Ribociclib User Reviews & Ratings

• Roc...
• Taken for 1 to 6 months
• May 12, 2025

Ribociclib for Breast Cancer, Metastatic "I was diagnosed with metastatic breast cancer in my lung in November 2024. I started Kisqali treatments in December. I'm finishing up my 6th dose. The cough I experienced before diagnosis is completely resolved. I found the Kisqali side effects to be very manageable. Skin rashes are mostly resolved, some hair thinning and minor gastrointestinal issues are all minor now. My fingernails are thin and brittle, solved by manicures. I also biked 150 miles in Europe last month with no issues. I'm still working at my hospital job part-time. I don't have the results of my most recent scans, so I don't know if my tumors have shrunk, but I definitely feel great. I have been told by two oncologists that Kisqali will stop working. Compared to the chemo infusions I received 23 years ago, these side effects are minimal, and I'm enjoying life. My hope is that research continues, it brings hope."

• Anonymous
• Taken for 1 to 6 months
• March 6, 2023

Ribociclib for Breast Cancer, Metastatic "Have been on Kisqali for two months. In the first week, three tablets every day, but due to side effects of diarrhea, nausea, and fatigue, reduced it to one. Still suffer the above, but not as severely. I do have Fulvestrant injections on a monthly basis. I am hoping with perseverance, side effects will decrease. I had breast cancer twenty-five years ago with metastasis in the last twelve, still not on the organs. I am 83 years old."

• Qui...
• Taken for 1 to 6 months
• January 24, 2021

Ribociclib for Breast Cancer, Metastatic "Metastatic BC tumor showed up behind sternum. I’ve been on medication for almost 2 months. Expected the worst but no negative side effects whatsoever. So far, bi-monthly blood work and ECGs give me the green light. WBC count within range. I take 600 mg Kisqali along with 2.5 mg Letrozole. Then, I hike for an hour in the mountain. I feel great. Still work part-time. I’m 65. I hope this continues."

• Cin...
• Taken for 2 to 5 years
• April 22, 2023

Ribociclib for Breast Cancer, Metastatic "I have been taking Kisqali since 1/3/20 and it is now 4/23. I'm experiencing unexplained blurry and double vision, yet the oncologist isn't aware of this side effect. Add to that, when you research this product online and side effects such as blurry vision and hazy vision, it is nearly impossible to find anything from real people and their experiences on Kisqali. I recommend this drug to anyone who has metastatic breast cancer. Please be proactive in your health journey because most oncologists are not always aware of the full side effects."

• MJa...
• Taken for 2 to 5 years
• November 6, 2019

Ribociclib for Breast Cancer, Metastatic "I started a trial on ribociclib (Kisqali) in July of 2017. Two plus years later, I am still stable after seeing a steady decrease in the size of my marker nodes for the first 18 months. Side effects for me have been minimal, and my quality of life is excellent!"

• Thr...
• Taken for 1 to 6 months
• May 17, 2019

Ribociclib for Breast Cancer, Metastatic "On Kisqali for breast cancer mets and after 3 rounds, the tumor markers are down, and one lesion in the left rib has completely cleared up, and another in the sternum has shrunk from 4 cm to 2 cm. Lots of side effects but minor compared to IV chemo, which I had 15 years ago. Some hair loss, constipation, joint pain, blurry vision on occasion. Still give it 10 out of 10"

• Ann...
• Taken for 6 months to 1 year
• June 1, 2023

Ribociclib for Breast Cancer, Metastatic "I had BC 17 years ago, it returned in my lungs in 2022. I’ve been on Kisqali and Aromasin for 9 months. My tumor marker is now down to 50, from 167 when I started. I do not have any organ metastasis, just a few tiny lesions in L4 and L5, which have since mostly gone. I have a Zometa infusion every 90 days. I had no side effects for the first few months, however, I feel like this drug and its side effects are cumulative because now I have neuropathy and my ears are ringing very loudly, although it is not consistent every day. I have no stomach issues at all, some blurry vision now and again, and mild dizziness periodically. I do get short-tempered, but again not all the time. Overall, Kisqali and Aromasin have worked for me, and I hope it will continue to work. I live a reasonably active life, and I am very grateful for these drugs, and I have no hesitation in recommending them to anybody who is in the position I am in."

• Mum...
• Taken for 2 to 5 years
• March 16, 2021

Ribociclib for Breast Cancer, Metastatic "I have been on Kisqali since September 2018, with no disease progression. Tumor markers in the “normal” range. Side effects: nausea, diarrhea, joint pain, some hair loss in the early stages, the occasional rash or skin sensitivity, fatigue. Having said all of this, I am living my life, working full-time and traveling when possible... life is good!"

