Provigil for Narcolepsy User Reviews (Page 3)

• Exhau...
• Taken for 1 to 6 months
• May 21, 2022

"I have been prescribed Provigil for excessive daytime sleepiness. Originally 100mg twice a day. I honestly thought I’d been given a placebo. It did nothing. No side effects but also no reduction in sleepiness. Still fighting to stay awake during the day. My doctor doubled the dose. Still not working! My mental health is declining. What’s the point of living if this is life."

• Anonymous
• July 26, 2009

"I was given Provigil for my narcolepsy, with dosage of 200mg/3 times daily. For the first 3 days it was amazing I had forgotten what it felt like to be 'awake'. Unfortunately, after just 3 days it was not effective at all. My neurologist nodded knowingly when I told him. He said that's how long it takes to metabolize. Apparently that's when you can tell if it will work for you or not. I'm now on Aderall, 20 mg/3 daily and it is working much better for me."

• SL8pi...
• September 18, 2011

"I'm a 36 year old female and I've been living with narcolepsy for over 20 years and was just diagnosed about 2 months ago! I have been on Provigil for 1 week. 200mg twice a day with that I still feel like a walking zombie. I have not noticed a change with no side effects. I was taken off of Nuvigil 150mg 1x/day. I did notice a huge difference with that. I remember feeling..wow this is what it feels like to be awake. But it would die out by noontime and barley get me through the rest of my day. I also experienced a dull constant headache and random nausea. It now seems almost worth going back to it and dealing with the side effects."

• Furry...
• Taken for 2 to 5 years
• November 30, 2022

"Was prescribed it first at 100 mgs about 5 years ago, only for when necessary Worked for the first couple years, jumping between a dose of 100mg and 200mg when necessary, but it really didn't do much. Helped my energy management but I never really felt awake at all. Honestly just feels like a slightly more pronounced version of coffee, but even that stuff barely does anything for me at all. No longer taking it. Note, the taste isn't great and I've almost spat it out a couple rare times"

• Ketura
• Taken for 1 to 2 years
• April 9, 2017

"Hi, I have taken this medicine for a year. I have found that it works, but it takes a lot of work (if that makes any sense.) I I am on 400mg a day for narcolepsy. I have found with this medicine if I take it and then eat, almost no effect, if I eat wait about an hour, take the pill then that's fine. If I don't drink a lot of water then it doesn't matter, because it doesn't work. For a person that always wants to sleep, scheduling this little pill twice a day is almost not worth it."

• dozy
• July 28, 2009

"I was diagnosed with Narcolepsy about 2 weeks ago. For 2 months I had been nodding off at work and at home, it got really bad when I nodded off while at a stoplight driving and when I got "written" up for sleeping at work. I was given Provigil to help me out which when I started taking it, it was like a miracle drug. I felt alert and not drowsy all the time. After 5 days I started feeling nauseous and then 2 days later out of the blue it stopped working. My Doctor put me on Ritalin but I'm still having problems later in the day, on my way to see a sleep specialist."

• Anonymous
• July 31, 2009

"I was recently diagnosed with narcolepsy and started on Provigil. I started with 100 mg in the morning and then 100 or 150 mg in the afternoon. The first few days I was a little dizzy at first, a little nauseous, lost my appetite, had a mild headache every night (ibuprofen took care of that), and tense jaw/neck muscles. It was working great, but once I started classes (i.e., inactivity), I was falling asleep sometimes before my noon dose, and everyday around 6pm or 8pm. So, my doctor upped it to 200 in the morning and 200 after noon. For all 3 days of it, I was awake, only crashing around 8pm, but I was having problems with my memory and concentration. Just switched to Ritalin. "

• Coach
• August 17, 2021

"Diagnosis with Narcolepsy at 23 yrs old and now I am currently 41years old. Saved me from quitting college. I now have 3 college diplomas. I run about 30+ miles a week. Fall asleep no problem and can still take naps if need to. My dose is 200mg am and another 200mg at lunch. Will often supplement with caffeine beverage as long as it’s not after 4pm. I have slight cataplexy, anxiety, and both are treated with Effexor XR which goes nicely with provigil. There is a weird side effect, if I am not hydrated enough I will have itchy legs. No rash or hives just uncontrollably itchy especially after a run in the summer. So if that happens and dermatologist can’t figure out, that’s your problem is you are not drinking enough. Sleep well y’all"

• teek
• August 8, 2009

"For several years, I have been on Provigil, with a small dosage of Ritalin as a supplement. The Provigil was not enough for me, but it was much better than being on Ritalin alone. Ritalin had a tendency to make me anxious and talk constantly. Life is good now as a narcoleptic."

