User Reviews for Nuvigil
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
|Obstructive Sleep Ap...ypopnea Syndrome||32 reviews||3 medications|
|Shift Work Sleep Disorder||29 reviews||2 medications|
|Narcolepsy||82 reviews||16 medications|
|Summary of Nuvigil reviews||7.5||143 reviews|
Reviews for Nuvigil
For Narcolepsy "I was prescribed this for Narcolepsy when I was 16 (am 23 now). My doctor wanted to prescribe to me Modafinil, its sister drug, but for reasons unknown to me (idk maybe insurance or laws. I really don't remember). I had an adverse reaction that sent me to the hospital. Almost went into cardiac arrest and probably would've had I not gone to the emergency room when I did. Uncontrollable shaking and heart palpitations (heart rate 160+)."
For Narcolepsy "Been telling Drs 20yrs about being excessively tired. Finally broke down bawling to my current Dr this year, she sent me for Multiple Sleep Latency Test (MSLT) and I failed test. Finally had my diagnosis. Dr put me on Ritalin LA 20mg, lost potency within 5 days, increased dose to 30mg, still didn't work, seen sleep specialist, he put me on nuvigil, took it couple days, did not help at all! In fact it made me feel like I was going through withdraw from suboxone I take and felt it made narcolepsy worse. I take suboxone because 10yrs ago I used pain pills to "give me energy", I got addicted to pain pills obviously. Been on suboxone 6yrs. I was hoping I finally have a diagnosis of narcolepsy I could get on right meds and get off suboxone. My Dr wanted to put me on ritalin 20mg LA for morning and ritalin 10mg for afternoon but insurance wouldn't cover it. Only 30mg as a whole. I honestly think the dose she wanted to put me on would have helped but the insurance knows best right? Makes me so mad!"
For Narcolepsy "This medication takes time to get into and out of my system. The transitions are terrible for me. Lots of anxiety and scatterbrains. I am very emotional on this medication. When I am tired of the lump in my throat I quit taking it. When I can't stay awake and my job is at risk I try again. The end results are always the same. I don't want to do anything, go anywhere, and can't quit crying. The first time I took it 2 months. The second time I took it 5 months. And now I have been on it 5 days and am calling it quits. It does not keep me awake. I get huge headaches. There is no reason to live for me while using this medication."
For Shift Work Sleep Disorder "I have taken nuvigil for having two jobs and it is a great help....no negative side effects...except for my wallet! I recently got a coupon, tried to use it and the price with my insurance ( not medicare, etc or public assist) was over $125.00 although coupon said first script free and refills as low as $5.00!!!! Not true!!!! Now have to go back to Dr. and get script for generic. Mom is right.....Nothing is free. This is poor business procedure."
For Narcolepsy "I have been on nuvigil for almost a year now, this has been the only stimulant to work for me. I have narcolepsy and ADHD. So adderall and it’s relative medicines actually make more more of a zombie, albeit a very focused zombie. Nuvigil does not cause my heart to race ( I also have mitral valve prolapse ) it does not negatively effect my anxiety. This medicine has been a life saver for me! It does effect my ability to feel hunger. I don’t get hungry until around 2 pm but honestly, this is a good thing bc when I eat I become very tired. This is due to the nature of Narcolepsy. We are low on orexin, so when we eat what little orexin we have gets ‘turned off’. Orexin is the chemical in the brain that helps regulate wake and sleep. Orexin on means awake, orexin off means asleep. Orexin is directly effected by food intake."
For Narcolepsy "I am 38 and I have been taking this medicine two weeks and I am having serious problem breathing and getting a deep breath in, my inhaler does not help. I have diarrhea and my face has broken out worse than it ever did when I was a teenager. I have also had random pounding, sharp, shooting headaches come out of no where."
For Narcolepsy "Diag early onset Parkinson's at 46yo. I was having off and on again sleep attacks in the afternoons. No amount of coffee can power you through one. This keeps me through the afternoon."
