Guselkumab for Psoriasis User Reviews

• Ste...
• Taken for 6 months to 1 year
• November 14, 2024

Guselkumab "Been using Tremfya for over 6 months now, and results are great. Skin is mostly normal, no plaques on my skull either. Even the nails went back to normal state after the 4th or 5th month. I didn’t experience any serious side effect except cold 1 time, which lasted slightly longer (10 days overall). I recommend it to all the people with psoriasis."

• Wes...
• Taken for 6 months to 1 year
• September 15, 2019

Guselkumab "Started Tremfya in Feb 2019 after Taltz stopped working for my psoriasis. Currently, about 6 months in, I got swelling in my neck. Went to my GP and was told I now have hypothyroidism and a low blood count. Not sure if this was caused by Tremfya but am concerned because my next dose is coming up and I don't know what to do. Will be going to see my dermatologist soon to see what he says. Has anyone had anything like this while on this medication."

• Sco...
• Taken for 1 to 6 months
• November 29, 2021

Guselkumab "I feel like just so awful! Very sick with pain, and I think I have inverse psoriasis. Very painful and very itchy. I didn't have any of these issues till I started Tremfya. I have been on the medication for 7 months and went to the Dr, and they said keep taking it, and if my condition doesn't get better, go to your primary. What???? They are the specialists. Don't know what to do, please help."

• Toa...
• Taken for 1 to 2 years
• August 11, 2020

Guselkumab "I’ve been on Tremfya for about a year now. I’ve been a lifelong sufferer of psoriasis, and this was the first drug that really cleared up my skin. It’s been amazing, but my only issue is that it’s now causing me sensitivity to the sun. I break out with a horrible itchy rash on my hands and chest. I’ve tried all kinds of treatments for that and have yet to find a successful one. Is this happening to anyone else? Do you have a thought about what I can do about it? I waited so many years to have clear skin, and now this."

• LC8...
• Taken for 6 months to 1 year
• October 4, 2019

Guselkumab "Been on Tremfya for about a year now. I had some form of psoriasis on about 80% of my body before I began treatment. After the first injection, I had 70% clearer skin and 100% after the second. The needle is tiny, and it is really easy to give myself the injection with little to no discomfort. No joint pain, I have hypothyroidism, so I cannot comment on the fatigue side effects as I am always tired anyway. Did have minor headaches for a couple of days after injections. Loved the drug, but within the last month, I have started developing plaques on my scalp and elbows again. Sad doesn’t even begin to describe my emotions. I have another 4 weeks until my next injection, so we’ll see what happens. Heading back to the dermatologist if my symptoms worsen after that."

• Ter...
• Taken for 1 to 2 years
• November 1, 2023

Guselkumab "I am 62 years old. I started 100mg/mL Tremfya injections one year ago after suffering for 10 years with progressively worsening psoriasis. I had spots all over my body, including my privates. I was depressed and spent hours daily taking care of my skin (baths, exfoliating, moisturizing). I didn't want to go out or let anyone see my skin. Within a week of my starter dose, there was visible improvement. By 2 months, I was completely clear of all psoriasis spots. What a relief! I'm back to my old self! I have no difficulty administering the injection myself at home, and the pharmacy delivers it right to my door. I've had no negative side effects. Tremfya has been a lifesaver for me."

• Amb...
• Taken for 6 months to 1 year
• April 26, 2019

Guselkumab "Been on Tremfya for over 6 months. Cleared 100% almost immediately. Failed Humira and Cosentyx previously. Body aches and joint pain on the rise. Cold sores occurring. A couple of intense colds. Energy drain. So far, worth the side effects for me. For now :)"

• Bob...
• Taken for 6 months to 1 year
• June 10, 2020

Guselkumab "I have psoriasis, but I take this medicine more for psoriatic arthritis. It has not yet been approved by the FDA as of this writing for that purpose. Other medicines in the same category have been approved for this treatment. My psoriasis plaques cleared about 95% after a few months. No side effects that I've noticed. My only complaint is that you take the medicine every 8 weeks on maintenance dosage. By the 6th week, I have bad joint pain flare-ups in my knees and hand joints. So, usually by that time, I'm asking for a cortisone shot and begin taking meloxicam along with it until my next dose."

