Indomethacin for Ankylosing Spondylitis User Reviews

Brand names: Indocin, Tivorbex, Indocin SR, Indocin IV

Rating: 8.1

Indomethacin has an average rating of 8.1 out of 10 from a total of 11 reviews for the treatment of ankylosing spondylitis. 64% of reviewers reported a positive experience, while 9% reported a negative experience.

10		36%
9		27%
8		0%
7		18%
6		9%
5		0%
4		0%
3		0%
2		9%
1		0%

Reviews for Indomethacin

Yar...
Taken for 1 to 2 years
December 16, 2018

"I took indomethacin for my AS for years. Nobody told me this drug was toxic to the kidneys. At my regular clinics, blood tests indicated declining kidney function. My doctors did what they could, but my kidneys had been destroyed. I have since had a kidney transplant. This failed after 7 months, so I am waiting for another transplant now. If you are taking this drug regularly, I would suggest you have regular blood tests to check your kidney function."

2 / 10

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18 Report

Sco...
Taken for 2 to 5 years
February 10, 2019

"This is the NSAID of choice for ankylosing spondylitis. The mechanism of action is suited to how AS affects our body. When I take indomethacin, my pain and inflammation go away 100%. This is the only drug you need for AS, in my opinion. Most doctors suggest continuous use over on-demand use in order to stop the disease from progressing, but I believe this NSAID is particularly strong and should not be used for more than 10 days at a time to avoid any side effects. In order to limit use, it is hypothesized that AS is caused by a bacteria called Klebsiella pneumoniae, and this feeds off of undigested starch. Find this article on the internet: 'The Link between Ankylosing Spondylitis, Crohn's Disease, Klebsiella, and Starch Consumption.' Therefore, a starch-free diet should provide relief if followed religiously. Sometimes I will have cheat days, so always keep indomethacin in the cupboard for those days. So to summarize, a great medication for AS, and the only one you will need to take occasionally if following a starch-free diet."

10 / 10

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14 Report

hee...
Taken for 10 years or more
May 30, 2017

"Was prescribed two 75 mg SR (morning and evening) and felt very drowsy and tired every morning. Switched to 1x per day (evening) and get almost the same benefit and feel fine. Other NSAID drugs did not reduce AS inflammation for me. In combination with Enbrel, the indomethacin has controlled my AS for 12 years now. Minimal pain and I can run and exercise."

7 / 10

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9 Report

Indomethacin "I've been using SR since it first appeared in the mid-1980s and have lived a great life, even doing regular running. When I went to get my most recent prescription filled, the pharmacy substituted Indomethacin ER, which isn't at all effective. I'm better off with aspirin and ibuprofen. Has anyone else had a similar experience?"

10 / 10

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11 Report

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Jam...
Taken for 5 to 10 years
July 29, 2018

"Better hope you're not taking this when AS-associated colitis kicks in. You think you're dying. I haven't returned to this drug in years. I lost my job when it kicked in. Couldn't get off the toilet. Now my guts are full of blood. Beware."

6 / 10

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6 Report

Ind...
Taken for 2 to 5 years
May 26, 2022

"At age 46, out of nowhere, I started to have increased pain, movement limitations, numbness, weakness, and was diagnosed with a spinal condition which I was told needed spinal surgery. Because everything was new to me, I decided to buy back time and try something else other than surgery. Indomethacin has helped my spinal condition (C4-5, C6-7) over other drugs and treatments like Lyrica, etc. I couldn’t move much for about 8 months, until I started to take this medication. Side effects like drowsiness felt only during the first few (2-3) days, headaches a few times, in order to avoid an upset stomach, I make sure I have something in my stomach, and now after epidural treatments, I only take it as needed. It works marvelously for me, not only helps with my spinal pain, but with elbow and knee pain. I call this medication my green pill, not only because of the manufacturer color but because it’s a cheap way to treat my condition without the need of using any other stronger meds. Good luck."

10 / 10

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3 Report

Man...
Taken for 10 years or more
November 14, 2023

"Since 1996, I take indomethacin twice a day, 2 pills of 50 mg. Every 6 months, I check my blood to see if it is okay. In terms of side effects, almost nothing. I eat before I take it; I take one in the morning and the other late evening, 8-9 PM. Now, I'm addicted to it because once I miss my dose, I have a headache! The last is extremely rare; I have indigestion, I vomit, but once or twice a year."

9 / 10

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1 Report

ken...
June 17, 2013

Indomethacin "Indomethacin ER 75 mg extended-release capsules have worked best for me."

10 / 10

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23 Report

Anonymous
March 19, 2009

Indomethacin "By almost completely controlling the inflammation, full mobility with little or no pain was returned, including increased energy and thought processes."

9 / 10

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19 Report

woz...
Taken for 1 to 6 months
July 16, 2012

"Worked 100% for a few months. Slowly felt the hip/back pain coming back. Thought I could just increase the amount of exercise. Just walked 11 hours non-stop at a Relay for Life event yesterday."

9 / 10

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7 Report

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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.