Midodrine and Itchy Scalp: What Users Say

• Lau...
• Taken for 6 months to 1 year
• October 23, 2024

For Hypotension "I have orthostatic hypotension, and midodrine has given me my energy back. I can do household chores and hygiene tasks far more easily, and my thinking is clearer as well. Whenever my dose was increased to get me to my current level, I experienced some chills and scalp tingling for two weeks, and then that side effect disappeared. I’ve had no other side effects. I do take it 4 times a day because of the relatively short effectiveness."

• jam...
• November 6, 2010

For Dysautonomia "After trying a few other drugs in combination, adding midodrine was what enabled me to get out of bed and sit up without fainting, dizziness, and drastic hypotension. I can now stand and walk, and participate in life when before, I was bed-bound. Yes, I now have very itchy, sensitive skin and scalp; but I will gladly suffer that slight annoyance to be able to function. I am glad it's a shorter-acting drug, even though I have to dose in the middle of the day because it gets out of my system before I go to bed and don't change from hypotension to hypertension."

• jam...
• November 6, 2010

For Dysautonomia "After trying a few other drugs in combination, adding midodrine was what enabled me to get out of bed and sit up without fainting, dizziness, and drastic hypotension. I can now stand and walk, and participate in life when before, I was bed-bound. Yes, I now have very itchy, sensitive skin and scalp; but I will gladly suffer that slight annoyance to be able to function. I am glad it's a shorter-acting drug, even though I have to dose in the middle of the day because it gets out of my system before I go to bed and don't change from hypotension to hypertension."

• Ano...
• March 22, 2023

For Postural Orthostatic Tachycardia Syndrome "I was on 10 mg midodrine for years for my P.O.T.S. I’ve had this condition for 17 years and am now 70. When I started taking this script, it cost me $450.00 a month! It was extremely hard to come up with that cash, but it was the only thing that worked. (I also take 5 mg of nadolol.) I take 10 mg every 4 hours in the daytime and sleep in a head-elevated bed. My blood pressure rose too high last year, and my doctor took me off of it. It was a struggle. I am back on it now because I had an infection, and every time I get sick, POTS returns with a vengeance. I do feel the itchy and tingly scalp, but that goes away as time goes on. My cost is very reasonable now that I’m on Medicare. I can put up more with this med but still can’t drive because I feel like everything is shutting down, and I can’t concentrate on the road. I never want to be without this medication. It doesn’t make me as strong on my feet as healthy people my age, but at least it is a good crutch for a more normal life."

• POT...
• October 1, 2010

Midodrine for Postural Orthostatic Tachycardia Syndrome "Didn't seem to lower my heart rate very much, except when I tried to walk around in physical therapy class. Then it caused a severe drop in my heart rate, from about 95 in the relaxed sitting position to below the 50s when I walked a few yards. Bradycardia is a documented side effect, and unfortunately, one I suffered from. Also had lots of goosebumps, tingling scalp, chills, and flushing throughout the day. I'm not totally knocking it, because I know it works for some POTS patients, but it wasn't the medicine for me."

• Mar...
• February 1, 2012

For Postural Orthostatic Tachycardia Syndrome "Goosebumps on arms, legs, chest, and back; scalp tingling. Reduced my POTS episodes to one or two a month. Wish it were a once-a-day pill instead of every four hours. I take it early morning, lunch, and late afternoon."

• MLM...
• Taken for 1 to 2 years
• March 9, 2022

For Hypotension "It got me up to a normal blood pressure, which was so nice, but I cannot tolerate the side effect. Each time I take it (without fail), my scalp becomes so itchy, it’s unbearable. I need to talk to my doctor and see if I can try something else for my low BP."

• sim...
• December 20, 2009

Midodrine for Postural Orthostatic Tachycardia Syndrome "Rash, goosebumps even when hot, odd blood pressure swings, scalp tingling, and other problems. Was taken off it fairly quickly."