Golimumab for Ankylosing Spondylitis User Reviews

• Mrs...
• November 1, 2018

Simponi Aria (golimumab) "A recent diagnosis of RA and AS has been debilitating. My doctor said I should have been on meds 10 years ago due to the progression of these diseases. I started methotrexate 5 months ago with zero success. My first infusion with Simponi was 3 weeks ago, and I feel so much better. I am praying that it continues to help!"

• Mr ...
• Taken for 2 to 5 years
• January 3, 2013

Simponi (golimumab) "I have been diagnosed with ankylosing spondylitis now for the last five years. I'm now 40 years old, and it started to hit me quite hard after the age of 18 and started treatment on Humira at 35 first. Slack medical advice and thinking that I was fully cured, I stopped my treatment within 3 months. My AS came back very strong as I was now working out 5 days a week in the gym. In Australia, if you don't keep blood checks and things within certain times, they strike you from the assistance, hence, my specialist has now put me on Simponi, and all I can say is WOW. This stuff works and works well. I did notice very small signs of AS in the 4 weeks, which disappeared on the next injection. I found I had been given a new chance to live a normal life."

• Not...
• Taken for less than 1 month
• February 24, 2014

Simponi (golimumab) "I have had severe and debilitating whole back/shoulder/neck pain since I was 17 - I'm now 27 and have always been very active. I was given Vimovo, which did not help all that much; and although Ibuprofen did help more (though not entirely), it was more dangerous for long-term use. I had a false positive for the TB skin test - if this happens to you, ask for the TB Quanteferon test - it was $90 out of pocket, but came back with a 100% negative test result and I was able to take my first injection within that week - it's sad because I had the false positive in Oct 2013 and had to wait until mid-Feb 2014 to start on Simponi. Simponi itself is wonderful. Within hours, I felt no pain at all and had no side effects. I can put on socks again!"

• dre...
• April 7, 2014

Simponi (golimumab) "I have been suffering from ankylosing spondylitis for quite a number of years. In the past 3 years, it has become very severe and has made me feel very ill, thus inhibiting my quality of life. I haven't been able to hold down a long-term job because of this arthritis. I took Humira initially, which didn't work at all. I then tried Simponi, with quite good results. Morning stiffness and pain throughout the day had been significantly decreased. However, it seemed to wear off after around 10 days or so. I bared the usual pain for a week or so before I injected myself again 3 weeks later, instead of four. Hopefully, my specialist will allow me to take it every 2 weeks instead of the usual 4-week injections."

• Cra...
• Taken for 6 months to 1 year
• March 25, 2014

Simponi (golimumab) "Having suffered with ankylosing spondylitis for 10 years and with vast peaks and troughs in pain and the awful methotrexate for 4 years with loads of side effects, I can honestly report Simponi has simply transformed my life. It's reduced swelling so well on my once sore toes I have excess skin, I'm running and active, I don't get any morning stiffness and no side effects thus far, it has cleared up my psoriasis as well, which sometimes returns towards the end of a month as you'd expect. The delivery method is far superior to methotrexate."

• Aus...
• Taken for 1 to 2 years
• November 3, 2020

Simponi (golimumab) "I have ankylosing spondylitis, which was diagnosed 4 years ago due to a very bad case of uveitis. I was given three TNF blockers without success. I was offered Simponi, and this one worked, the pain went away after a few days, and I was very happy about that, as AS is very painful, and it explains why I had a sore back for most of my life. I am now 58 years old. I did not get any side effects, but it did raise the blood pressure, which I already have hypertension, so it's made that worse, and I cannot get my BP under control. It did not stop the uveitis from reoccurring, but overall it has worked well."

• Pat...
• Taken for 1 to 6 months
• April 9, 2016

Simponi (golimumab) "Well, I would like to say Simponi has been very effective for me. From my first shot to the sixth, the shot I just received this month, the Simponi removed my symptoms of AS to the point where I feel normal. Before being diagnosed and receiving Simponi, I was in pain constantly and taking meds that were basically for gout, which is what I was being treated for before my diagnosis for AS. One month, the doc tried Remicade, but it was ineffective for me. The Simponi has given me back normality, at least in the sense of physical well-being. It has been wonderful for me and my family, as they don't have to worry about helping me when I have symptoms of swelling and pain. In fact, I noticed that when I get scratches, my wounds even heal faster. Thanks."