For Shift Work Sleep Disorder "I work two full-time jobs in Information Technology on a high level at both jobs. I have to be razor sharp or the effects could be catastrophic. I have been using Nuvigil for almost 16 months. When I was younger I was diagnosed with ADD and took Ritalin which helped but as I got older taking that was not realistic. Nuvigil has been a godsend. I am able to articulate my thoughts clearly, finish tasks at hand efficiently and timely, and also having ADD with Nuvigil it almost propels me in some weird microcosm of being smarter than 90% of the people around me. I am not sure how or why but that is my story and I gain nothing from this except hoping to help someone else who is lost in the woods "
For Narcolepsy "I have been taking nuvigil since 2012 started on provigil built a tolerance against it in 2 months. I take 250 mg a day but I split the pill and take each half at specific times usually between 6-9 am the other at 3pm to 6pm (depends when I took the first one) seems to help me stay awake a little more that way. It lasts for about 1-2 hours on me with each half."
For Narcolepsy "It was effective, but it made my hair fall out. When I told the doctor, his response was, "That's not a side effect." I did my own research - It IS a side effect. It is a serious side effect that the doctor's don't tell you about. I switched doctors and medication."
For Obstructive Sleep Apnea/Hypopnea Syndrome "I just started taking Nuvigil. Today is day 2. Before Nuvigil I have been suffering for the past 3 years or so with marked fatigue. First I decided I should do a sleep study. They discovered that I have sleep apnea and I stop breathing about 50 times an hour. I got the CPAP machine and used it every night for the past 3 months. It didn't make the difference I was hoping. So, I talked to my Dr again and since I have young children I didn't want a sleeping medication and so he prescribed Nuvigil. Its been a life changer. I have the energy I used to have when playing with the kids and taking them outside instead of laying on the couch everyday."
For Shift Work Sleep Disorder "I didn't get the best results from this medication. Does not last long. I have to take 3X recommend does to be productive throughout the day. Not what I expected."
For Shift Work Sleep Disorder "I had been taking Provigil for the past 4 yrs. Two years ago I was in a car accident and have been suffering back pain, which would not even subside with percoset. After reading some reviews I learned lower back pain is a side effect from Provigil. I was taking 400 milligrams daily into separate 200 milligram doses while working graveyard shift. Provigil has worked great however I just switched to Nuvigil today in hopes that my back pain will go away."
For Narcolepsy "Works very well at keeping me awake. No euphoria like amphetamines, very few side effects in fact aside from a very mild headache, which aspirin can fix. It seems like all it does is remove my chronic fatigue.. without giving extra energy. Perfect in my opinion. Anxiety can be a problem, especially at the 250mg dose. If it is a problem, I would recommend breaking the 250mg in half and taking them several hours apart, which also helps with the late afternoon crash. If you have high blood pressure or heart problems, probably not a good idea to take it. Also, there is a generic.. not sure of the price difference."
For Narcolepsy "My doctor seems to only identify with how it effects him, which he sometimes takes when going on a long trip. He says, It lasts for 8 to 12 hours. No on me 3 to 4 hours. I looked up what other narcoleptics said. They said they take 250 mg twice a day. That would be good, but who can afford it. My part is $300 for once a day. I have not experienced any side effects that I am aware of, but I am taking the next four days without any nuvigil to see if my sleep wake pattern gets better. My present problem may or may not be related to nuvil. I don't know. I wake up in the middle of the night wide awake. Sometime I can go back to sleep after 3 or 4 hours, but sometimes I never do. So, I am functioning, poorly, on about 4 hours of sleep"
For Shift Work Sleep Disorder "I work night shift and have little kids which don't understand I'm tired or care so Nuvigil is a life saver. I use to be extremely tired in the morning and want to just lay on the couch because I was tired but no more of that since nuvigil. I have lost 15 lbs in 6 months. Not sure if it's because I'm more active or if it's Nuvigil. My house is the cleanest it's ever been. The first couple of days I took the medication I couldn't sleep all night but that is not a problem anymore so give it a week for body to adjust."
