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Midodrine for Dysautonomia User Reviews

Brand names: Orvaten

Midodrine has an average rating of 9.0 out of 10 from a total of 11 reviews for the off-label treatment of Dysautonomia. 91% of reviewers reported a positive experience, while 0% reported a negative experience.

Midodrine rating summary

9.0/10 average rating

11 ratings from 11 user reviews.

Compare all 53 medications used in the treatment of Dysautonomia.

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9
55%
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9%
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9%
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Reviews for Midodrine

  • SusanT
  • Taken for 1 to 6 months
  • December 26, 2018

"I give it an eight because its not for everyone and because I do get side effects like irritable mood, more headaches, body pain and stomach upset but aside from that, it is a life-changing drug. I am no longer fainting 4-5 days a week. I can stand up for more than 30 seconds without fainting. I can think. I can be active for 4 or more hours per day instead of 1-2. I can drive a car without getting tired and confused. It has given me my life back after 24 years of not living!"

8 / 10
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48 Report
  • Le Me
  • Taken for 1 to 2 years
  • March 9, 2014

"I started taking Midodrine early last year and like others before me have said...it's the best thing since sliced bread! I had to get out of the military because of bradycardia and vaso-vagal syncope and I was taking fludrocortisone at the time. The Florinef was awful, my hair was falling out, my nails were tissue paper thin (and painful), and I was still passing out every time I stood up. Midodrine has allowed me to do the things I love! I am a serious bowler (trying to go pro) and without this awesome stuff. I wouldn't be able to bowl more than one game (and very slowly) without passing out. I can also take showers STANDING UP! *GASP!!!* What a concept! It's a lovely medication! My only quabble is the tingling on my head."

10 / 10
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63 Report
  • lvnpe...
  • September 29, 2009

ProAmatine (midodrine) "This medication gave me back my life. I was passing out everywhere. People in Target hated to see me coming. I passed out in a parking lot and prayed I wouldn't be run over. I had hypotension and vaso-vagal syncope upon movement. This didn't "cure" it, but helped me so much."

9 / 10
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80 Report
  • jamer...
  • November 6, 2010

"After trying a few other drugs in combination, adding midodrine was what enabled me to get out of bed and sit up without fainting, dizziness and drastic hypotension. I can now stand and walk, and participate in life when before, I was bed-bound. Yes, I now have very itchy, sensitive skin and scalp; but I will gladly suffer that slight annoyance to be able to function. I am glad its a shorter acting drug, even though I have to dose in the middle of the day, because it gets out of my system before I go to bed and don't change from hypotension to hypertension."

9 / 10
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54 Report
  • trihe...
  • May 17, 2017

"If there's a side effect to be had from a drug, I'm the type to get it but other than initially making me nauseous, this medication is not one I can go without! It has allowed me to function from debilitating dysautonomia. While I'm not 100% yet, it has helped me get my life back. Started on 2.5 mg three times a day but I am up to 15mg three times a day."

9 / 10
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30 Report

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  • Hdeaver
  • Taken for 2 to 5 years
  • August 26, 2022

"I have been on Midodrine 3x/day for about 3 years now. It is a must for me to function on a daily basis. I do get a hot/cold goosebumps sensation at times, but completely worth being upright a little longer."

9 / 10
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3 Report
  • MrMark
  • Taken for 1 to 2 years
  • April 14, 2023

"I was diagnosed with dysautonomia in 2020. At the time I was having horrendous symptoms: fainting, vagus nerve triggers, profuse sweating, nausea, dizziness, heat intolerance. It was a horrible time as whatever triggered the reaction always just spiraled out of control causing either severe sickness or passing out. After a tilt table test confirmed dysautonomia and I was put on Midrodine. What a huge improvement to my quality of life. I haven't passed out even once since starting Midrodine. I still have some of the symptoms but they are drastically milder and more manageable. Prior to Midrodince once an incident was triggered it ruined the rest of the day reducing me to a prone position while waiting for the symptoms to subside."

10 / 10
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2 Report
  • zahta
  • Taken for 1 to 6 months
  • December 24, 2012

ProAmatine (midodrine) "I can't stand up without it."

10 / 10
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33 Report
  • Anonymous
  • June 8, 2017

"Great to be able to stand-up without constantly feeling faint"

9 / 10
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16 Report
  • Calen...
  • Taken for 1 to 2 years
  • March 28, 2023

"It has stopped the constant excessive sweating and lowered the feeling of wading through mud as I walk around. I can do so much more now, and not be miserable."

9 / 10
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3 Report
  • Anonymous
  • Taken for 2 to 5 years
  • March 3, 2022

ProAmatine (midodrine) "5 mg didn't do anything 10 mg per each dose works on occasion, but didn't help on days when BP too low 15 mg per dose, twice daily, has worked"

7 / 10
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2 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.

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