• KSl...
• Taken for 6 months to 1 year
• October 29, 2020

Guselkumab "I have been on Tremfya for about 12 months now and have really loved the results. I do have small flare-ups just before I am due to take my next injection, but overall I have remained psoriasis-free. I do have some joint pain, which I assume is from the Tremfya, but even so, it is worth it. Wes, I think you will find getting hypothyroidism could be linked to already having an autoimmune condition such as psoriasis. Often, when you have one autoimmune condition, you are at risk of ending up with two or three. I have both of these conditions. I find intermittent fasting does help a little bit with my overall health."

• Anonymous
• Taken for 6 months to 1 year
• August 5, 2019

Guselkumab "I started Tremfya in February 2019. Now my skin is clear, joint pain 90% gone, however, questionable upper respiratory infection after the 2nd shot, and bronchitis after the 3rd and now 4th shot. Side effects after the 4th shot included worsening bronchitis, fever, chills, and big-time malaise... almost flu-like symptoms. Continuing to take Tremfya until I can trend the patterns and make sure they are related under my Dr's observations."

• Wal...
• Taken for 1 to 6 months
• December 1, 2020

Guselkumab "The dermatologist recommended I switch from Enbrel to Tremfya after 7 years of my psoriasis under control. Tremfya did nothing. My scaling came back in multiple areas, and I had blotching on my face as well. Bye-bye Tremfya."

• Loc...
• Taken for 1 to 2 years
• September 8, 2019

Guselkumab "15 mo on Tremfya for psoriasis. Pros: confidence in public settings, 100% skin clearance, super easy company to work with if insurance won’t cover, once every 8 weeks after startup compared to daily. Cons: many bouts of upper respiratory illnesses, several skin infections, skin sensitivity to sun, diarrhea, extreme tiredness week before my shot, will not help joints."

• Anonymous
• Taken for 1 to 6 months
• January 6, 2024

Guselkumab "I loved Tremfya at first. I have guttate and scalp psoriasis, and it cleared my scalp so fast. The spots on my body are 99% gone, and now there’s just pigmentation. I've stopped scratching behind my ears and the parts of my body with psoriasis on them. Tremfya has helped clear my skin! However, after the second injection, I noticed I started to gain weight. Not only this, but I started experiencing constipation and harder bowel movements. After my fourth injection, I've gained 10 pounds. My periods are irregular and heavier. I've never had these issues before Tremfya. It sucks because it works so well for my psoriasis, but the side effects are not worth it. I will be getting off of Tremfya and letting my hormones and body readjust. Maybe it’s just not right for me or because I'm 22, I think my body just reacted very badly to it."

• Dav...
• Taken for 1 to 6 months
• December 13, 2021

Guselkumab "I have a severe case of psoriasis only on the bottoms of my feet. Over the past 30 years, I tried all of the standard topical and oral medications. Nothing worked. I've been doing the Tremfya injections for 20 weeks. I've seen only minimal improvement. I was hoping for better."

• DMS...
• Taken for 2 to 5 years
• October 26, 2023

Guselkumab "I've been taking Tremfya for 2.5 years. Tremfya was the only medication that worked for my psoriasis. I had bad side effects to 5+ others I tried first. Humira actually made it way worse. My doctor said I had the worst case of psoriasis he had ever seen and he has been practicing for 30+ years. After being on Tremfya for 6+ months, I noticed I began to have to urinate more frequently. After a year on Tremfya, it began to become an issue because sometimes I couldn't hold my bladder long enough to make it to the bathroom. This has gotten worse over the past year, to the point where I have pain in my urethra at times. If I take 600-800mg of ibuprofen when this pain starts, it seems to help ease the urethral pain. I talked to my case manager at Janssen and she said a side effect listed is frequent urination. I hate to switch meds because of the difficulty I've had finding something that works, but I no longer qualify for the patient assistance program."

