Infliximab for Crohn's Disease User Reviews (Page 2)

• Jeff
• Taken for 6 months to 1 year
• September 29, 2023

Avsola (infliximab) "I was diagnosed with Crohn's the last week of 2022 after spending the year with frequent, urgent visits to the toilet. After the first starter dose, I woke up the next morning feeling 100% better. It is like someone turned the clock back 10-15 years. Thank you Avsola."

• Renee...
• September 11, 2023

Inflectra (infliximab) "I was severe with Crohn's bleeding uncontrollable colon like tissue paper unable to do surgery. Due to health issues, I started on Inflector and have never felt better. I have been on it now for two years with minor Crohn's flare-ups; very low side effects tired aching and very fatigue after the infusion but within five days I feel better than normal."

• izzyp...
• February 7, 2017

Remicade (infliximab) "I was on remicade for nearly 5 years. it was working great for me up until last October when I started developing sinus infections. I am in remission but yet I still can't work - my life isn't normal anymore time to switch it up"

• DaiBen
• Taken for 1 to 6 months
• June 19, 2016

"I've had CD for 15 years, with the most part of that being uneventful. However, the last three years have been rough, with the last six months even worse. Having tried and not got on with Azathiaporine and Mercaptopurine I was forced down the road of anti-TNF treatment by infusion. Of course in the UK, unless you have private healthcare, the NHS will always try the cheaper options first, but the side effects were too severe for me to continue. Within 2 days of having the Infliximab my symptoms improved, now, as I'm just about to have my third infusion, my symptoms have improved to the point that I've almost forgotten about my Crohns. I genuinely thought this was a make or break medicine and I'm so happy with the result."

• Britkev
• Taken for 1 to 6 months
• May 9, 2016

"After an infrequent 5yearly flareup of crohn's I was given infliximab intraven. for several weeks. Apparently unconnected I experienced increasing short breath which got worse and was put down to possible heart probs. Investigations were extrememely slow and I just got worse. Following almost collapse it the street I was taken to hosp and my blood oxygen levels were at 75 which is I believe extremely low and my heart was on point of collapse. Following days of being on oxygen and then a lung 'washout' under general anaesthetic and more oxygen in the intensive care dept I made a rapid recovery. Apparently I was lucky?? I was eventually told I had suffered 'acute lung damage' ie the cells that absorb oxygen. most likely from the infliximab."

• Don...
• Taken for 10 years or more
• March 2, 2024

Remicade (infliximab) "I was on Remicade for about 18 years (along with azathioprine). Started at 8-week intervals, then went to 7, 6, and then 4. It changed my life. I could do things I wasn't able to before. Due to insurance reasons, I went to Inflectra and then to Avsola (both of which I believe are biologically similar to Remicade). I had Crohn's for 15 (miserable) years before being introduced to Remicade. I can't imagine life without it."

• Anonymous
• Taken for 1 to 2 years
• November 5, 2023

Remicade (infliximab) "Remicade was pretty good to me. It took me from a dangerously low BMI, constant 10/10 abdominal pain, and diarrhea to a normal life. I got back up to a healthy weight, had no pain within a day of the first infusion, and had normal bowel movements for the first time in years. It saved my life. Remicade would make me somewhat fatigued the day after getting it for the first 3-ish months but after that, I didn't really experience any side effects. I was getting a dose once a month. Having to go into the hospital once a month for a 2-3 hour long infusion was not convenient but I often didn't mind because it would be a quiet few hours to relax. After taking it for about 2 years I got a demyelinating polyneuropathy syndrome (CIDP) which I was told *might* have been an extremely rare side effect from the Remicade, me being 1 of about 5 people to ever get it. The many neurologists I saw were never able to pin down what caused it for certain so I still consider this med to have been a net positive to me."

• Smith
• Taken for 2 to 5 years
• March 1, 2021

"I was initially skeptical of Remicade infusions, but the other Biologics had stopped working for me. Developed antibodies to Humira, Enbrel, etc. It’s not helping the AS or Crohns much any more and never showed the efficacy of the others. Too many random side effects. Neuralgia, pvc’s, headaches, general ickiness. It works, but not well. At least for me."

• Anonymous
• Taken for 2 to 5 years
• April 27, 2023

Remicade (infliximab) "Used Remicade for 4 years for fistulizing Crohn’s disease. It only somewhat helped for one of the 4 years by reducing my abscesses, but it did not heal my fistulas at all. I did get psoriasis and terrible arthritis which I believe were drug-induced side effects and I will likely have these on top of my Crohn’s for the rest of my life."

• Bill...
• Taken for 6 months to 1 year
• August 25, 2023

"This worked great for about a year. It was like I never had Crohn's. Then testing showed low levels and antibodies to the medication. So they took me off it though I was still doing well and started me on Skyrizi. I am very apprehensive about the possible side effects. Had one dose of Skyrizzi so far."

• Sophie
• Taken for 2 to 5 years
• April 2, 2023

"I've been on this drug since I was 13 and got told I'd be off it by 16, now I'm turning 17, and still no end in sight. It helps me massively, I don't have any symptoms unless it gets close to the infusion date (1 week prior). Even though it helps my Crohn's it makes me get sick quickly in many other ways (cold, influenza, gastrointestinal infection,..). I hope to get off it one day because the doctors have a hard time finding veins big enough that aren't too scared of injections."

• anony...
• Taken for 1 to 6 months
• May 31, 2023

Remicade (infliximab) "I got diagnosed with Crohns disease back in 2019. I was started on Remicade, and it worked for at... Two months? Then hell broke loose, 3rd month getting it, I had horrible back pains when the infusion started. This went on for months, until I finally went through Anaphylaxis shock. I definitely almost lost my life that day; Unfortunately the damage had been done and had to get a part of my colon removed. I beg you, PUSH the nurses and the doctors to listen to you if you get sudden symptoms."

• Cronie
• Taken for 1 to 6 months
• May 2, 2021

Inflectra (infliximab) "Stuff is not as good as remicade for me"

• Chris...
• Taken for 5 to 10 years
• July 5, 2014

Remicade (infliximab) "Severe scalp psoriasis developed, no flare ups though."

• Becky
• Taken for 1 to 6 months
• July 26, 2023

Inflectra (infliximab) "I've had no side effects on the infusions of Inflectra"

• Anonymous
• Taken for less than 1 month
• June 21, 2023

Renflexis (infliximab) "This medication totally debilitated me. It’s a generic drug that should be taken off the market."

• Anonymous
• Taken for 6 months to 1 year
• June 2, 2023

Avsola (infliximab) "Terrible side effects. I experienced very rough psoriasis, intense dental infection issues, headaches, nausea, and severe eye dryness."

• Kavkeet...
• September 25, 2016

Remicade (infliximab) "Worst drug!! Save yourself by not trying this poison. Had serious lung injury."

• Robin
• Taken for 1 to 6 months
• July 19, 2022

Remicade (infliximab) "I was not fortunate enough for this medication to work for me."