Tresiba for Diabetes, Type 1 User Reviews (Page 3)

• Lisa
• Taken for 2 to 5 years
• April 21, 2018

"I'm 35 and have been a diabetic for 27 years. I have been using Tresiba for 3 years now and everything was relatively fine. I had to split my dose because of low levels at night and even though my endo said it was not necessary it did wonders. A couple of weeks ago I started with low levels at night or before lunch. Thought I should only reduce 2 units. But yesterday was scary... for the first time in my life I woke up feeling the sugar levels too high. Ended up in the ER where I was informed I nearly had 700. I thought the batch of pens could be faulty so I bought another batch and started my day . I had 95 when I left the ER and after a day at home sleeping I'm already in 200. I'm looking online if there has been a recall or other cases similar to mine."

• Ava_A...
• Taken for 1 to 2 years
• August 30, 2018

"I'm so conflicted with my beloved Tresiba. I started it last year and my sugars have been amazing, especially the last few months. Went from 9 something to 7.2 and bet I'd still be or even in the 6's as of last month. Why am I conflicted? I've had debilitating stomach cramping, chronic diarrhea and nausea and other awful chronic problems (I noticed other people mentioned headaches and colds and I had those too). Been to Drs and everything comes back 'normal'. Despite my sugars, I am a wreck now, I realized the ONLY thing I've changed in my lifestyle is the Tresiba. I'm going on a week off it and don't know for certain yet, since my symptoms come and go (1 day I'm fine and next they're back) but I'm going to try to stick it out and see. As far as blood sugar control, I've woken up in the 3 and 400'sI'm when off of it. It definitely is a great insulin for my levels. Devastated if I need to find another one now but excited if my symptoms improve."

• Sugar...
• November 15, 2017

"So delighted that Tresiba immediately helped my dawn phenomena. So many years of morning highs on Levemir. Wow.Then disaster struck . Bad bloating , nausea and dizziness plus weight gain. The insulin nurse said ‘she doubts it’s the insulin’ and not to go back to the other one if it’s working’. After googling side effects I think it maybe the cause so I will rebel and see what happens."

• ben
• Taken for 1 to 6 months
• April 18, 2019

"51 years a type 1 diabetic. Currently using Tresiba and Humalog. Since beginning Tresiba 1 month ago (over RELION NPH) I have reduced daily blood sugar swings consistently. The daily Humalog (formerly RELION REGULAR) is only a VERY FEW units - morning basal is 13 units (at 5 am) and evening basal is 10-12 units (at 5-6 pm). I use Dexcom g6 and a1c is 5.0 currently. Purchasing Tresiba CHEAPER or more AFFORDABLY would be nice - this takes a good deal of my income and this is the only thing really discouraging about this wonderful insulin."

• Hodgb...
• October 22, 2016

"My 18 yo son has been taking Tresiba for about 6 mos and his A1C dropped from 13 to 7. But he has been developing hives lately and this is the only thing new or different in his environment or routine. We aren't positive at this point Tresibas the cause, but it's not looking good"

• 26 yo...
• Taken for 1 to 6 months
• May 16, 2018

"I began using Tresiba shortly after Lantus. I had to switch because of my change in health insurance plans. I loved Lantus and had pretty regular blood sugar levels on it, but once I began using Tresiba my blood sugars would drop in the middle of the night. I have had some scary moments with it. I've gone to bed with a blood sugar of 220 (which I never did on Lantus) and then would wake up at 5am with a blood sugar of 30. It has caused some serious nighttime drops and only finally levels out by early afternoon. I do not recommend this product to any type 1'ers out there. My next try to will be Levemir or Basaglar."

• did...
• Taken for less than 1 month
• December 12, 2022

"I am a Type 1 diabetic for 68 years, I tried Tresiba for 2 weeks as suggested by the metabolic center that I go to. It was terrible and did not work at all, the metabolic center said I should take a quick acting insulin every 5 hours, but this actually made it worse as the blood sugars went up and down causing more grief. I would not recommend this product. It is terrible and will probably cause damage to your health. I have gone back to the insulin routine that I was taking before starting this. I feel 100% better and my blood sugars and appetite have returned to normal."

• Timmy...
• September 4, 2020

"Started Tresiba Feb 2020 - changed insulin frequently since 1988, no issues so didn't give it any thought. During March to May 2020 I had 3 episodes, I can only describe as severe 'hot flushes'; tingling top to toe, skin on fire, when that passed (30 seconds) I was then nauseous and dizzy, with a cold sweat. Each time this was within 1 min of injecting Tresiba (20 units) and was followed by 4 hours of shivering through the night the same as a fever, then feeling normal the next day. Upsetting and timing wise co-incided with the start of Covid so thought possibly a factor. Found this site and stories from other type 1 diabetics reporting same. My doc swapped me back to the Lantus I was on previously, no further issues since (5 months now). The doc did say he had 4 other patients who had side effects. Looking back, I did feel more dizzy than usual on Tresiba and frequently felt faint. All sorted now, but we warned!"

