User Reviews for Nuvigil
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care. Learn more about Nuvigil.
Reviews for Nuvigil to treat Narcolepsy
"I am 38 and I have been taking this medicine two weeks and I am having serious problem breathing and getting a deep breath in, my inhaler does not help. I have diarrhea and my face has broken out worse than it ever did when I was a teenager. I have also had random pounding, sharp, shooting headaches come out of no where."
Anonymous (taken for less than 1 month) July 26, 2017
5 users found this comment helpful.
"Diag early onset Parkinson's at 46yo. I was having off and on again sleep attacks in the afternoons. No amount of coffee can power you through one. This keeps me through the afternoon."
mjbaz2002 June 17, 2017
3 users found this comment helpful.
"I have been taking nuvigil since 2012 started on provigil built a tolerance against it in 2 months. I take 250 mg a day but I split the pill and take each half at specific times usually between 6-9 am the other at 3pm to 6pm (depends when I took the first one) seems to help me stay awake a little more that way. It lasts for about 1-2 hours on me with each half."
N3rd1975 (taken for 5 to 10 years) February 28, 2017
7 users found this comment helpful.
"It was effective, but it made my hair fall out. When I told the doctor, his response was, "That's not a side effect." I did my own research - It IS a side effect. It is a serious side effect that the doctor's don't tell you about. I switched doctors and medication."
Sytse (taken for 1 to 2 years) January 22, 2017
6 users found this comment helpful.
"Works very well at keeping me awake. No euphoria like amphetamines, very few side effects in fact aside from a very mild headache, which aspirin can fix. It seems like all it does is remove my chronic fatigue.. without giving extra energy. Perfect in my opinion. Anxiety can be a problem, especially at the 250mg dose. If it is a problem, I would recommend breaking the 250mg in half and taking them several hours apart, which also helps with the late afternoon crash. If you have high blood pressure or heart problems, probably not a good idea to take it. Also, there is a generic.. not sure of the price difference."
DoJo Starfox September 14, 2016
13 users found this comment helpful.
"My doctor seems to only identify with how it effects him, which he sometimes takes when going on a long trip. He says, It lasts for 8 to 12 hours. No on me 3 to 4 hours. I looked up what other narcoleptics said. They said they take 250 mg twice a day. That would be good, but who can afford it. My part is $300 for once a day. I have not experienced any side effects that I am aware of, but I am taking the next four days without any nuvigil to see if my sleep wake pattern gets better. My present problem may or may not be related to nuvil. I don't know. I wake up in the middle of the night wide awake. Sometime I can go back to sleep after 3 or 4 hours, but sometimes I never do. So, I am functioning, poorly, on about 4 hours of sleep"
Sharra (taken for 1 to 2 years) August 30, 2016
8 users found this comment helpful.
"I had nausea, trouble concentrating and had chest pains and pressure for 2 weeks after I stopped taking it. I was just as tired taking this medication."
Liz-G (taken for less than 1 month) August 4, 2016
8 users found this comment helpful.
"This medicine caused high prolactin"
Anonymous (taken for 1 to 6 months) June 6, 2016
2 users found this comment helpful.
"I took 250mg each morning, and my whole personality was brighter, more gregarious, more talkative e, physically more capable."
davetrindle (taken for 1 to 2 years) May 15, 2016
16 users found this comment helpful.
"amazinggggggg!!!!!!! packaging needs to seriously be changed though. with narcolepsy, i have horribly low energy in the morning and the last thing i need is to have to spend 10 minutes struggling to get a tablet out. i usually fall asleep again before i'm even able to take it. no side effects so far, fingers crossed."
Poooooooo March 16, 2016
14 users found this comment helpful.
"Diagnosed with narcolepsy and had frequent daily cataplexy. Nothing else worked, prior to getting diagnosed, hours and hours of sleep mixed with coffee, energy drinks and abuse of workout stimulants. After adjusting to the jitters and slight nausea, I've never felt better. Every now and then I will need a small nap, but I am sleeping deeper and sleep walking much less. I went from several cataplexy a day to only three in the last month. Those three only happened because I hadn't gotten enough sleep that night. This drug works the best for me when I get more than 6 hours of sleep, ideally 7 or 8 hours though. I am very happy overall, but it is ridiculously expensive if you aren't on an insurance plan, like me (just switched jobs)."
KG414 (taken for 1 to 6 months) February 12, 2016
17 users found this comment helpful.
"Originally I tried provigil. Nuvigil wasn't available yet. Loved it at first but as my body adjusted in my ignorance, I got nervous. I stopped. I had to deal with it. About 12 years later I tried again. This time I read more and I asked lots of questions. I am a new person. I am so grateful for nuvigil!! What I've learned (I am not an MD) Start out with a low dose. Half pills are fine. (Do not exceed 250 mg unless dr prescribed). Your body may be adjusting not building tolerance for a year or 2. Take each week at a time Naps still necessary; My naps are only about 30 min instead of 2 hrs but very refreshing Take a day or 2 off every week or 2. Makes a huge difference! Awesome insurance helps a lot! $5 per 30"
Severe narcolepsy w/ cataplexy (taken for 6 months to 1 year) February 4, 2016
14 users found this comment helpful.
"I found myself sleeping all day against my will and it was depressing to be so unproductive. After I was accepted to vet school, I knew I needed to figure out why I was so tired all the time. I was diagnosed with narcolepsy without cataplexy. I immediately started Nuvigil in an attempt to get regulated before I started school. About a week in, I experienced anxiety, and a racing heart on a few different days. My symptoms soon subsided, and I found my quality of life drastically improved. I take it in the morning before class, and I was able to stay awake all day with very little problem. I still have good days and bad, but my worst day is still better than my life before it. I am so thankful for my doctor and Nuvigil."