• tng...
• Taken for 1 to 2 years
• February 5, 2013

Simponi (golimumab) "I have narcolepsy and ankylosing spondylitis, I also suspect that I have psoriasis on my scalp but haven't had it diagnosed officially yet. Simponi relieves some of the pain and discomfort from the AS, and I usually have no lesions on my scalp while I am using the injection regularly. I also take 5 tabs of methotrexate weekly (along with all the side medications that go along with these). I recently came down with a bad cold and was taken off these medicines temporarily. Immediately upon missing my injection, my symptoms were back. The lesions started to appear on my scalp and are pretty bad. I would say that my quality of life has significantly improved since starting the Simponi about a year and a half ago. I take one injection per month."

• Joh...
• Taken for 2 to 5 years
• October 27, 2013

Simponi (golimumab) "Simponi helps me so much. I take 2 shots per month. I was diagnosed about 7 or 8 years after my first signs of illness. I've had it very hard. I get OxyContin when I have it too hard. But all in all, Simponi is the best. I got a new life with it. Works as a chef, and without Simponi, I would not. I live in Sweden, so I only pay about $300 a year. Or else I would have to pay a lot, like $4000 per month. The negatives with this med, you can get a lot of crap from it. But the pain I had before was crazy. Thank you, my sweet doctor."

• Nat...
• Taken for 5 to 10 years
• October 8, 2020

Simponi (golimumab) "Been on Simponi for 8 years. Has been amazing, turned my life around. It can get sore within a week of injection, but not sure if that can be helped. Tried Enbrel and Humira previously, but they only worked for 6 months for me."

• Phi...
• Taken for 1 to 6 months
• June 20, 2019

Simponi (golimumab) "Took only 2 injections! After the second, became very ill, had a 104 temp, and then ended up in the hospital with a spinal infection! I then was transported to a specialty hospital 2 hours away via ambulance due to the increasing swelling of the spinal cyst I developed, full of infection, and they feared I might need intubation, but the cervical spine is fused, so I needed to be at a different hospital! I spent a total of 14 days in the hospital, 10 of which in ICU, then 14 weeks at home with a PICC line and heavy-duty antibiotics! All due to Simponi!!!!!!! This almost bankrupt our family, I almost lost my LIFE and job!"

• Nic...
• Taken for less than 1 month
• August 30, 2019

Simponi (golimumab) "Faced severe neurological and ophthalmological side effects after the first injection of Simponi. Reduced/blurred vision, constant dizziness, unsteadiness, balance issues, cognitive problems, tremors, etc. It’s been two weeks after the injection... still facing all these side effects."

• Dav...
• Taken for less than 1 month
• November 5, 2021

Simponi Aria (golimumab) "I was on Enbrel for 14 years. I started Simponi Aria this week, and after my first infusion, I am 75% better. This medication is amazing for people who suffer from A.S., like myself. I would highly recommend it. Talk with your rheumatologist doctor to see if this will work for you too!!"

• mik...
• Taken for 1 to 6 months
• June 16, 2018

Simponi (golimumab) "I'm suffering light to moderate AS for 8 years, and pain comes with activity. I used it only once, seems like it's good for 3 months for me. I was suffering from a light cough and shortness of breath due to a cold when I did the shot. Pain was gone in a couple of days, quality of life increased noticeably, but cough and shortness of breath continued heavily for 2 months. Make sure you have no cold symptoms before you make the shot."

• Fuz...
• Taken for 6 months to 1 year
• November 12, 2019

Simponi (golimumab) "Simponi is my 4th TNF blocker that I have tried. Upside - I have no pain anymore, and I am grateful for that. I have not experienced any side effects and have been on it for 7 months now. I guess I will continue to use it until there is a reason not to. Downside - it killed my sex drive and has made my testicles shrink, and I now produce very little sperm. My stomach has bloated since starting Simponi also."

• Ras...
• Taken for 6 months to 1 year
• August 24, 2019

Simponi (golimumab) "I have had a hard time with drugs for my ankylosing spondylitis (A/S), and I thought Simponi was going to be the miracle one. The problem is that it doesn't last the full term they say it does. I have 5 weeks of feeling pretty darn good and 3 weeks of suffering. The infusion is supposed to last 8 weeks."