For Narcolepsy "I had nausea, trouble concentrating and had chest pains and pressure for 2 weeks after I stopped taking it. I was just as tired taking this medication."
For Obstructive Sleep Apnea/Hypopnea Syndrome "I have severe sleep apnea and was put on a CPAP machine. I never felt like it did any good,was still tired as heck. Dr.put me on Nuvigil and it is great. Some days I am still tires but not like before."
For Narcolepsy "This medicine caused high prolactin"
For Narcolepsy "I took 250mg each morning, and my whole personality was brighter, more gregarious, more talkative e, physically more capable."
For Obstructive Sleep Apnea/Hypopnea Syndrome "Been on this RX since its release, prior to that Provigil. (I've also had 5 OSA corrective surgical operations that weren't mindblowingly successful for 4+ months of downtime & in-&-out of the hospital with complications for a month.). I take 500 mg/day in 2 doses split by 5 hours, each dose with 20 mg dexadrine. (Plus a 3rd 20 mg dose of dex) To be short, I couldn't have the energy to write this message let alone work or at times even drive. For me its all about the timing of the doses, took me years to find the RIGHT way to take this RX for ME. 250 didn't work, 2 different insurance companies approved 500. Be prepared to fight for approval, don't give up, I got used to hearing no until I followed all insurance steps for complex approval"
For Obstructive Sleep Apnea/Hypopnea Syndrome "Prescribed to help with feeling exhausted due to suspected sleep apnea. Having a sleep test later this month. In the meantime, Doctor felt Nuvigil may be of benefit. The drug had me bouncing off the walls for the first couple of days but I did feel better - alert and with more energy than I'd had in quite some time. I was very pleased but then, disappointingly after day four of being in the drug, I began to experience difficulty swallowing and my lips became numb. My throat then began to close and I was having difficulty breathing. My wife rushed me to the emergency room where I eventually passed out. I was pumped full of Benedryl and Prednizone until my breathing began to return to normal. I felt the drug was working until the reaction."
For Obstructive Sleep Apnea/Hypopnea Syndrome "I was diagnosed with Sleep Apnea about 5 years ago. I use a bilevel cpap every night. I am a 60 year old male. I have chronic and severe back pain also. Between the sleep apnea and pain meds I was sleeping up to 18 hours a day. After finally getting insurance coverage for Nuvigil 150mg I started it about 5 months ago. I take it everyday. The first day I took it I was up for 20 hours straight and felt better than I had in 15 years. This drug worked great. A couple of days ago something happened. All of a sudden I'm back to spending all day in bed and can't stay awake. I don't know what happened. Hopefully next week when I see my doctor I can find out. I hope I don't need a stronger dose already."
For Narcolepsy "amazinggggggg!!!!!!! packaging needs to seriously be changed though. with narcolepsy, i have horribly low energy in the morning and the last thing i need is to have to spend 10 minutes struggling to get a tablet out. i usually fall asleep again before i'm even able to take it. no side effects so far, fingers crossed."
For Narcolepsy "Diagnosed with narcolepsy and had frequent daily cataplexy. Nothing else worked, prior to getting diagnosed, hours and hours of sleep mixed with coffee, energy drinks and abuse of workout stimulants. After adjusting to the jitters and slight nausea, I've never felt better. Every now and then I will need a small nap, but I am sleeping deeper and sleep walking much less. I went from several cataplexy a day to only three in the last month. Those three only happened because I hadn't gotten enough sleep that night. This drug works the best for me when I get more than 6 hours of sleep, ideally 7 or 8 hours though. I am very happy overall, but it is ridiculously expensive if you aren't on an insurance plan, like me (just switched jobs)."
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