Lindsey Lou August 16, 2015
35 users found this comment helpful.
"After being diagnosed at age 35, with narcolepsy and REM sleep behavior disorder my ENT put me on Nuvigil 150mg to help me stay awake during the day. I'll tell you what, it didn't do a darn thing. My kids actually said they thought it made me more tired. He then bumped it up to 250mg and I'd say it helped for an hour or so. It gave me horrible headaches, lock jaw and teeth grinding, pretty much no appetite, but the worst part of all had to be how bad it ALWAYS made my stomach hurt and how I felt like I was going to throw up most of the time. It definitely didn't help me and I'd still find myself falling asleep and needing a few naps each day. I also ended up losing 7 lbs in 3 weeks, which wasn't good for me since I'm already very thin."
Elle Sleepy (taken for 1 to 6 months) July 7, 2015
19 users found this comment helpful.
"I have been taking Nuvigil for over a year. I'm on 250mg I have had no side effects. It only seems to last a few hours for me. Does anyone have any ideas?"
Speak25 May 1, 2015
15 users found this comment helpful.
"My experience has been very positive: a complete elimination of sleep attacks, at least until the medication wears off (I take it at about 7 AM and usually around 2-3 PM I can tell it's worn off). When I first began the medication, I experienced fairly severe insomnia at night for a few days and suffered from headaches (generally dull, low-grade ones) for a couple of weeks. Those problems have long since ended and I have no trouble falling asleep at night. My doctor suggested not taking the medication on weekends, when I do not have to work, which seems to have helped prevent it from losing any effectiveness. I am fortunate enough to have had no trouble getting my insurance to pay for Nuvigil. My cost is $27 for a 3 month supply by mail."
Anonymous (taken for 6 months to 1 year) March 21, 2015
27 users found this comment helpful.
"I love it!! It really helps me stay awake during the day. The only bad this is that my insurance will not approve it so I am unable to get it."
dirishone61 (taken for 1 to 6 months) February 10, 2015
11 users found this comment helpful.
"I started taking Nuvigil after having taken Adderall Xr for 4 years. I like Nuvigil better because there is no feeling of artificial energy. The only thing that that Adderall has over Nuvigil is that it lasted all day. I've experimented a little and I've found that if I take 1/2 of the pill about 1 to 1 1/2 an hour before I get my day starts and the other half at about 1 gets me through the day better than taking it all at once. Also even with my insurance and the savings card I still have to pay $89. It's worth it though."
Smooth_as_butter February 1, 2015
22 users found this comment helpful.
"This medicine works better than anything else I have taken!!! It is just expensive."
slcochran6 (taken for 5 to 10 years) January 17, 2015
13 users found this comment helpful.
"This medicine kept me from sleeping the whole 5 days I was on it. My body just started to shut down and my eyes would just close but my mind would not let me go to sleep."
copeyswife (taken for less than 1 month) September 30, 2014
18 users found this comment helpful.
"I have been dealing with narcolepsy since 1992. Nuvigil was introduced to me in 2014, wonder pill all the way. Unfortunately with my insurance my out of pocket expense will run approximately $550 for a 30 day supply. So tell me do I feed my family of 5 or buy medicine. What a choice to have to make."
mjeappleby September 25, 2014
33 users found this comment helpful.
"I was diagnosed a year ago. I have cataplexy as well. I've been taking 250mg daily of Nuvigil for about 8 months and I'm very happy with it. The only complaint is that (as another person said) it doesn't last all day, I also crash out in the afternoon. If you have this problem I suggest eliminating idol time. I have noticed that if I keep myself busy I have no problem going through the day normally. I haven't experienced any side effects whatsoever. Most of the other medications may keep you awake all day, but seeing as the side effects can be devastating for many people, I'll take the extra effort to keep my idol time to a minimum and unlike the other medicines I've tried, I don't feel like I need a higher dose every 3 months."
Kmporter1985 (taken for 6 months to 1 year) June 10, 2014
28 users found this comment helpful.
"Works well at the right dose. I am not afraid to drive now and I don't zone out at work anymore. That being said it is really a shame that it is entirely too expensive and I won't be able to continue taking it. With my insurance, it is still about $190 per month or 3 house payments a year for me! WOW!"
laahenry (taken for 1 to 2 years) June 9, 2014
24 users found this comment helpful.
"I have been on Nuvigil for about 3 months now and see a little bit of difference. Previously I was on Ritalin which worked pretty much the same as Nuvigil. My doctor is currently giving me a trial period for 150mg once daily. I take one daily at 6-8 am and it lasts me till around noon. I then start to crash and when driving I still have a hard time staying awake. My doctor says it is because I need a higher dosage and will hopefully be starting that the next Drs visit. I highly recommend Nuvigil if you can afford it but if not Ritalin in my opinion works just as well."
Amberosy (taken for 1 to 6 months) December 21, 2013
34 users found this comment helpful.
"I was diagnosed with Narcolepsy about 18 months ago after battling constant fatigue no matter how much sleep I received at night or how many naps I took throughout the day. Nuvigil has changed my life! I take one pill daily, and I am able to live a normal life outside of the fog that I was constantly living in before my diagnosis. I had a lot of side effects when I first started taking Nuvigil which included headaches, dry mouth, cramping, nausea, loss of appetite, and dizziness, but those were nothing compared to being able to finally live my life fully for the first time! I felt like before I was swimming in murky water unable to see or function, and after the medication I can actually experience life and interact with people!"
Luna24 (taken for 1 to 2 years) December 16, 2013
70 users found this comment helpful.
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