• plu...
• Taken for 1 to 6 months
• February 7, 2018

Ribociclib for Breast Cancer, Metastatic "I made it 5 rounds before my liver enzymes just wouldn't go down. It shrunk everything by at least half! My RBC and neutrophils are right on the line. Not sure what's next for me -- I was on the Kisqali/Femara combo with monthly injections of Xgeva and Zoladex. I struggled with constipation and dried out everything -- but that might be from being forced into menopause. If you happen to be on this combo: Some hair thinning, unexplained blurry and double vision, rage!, dementia, balance problems, sleep problems, and thyroid issues -- but from what I've heard, a million times easier than old school chemo. (I have had a brain MRI and it was all clear) Stage 4 de novo, ER+ Her2- Original tumor 8cms with mets to ribs and hip"

• DMa...
• Taken for 2 to 5 years
• November 9, 2020

Ribociclib for Breast Cancer, Metastatic "De novo diagnosis 3/21/18, started 600 mg with 2.5 mg Femara on 3/23/18. Single bone met on right humeral head. Complete remission in July 2019 (after 16 months). 32 months since diagnosis, still clear scans. Some hair thinning at first, along with occasional nausea, blurry vision (mostly in the AM), joint pain, and fatigue. Fatigue is the worst part for me, but my quality of life has not changed at all."

• Dia...
• Taken for 1 to 6 months
• November 5, 2023

Ribociclib for Breast Cancer, Metastatic "The first couple of months were rough as far as tolerating it. Now at month 6, I am doing much better. I have lost a lot of hair including eyebrows, eyelashes, pubic hair, leg hair, etc. I can live with that as long as the drug is working and I am alive. I have lost weight as sometimes food just doesn't taste right and I don't want to eat it - other days food is fine. The doctor asked if I wanted to switch to another drug, but I declined. As long as Kisqali is working, I will work through the symptoms. The bad news - I will be on this for a minimum of 5 years, maybe longer. I am 82 years old and will do whatever is necessary. Thank goodness for my excellent health insurance."

• Bea...
• Taken for 5 to 10 years
• December 21, 2023

Ribociclib for Breast Cancer, Metastatic "I've been on Kisqali + Femara for 6 years, with no side effects other than low blood cell counts. A very easy medicine to take. I have bone mets and I am thrilled that there has been no disease progression since I began this course of treatment, and the severe pain I had in my back went away within a few months of starting the meds."

• Amy...
• Taken for 1 to 6 months
• March 4, 2024

Ribociclib for Breast Cancer, Metastatic "Two breast tumors and bone metastasis, and started with Anastrozole and radiation to the bone area because they were close to breaking. After radiation, continued Anastrozole and started Kisqali, but had to quit in the third cycle due to acute liver problems. I lost 22 pounds during Kisqali. I was moved to Ibrance plus daily Anastrozole, which I have been taking for 27 months thus far. Bones with metastasis are regenerating. Ibrance works. One tumor is scar tissue in MRI, second almost gone. After the two rounds of Kisqali, they did see shrinkage of the breast tumors, and at the time felt it was too bad Kisqali gave me liver problems. I am glad there are alternative treatments."

• lob...
• Taken for 1 to 2 years
• December 15, 2023

Ribociclib for Breast Cancer, Metastatic "Reduced tumor presence significantly. Now 20 months on it. After initial dramatic CA27.29 decrease, now seeing a slow upward trend. Have dry eyes, alopecia, increased AST/ALT, constant headache, vaginal dryness, right-sided low rib pain, bruise easily, bone pain, and muscle strength loss. However, oddly, I feel much better than this written description indicates."

• Anonymous
• Taken for 2 to 5 years
• December 10, 2021

Ribociclib for Breast Cancer, Metastatic "Have been on Kisqali since May 2017 with no progression. First diagnosed January 2011 and metastatic September 2016 with tumor on L3 vertebrae - 10 rounds radiation. Started anastrozole November 2011 and will never go off. No problems other than hair thinning and occasional fatigue. Only downside is my co-pay."

• Val...
• Taken for 1 to 6 months
• May 28, 2024

Ribociclib for Breast Cancer "Just diagnosed. One month so far. 600mg. I take them with dinner, and no nausea. Mild headaches, so drink lots of water. Constipation, so again, drink your water. Stool softener will help. Mild rash, no itching. Light hair loss in the shower. Fatigue is prevalent."

