Golimumab for Ankylosing Spondylitis User Reviews (Page 2)

• IanW
• Taken for 2 to 5 years
• January 16, 2023

"Golimumab works very well for me. I have both Ankylosing Spondylitis and Crohn's Disease, which are both very challenging to treat with conventional medicines. With Golimumab I don't need to take any extra medicines to manage both pain and issues such as internal bleeding and the Ankylosing Spondylitis is not causing further damage. I have been using Golimumab for some years now, with no obvious side effects or issues. I have an allergic reaction to Humira, another biologic sometimes used so, really, Golimumab is my only option. Since I am Australian, the cost is covered by Australia's very generous Medicare program. I have read that the monthly cost in the USA is around $US 6,000. I pay $AUD 6.70 a month."

• Kelvi...
• Taken for 5 to 10 years
• April 12, 2023

Simponi (golimumab) "Treating ankylosing spondylitis - took a long time to diagnose but once I was it explained the pain and stiffness, lethargy I experienced. I used to rest to reduce back pain, which was obviously the wrong thing for this condition. So, along with an increase in activity, I started Simponi Golimumab after suffering for about 7 years with the disease. I have now been on it for over 6 years or so and have had very little to no noticeable issues. However, the change in my sleep, stiffness, and pain is considerable. Even joints not typically associated with AS are improved pain-wise (I have a lot of sporting injuries). I sometimes get some stiffness creeping in at about the 4-week mark as I am due for the next injection (4 weekly). I also take glucosamine supplements for my knees which also improve soreness for me, and coupled with simponi my knees have never been so good. I have often found simponi to actually improve flu/fever/covid symptoms, contrary to instructions about infections."

• Trishy
• April 13, 2021

"I am 30, have suffered AS for 6 years, diagnosed 6 months ago. In Australia this medication under the PBS costs $41/mth. At first the meds healed Psoriasis lesions I'd had for 10 yrs but they are coming back. Started on 4 weekly, just been moved to 3 weekly injections. I was needing a top up at the beginning of week 4. My inflammation markers were up to pre Simponi levels. The meds work well to prevent pain in the nights. I am so stiff by day & have a terrible pain in my left hip. When I am on my menstrual cycle my AS comes back for the first few days which is unbearable, reliving what this medicine generally delivers me from. For the 1st 3 months the medication did give me lightheadedness, all day, & balance issues at night. However that has subsided finally. Overall this medication has given me some quality of life back, but I can definitely feel my body seizing, the only relief is at night stopping the constant waking provided it isn't 'that time of the month.'"

• Anonymous
• Taken for 1 to 6 months
• August 18, 2023

Simponi (golimumab) "Using it for 3 months due to spondylitis and I haven't been feeling this good for a long time. My range of motion is much better and my neck and back pain is a lot better. A few things that I've noticed are that I had an infection that progressed very fast, but after antibiotics, it was cured. I'm also getting a lot of small scrapes on my skin on the hands and face."

• Changy
• January 16, 2010

Simponi (golimumab) "Works good and helps mobility. you can feel it working in 2-3 days. Also the injection process is quick and pain free. Thanks for the second chance at a bearable life."

• DanS
• Taken for 2 to 5 years
• January 8, 2020

Simponi (golimumab) "I was skeptical about trying Simponi at first. But i'm glad my rheumatologist encouraged me. It works awesome! Made me realize what "normal" is again. I take 50mg every 3 weeks."

• Thb
• March 21, 2013

Simponi (golimumab) "Simponi has helped my symptoms tremendously. I did not have to take methotrexate along with this. I am very happy to be almost pain free. But I do notice maybe psoriasis beginning on my scalp."

• John
• Taken for 1 to 6 months
• December 10, 2021

Simponi (golimumab) "Got severe blurred vision and severe respiratory infections after taking Simponi."

• Nick
• Taken for less than 1 month
• August 30, 2019

Simponi (golimumab) "Got severe neurological and optho side effects after 1st injection. Blurred/reduced vision, Dizziness, Unsteadiness, Cognitive problems etc.,"

• Mahesh
• December 29, 2020

Simponi (golimumab) "I had 3 injection of Simponi but so far no sign of any improvement. I am not sure whether I will take the 4th injection. The review of Simponi is good but unfortunately, it has not worked for me."

• James
• Taken for 1 to 6 months
• August 22, 2022

Simponi (golimumab) "Severe anxiety and panic attacks after taking Simponi"

• Ado
• Taken for 10 years or more
• August 7, 2023

Simponi (golimumab) "Been on Simponi for over 10 years. It's been excellent. Had no side effects until now when I seem to have developed some eczema. It's been easy to take an injection pen once a month."