• Anonymous
• June 18, 2011

Simponi (golimumab) "Was diagnosed with osteoporosis in 2000 and ankylosing spondylitis in 2003. I have been put on different medications for both. I have been on Simponi for about 6 months and have not noticed any improvement. It is easy to use, but that is about all."

• Dau...
• Taken for 1 to 2 years
• June 5, 2020

Simponi Aria (golimumab) "I have been taking Simponi Aria for my ankylosing spondylitis (AS). So far, it has worked great. It’s definitely the best one I have been on. The only reactions I have had were in the beginning. I have asthma, and that was triggered the first two treatments, along with a racing heart. I do feel depressed on day 7, which is really weird, but that has been a side effect for me with all biologics."

• tc3...
• Taken for 1 to 2 years
• June 24, 2016

Simponi (golimumab) "I'm a 48-year-old female that started showing symptoms at age 17, diagnosed at 19 with the HLA-B27 marker. Total hip replacement at 29, chronic chest pain due to fusing. I have tried a butt-load of meds over the years, most oral due to lack of insurance (which thankfully, I now have), which cost me renal failure stage 2, including Methotrexate. I have a Medtronic pain pump and am on Oxycodone currently too. I have tried Enbrel, Humira, and now Simponi. Simponi works very well for me WHEN I can get the smart injections to work."

• Hii...
• December 11, 2016

Simponi (golimumab) "Had 1st shot of Simponi and didn't notice any change. I was also taking 2 pills of methotrexate. Doc upped methotrexate to 6 pills. I had been getting muscle spasms intermittently since starting Simponi. After 3rd shot, I got the muscle spasms the next day, and they lasted for a week. Doc took me off Simponi due to the muscle spasms and also because I didn't notice any change in AS."

• Man...
• Taken for 1 to 6 months
• September 30, 2019

Simponi (golimumab) "I've been diagnosed with AS since 2010, but symptoms started in 2008. Started Simponi last month and was on my second shot last week. The first shot had been great, but after the second shot, I am experiencing constant dizziness."

• Ner...
• Taken for 1 to 6 months
• November 22, 2022

Simponi (golimumab) "I only was on Simponi for 8 weeks and sadly, it helped the pain and stiffness for my AS, but it caused major GI issues. I have IBD and it is supposed to help with that, but it made mine 1000 times worse. Liquid diarrhea up to 10 times a day and abdominal pain was horrible. Once the meds wear off, the symptoms get better."

• Ani...
• Taken for 1 to 6 months
• July 1, 2022

Simponi (golimumab) "Used for psoriatic arthritis and Ankylosing spondylitis. Seriously multiplied my pain by at least 10, psoriasis was also much much worse than I’d ever had it previously. Extremely tired, asleep more than awake, terrible pressure felt on the top of my head daily, stuck with it for 5 months in the hope it would settle. No such luck in my case… could say it was worth trying however it really really wasn’t. Wish I never used it at all"

• Kel...
• Taken for 5 to 10 years
• April 12, 2023

Simponi (golimumab) "Treating ankylosing spondylitis - took a long time to diagnose but once I was it explained the pain and stiffness, lethargy I experienced. I used to rest to reduce back pain, which was obviously the wrong thing for this condition. So, along with an increase in activity, I started Simponi Golimumab after suffering for about 7 years with the disease. I have now been on it for over 6 years or so and have had very little to no noticeable issues. However, the change in my sleep, stiffness, and pain is considerable. Even joints not typically associated with AS are improved pain-wise (I have a lot of sporting injuries). I sometimes get some stiffness creeping in at about the 4-week mark as I am due for the next injection (4 weekly). I also take glucosamine supplements for my knees which also improve soreness for me, and coupled with simponi my knees have never been so good. I have often found simponi to actually improve flu/fever/covid symptoms, contrary to instructions about infections."

• Bob...
• September 29, 2022

Simponi (golimumab) "I’ve been using Simoni for almost 10 years now. Since starting my back, neck, and hip pain has gone from an 8/10 to a 2/10, and my energy almost doubled. It’s been life changing. Side effects for me included psoriasis, hair loss and weight gain. Well worth it though to not always be in constant and debilitating pain all the time. After 10 years I’d say it’s still about 90% effective."