User Reviews for Indomethacin to treat Ankylosing Spondylitis

"I took Indomethacin for my AS for years. Nobody told me this drug was toxic to the kidneys. At my regular clinics, blood tests indicated declining kidney function. My doctors did what they could but my kidneys had been destroyed. I have since had a kidney transplant. This failed after 7 months so I am waiting for another transplant now. If you are taking this drug regularly I would suggest you have regular blood tests to check your kidney function."

"This is the NSAID of choice for Ankylosing Spondylitis. The mechanism of action is suited to how AS affects our body. When I take Indomethacin, my pain and inflammation goes away 100%. This is the only drug you need for AS in my opinion. Most doctors suggest continuous use over on-demand use in order to stop the disease progressing but I believe this NSAID is particularly strong and should not be used for more than 10 days at a time to avoid any side-effects. In order to limit use, it is hypothesised that AS is caused by a bacteria called klebsiella pneumoniae, and this feeds off of undigested starch. Find this article on the internet "The Link between Ankylosing Spondylitis, Crohn's Disease, Klebsiella, and Starch Consumption"nTherefore, a starch free diet should provide relief if followed religiously. Some times I will have cheat days so always keep Indomethacin in the cupboard for those days. So to summarise, a great medication for AS, and the only one you will need to take occasionally if following a starch free diet."

"Was prescribed two 75mg SR (morning and evening) and felt very drowsy and tired every morning. Switched to 1x per day (evening) and get almost the same benefit and feel fine. Other NSAID drugs did not reduce AS inflammation for me. In combination with Enbrel the indomethacin has controlled my AS for 12 years now. Minimal pain and I can run and exercise."

Indocin SR (indomethacin) "I've been using SR since first appeared in the mid 1980 and have lived a great life, even doing regular running. When I went to get my most recent prescription filled, the pharmacy substituted Indomethacin ER, which isn't at all effective. I'm better off with aspirin and ibuprufen. Has anyone else had a similar experience?"

Indocin SR (indomethacin) "It's effective in controlling the pain and inflammation related to ankylosing spondylitis, for about 16 hours and then it's followed by headache and return of pain and inflammation. I've been using it for four days now and will be switching to 2 x day."

"Better hope you're not taking this when AS associated colitis kicks in. You think you're dying. I haven't returned to this drug in years. I lost my job when it kicked in. Couldn't get off the toilet. Now my guts are full of blood. Beware."

"At age 46, out of no where I started to have increased pain, movements limitations, numbness, weakness and was diagnosed with a spinal condition which I was told needed spinal surgery. Because everything was new to me, I decided to buy back time and try something else other than surgery. Indomethacin has helped my spinal condition ( C4-5, C 6-7) over other drugs and treatments like Lyrica etc I couldn’t move much for about 8 months, until I started to take this medication. Side effects like drowsiness felt only during the first few (2-3) days, headaches few times, in order to avoid upset stomach I make sure I have something in my stomach, and now after epidural treatments only take it as needed. It works marvelous for me, not only helps with my spinal pain, but with elbow and knee pain. I call this medication my green pill, not only because of the manufacture color but because it’s a cheap way to treat my condition without the need of using any other stronger meds. Good luck"

Indocin (indomethacin) "Indomethicin ER 75 mg extended release capsules have worked best for me."

Indocin SR (indomethacin) "By almost completely controlling the inflammation, full mobility with little or no pain was returned, including increased energy and thought processes."

"Worked 100% for a few months. Slowly felt the hip/back pain coming back. Thought I could just increase the amount of exercise. Just walked 11 hours non-stop at a relay for life event yesterday. "