Primidone for Epilepsy User Reviews

Brand names: Mysoline

Rating: 9.3

Primidone has an average rating of 9.3 out of 10 from a total of 3 reviews for the treatment of epilepsy. 100% of reviewers reported a positive experience, while 0% reported a negative experience.

10		67%
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8		33%
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Jim...
Taken for 10 years or more
June 6, 2022

Primidone "When the doctors finally prescribed name brand Mysoline, my seizures stopped and I got my life back. After years of going round and round with the many different group insurance companies of my employers and getting the drug approved, things worked wonderfully. Now that I am retired and on Medicare, I am shocked at what I pay for this drug alone! Annually, it costs me, after my insurance pays, $13,064.92 out of pocket. When I was first getting on Medicare, I applied for both the Patient Assistant Program (PAP) through Bausch & Lomb and had my neurologist submit a request to have name brand Mysoline approved as a formulary drug so my Medicare prescription plan would assist in paying. They approved and that immediately dropped me from the Bausch & Lomb PAP. I have no idea how anyone on Social Security is supposed to pay $13,064.92 annually????? The cost keeps going up, up, up!"

8 / 10

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5 Report

Jan...
Taken for 10 years or more
August 16, 2022

Primidone "This medication is wonderful. I have been taking it for 40 years, no side effects, stops seizures. I take a small amount of Valium and Dilantin with it, I have my life back. Now there is a shortage. I cannot take the generic, I have falls. Went to the Mayo Clinic, passed all the tests in regard to falls, passed them all. Went out the door, fell, and broke my shoulder while on Primidone. I have to have Mysoline because of filler and dye allergies. Now they say they have a shortage. I cannot take the Primidone. Anybody else having this problem?"

10 / 10

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3 Report

Jus...
Taken for 10 years or more
October 15, 2022

"Have been taking it for about 30 years. Have no bad side effects. I'm taking 250 mg (1 in the morning, 1 1/2 at bedtime). Took it during all 5 pregnancies. Caused no problems whatsoever!"

10 / 10

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1 Report

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