• December 17, 2013

"I love this medicine. My sister had a pulmonary embolism and had to take Coumadin, with shots and weekly blood tests. After my P.E., I take Xarelto and have for 5 months. No issues. If I get a cut, it clots just fine. No doctor visits. No blood tests. A miracle for thrombosis."

• Mary
• Taken for 6 months to 1 year
• December 12, 2022

"Perfectly healthy, no blood clots, "PE," "DVT," ever. Exercise every day. Four weeks after vaccine developed "PE," multiple blood clots in the lungs close to the heart. Put on Xarelto and numerous monitoring, and blood tests. I was not told of potential side effects that this drug has, severe kidney issues and liver issues," which all show up in the blood tests, but then they now send you to other doctors. I could never sleep, horrible dreams. My face broke out in horrible acne that I had never seen, I was dizzy and never felt right at all. After 8 months, with clean blood tests ever since I got them. I wanted off of them. Oh, no, I was chastised like a small child and told I have to be monitored and take these pills for a long time, and now we want you to see other doctors for the above issues that I never previously had. I weaned myself off of them, don't recommend them for everybody. I was scared to do it. My acne went away. I sleep better, my balance is better, and my anxiety after doing this is better."

• zeemu...
• Taken for less than 1 month
• December 9, 2013

"On Xarelto 15mg 2X a day since pulmonary embolism. Very pleased as it allowed me to released from hospital less than 24hrs after admission. One particular side effect: I am experiencing vivid dreams since going on Xarelto. Looking forward to getting off as soon as possible, but I am grateful that I am not on Coumadin or Lovenox."

• Jabba...
• July 15, 2017

"I had a PE in 2014. Will be on blood thinners for life. Specialist switched me from warfarin to Xarelto last February and life has been three shades of hell ever since. Weight gain, pain, headaches, hair loss, ridiculous fatigue ... my period was out of control- like Carrie (stephen king) style until I finally got an IUD device (which I have never really wanted to do but at least my iron stores have recovered.) I found a new family doctor who agreed to put me back on warfarin but the specialist talked me out of it this winter. I'm so weak and tired I can't stand it. Started on warfarin yesterday and get to quit the Xarelto in two days. Can't wait."

• LEO
• May 31, 2018

"I was treated at a local hospital for minor chest pains. The chest X-Ray and EKG came back normal. Advised docs that the pain was mountains pass 10; however, I was subsequently prescribed with a narcotic which I refused. Two days later the pain returned so I visited the local VA hospital. Subsequent CT scan determined a PE in my right lung. Docs prescribed me with 20mg Xarelto for 90 days. They later extended my medication due to a heterozygous mutation because they wanted to do further research. I’ve exhibited symptoms of dizziness (initially), minor leg pain and fatigue. Anxiety increased overtime because neither of them were excruciating and I never had any shortness of breath. After telling doc of my initial symptoms, which I no longer have with the exception of the minor leg pain, he assumed that it was in my imagination. Three months later, I broke out in hives. I was upset at the fact that they basically refused to discuss the side effects"

• Poohy...
• Taken for less than 1 month
• July 28, 2015

"I was in the hospital this weekend for a PE left lung and pneumonia in my right. Completely unsymptomatic except for a very unusual episode of vomiting with chest pain. Have a PICC and doc was concerned it may have become dislodged, so to the ER we went. The whole PE / pneumonia thing is still utterly unreal to us - still in a daze, trying to figure out what it means for lifestyle changes. Since they switched me from Coumadin IV to Xarelto in the hospital I have had a non-stop awful migraine, upper back and neck pain (muscular), some upset stomach. My lower jaw and teeth hurt - something I've never experienced as I have no cavities at age 47; I can empathize with my husband's toothaches a bit now, unfortunately. Awful."

• Wayno
• Taken for 2 to 5 years
• December 12, 2019

"I had an unprovoked triple DVT an lots of clots in my lung..zero symptoms..apparently I have "sticky blood syndrome" possible either genetic or caused by a different medicine. It means my blood platelets stick together, blood becomes thick and causes clots...had no clots since I've been on Xarelto 20mg daily.."

• Bunnyt
• Taken for 1 to 6 months
• May 31, 2016

"Was rushed to the hospital with pulmonary embolisms in both lungs - one pressing on the right ventricle of the heart - platelets so low after heparin drip they didn't think I would survive. After a two hour trip in ambulance for an 11 day stay in major hospital, I was put on Xarelto twice a day for a week, then 20 mg daily. That was the beginning of Feb. - 4 months ago - I have been on Xarelto daily since then with no side effects at all. I was told I would have to be on it for life. I don't have any diet restrictions, but I do stay away from grapefruit - that is my own choice. I actually don't even realize I'm on this med when I don't think about it."

• Babyg...
• Taken for less than 1 month
• August 30, 2018

"I was admitted in the hospital for anemia also PE in both lungs I was given xarelto 15 mg 2x a day I also have internal hemorrhoids well the first day home I bled from my hemorrhoids and it would not stop I lost a lot of blood I am seeing the Dr and coming off this horrible drug"

• Miranda...
• Taken for 6 months to 1 year
• April 21, 2015

"I had knee surgery on October 13 ,2014, not even two weeks later on October 24, I collapsed in my kitchen struggling to breathe. The paramedics thought, because of my age, that I overdosed on pain meds. Once they got me to the hospital I went into cat scan and ended up coding and dying. I was dead for 25 minutes. Obviously they found out both of my lungs were FULL of blood clots, they couldn't understand how I was even still alive or had made it that long without having any symptoms or problems. Dr. Barton of Thibodaux, Louisiana saved my life by putting me on Xarelto. It is now April 21, 2015, and my insurance won't pay for it anymore so now I'm switching to Warfarin. I'm very unhappy with the switch, no complaints about Xarelto though."

• CM113
• January 15, 2015

"A warning for menstruating women... I am a 28 year old female who was prescribed Xarelto for a Pulmoary Embolism. My menstrual period lasted 10 days with extremely heavy bleeding and clots. Normally it lasts 3-4 days and is very light. Soaked through an ultra tampon AND overnight pad every 2 hours. I went through a box of tampons every 2 days. I was not able to function at work, and it was ruining my relationship. I held my meds for a day and boom! Period went away. I believe that Xarelto prevented my endometrial lining from forming and staying in place."