User Reviews for Elidel
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
|Eczema||30 reviews||243 medications|
|Perioral Dermatitis||4 reviews||121 medications|
|Atopic Dermatitis||13 reviews||238 medications|
|Summary of Elidel reviews||7.1||47 reviews|
Reviews for Elidel
"Amazing ! Was addicted to topical Elocon and had rash for 2 months around my mouth from steroid cream. Was getting worse and had to apply more steroid creams . Used Elidel and in HOURS it was fading after using it once . I will continue to use it ! It’s like a magic cream ( for me ) . Thank goodness"
For Eczema "After having eczema most of my life, it seemed to get worse after having allergy shots. 18 months ago the rash was on my face, neck, shoulders, back, and some on my stomach and legs. Hot sweaty weather was unbearable. I had 4 triamcinolone shots over 14 months. The shots cleared me up, but their good effect became less each time, and I had arm bruising and started to get anxiety episodes. A new doctor prescribed tacrolimus for my face, but I was allergic to it. Elidel is working for now, clearing angry red patches on the sides of my neck and most of the problems areas on my face, including my left eye. My arms also got better even though I only used Pimecrolimus on face and neck. However, I feel tired, sometimes bone tired. Twice in six weeks of use I have had swollen glands and a cold with a fatigue that keeps coming back. I pause the medication to get better. The skin repair is like magic, but I am worried about the side effects. A weak immune system is a big deal."
"Wow!! I have had severe seborrheic dermatitis for over ten years effecting not only my head, ears, cheeks, beard, chest, back and it was bad for my self esteem, employment and life in general. I have used many things over the years all of which eventually stop working but this stuff is amazing! I have my life back and I am beginning to smile again. Smooth skin, not inflammation and no flakes. Yes there is a kind of flush/heat feeling on the skin the first few days but that stops. Very happy with this product!!!! May I add that I am in the uk so I get free prescriptions so I can’t comment on affordability."
For Eczema "It is very effective"
For Eczema "After being prescribed Elidel, my skin got much worse. I thought it would get worse and then eventually get better, but I was very wrong. Months later, not only has Elidel caused extreme, extreme, EXTREME skin discolouration, but my eczema has gotten worse, my immune system has weakened, and I am constantly sick. Highly do not recommend. I've had eczema for over half my life, and it has never been worse than it is now, thanks to Elidel."
For Perioral Dermatitis "At 25, I’ve been unfortunate enough to suffer from both rosacea, perioral dermatitis, and chronic hives. Elidel is the only medication that has been able to help all three. It does not aggravate my very sensitive and reactive skin either. It works fast. I reach for it as soon as I feel any kind of flare. I was scared at first about using too often because of the black box warning. However, my allergist and derm both confirmed that it’s actually VERY safe. Beware though: Can cause some premature ageing when used on face :/ But besides that, wonderful topical!"
For Atopic Dermatitis "I have atopic dermatitis and I've had it for my whole life. I was miserable so my doctor prescribed me elidel. It made me worse. It made me peel really bad like huge chunks of skin would fall off of my body. It also dried out my skin. I will never use this again."
"I developed a rash on my eyelids from discoid lupus. Raw, cracked, flacking skin. I heard about a non steroid cream and asked my dermatologist to give me some samples. It is working. I’m so thankful. Xo"
For Eczema "I had got little bumps (not like acne you can pop) all over my entire face! Yes, around my mouth, forehead, cheeks and the side of my face. It was horrible. I went to the dermatologist and she prescribed elidel. I put it on twice a day and it worked fast! They started clearing up by the third day of usage and by the sixth day they were gone. My face is clearer then before. At first using in the dosage in the morning and going outside the sun kind of irritated my skin and caused my areas of the skin on my face to itch. So I would either put the morning dose on like at 6 or 7 am bc I knew I wouldn’t be leaving the house till 12 and the last amount at night. I recommend don’t put it on skin and go straight into the sun. But I’m so glad my doctor prescribed this it worked for me and had no serious side effects . Oh and you don’t have apply much either!"
"I was given this medicine by my physician for less than a pea size dry patch. It burned my skin severely, causing it to become discolored. It burned my skin, making it become more dry and cracked. Over the years, my symptoms have gotten progressively worse. I may have Crohn's now, and I get a bunch swollen lymph nodes. My hands are now crippled, and I have to pry them apart. This cream have weakened my immune system as well. I am very weak at times. I feel helpless, because I couldn't do things for my girls. I tried reaching the company, and all they had to say was...keep us informed. I sent pictures and everything. I reached back out to get no response."
For Eczema "My 2yr old has been suffering with eczema on his cheeks since he was 7 months old. It would only appear during winter however it would be extremely red, scabby, he would itch consistently making it bleed. On occasion it would weep and I am assuming it would hurt him as at night he would not sleep. My poor little boy would suffer day after day and nothing I did or try would work. After spending over $600 trying to find a solution the Dr gave us Elidel cream and it worked within 2 days ! I can not describe how amazing this cream worked for us I am so happy my boy is better !"