• neuro...
• November 12, 2008

"This is a wonderful medicine. Costly, but great. However, I have found that it is best to take it an hour before eating or if need be an hour AFTER eating. This medication changed my quality of life. Future downfall....if I decide to have kids. Then what? Consider this if you are thinking about having kids."

• Juliu...
• April 13, 2009

"Provigil works great for me, at 200 mg once in the morning. I usually feel dull-witted and fatigued, but I don't suddenly "switch off". After about a week of steady doses, however, I often develop a bad headache and have to quit taking the stuff for a few days. Maybe that's a good thing, if it keeps me from getting habituated. Ritalin did nothing except make my hands shake."

• Anonymous
• October 1, 2009

"I was diagnosed with Sleep Apnea, for that I got a CPAP. But I also had trouble with zombie episodes and uncontrollable sleepiness (at work, while driving, very scary). I was diagnosed with Narcolepsy several years ago (not formally tested though). I have all the symptoms (night terrors, sleep paralysis.), but I have not been tested for it. Anyway, my Sleep Doctor put me on it primarily because of several driving issues. It seems to work well, I have not dozed off or had a zombie episode since I have been on it. I still feel tired, and I can sleep if I want to, so I feel a little more in control. I also don't feel like a speed freak, like Adderal. I am on 200 mg in the morning for the past 2 weeks. So far I am pleased with it."

• doohaga
• December 10, 2008

"This was the first drug that my doctor prescribed for my narcolepsy. I didn't experience any side-effects but it didn't improve my wakefulness to any discernible degree with two doses of 300mg. (one dose of 300mg upon waking in the morning; one dose of 300mg around noon)."

• toots
• July 24, 2009

"I started taking Provigil about a year ago when it was suspected I had narcolepsy. I was tested and found it was Idiotic Hypersomnia (lack of melatonin) they call it Idiotic because they don't know what causes it. Provigil works one day for me then not the next. You can only take 200mg max per day. I went off it and on Ritalin. I am awake without any ill effects. I have recently been tested again for narcolepsy and was found that I am narcoleptic. The test given last year was done incorrectly (without my C-pap), it was supposed to be done WITH it on during my sleep study. All is good now."

• Anonymous
• November 4, 2009

"Provigil has worked well at treating my Narcolepsy. I had to stop taking it when I was pregnant and resumed taking it after my daughter's birth. If you choose to take Provigil and have children, you need to be driven around for the duration of your pregnancy and up until you are back on the medication."

• Anonymous
• Taken for less than 1 month
• November 13, 2012

"Felt like the energizer bunny! Within an hour I was racing around work. Pain I normally have(back surgery) disappeared but after 6 hrs when I slowed down finally, I ached everywhere!"

• Infin...
• Taken for 2 to 5 years
• September 16, 2015

"Sensational medication. Provigil taken alone for my narcolepsy kept me awake and alert when needed yet allowed me to take my short nap(s) through out the day when needed."

• Anonymous
• June 24, 2008

"Works great for my Narcolepsy; the only complaint I have is that the price is prohibitive. It is the only medication that has worked effectively for my condition and with dramatic results."

• Millie...
• Taken for 5 to 10 years
• July 11, 2014

"This was more effective than any others tried including Ritalin, Vyvanse which made my heart rate rise to the 140s. Modafinil worked quickly but not suddenly and lasted for the entire day."

• Anonymous
• April 30, 2008

"compared to ritalin i was taking, provigil works much better and less side-effects. hasnt effected my blood pressure"

• Sagem...
• July 25, 2013

"Wide awake, enhanced reflexes, but too expensive."

• CM550
• Taken for 1 to 6 months
• August 16, 2016

"over 2 months on provigil. still tired, can't remember words, yawn all day. only side effect was appetite suppressant. which is all I felt. waiting for Dr to prescribe something else."

• Willie
• Taken for less than 1 month
• December 10, 2019

"Does not work for me at all. It gave me bad head aches and I still slept all the time."

• Anonymous
• Taken for 5 to 10 years
• October 11, 2012

"For over 5 years Provigil worked very well. It would appear I have developed a tolerance as within the past 6 months I have had an extreme decrease in efficacy. "

• Anonymous
• April 10, 2008

"I have never felt better."