User Reviews for Midodrine
Also known as: Orvaten, ProAmatine
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Learn more about Midodrine.
|Dysautonomia||6 reviews||53 medications|
|Hypotension||4 reviews||8 medications|
|Postural Orthostatic...ycardia Syndrome||10 reviews||4 medications|
|Summary of Midodrine reviews||20 reviews||7.9|
Reviews for Midodrine
For Postural Orthostatic Tachycardia Syndrome: "I get seizures with allergic reactions from Mast cell activation syndrome (MCAS), but I didn't when I first took this drug in 2016. Lots of goosebumps, tingling, tight scalp, chills, shivering, and felt like a zombie, though. Became a different person- dissociated, honestly. That'd never happened to me before, was so afraid. Doctor made me try again, seized the entire time and the tingling burned so bad it felt like I was on fire. Got bradycardic within 2 hours of taking it, too. I get brady sometimes as it is (my heart rate was at 30 the other day) so this medication wasn't a good idea in the first place. Bad call on my doctor's part and bad call on mine for even listening to him."
canelante June 22, 2017
0 users found this comment helpful.
For Dysautonomia: "Great to be able to stand-up without constantly feeling faint"
Anonymous June 8, 2017
0 users found this comment helpful.
For Dysautonomia: "If there's a side effect to be had from a drug, I'm the type to get it but other than initially making me nauseous, this medication is not one I can go without! It has allowed me to function from debilitating dysautonomia. While I'm not 100% yet, it has helped me get my life back. Started on 2.5 mg three times a day but I am up to 15mg three times a day."
trihealth May 17, 2017
3 users found this comment helpful.
For Postural Orthostatic Tachycardia Syndrome: "Really bad reaction with me.severe side effects with little to no results."
Anonymous (taken for less than 1 month) April 20, 2016
9 users found this comment helpful.
For Hypotension: "Was prescribed for fainting/low b.p. I started taking this and it made me have involuntary facial expressions and I started fainting repeatedly. Allergic reaction so I had to stop using it immediately."
Kay22 (taken for less than 1 month) November 3, 2015
10 users found this comment helpful.
ProAmatine (midodrine) for Postural Orthostatic Tachycardia Syndrome: "I have been diagnosed with Dysautonomia & Postural Orthostatic Tachacardia Syndrome and many other things but this medicine was my only option I can't take beta blockers because I need to be able to use my epi-pen and I had a bad reaction to florinef so we decided to try midodrine. It is a lifesavor! I can't go anywhere or do much of anything if I don't take it. I will pass out if I'm not on this medicine, I'm very pleased! I do have to deal with flushing and frequent headaches but it's very much worth it the cost."
togetherthereishope October 3, 2015
11 users found this comment helpful.
Orvaten (midodrine) for Postural Orthostatic Tachycardia Syndrome: "I take 10mg midodrine three times a day for Postural Orthostatic Tachycardia Syndrome. It has changed my life completely. I'm able to be active and do all the things I used to avoid. I go to concerts, movies on opening night, and shopping at places with long lines. I can date without worrying about whether we're going somewhere that I'll need to stand still. There are side effects - weird sensations and goosebumps mostly. The benefit far outweighs any negative effects or risks."
HS004 August 13, 2014
27 users found this comment helpful.
ProAmatine (midodrine) for Postural Orthostatic Tachycardia Syndrome: "Has definitely helped along with the Digoxin I take to keep me from feeling faint or dizzy. Has improved my quality of life quite a bit. The side effects (for me) are not bad enough to make me stop taking it."
potsy_kaira July 21, 2014
14 users found this comment helpful.
For Dysautonomia: "I started taking Midodrine early last year and like others before me have said...it's the best thing since sliced bread! I had to get out of the military because of bradycardia and vaso-vagal syncope and I was taking fludrocortisone at the time. The Florinef was awful, my hair was falling out, my nails were tissue paper thin (and painful), and I was still passing out every time I stood up. Midodrine has allowed me to do the things I love! I am a serious bowler (trying to go pro) and without this awesome stuff. I wouldn't be able to bowl more than one game (and very slowly) without passing out. I can also take showers STANDING UP! *GASP!!!* What a concept! It's a lovely medication! My only quabble is the tingling on my head."
Le Me! (taken for 1 to 2 years) March 9, 2014
24 users found this comment helpful.
ProAmatine (midodrine) for Dysautonomia: "I can't stand up without it."
zahta32 (taken for 1 to 6 months) December 24, 2012
18 users found this comment helpful.