• eil...
• Taken for 1 to 6 months
• June 6, 2024

Guselkumab "Got bad skin infections, cellulitis with it. When I had to stop the injection for a month, realized that the bad fatigue was caused by Tremfya because as the fatigue decreased, the joint and muscle pains increased, and the scalp and overall psoriasis increased and came back. Need to try another, but at least I know relief is possible. Been suffering too long...decades."

• eke...
• Taken for 6 months to 1 year
• January 12, 2023

Guselkumab "I moved from Stelara to Tremfya when the Stelara stopped working after 3 years. 100% clear within 6 weeks. I do feel a bit tired after the injection for a few days, but nothing major. My only complaint is the injection itself. I have no control over the injection, and I'm constantly scared I will lift the injection, causing the needle to retract. Bad design, much preferred the control I had with the Stelara injection."

• T F...
• Taken for 1 to 6 months
• March 8, 2022

Guselkumab "I have minor-to-mild psoriasis, about 10-12 relatively small but persistent spots for years. Ointments would work temporarily, but I had to constantly reapply, and they would stain my clothes. I tried Otezla too, and that helped a bit at first, but I stopped seeing any benefit after several months. Tremfya has been AMAZING. I finally have my skin back! I love how easy and infrequent I have to take it (and for someone who is afraid of needles, I find the approach very manageable). My skin is clear without any noticeable spots after two months."

• Ter...
• Taken for 2 to 5 years
• February 8, 2024

Guselkumab "I have been taking Tremfya for close to 3 years and am 95% cleared, since month 2. I get my dose delivered to my home and do my own injection. It's super quick and easy. No issues with it at all. Side effects are I now normally need antibiotics for Strep Throat now. However, pros outweigh the cons."

• Lec...
• Taken for 1 to 2 years
• May 23, 2020

"I have been on Tremfya for 18 months. I have been on lots of biologics including Stelara, Humira, and a few others. None helped. I have severe psoriasis head to foot and also psoriatic arthritis. I was clear after a few months and improved dramatically within 8 weeks. My arthritis is 100 times better than before too. The only side effect is itching, but it goes a few days after the injection. I don't get infections or any other problems. I am so happy with this treatment after suffering since I was 5 and trying multiple drugs throughout my life. I am now 28 and able to go swimming, etc., now with my children!"

• Kar...
• Taken for 2 to 5 years
• April 18, 2025

Guselkumab "Have had great success with this drug. Psoriasis has completely cleared. After stopping taking it for 1 year, it has returned. My concern is that I have kidney damage from UTI and not sure if I should start taking it again?"

• Eme...
• Taken for 1 to 2 years
• May 23, 2024

Guselkumab "It helped me a lot, but still I can see it coming back after the 7th dose. My doctor at the beginning told me I need 7 doses, but later on she said I need to continue for the rest of my life, and as you know, it is not cheap."

• Art...
• Taken for 2 to 5 years
• July 28, 2023

"After suffering for nearly 40+ years and trying so many creams, tablets, light treatment, you name it, I’ve tried it. I’ve now been on this injection for nearly 4 years. I was among the first people to try it, and it has been life-changing for me. I had a few problems with bloods and liver, but nothing drastic and obviously a very low immune system. I have my confidence back to wear whatever I like again and go swimming in a bikini, which I never had done before. I can wear short dresses and not worry about people staring, all because of one little injection every 8 weeks which doesn’t even hurt. I can only speak from personal view, but I would recommend anyone to try it. Best decision I ever made."

• Anonymous
• Taken for 5 to 10 years
• April 30, 2024

Guselkumab "I have pustular psoriasis and Tremfya has been life-saving. I went through light therapy from November until April every day and was on another medication prior to starting Tremfya. I have not had one flare of any kind since being on it. No side effects. I have been on Tremfya now for 6 years. The only downside is now I take it every 5 weeks and that has been a cause of trouble with the insurance."

• sal...
• Taken for less than 1 month
• February 7, 2025

Guselkumab "I've been using the injection regularly for 2 years. From the first day, I'm completely clear, I no longer have any redness or scabbing. It cleared me 100%. I only missed one dose, and afterwards, when I took it again, I started experiencing pain, but these pains are better for psoriasis."