• Geo...
• Taken for 6 months to 1 year
• May 19, 2023

Ribociclib for Breast Cancer, Metastatic "9 months taking Kisqali. Scans show no progression. Side effects I have experienced are a skin rash, some hair loss, hallucinations and/or nightmares, stomach pain after taking pills that lasts about 1/2 hour, and a dry mouth. Otherwise, they are very easy to take. I take 400 mg daily."

• Chr...
• Taken for 1 to 6 months
• March 23, 2024

Ribociclib for Breast Cancer, Metastatic "I am on 400 mg Kisqali, a reduced dose because my QTc is marginally long. It has been okay - better than Verzenio in terms of fatigue, not as good as Ibrance in terms of side effects and effectiveness. I have been on it for two cycles. So far, no signs that it is working. Staying on it for two more cycles before another PET/CT to see if it is shrinking tumors, especially one that is pressing on my lung and caused atelectasis. Nervous because other meds have worked immediately, dramatically, and this is not. I have read that Kisqali may take longer to kick in. Fingers crossed because next is chemo. Kisqali is supposed to be more effective than other CDK4/6 inhibitors and to work for a longer time. I find it easy to use, and side effects are tolerable. My blood counts are normal, my QTc is not too high. A little eczema, quite a bit of fatigue, but not the kind that knock you down. Just taking naps."

• Mum...
• Taken for 1 to 6 months
• May 22, 2024

Ribociclib for Breast Cancer, Metastatic "I was previously on Ibrance 100mg for nearly three years when it stopped working. My doctor put me on Kisqali about one month ago. I noticed having less fatigue and brain fog. Too soon to know how well it is keeping my cancer from progressing."

• Lyd...
• Taken for 6 months to 1 year
• February 13, 2025

Ribociclib for Breast Cancer, Metastatic "I have been taking Kisqali for 7 months and am VERY pleased with my results. My cancer antigen number continues to drop every month. I take it in conjunction with Letrozole tabs. I have the absolute BEST oncologist team at Duke Hospital in Raleigh and Durham, NC. Dr. Payriani and his team are superb. My side effects have been minimal to say the least: I had a rash that covered most of my body for about 2 months, and I have been losing hair, which, to me, is worth it to see the results I am getting from the medications."

• 3-t...
• Taken for 1 to 2 years
• February 6, 2025

Ribociclib for Breast Cancer "Been on Kisqali for 2 years. Doing OK on it. Some side effects I have are not normal side effects of Kisqali. My side effects have varied with my first breast cancer (07), radiation wasn't so bad. Then my second breast cancer (11) was aggressive, took tamoxifen, lots of side effects. Had mastectomy (12). Third breast cancer (22) prescribed Kisqali and letrozole, all kinds of side effects. Now taking 1 200 mg 1x day. Easy to use. Get through a patient assistance program."

• Jen...
• Taken for 1 to 6 months
• March 21, 2024

Ribociclib for Breast Cancer, Metastatic "I started on Kisqali after finding out I had de novo breast cancer which had metastasized to my bones. My first dose was in September. I am still taking it now in March with significant improvement with my scans. I do have the side effect of thinning hair but that's it."

• cin...
• Taken for 1 to 2 years
• September 28, 2023

Ribociclib for Breast Cancer, Metastatic "I have been on Kisqali and fulvestrant for probably a year now for breast cancer with metastasis to the lungs. My cancer number has gone from over 100 to 36. It seems that my hair is thinning a lot more. No nausea, vomiting, or other side effects. Maybe anxiety, but not sure if it is that or other meds. My vision is also becoming distorted. I can still see, but it is more blurry."

• Kat...
• Taken for 1 to 6 months
• January 29, 2025

For Breast Cancer, Metastatic "At first, Ribociclib caused nausea and vomiting, so I was reluctant to eat and lost about 20 lb in 2 months. Eating 30 minutes beforehand tends to prevent nausea. Another immediate side effect was major fatigue. For the first month, I could barely get out of bed. Sometimes I slept more than 24 hours, only waking every 6 to 10 hours for bathroom breaks, then going back to sleep again. This is very frustrating, but it has improved over time. My depression has worsened - to the point where I think about abandoning Ribociclib because feeling like this for 3/4 of the time is unsustainable - but the medication is very effective. An early blood test showed a significant reduction in tumor markers. This reduction continued in my next blood test. It looks like the treatment is very effective at preventing the tumors from growing. I don't know if any of them have shrunk. A bone scan today should tell us this."

• Jun...
• June 9, 2023

For Breast Cancer, Metastatic "This has made me feel very tired. It took my body about 4 months to adjust to the medication. I experienced vomiting for a week, diarrhea for 4 months, heart palpitations after the 4th month, hot flashes, and night sweats."