Ribociclib and Blurred Vision: What Users Say

• Cin...
• Taken for 2 to 5 years
• April 22, 2023

For Breast Cancer, Metastatic "I have been taking Kisqali since 1/3/20 and it is now 4/23. I'm experiencing unexplained blurry and double vision, yet the oncologist isn't aware of this side effect. Add to that, when you research this product online and side effects such as blurry vision and hazy vision, it is nearly impossible to find anything from real people and their experiences on Kisqali. I recommend this drug to anyone who has metastatic breast cancer. Please be proactive in your health journey because most oncologists are not always aware of the full side effects."

• Thr...
• Taken for 1 to 6 months
• May 17, 2019

For Breast Cancer, Metastatic "On Kisqali for breast cancer mets and after 3 rounds, the tumor markers are down, and one lesion in the left rib has completely cleared up, and another in the sternum has shrunk from 4 cm to 2 cm. Lots of side effects but minor compared to IV chemo, which I had 15 years ago. Some hair loss, constipation, joint pain, blurry vision on occasion. Still give it 10 out of 10"

• Ann...
• Taken for 6 months to 1 year
• June 1, 2023

For Breast Cancer, Metastatic "I had BC 17 years ago, it returned in my lungs in 2022. I’ve been on Kisqali and Aromasin for 9 months. My tumor marker is now down to 50, from 167 when I started. I do not have any organ metastasis, just a few tiny lesions in L4 and L5, which have since mostly gone. I have a Zometa infusion every 90 days. I had no side effects for the first few months, however, I feel like this drug and its side effects are cumulative because now I have neuropathy and my ears are ringing very loudly, although it is not consistent every day. I have no stomach issues at all, some blurry vision now and again, and mild dizziness periodically. I do get short-tempered, but again not all the time. Overall, Kisqali and Aromasin have worked for me, and I hope it will continue to work. I live a reasonably active life, and I am very grateful for these drugs, and I have no hesitation in recommending them to anybody who is in the position I am in."

• plu...
• Taken for 1 to 6 months
• February 7, 2018

For Breast Cancer, Metastatic "I made it 5 rounds before my liver enzymes just wouldn't go down. It shrunk everything by at least half! My RBC and neutrophils are right on the line. Not sure what's next for me -- I was on the Kisqali/Femara combo with monthly injections of Xgeva and Zoladex. I struggled with constipation and dried out everything -- but that might be from being forced into menopause. If you happen to be on this combo: Some hair thinning, unexplained blurry and double vision, rage!, dementia, balance problems, sleep problems, and thyroid issues -- but from what I've heard, a million times easier than old school chemo. (I have had a brain MRI and it was all clear) Stage 4 de novo, ER+ Her2- Original tumor 8cms with mets to ribs and hip"

• DMa...
• Taken for 2 to 5 years
• November 9, 2020

For Breast Cancer, Metastatic "De novo diagnosis 3/21/18, started 600 mg with 2.5 mg Femara on 3/23/18. Single bone met on right humeral head. Complete remission in July 2019 (after 16 months). 32 months since diagnosis, still clear scans. Some hair thinning at first, along with occasional nausea, blurry vision (mostly in the AM), joint pain, and fatigue. Fatigue is the worst part for me, but my quality of life has not changed at all."