• ElHom...
• December 7, 2017

"Definitely the best long-acting insulin I've ever taken, by far. I have been type 1 since 1991 (though I do not remember that far back because I was very young) and have been on Ultra Lente, Levemir, Lantus and Toujeo. I started taking Tresiba in late June. My A1C tanked from 7.5% in June (I destroyed my foot in April so this might really have been closer to 6.8 or 6.9% if I had been able to exercise) to 6.3% in September. I will say that I had more lows than I'd like to have early on, but it's just an adjustment I had to make. I have far fewer 250+ readings than I have ever had, and many more periods of 8-9 hours where my blood sugar does not move at all, where it sits between 80 and 85 or such like. One week I ran an average of 102."

• one...
• Taken for 1 to 2 years
• June 21, 2018

"I am a type 1 diabetic for the last 22 years and was using lantus for 18-years and then my insurance wouldn't cover so I had tried Toujeo and it caused me to see spots so my endo doc tried Tresiba which it has been great my A1C went from 7.9 to 7.0 in 1-year and no more waking up with wet sheets from sweating like I did with Lantus. I'm thankful for my doctor trying it out on me."

• LBishop
• Taken for less than 1 month
• March 21, 2018

"A little background: I’m a T1 diabetic who’s successfully used pens forever (last A1C was 6.3). I’m also a medical student and like to tinker with my prescriptions when I learn new stuff. So, I had high hopes when I learned about degludec and talked to my endo about it. Unfortunately, Tresiba just didn’t work for me – it caused wild swings in my daily sugars, almost as if it made me more sensitive to my rapid acting insulin (which doesn’t physiologically make sense, I know). For 3 1/2 weeks I tried all sorts of different things to get a handle on it, but the final straw was when I had to ask a quiz proctor for an excuse to go buy juice because I’d eaten all my glucose tablets (something I’ve never had to do in my life). Maybe with more time it would’ve calmed down, but I was so frustrated after the quiz incident that I immediately switched back to Lantus - and my sugars normalized immediately. I’m now on Toujeo and have had no problems. Every body is different."

• DVR
• Taken for less than 1 month
• May 7, 2023

"Tresiba is awful. I've been a type 1 diabetic since 1986. I'd been on Lantus for over 20 years, and my diabetes was really well-balanced. My CGM time-in-range was usually around 90% with very few hypos, and almost no serious ones. However, in a diabetes review that sounded like a box-ticking exercise, my HbA1c was deemed too low (5.9%), even though nobody looked at my TIR or the incidence of hypos. I was told to ditch Lantus for Tresiba. Nobody told me that the pharmacokinetics were different, and that I had to build a therapeutic accumulation over the first few days. As a result, I swapped Lantus for Tresiba like-for-like, and for the first two nights, it sounded like it didn't work at all (my blood glucose was shooting up dangerously in the middle of the night, to the point I had to do a correction with humalog). As a result, I increased the Tresiba on the second night, and the third. In the morning of the 4st day, I had a MASSIVE Hypo coma. First time in 25 years and I entirely blame it on Tresiba."

• JBano
• Taken for 1 to 6 months
• September 14, 2020

"My blood sugars have been terrible on Tresiba Up and down up and down Every night I have low sugar then it spikes up like crazy Never had this on Lantus My dr also recommended the pens DON'T DO IT! You cannot trust the pens. Sometimes they shoot air and not insulin so your blood sugars will be way out of control I’d like to know what the doctors get for pushing the Tresiba from the company When I told my dr the pens are awful she said she had never heard this from any other patient. So I looked at reviews terrible terrible reviews!!!"

• Poland...
• May 7, 2021

"Hello. I'm from Poland. I took Tresiba in October 2019 my sugars were not too bad. But my sense of well-being was terrible. I had shortness of breath, headache and dizziness, stomach pain on the right side, fatigue, sadness. After 2 months I returned to Levemir. In April 2020, I started to feel terrible, it turned out that I now have celiac disease and histamine intolerance. My doctor looked at me as if I was crazy as I told him that I felt terrible after tresiba. I have the impression that Tresiba led to celiac disease."

• Anonymous
• Taken for 1 to 2 years
• December 2, 2017

"I very much wanted this insulin to be great, but as usual, the pharmaceutical companies failed again. This insulin seemed at first to eliminate the dawn phenomenon I experienced taking humulin n, lantus, levemir. But now, I can't seem to get any balance to occur no matter what I do! It's completely unpredictable. I've had a 500+ fasting blood glucose, after going asleep at a decent 140 the night before. Or wake up at 6 am at 100, take my daily dose, not eat, and be 350 by noon. The drastic blood glucose swings on this are extremely frustrating. All the money big pharma makes on this med you'd think they could improve lives, ha! Guess I'll go back to humulin n. Lantus kills my back, and burns. Levemir gives me yeast infections."

