Tresiba User Reviews & Ratings (Page 4)

• Jul...
• August 26, 2016

For Diabetes, Type 1 "I've been a Type I diabetic for 14 years and just recently (within the past month) made the switch from Lantus to Tresiba. I have had constant headaches in the afternoons since switching, and today is the second time the pen has just stopped working. I will be partially through the injection when the pen stops dispersing the insulin - you can press on the plunger, but nothing comes out and the numbers do not go down. Not having insulin when your life depends on it is the scariest feeling in the world."

• Bob...
• April 26, 2022

For Type 2 Diabetes "If you are a type 1 diabetic, do not use this insulin. I repeat, do not use this insulin. The first day, everything was okay. The second day, disaster struck. Low blood sugars all day long. Blood sugar of 55, drank a bunch of Gatorade, 30 minutes later blood sugar 55. Same thing all day long. 75 at dinner around 7 p.m. I ate dinner and, 30 minutes later, was still 75 without any short-acting insulin. Around 2 a.m., BS was 200. Took short-acting insulin every hour through the night to try to keep BS down, and at 7 a.m. was still 180. I am back on Levemir. I cannot believe the FDA ever approved this insulin. I am rating this insulin a 1 because I cannot rate any lower."

• Ter...
• Taken for 6 months to 1 year
• January 13, 2021

For Type 2 Diabetes "Tresiba used to come with needles, but no more. Now, in addition to having to pay exorbitant amounts for the medicine, I now have to pay $72 for the needles? As a retired widow, things are hard enough, and this just makes it harder. Please reconsider putting needles back in the packages."

• Sym...
• July 22, 2016

For Diabetes, Type 1 "I have been taking 14 units each morning for the past 3 weeks. Week one, not bad, I think because of the transition from Lantus to Tresiba. Week 2, started having highs in the morning with meals and then dropping low starting around 4 pm. Week three, highs still in the morning and having to take triple Novolog (1 unit per 15 carbs), and then by 4 pm, dropping to the 40s and 50s and having to drink up to 3 8 oz glasses of OJ to level back out. This week, I am trying to split the dosage to 7 units in the morning and 7 at night. That was a fail, I ran high all night. With all these challenges, Dr. switched me back to Lantus."

• seb...
• Taken for 2 to 5 years
• March 11, 2022

For Type 2 Diabetes "I was diagnosed with type 2 diabetes about 10 years ago, found through routine bloodwork. I was immediately put on mealtime insulin, but we discovered very quickly that I am extremely sensitive to insulin. About 4-5 years ago, I was put on Tresiba. I was only using 5 units a day, but went up to about 8 about 3 weeks ago. I've been feeling terrible lately, so I thought back and realized very slowly I was getting progressively worse and worse with the way I felt. My side effects have been: some form of a headache every night from slight to debilitating; horrible joint pain, mainly in my fingers and toes; itchy, congested ears; hoarse voice; blurry bad vision; depression; constant fatigue; zero libido (I'm a female); all over the place readings for no apparent reason; high fasting numbers; and more. Also, my A1C over the years keeps creeping up and up and up. I just switched back to a sulfonylurea, I'm so thankful! I wanted to share to let people know these things aren't just in their head!"

• DVR...
• Taken for less than 1 month
• May 7, 2023

For Diabetes, Type 1 "Tresiba is awful. I've been a type 1 diabetic since 1986. I'd been on Lantus for over 20 years, and my diabetes was really well-balanced. My CGM time in range was usually around 90% with very few hypos and almost no serious ones. However, in a diabetes review that sounded like a box-ticking exercise, my HbA1c was deemed too low (5.9%), even though nobody looked at my TIR or the incidence of hypos. I was told to ditch Lantus for Tresiba. Nobody told me that the pharmacokinetics were different and that I had to build a therapeutic accumulation over the first few days. As a result, I swapped Lantus for Tresiba like for like, and for the first two nights, it sounded like it didn't work at all (my blood glucose was shooting up dangerously in the middle of the night, to the point I had to do a correction with Humalog). As a result, I increased the Tresiba on the second night and the third. In the morning of the 4th day, I had a MASSIVE hypo coma. First time in 25 years, and I entirely blame it on Tresiba."

• Chr...
• July 11, 2019

For Diabetes, Type 1 "I was changed to Tresiba from Lantus last October (2018). Within two months, I developed lichen sclerosis. My diabetic doctor denied that there could be any link and was adamant that I should remain on Tresiba. Six weeks ago, I stopped Tresiba and put myself back on Lantus. My symptoms immediately abated, and today, the dermatologist told me that I seem clear. I think health professionals should be aware of this as lichen sclerosis is a most unpleasant and potentially dangerous condition."

