Ibrance and Loss Of Appetite: What Users Say

• 15...
• Taken for 1 to 2 years
• June 7, 2017

For Breast Cancer, Metastatic "I had stage 2 breast cancer in 2002. In 2009, found Mets to the spine at T12 vertebrae and has moved to the lumbar spine and right hip. Was on Zometa, letrozole, and am now taking Ibrance, Xgeva, and Faslodex injections monthly for the past year. My last scan showed areas of Mets are smaller, my doctor doesn't think I need any further scans unless I develop other symptoms related to organ Mets. I have never had a low white count, however, I have most other side effects. Mouth sores in the beginning, poor appetite, taste and smell issues. Also, toe problems, it started with the last 3 toes on both feet tingling and now have neuropathy pretty bad in both feet and now hands. I don't feel great, but I am able to enjoy life and grateful to still be here. I will take any drug to stay alive!"

• los...
• July 29, 2017

For Breast Cancer, Metastatic "My mother was given this medication by her oncologist. She had been fine until this medication caused her to lose her appetite. She declined so rapidly that she soon passed. The cancer had not had time to spread that rapidly. She was 81, she had metastatic breast cancer in the bones. Her doctor refused to take off the medication until she insisted, and she was on tamoxifen for a week. I don't believe she should have ever been put on this medication, but her doctor is money hungry. The cancer did not kill my mother, negligence did."

• TTa...
• Taken for 6 months to 1 year
• August 30, 2020

For Breast Cancer, Metastatic "August 2016, lumpectomy, estrogen positive 14 mm, clear margins, close to chest bone, no lymph node involvement, radiation only, no Tamoxifen. After 13 years, bone pain in chest. A scan revealed bone spots and lung tumor metastases - estrogen positive. November 2019 diagnosis, started Ibrance with Femara and bisphosphonate injection once a month. Within 2 weeks, pain stopped. First scan showed no growth, evidence of some bone healing. A few relatively minor symptoms: loss of appetite, low energy. After a few hours, my vertebrae ached. Now, nine months later, still going well. I am very happy to have this time and a good measure of QOL."

• Val...
• August 8, 2020

For Breast Cancer, Metastatic "I was diagnosed with breast cancer, metastatic MBC (liver and bones) in Feb 2020. I am having my 5th cycle of Ibrance and Letrozole now, and I feel great. The first two months were hard to manage, I felt very tired, had no appetite, and lots of bad headaches. During my 3rd cycle, I started to feel suddenly better, and now I do not have any side effects at all. The combo works for me, but quite slowly. My markers are going down, my liver tests are better, but far from normal. But I feel great, like normal me. I will switch to another drug soon."

• Apr...
• Taken for 1 to 2 years
• June 4, 2023

For Breast Cancer, Metastatic "So far, so good! Over a year of pretty good quality of life. Some hair thinning, occasional nausea, lack of appetite. Blood tests have come out better than expected so far! This is after 22 years of survival from stage 4 breast cancer."

• kel...
• Taken for 1 to 6 months
• August 22, 2019

For Breast Cancer, Metastatic "On Ibrance overall, sick feelings, loss of appetite. Twenty-eight days on, then seven days off. Horrible, did not help lesions. I had horrible hot flashes, list endless."