For Postural Orthostatic Tachycardia Syndrome: "Goosebumps on arms, legs, chest and back; scalp tingling. Reduced my POTS episodes to one or two a month. Wish it were a once-a-day pill instead of every four hours. I take it early morning, lunch and late afternoon."
MarkS. February 1, 2012
25 users found this comment helpful.
For Postural Orthostatic Tachycardia Syndrome: "Midodrine does not affect postural orthostatic tachycardia syndrome, you need a beta-blocker for that (I am on Propranolol) which keeps your heart from kickstarting the fainting reflex that POTS patients are very susceptible to. Midodrine saved my life, it allows me to literally get up off the floor and get on with life. I have been on it for 10 years, it has a very short life span so I take both medicines every 3 hours. I am able to function quite well, not super-duper, but I can do most things. If it ever is pulled off the market I will literally be going to another country."
POTS&Dysautomia August 17, 2011
35 users found this comment helpful.
For Hypotension: "I have been on this medicine for thirteen years (since age 17) without issue. Taking this medicine enables me to live my life with only the occasional (rather than inevitable) fainting, dizziness and exhaustion. My doctor tried to switch me to lower doses, but my symptoms immediately kick in and make it difficult to function. Regular doses have made all the difference in my life."
Anonymous July 20, 2011
59 users found this comment helpful.
For Dysautonomia: "After trying a few other drugs in combination, adding midodrine was what enabled me to get out of bed and sit up without fainting, dizziness and drastic hypotension. I can now stand and walk, and participate in life when before, I was bed-bound. Yes, I now have very itchy, sensitive skin and scalp; but I will gladly suffer that slight annoyance to be able to function. I am glad its a shorter acting drug, even though I have to dose in the middle of the day, because it gets out of my system before I go to bed and don't change from hypotension to hypertension."
jamernay November 6, 2010
36 users found this comment helpful.
ProAmatine (midodrine) for Postural Orthostatic Tachycardia Syndrome: "Didn't seem to lower my heart rate very much, except when I tried to walk around in physical therapy class. Then it caused a severe drop in my heart rate, from about 95 in the relaxed sitting position, to below the 50s when I walked a few yards. Bradycardia is a documented side effect, and unfortunately one I suffered from. Also had lots of goosebumps, tingling scalp, chills and flushing throughout the day. I'm not totally knocking it, because I know it works for some POTS patients, but it wasn't the medicine for me."
POTSgrrrrl October 1, 2010
34 users found this comment helpful.
ProAmatine (midodrine) for Postural Orthostatic Tachycardia Syndrome: "ProAmatine is the best thing since sliced bread! Without ProAmatine POTS patients like me would not be able to function! The side effects are minimal and short lasting (they usually go away within the first week) and it gives people their lives back!"
Ddominelli August 17, 2010
45 users found this comment helpful.
For Hypotension: "I am greatly disappointed that they are going to take Midodrine off the market. I have taken it for about 8 years with fantastic results. Without it I have syncope often, I am really researching what to do because I rely on this medicine for help with my hypotension. Tried to go off of it once, passed out in my bosses arms - that was embarrassing - got back on it and not a problem since. Even on medication my blood pressure runs 100/70....but off of Midodrine I have to work to keep at 88/60, sometimes I am less than that and syncope is definite. I WISH they would reconsider taking it off the market."
keezheekoni August 17, 2010
63 users found this comment helpful.
For Hypotension: "It significantly improved my mother's quality of life. She is a heart and renal patient and due to low blood pressure, she was always feeling dizzy and was unable to carry out simple tasks at home. She was always sitting or lying down. Since this medication was started she has improved alot without experiencing any side effects. Positive result with this medication. It should be licensed."
Anonymous February 24, 2010
47 users found this comment helpful.
ProAmatine (midodrine) for Postural Orthostatic Tachycardia Syndrome: "Rash, goosebumps even when hot, odd blood pressure swings, scalp tingling and other problems. Was taken off it fairly quickly."
simplivin December 20, 2009
24 users found this comment helpful.
ProAmatine (midodrine) for Dysautonomia: "This medication gave me back my life. I was passing out everywhere. People in Target hated to see me coming. I passed out in a parking lot and prayed I wouldn't be run over. I had hypotension and vaso-vagal syncope upon movement. This didn't "cure" it, but helped me so much."
lvnpeace September 29, 2009
64 users found this comment helpful.
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