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Modafinil for Idiopathic Hypersomnia User Reviews

Brand names: Provigil

Rating: 6.0

Modafinil has an average rating of 6.0 out of 10 from a total of 11 reviews for the off-label treatment of idiopathic hypersomnia. 55% of reviewers reported a positive experience, while 36% reported a negative experience.

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Reviews for Modafinil

  • sle...
  • Taken for 1 to 6 months
  • January 18, 2022

"Provigil worked great at first. My body developed a tolerance very quickly, though, and I had to start taking 200 mg twice a day. Even though I’m taking this much of it every single day, I am still really tired and have no energy. I might as well not even be taking the medication. The benefits are so minimal. It’s like instead of sleeping 20 hours a day, I sleep 19 hours a day. There’s not enough improvement."

2 / 10
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8 Report
  • Tab...
  • June 19, 2022

"After many years of sleep problems, I was finally diagnosed with idiopathic hypersomnia. I feel my mind clear up, the fog goes away, and I can finally think and process like I used to. I finally have the energy to do the things I need to do for myself and my family."

10 / 10
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7 Report
  • Mar...
  • Taken for 1 to 6 months
  • November 17, 2021

"At first, this worked just okay for me. It worked for about 4-5 hours before I crashed hard, but I took it twice a day (100 mg twice a day, combo with 10 mg Adderall), and that worked better. In the past month, I noticed problems when at practices for my college swim team. When we were in more intense practices, I felt like I reached a cap in regards to energy. I couldn't go any faster, felt out of breath, like my lactic acid was at its max after barely starting a hard set. Even when I didn't take the Adderall, I had these same problems. After going to my dorm, my heart rate was at 162, like it was going to jump out of my chest. After connecting the dots, I remembered I've been short of breath a lot more often than I should be, just thinking my asthma was worse. Turns out, modafinil is a histamine inhibitor, which can cause the bronchials to swell and cause allergies. I'll have to halt Provigil and Nuvigil unfortunately. It worked great for me until it made me a worse breather."

4 / 10
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7 Report

Frequently asked questions

  • Eli...
  • Taken for 1 to 6 months
  • October 29, 2024

"I have been taking Modafinil for two months now, and it was life-changing. I was on the verge of losing my job and my social life. I don't feel completely normal (without any sleepiness), but I get enough energy to get out of bed, exercise, work, and hang out with friends. Only problem is that today I woke up with a rash on my elbows. Doctors recommended putting zinc cream on it to see if it goes away, if it doesn't, I will have to stop using it :("

10 / 10
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1 Report
  • Deb...
  • Taken for less than 1 month
  • October 5, 2022

"I have been suffering from excessive sleepiness for most of my life. I'm 47 now, and I feel like I am sleeping my life away, as I will sleep an average of 16-18 hours on the weekends and have to call out a few times a month because I can't wake up in the morning. I am on day 2 of 200 mg of Modafinil, and it has zero effect on me aside from increased heart rate. Day 1, I took it an hour before I had to be at work, zero effect. I couldn't wake up, slept in, and was late for work. Day 2, I took it at 4:30 am and still couldn't wake up. Got to work on time, but I can barely keep my eyes open. I don't think this medication works for me, I'm so disappointed."

1 / 10
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5 Report

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  • Ama...
  • November 15, 2021

"This is the only thing that keeps me alert and ready for the day. It does not replace sleep. If I didn’t get a good night's sleep, of course it will not work as well. It must be taken in the morning or you will be awake super late. I cannot start my day without it. If I do not take it, I will stay in bed napping all day."

9 / 10
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  • maf...
  • Taken for 6 months to 1 year
  • January 13, 2022

"My experience with modafinil has been good. I've always had issues of severe 'sleep attacks' about three times per day. Coffee tends to put me in a fog 9 out of 10 times. So I would take short, power naps (< 30 minutes) to help alleviate the attacks. The naps never truly brought me back to life. The worst of the attacks would be around 6 pm. I would yawn a few times per minute and felt like I would faint. With two kids under three, that can be a big problem as I'd have to leave the family for a moment while I napped. I slowly increased the dosage and found 200 mg worked best. I no longer have those huge crashes nor feel faint. That being said, I've found that I need to take it within two hours of waking up. When starting the medication, I could feel the jitteriness, but after a week, that went away. When you first start out, skip the coffee to see how the pill affects you by itself."

9 / 10
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  • Wak...
  • Taken for 2 to 5 years
  • November 24, 2024

"I used to get anxious when it started affecting me. I learned to notice signs of anxiety and remind myself that it would pass in a few minutes and nothing was actually wrong. It's a lifesaver because I need to drive 2-4 hours daily at highway speeds, and that kind of driving, in particular, makes me sleepy. I can also sit down at home now and work on something without falling asleep."

9 / 10
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  • Aka...
  • June 27, 2023

"This magical medication increased my energy level from 10 to 10.25. It's a great success, it's pure magic! But after a while, I became drowsy, then lethargic, and finally, I felt like I was about to die. It's a rather powerful hypnotic. I have insomnia as a disease, and sometimes when nothing works, I take it as a sleeping aid. Works like a charm, again, it's pure magic! I've talked to many people who have taken this magical medication, and it's the most awful one."

1 / 10
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  • Des...
  • February 6, 2025

"I've been diagnosed with hypersomnia. My life could be in a very bad situation. Modafinil really helped in the treatment of this. I didn't experience any side effects."

10 / 10
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  • Anonymous
  • Taken for 1 to 6 months
  • August 24, 2021

"Gave me a headache. Put me in a mental fog. Would only work for a couple of hours, then no benefit."

1 / 10
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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.