• Mutasim
• January 25, 2022

"I have been a big fan of this medication it used to be a miracle and it changed my blood sugar from bad fluctuation to steady line. Lately in the last few months it’s started to give me headache low blood pressure feeling “not really low blood pressure” makes me aware of my heart and strange dizziness, lower attention. I never had any of those symptom in the past with Tersiba and as soon as I take it the side effects start appearing. I’m now on other medicine beside this and Nova Rapid. I wish if Tresiba sees my Review and make this drug like it used to be."

• Adam...
• Taken for 6 months to 1 year
• November 10, 2022

"I thought I was going crazy but turns out the core problem is this insulin. I went out of my way to get blood tests, MRI scans and constant trips to the GP regarding heart palpitations and numbness in my body and feeling dazed. Turns out it’s been happening ever since I started taking this insulin. It makes me feel very good knowing I’m not alone. My experience with this insulin is horrible I wish I had the same experience as the majority who say it’s changed their life. Never going near this Insulin again I have just one more day with it before i officially switch back to Lantus."

• Great...
• Taken for 1 to 6 months
• July 31, 2018

"Tresiba is awesome. I was on multi pumps for the last 20 years with a with an A1c around 6.2-6.7 and a std dev of about 50 to now my A1C of 5.1-5.6 std dev of about 25-30. This is a magnificent drug. I keep flat most the day, its like a magnet want me to be in range. I take it first thing when I wake up."

• tarry
• Taken for 6 months to 1 year
• July 27, 2021

"These are my side effects - feet so swollen can not walk, pain in my legs bad, fluid in my lungs very ,very sick been on this since December. It helps to lower my high blood sugars but has made me very sick . I am hoping to be back on lantus refuse to take this 7 months of he'll think it's lawyer time good luck everyone who is on this"

• Tresiba...
• Taken for 6 months to 1 year
• November 3, 2016

"The only thing I hate is the pen injector pushes very hard it actually bothers my thumb joint after 6 months I have to use my other hand to push the injector button in. They need to get them like my lantuas which hardly takes any effort. I will probrably switch back to lantuas just because of that. You think after all the effort put into creating insulin they wouldn't cut corners on the injection pen.."

• broke...
• Taken for 2 to 5 years
• April 3, 2023

"If you’re type 1 and reading these reviews, take all type 2 reviews with a grain of salt. It seems many were ill-advised by their doctors and made the switch with few additional check-ins, were not staying hydrated, and likely expected insulin to be the miracle fix when in reality many other things need to be addressed. The American medical system is so broken. Also, take note that it is not an exact unit for unit switch. I was taking 20u Lantus then ended up on a 13u/14u every other day split. Tresiba is the ONLY long-acting insulin I will ever consider. It has an approx 40-48-hour life in the body, making it possible for me to have more stability in my life. If you’re seeing constant highs at the end of your Lantus dose, or splitting the dose, give tresiba a fair shot - use for a month, STAY HYDRATED, and see how stable your basal insulin is."

• Munem
• Taken for 2 to 5 years
• December 27, 2022

"Best basal insulin on the market. I have tried Levemir and Lantus neither come close to the flatness of Tresiba. Tresiba works over a long period. Downside is that where I inject I feel itchy for a few moments. Great insulin and cannot imagine life without it!"

• Anonymous
• Taken for less than 1 month
• December 23, 2022

"I’ve been a type one diabetic 41 years and my insurance no longer covers Lantus so my endocrinologist recommended this. I change to try Tresiba and said it was the best thing ever however, something is not right because my blood sugars are all over the place and when I give myself my short-acting NovoLog insulin to counteract carbohydrate intake or to correct blood sugars over 100 It takes three hours for the insulin to actually show that it’s working and then I’m all the sudden on a sudden downward slope. I’m confused I never dealt with this when I was on Lantus, but I read the other review that said you have to wait about eight days for it to work so I started taking this six days ago maybe in the next couple of days I’ll notice a difference?"

• Munim...
• Taken for 2 to 5 years
• November 17, 2022

"Was on Lantus for years, gave me terrible random low blood sugars during night and day. On Tresiba now for many years and the best basal insulin I’ve ever had, I’ve also taken Levemir. I found on Tresiba my hypos are less in number and less severe, much more manageable and flatter blood sugars. Love it, and highly recommend it. Only negative is that the Pre-filled pens leak post injection."

• Mrs...
• Taken for less than 1 month
• July 19, 2022

"Like many others, I was forced by my insurance to switch from Lantus. I started using Basaglar. I was never thrilled with the pens they have. Very hard to push. Anyway, recently I was forced to switch again by my insurance. This time I switched to Tresiba. I'm still on my first box of it, but so far I like it. I had no issues with the Basaglar insullin, but I think that the Tresiba is more effective for me. Both the Basaglar and Tresiba tend to make me bottom out overnight (made obvious by my Dexcom), but if I have some protein before bed I tend to not wake up with a low. With Tresiba however, unless I'm having a heavy carb food, I find i sometimes don't need to inject any Humalog. One less injection! Works for me :-)"