• cat...
• Taken for 1 to 6 months
• September 17, 2020

For Diabetes, Type 1 "I have been taking Tresiba for a little over a month and have had great results. It has kept my blood sugars between 100 and 120. I still have problems with waking highs in the 160s but am still titrating according to my NP instructions. I use Fiasp for short-acting and, these together, have been a godsend to me. I am very pleased with Tresiba. I do have a CGM which makes this so much better."

• Jrt...
• Taken for less than 1 month
• April 5, 2019

For Diabetes, Type 1 "Since I have been using Tresiba for my type 1 diabetes, my blood sugar levels have gone up from my usual low of 109 to a high of 199, to now well over 600. I was wondering how long it was supposed to start working. Then, when I checked, it can take 4 hours to get into your body but should last at least 24 hours, but my levels are too high."

• dog...
• Taken for 1 to 6 months
• July 21, 2022

For Type 2 Diabetes "After four weeks of getting chronically tired, worsening every day since starting 12 units of daily Tresiba, I was taken off this insulin and given back my former insulin, Novolin. It was like a heavy fog lifting, and I began returning to normal. I warn all to be suspicious of Tresiba. If you are taking it and start getting brain fog or getting more and more tired, get off it ASAP. Do not accept tweaks, they do not work. I, myself, was too zonked to take action, thank goodness my husband got fed up with his 'zombie' wife and petitioned my doctor with the data and medical observations."

• Emm...
• Taken for less than 1 month
• May 23, 2016

For Diabetes, Type 1 "I've been a type 1 diabetic for 21 years. I switched from Toujeo to Tresiba to try and combat the low blood sugars I have while I'm asleep. My endo said this was the only type of LL insulin that had the compound breakdown to avoid the nighttime lows. Every review (there are hardly any patient reviews for this drug) has said it takes significantly lower doses on this than any other LL insulin. That has actually not been my experience. I've had to increase the LL dose, and oddly enough, I still have those nighttime lows. Then all day, my blood sugar is higher than it needs to be. Two weeks on it is plenty of time for my body to adjust, yet I'm still having the same issues. Not impressed with this insulin. Had much more stable BS on Toujeo."

• Ver...
• Taken for 6 months to 1 year
• January 26, 2023

For Diabetes, Type 1 "I have Type 1 diabetes and found Tresiba did not work as effectively as Levemir. My glucose levels stayed in the 300 range even after a dosage change. I experienced sore muscles, weight gain, a general sick feeling, and extreme fatigue. I do not recommend this medication for Type 1 diabetes."

• Lis...
• Taken for 2 to 5 years
• April 21, 2018

For Diabetes, Type 1 "I'm 35 and have been a diabetic for 27 years. I have been using Tresiba for 3 years now, and everything was relatively fine. I had to split my dose because of low levels at night, and even though my endo said it was not necessary, it did wonders. A couple of weeks ago, I started with low levels at night or before lunch. Thought I should only reduce 2 units. But yesterday was scary... for the first time in my life, I woke up feeling the sugar levels too high. Ended up in the ER, where I was informed I nearly had 700. I thought the batch of pens could be faulty, so I bought another batch and started my day. I had 95 when I left the ER, and after a day at home sleeping, I'm already in 200. I'm looking online if there has been a recall or other cases similar to mine."

• May...
• Taken for 1 to 6 months
• October 28, 2016

For Diabetes, Type 1 "Been taking Tresiba about 3 months. It is really good so far. Seems to keep my sugar under control. I especially notice it does really well at the 24-hour mark. When taking Humulin N, my sugar would rise at around the 18-hour mark and continue rising until it was time to dose again around 7 a.m. The rise would be up in the 300s or 400s. Now my blood sugar does not rise at that time at all. In fact, it goes crazy low. I'm completely hypoglycemic unaware with this insulin until I actually test my sugar, and it will be in the thirties and forties. Such a strange feeling being that low and not being aware of it. Haven't had my A1C tested on it yet, but overall it seems to be working well."

• Sal...
• Taken for 6 months to 1 year
• August 21, 2019

For Diabetes, Type 1 "I am 37 years old. I started to inject this insulin last year. My A1C was going up (7.9), and my blood sugar was not controlled during the night (19) and day (13). I already gained weight, nearly 12 kg in one year. It was the horrible insulin that I used for diabetes for 22 years."

• Typ...
• Taken for 1 to 6 months
• November 30, 2016

For Diabetes, Type 1 "Went from twice-daily Levemir to Tresiba. Controlled blood sugars equally well. Did like the convenience of once-daily injections. However, I gained 12 pounds over 4 months. Cannot attribute the weight gain to anything else (exact same diet, exercise, and lab work fine)."

• nic...
• Taken for 6 months to 1 year
• October 28, 2020

For Diabetes, Type 1 "My son, who is Type 1 diabetic, has been on Tresiba for a year, and it is the best insulin. His A1C level dropped from 9 to 5, and his blood levels are always in range. It's actually affordable and perfect for him."

