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User Reviews for Wakix to treat Narcolepsy

Wakix has an average rating of 5.6 out of 10 from a total of 8 ratings for the treatment of Narcolepsy. 38% of users who reviewed this medication reported a positive effect, while 38% reported a negative effect.

Wakix Rating Summary

5.6/10 average rating

8 ratings from 6 user reviews.

Compare all 31 medications used in the treatment of Narcolepsy.

10
38%
9
0%
8
0%
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0%
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5
25%
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3
13%
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1
25%
allpuffedup · Taken for 1 to 6 months June 16, 2021

“Side effects started immediately, which were increased heart rate, severe insomnia, daily panic attacks, and suicidal ideation. Stayed on them for 2.5 months because I am so tired I can barely function, and they do not work at all. Absolutely no change in my daytime sleepiness.”

1 / 10
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Still sleepy · Taken for 1 to 6 months March 12, 2021

“Wakix reduced brain fog for me. It hasn't caused any notable side effects. It may be somewhat wake-promoting, however it isn't enough for me. I am completely exhausted. I would continue on it for the decreased brain fog but I don't know that it's worth the price tag.”

5 / 10
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May · Taken for 1 to 2 years November 9, 2020

“This medicine changed my life. I couldn't drive, nor stay awake. Now thanks to this medicine I can function everyday. It seems to work without loosing its effectiveness. I am just so thankful that someone finally came out with a stimulate medication what make me feel normal without feeling overactive, and causes and increase in heart rate or my blood pressure. I'm also thankful that it is not I the category of controlled medicines, it makes me feel like I'm take a normal medicine. Thank you for helping those of us with narcolepsy and, I also have cataplexy. Wakix helps with that too. I can laugh really hard without falling over on over excite, even when it good news. I tried everything, this is the only medicine that works for you me to control my sleep wake cycle. I can now go to bed anytime I want to, and wake up too.”

10 / 10
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Sleepydad · Taken for less than 1 month October 21, 2019

“I was excited to learn that there would be a new medication to treat the excessive daytime sleepiness I feel as a result of my narcolepsy. I mentioned Wakix to my doctor and he said he would look into it as he had not any experience with it. He called me to say that if I needed the maximum prescribed dose, it would cost over $135,000 a year! For a pill that is taken once a day! I knew it was approved in Europe so checked to see how much it cost there. Looks to be closer to $5,000 a year. So frustrated!!!”

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Anonymous · Taken for 1 to 2 years April 30, 2020

“I was on a trial with this medication for Narcolepsy with Cataplexy. I have been on the trial for over a year and the trial is up. I was very dedicated to taking the medication, and it was working very well. I just found out that the trial is over and my insurance is not going to pay for the medication. It is thousands of dollars a month to continue. Not sure why they would even start you on it, if this was going to be the final outcome. Back to square 1!!”

10 / 10
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OUComanche · Taken for 1 to 6 months May 16, 2020

“I was stunned my insurance approved this Wakix as this medication cost about $135k per year. I'm just now finishing my first month and it's totally changing my life. I'm now beginning to be able to both drive and work again thanks to Wakix. I could never express the amount of joy this is giving be in an online review. it's a shame that the US healthcare system is so corrupt because this medicine could change a lot of people's lives for the better. To me so far this medicine is an answer to my prayers of retaining control of my life. It's just a travesty that in the US, it cost so much where as in Europe you can get it for literally a 1/10 of the cost we Americans have to pay..."yay capitalism..."”

10 / 10
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Suddenly sleepy · Taken for 1 to 6 months August 14, 2020

“Been on Wakix for about 6 months along with my adderall. At first it was great. I was able to be alert much faster and even able to sleep at night. Over time I began having the pins & needle sensations all over my body at night which prevented me from sleeping. By the 3rd & 4th month I started with the muscle weakness. I was falling down everyday and most days several times a day. I had no strength in my legs in order to get myself back up off the ground without assistance. Then month 5 I started with the nausea and couldn't keep food down. Month 6 I decided to stop taking wakix and haven't fallen since. Only been off it for about a week but the muscle weakness continues to get worse. Can't even stand on my own two legs or walk with a walker. Now I do have multiple medical issues that I think play a part in the severity of the muscle weakness.”

5 / 10
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Frequently asked questions

Always Sleepy · Taken for 1 to 6 months May 1, 2020

“I tried Pitolisant for six months. As I attempted to "dose up" I experienced nausea and frequent awakening all night long. At the lower dose it was ineffective so I went back to my old standby which is Dexedrine.”

3 / 10
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B · Taken for less than 1 month February 17, 2020

“Just started Wakix. Very expensive and does not take insurance HOWEVER I was APPROVED for it by my insurance company and they also have payment help through Panther (the company) you’d have to speak to your doctor about. Have not seen any difference yet, but it’s just my first week and does take 8 weeks to notice any differences. Very hopeful! If it helps me I will be sure to update!”

1 / 10
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This information is NOT intended to endorse any particular medication. While these reviews might be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare practitioners.

Learn more about Narcolepsy

IBM Watson Micromedex

Symptoms and treatments

Mayo Clinic Reference