For Atopic Dermatitis "Didn’t work. Ended up with severe side effect i.e fever, headache , muscle stiffness, nasal congestion, numbness in hands and legs, heart burning etc."
For Atopic Dermatitis "I had seborrhoic dermatitis constantly for a number of years, however coming across Elidel cream we have been able to counteract the effects by using an autoimmune cream which’s will rectify the effects of dry/rashly skin."
For Eczema "Cleared up my toddlers eczema on his around his eye after steroids failed. Occasionally when it can comes back I use elidel at first sign and within two days it's healed. Works for us!"
For Perioral Dermatitis "My 11 year old daughter swims 6 times a week. She’s a state swimmer and everyone told us that it was the chlorine that caused the facial dermatitis but she’s been swimming since she was 2. Maybe hormone change could have been a trigger but it started around her nose, spread to both sides of her chin and then to her eyebrows. Red spots, weeping, itching, crusting. Tried cortisone 1% and many natural creams but no steroids as I read such bad reviews of suppressing the issue and it reappearing worse than ever. A pharmacist suggested Elidel and we asked the doctor immediately. Within 5 days (whilst swimming) the redness has gone and for the first time in 6mths, her skin looks normal again. I’m so impressed! It was subsidised in Oz (Australia) and we paid $40 for a small tube. Worth every cent! I just hope it controls this condition. Time will tell as I don’t want it to be a long term solution."
For Eczema "Eczema cleared up with in 2 weeks."
For Eczema "After discovering the cost of the medication, I asked my physician if I could get a sample before buying it. The pharmaceutical company would not send samples. That should have been an indication that it might not be effective. I finally purchased the prescription of 30 g for $250. I have not found the product to be very effective. It makes the area applied to very dry which leads to the skin cracking. Vaseline works as well as the Elidel at a fraction of the cost."
For Atopic Dermatitis "I was prescribed this cream by a consultant dermatologist, I used on my eyebrows on and off for some 5-6months recently my glands on one side of my neck have swollen, I don't have a cold or flu or any other symptoms of any viral infection, apart from a reddening of my throat, GP prescribed some antibiotics which don't seem to of done much, I still have a sharp pain when I breathe in quickly through my nose or lie on that side of my neck in bed I haven't used this since and don't intend using again nor do I trust the pharma industry"
For Atopic Dermatitis "I suffer with severe atopic dermatitis. I went to several dermatologist before they could figure out my condition. I tried several creams and ointments but they all burned and made the skin red and swollen. Then it would all flake away n become inflammed again. In 5 days of using elidel my skin is clearer than it's been in months! It doesn't burn going on the skin (I keep it in the fridge) n it feels smooth going on. Definitely apply a moisturizer after application. Elidel has been a God send!! I hope it works for everyone else. Elidel is very expensive."
For Atopic Dermatitis "Elidel, used in conjunction with applying nizoral shampoo on my face for 7 mins every day (as directed by dermatologist - apply twice a week after 7 days), has almost completely cleared the dermatitis on my face & neck within a week. I now look normal and feel like I might finally have my life back again after years of struggling with steroid creams that eventually stopped working & more recently being off work & not leaving the house due to looking like a leper! No burning or stinging for me. Long may this phase continue"
For Atopic Dermatitis "Physician was wary of keeping me on steroids on the face since the dermatitis and eczema was still coming back. She gave me Elidel and it worked really well, things cleared up within a few days. Initial side effects were application burning and itching, but skin got used to it and I don't get that anymore. I kept on it for several weeks and the dermatitis didn't return by itself. I still use it for any missed spots of eczema or dermatitis that flares up. It's safe to use on top of my Avar LS wash, so now lots of my dermatitis and eczema is under control with this combo. A personal positive side effect is that it inhibited hair growth on my upper lip where I used it."
For Eczema "This did not work at all"
For Eczema "My daughter just turned two and has failed every conventional method of treating her eczema. We have seen multiple specialists and after much consideration ( due to the warnings and side effects) we decided to try Elidel. After 3 days she was almost clear. By one week she was free of eczema, severe itching ( which is by far the worst symptom) and redness/ dry skin. We stopped the medication as directed and within one day she was in a FULL flare. We thought perhaps we did not use it long enough? We tried it again daily for another week and here we are again back in a full flare after daily use for two weeks! So discouraging! Has anyone exp. this???"
For Eczema "At first I thought this stuff worked great for my eczema but then I woke up to around 40 zits under my arm... (which is where I applied it to my eczema).. so disappointed... it hurts and my rash looked better than these nasty zits everywhere... now it hurts to wear a bra.."
For Eczema "I've suffered from facial eczema for many years now. Within 2 days of starting Elidel I began to see clearing. After 1 week my skin looks healthy again. Works Great and Stops the Itch!"
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