• JBa...
• Taken for 1 to 6 months
• September 14, 2020

For Diabetes, Type 1 "My blood sugars have been terrible on Tresiba. Up and down, up and down. Every night I have low sugar, then it spikes up like crazy. Never had this on Lantus. My doctor also recommended the pens. DON'T DO IT! You cannot trust the pens. Sometimes they shoot air and not insulin, so your blood sugars will be way out of control. I’d like to know what the doctors get for pushing the Tresiba from the company. When I told my doctor the pens are awful, she said she had never heard this from any other patient. So I looked at reviews, terrible, terrible reviews!!!"

• Sug...
• November 15, 2017

For Diabetes, Type 1 "So delighted that Tresiba immediately helped my dawn phenomenon. So many years of morning highs on Levemir. Wow. Then disaster struck. Bad bloating, nausea, and dizziness plus weight gain. The insulin nurse said, 'she doubts it’s the insulin' and not to go back to the other one if it’s working. After googling side effects, I think it may be the cause, so I will rebel and see what happens."

• Hod...
• October 22, 2016

For Diabetes, Type 1 "My 18 yo son has been taking Tresiba for about 6 mos, and his A1C dropped from 13 to 7. But he has been developing hives lately, and this is the only thing new or different in his environment or routine. We aren't positive at this point Tresiba's the cause, but it's not looking good."

• Sic...
• Taken for less than 1 month
• July 4, 2018

For Diabetes, Type 1 "I've been using Lantus since I was first diagnosed as a type one diabetic almost 6 years ago, but my doctor kept telling me to increase my nightly dosage. Eventually, I was taking 16 units per night but kept having hypos during sleep and throughout the day. I'd go to sleep with a 320 and wake up with a 70. So, my endo switched me to Tresiba. Tried it for a week and went back to Lantus. I was getting awful body pains and headaches, and then I found out my initial problems were because my Lantus dose was too high (I switched doctors at that point). Also, the whole point of me switching to Tresiba was so I wouldn't crash at night. And what happened? I crashed at night."

• Tim...
• September 4, 2020

For Diabetes, Type 1 "Started Tresiba in Feb 2020 - changed insulin frequently since 1988, no issues, so didn't give it any thought. During March to May 2020, I had 3 episodes I can only describe as severe 'hot flushes'; tingling from top to toe, skin on fire. When that passed (30 seconds), I was then nauseous and dizzy, with a cold sweat. Each time this was within 1 min of injecting Tresiba (20 units) and was followed by 4 hours of shivering through the night, the same as a fever, then feeling normal the next day. Upsetting, and timing-wise coincided with the start of Covid, so thought possibly a factor. Found this site and stories from other type 1 diabetics reporting the same. My doc swapped me back to the Lantus I was on previously, no further issues since (5 months now). The doc did say he had 4 other patients who had side effects. Looking back, I did feel more dizzy than usual on Tresiba and frequently felt faint. All sorted now, but we were warned!"

• 26 ...
• Taken for 1 to 6 months
• May 16, 2018

For Diabetes, Type 1 "I began using Tresiba shortly after Lantus. I had to switch because of my change in health insurance plans. I loved Lantus and had pretty regular blood sugar levels on it, but once I began using Tresiba, my blood sugars would drop in the middle of the night. I have had some scary moments with it. I've gone to bed with a blood sugar of 220 (which I never did on Lantus) and then would wake up at 5 am with a blood sugar of 30. It has caused some serious nighttime drops and only finally levels out by early afternoon. I do not recommend this product to any type 1'ers out there. My next try will be Levemir or Basaglar."

• did...
• Taken for less than 1 month
• December 12, 2022

For Diabetes, Type 1 "I am a Type 1 diabetic for 68 years. I tried Tresiba for 2 weeks, as suggested by the metabolic center that I go to. It was terrible and did not work at all. The metabolic center said I should take a quick acting insulin every 5 hours, but this actually made it worse, as the blood sugars went up and down, causing more grief. I would not recommend this product. It is terrible and will probably cause damage to your health. I have gone back to the insulin routine that I was taking before starting this. I feel 100% better, and my blood sugars and appetite have returned to normal."

• ElH...
• December 7, 2017

For Diabetes, Type 1 "Definitely the best long-acting insulin I've ever taken, by far. I have been type 1 since 1991 (though I do not remember that far back because I was very young) and have been on Ultra Lente, Levemir, Lantus, and Toujeo. I started taking Tresiba in late June. My A1C tanked from 7.5% in June (I destroyed my foot in April, so this might really have been closer to 6.8 or 6.9% if I had been able to exercise) to 6.3% in September. I will say that I had more lows than I'd like to have early on, but it's just an adjustment I had to make. I have far fewer 250+ readings than I have ever had, and many more periods of 8-9 hours where my blood sugar does not move at all, where it sits between 80 and 85 or such like. One week I ran an average of 102."