Ribociclib and Hair Loss: What Users Say

• Thr...
• Taken for 1 to 6 months
• May 17, 2019

Ribociclib for Breast Cancer, Metastatic "On Kisqali for breast cancer mets and after 3 rounds, the tumor markers are down, and one lesion in the left rib has completely cleared up, and another in the sternum has shrunk from 4 cm to 2 cm. Lots of side effects but minor compared to IV chemo, which I had 15 years ago. Some hair loss, constipation, joint pain, blurry vision on occasion. Still give it 10 out of 10"

• Roc...
• Taken for 1 to 6 months
• May 12, 2025

Ribociclib for Breast Cancer, Metastatic "I was diagnosed with metastatic breast cancer in my lung in November 2024. I started Kisqali treatments in December. I'm finishing up my 6th dose. The cough I experienced before diagnosis is completely resolved. I found the Kisqali side effects to be very manageable. Skin rashes are mostly resolved, some hair thinning and minor gastrointestinal issues are all minor now. My fingernails are thin and brittle, solved by manicures. I also biked 150 miles in Europe last month with no issues. I'm still working at my hospital job part-time. I don't have the results of my most recent scans, so I don't know if my tumors have shrunk, but I definitely feel great. I have been told by two oncologists that Kisqali will stop working. Compared to the chemo infusions I received 23 years ago, these side effects are minimal, and I'm enjoying life. My hope is that research continues, it brings hope."

• Mum...
• Taken for 2 to 5 years
• March 16, 2021

Ribociclib for Breast Cancer, Metastatic "I have been on Kisqali since September 2018, with no disease progression. Tumor markers in the “normal” range. Side effects: nausea, diarrhea, joint pain, some hair loss in the early stages, the occasional rash or skin sensitivity, fatigue. Having said all of this, I am living my life, working full-time and traveling when possible... life is good!"

• plu...
• Taken for 1 to 6 months
• February 7, 2018

Ribociclib for Breast Cancer, Metastatic "I made it 5 rounds before my liver enzymes just wouldn't go down. It shrunk everything by at least half! My RBC and neutrophils are right on the line. Not sure what's next for me -- I was on the Kisqali/Femara combo with monthly injections of Xgeva and Zoladex. I struggled with constipation and dried out everything -- but that might be from being forced into menopause. If you happen to be on this combo: Some hair thinning, unexplained blurry and double vision, rage!, dementia, balance problems, sleep problems, and thyroid issues -- but from what I've heard, a million times easier than old school chemo. (I have had a brain MRI and it was all clear) Stage 4 de novo, ER+ Her2- Original tumor 8cms with mets to ribs and hip"

• DMa...
• Taken for 2 to 5 years
• November 9, 2020

Ribociclib for Breast Cancer, Metastatic "De novo diagnosis 3/21/18, started 600 mg with 2.5 mg Femara on 3/23/18. Single bone met on right humeral head. Complete remission in July 2019 (after 16 months). 32 months since diagnosis, still clear scans. Some hair thinning at first, along with occasional nausea, blurry vision (mostly in the AM), joint pain, and fatigue. Fatigue is the worst part for me, but my quality of life has not changed at all."

• Anonymous
• Taken for 2 to 5 years
• December 10, 2021

Ribociclib for Breast Cancer, Metastatic "Have been on Kisqali since May 2017 with no progression. First diagnosed January 2011 and metastatic September 2016 with tumor on L3 vertebrae - 10 rounds radiation. Started anastrozole November 2011 and will never go off. No problems other than hair thinning and occasional fatigue. Only downside is my co-pay."

• Val...
• Taken for 1 to 6 months
• May 28, 2024

Ribociclib for Breast Cancer "Just diagnosed. One month so far. 600mg. I take them with dinner, and no nausea. Mild headaches, so drink lots of water. Constipation, so again, drink your water. Stool softener will help. Mild rash, no itching. Light hair loss in the shower. Fatigue is prevalent."

• Lyd...
• Taken for 6 months to 1 year
• February 13, 2025

Ribociclib for Breast Cancer, Metastatic "I have been taking Kisqali for 7 months and am VERY pleased with my results. My cancer antigen number continues to drop every month. I take it in conjunction with Letrozole tabs. I have the absolute BEST oncologist team at Duke Hospital in Raleigh and Durham, NC. Dr. Payriani and his team are superb. My side effects have been minimal to say the least: I had a rash that covered most of my body for about 2 months, and I have been losing hair, which, to me, is worth it to see the results I am getting from the medications."

• Geo...
• Taken for 6 months to 1 year
• May 19, 2023

Ribociclib for Breast Cancer, Metastatic "9 months taking Kisqali. Scans show no progression. Side effects I have experienced are a skin rash, some hair loss, hallucinations and/or nightmares, stomach pain after taking pills that lasts about 1/2 hour, and a dry mouth. Otherwise, they are very easy to take. I take 400 mg daily."

• Lyn...
• Taken for 1 to 6 months
• September 9, 2024

Ribociclib for Breast Cancer, Metastatic "Kisqali did not make me feel ill, however, I did lose a substantial amount of hair. Plus, I have a red, itchy rash on my skin (legs and arms). I also pass blood in my urine after exercising, however, I don't know if this is from Kisqali or the stent in my urethra."

• Dee...
• Taken for less than 1 month
• May 20, 2025

For Breast Cancer, Metastatic "No serious side effects. Have experienced skin rashes, very itchy, minimum hair loss. Am tired a lot/ low energy. I wear dentures, however, my lower jaw is sore constantly. Appetite is decent. This is my 1st month on this prescription. Dosage, I started at 600 mg but due to my memory or lack of it, dosage reduced to 400 mg for 21 days on and 7 days off meds."