User Reviews for Golimumab
Also known as: Simponi, Simponi Aria
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care. Learn more about Golimumab.
Reviews for Golimumab to treat Ankylosing Spondylitis
Simponi (golimumab): "Had 1st shot of Simponi and didn't notice any change. I was also taking 2 pills of methotrexate. Doc upped methotrexate to 6 pills. I had been getting muscle spasms intermittently since starting Simponi. After 3rd shot, I got the muscle spasms the next day and they lasted for a week. Doc took me off Simponi due to the muscle spasms and also because I didn't notice any change in AS. "
HiiQ December 11, 2016
3 users found this comment helpful.
"I was diagnosed three years ago with Ankylosing spondylitis, I first started with enbrel which I had some success with and the dr ordered me to stop the injectors due to a delayed skin reaction, be decided to go with the remicade infusion which ended up landing me in the hospital 24 hours after infusion due to delayed hypersensitivity reaction involving swelling of my throat, lips, eye lids and hives, after a brief hospital stay I had to take several weeks of steroids and benedryl to bypass the infusion until it was out of my system, I refused treatment for a year until last Thursday I received my first infsuion of simponi , I've had very minimal side effects nausea , dizziness, BUT I am already feeling the difference!! This drug is amazing"
Amanda gove October 7, 2016
1 users found this comment helpful.
Simponi (golimumab): "I'm a 48 year old female that started showing symptoms at age 17, diagnosed at 19 with the HLA-B27 marker. Total hip replacement at 29, chronic chest pain due to fusing. I have tried a butt load of meds over the years, most oral due to lack of insurance (Which thankfully, I now have) which cost me renal failure stage 2 including Methotrexate. I have a Medtronic pain pump and am on Oxycodone currently too. I have tried Enbrel, Humira and now Simponi. Simponi works very well for me WHEN I can get the smart injections to work. "
tc31wizard (taken for 1 to 2 years) June 24, 2016
5 users found this comment helpful.
Simponi (golimumab): "Well, I would like to say Simponi has been very effective for me. From my first shot to the sixth the shot I just received this month the Simponi removed my symptons of AS to the point where I feel normal. Before being diagnosed and receiving Simponi I was in pain constantly and taking meds that were basically for gout which what I was being treated for before my diagnosis for AS. One month the doc tried Remicade but it was ineffective for me. The Simponi has given me back normality at least in the sense of physical well-being. It has been wonderful for me and my family as they don't have to worry about helping me when I have symptoms of swelling and pain. In fact I noticed that When i get scratches my wounds even heal faster. Thanks,"
Patrick John (taken for 1 to 6 months) April 9, 2016
12 users found this comment helpful.
Simponi (golimumab): "I have been suffering from ankylosing spondylitis for quite a number of years. In the past 3 years it has become very severe, and has made me feel very ill, thus inhibiting my quality of life. I haven't been able to hold down a long term job because of this arthritis. I took Humira initially which didn't work at all. I then tried Simponi, with quite good results. Morning stiffness and pain throughout the day had been significantly decreased. However it seemed to wear off after around 10 days or so. I bared the usual pain for a week or so, before I injected myself again 3 weeks later, instead of four. Hopefully my specialist will allow me to take it every 2 weeks instead of the usual 4 week injections."
drewblue April 7, 2014
22 users found this comment helpful.
Simponi (golimumab): "Having suffered with Ankylosing Spondylitis for 10 years and with vast peaks and troughs in pain and the awful Methotrexate for 4 years with loads of side effects, I can honestly report Simponi has simply transformed my life. It's reduced swelling so well on my once sore toes I have excess skin, I'm running and active, I don't get any morning stiffness and NO SIDE EFFECTS thus far, it has cleared up my Psoriasis as well which sometimes returns towards the end of a month as you'd expect. The delivery method is far superior to methotrexate."
Craig Gunn (taken for 6 months to 1 year) March 25, 2014
19 users found this comment helpful.
Simponi (golimumab): "I have had severe and debilitating whole back/shoulder/neck pain since I was 17 - I'm now 27 and have always been very active. I was given Vimovo, which did not help all that much; and although Ibuprofen did help more (though not entirely), it was more dangerous for long-term use. I had a false positive for the TB skin test - if this happens to you, ask for the TB Quanteferon test - it was $90 out of pocket, but came back with a 100% negative test result and I was able to take my first injection within that week - it's sad because I had the false positive in Oct 2013 and had to wait until mid-Feb 2014 to start on Simponi. Simponi itself is wonderful. Within hours, I felt no pain at all and had no side-effects. I can put on socks again!"
Noto (taken for less than 1 month) February 24, 2014
19 users found this comment helpful.
Simponi (golimumab): "Simponi helps me so much. I take 2 shots per month. I Washington diagnosed about 7 or 8 years after mycket first signs of illness. Ive had it very hard. I get oxycontin when i have it too hard. But all in all, simponi is The best. I got a new life with it. Works as a chef, and without simponi i would not. I live in sweden, so i only pay about $300 a year. Or else i would have to pay ALOT. like $4000 per month. The negatives with this med, you cancer get alot of crap from it. But the pain i had before was crazy. Thank you my sweet Dr."
Johan W (taken for 2 to 5 years) October 27, 2013
12 users found this comment helpful.
Simponi (golimumab): "Simponi has helped my symptoms tremendously. I did not have to take methotrexate along with this. I am very happy to be almost pain free. But I do notice maybe psoriasis beginning on my scalp."
Thb March 21, 2013
18 users found this comment helpful.
Simponi (golimumab): "I have narcolepsy and ankylosing spondylitis, I also suspect that I have Psoriasis on my scalp, but haven't had it diagnosed officially yet. Simponi relieves some of the pain and discomfort from the AS and I usually have no lesions on my scalp while I am using the injection regularly. I also take 5 tabs of methotrexate weekly (along with all the side medication that goes along with these). I recently came down with a bad cold and was taken off these medicines temporarily. Immediately upon missing my injection my symptoms were back. The lesions started to appear on my scalp and are pretty bad. I would say that my quality of life has significantly improved since starting the Simponi about a year and a half ago. I take one injections per month."
tngstubbs (taken for 1 to 2 years) February 5, 2013
16 users found this comment helpful.
Simponi (golimumab): "I have been diagnosed with Ankylosing Spondylitis now for the last five years. I'm now 40 years old and it started to hit me quite hard after the age of 18 and started treatment on Humira at 35 first. Slack medical advice and thinking that I was fully cured, I stopped my treatment within 3 months my AS came back very strong as I was now working out 5 days a week in the gym. In Autstralia if you don't keep blood checks and things within certain times they strike you from the assistance hence my specialist has now put me on Simponi and all I can say is WOW. This stuff works and works well. I did notice very small signs of AS in the 4 weeks, which disappeared on the next injection. I found I had been given a new chance to live a normal life."
Mr Lucas (taken for 2 to 5 years) January 3, 2013
34 users found this comment helpful.
Simponi (golimumab): "Was diagnosed with osteoporosis in 2000 and ankylosing spondylitis in 2003. I have been put on different medications for both. I have been on Simponi for about 6 months and have not noticed any improvement. It is easy to use but that is about all."
Anonymous June 18, 2011
13 users found this comment helpful.
Simponi (golimumab): "Works good and helps mobility. you can feel it working in 2-3 days. Also the injection process is quick and pain free. Thanks for the second chance at a bearable life."
Changy January 16, 2010
53 users found this comment helpful.
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