Prolia User Reviews & Ratings (Page 4)

• Cyd...
• Taken for 1 to 6 months
• January 16, 2020

For Osteoporosis "I had my first Prolia injection in October and will never have another one! I now live with constant jaw pain, joint pain, and chronic fatigue. I’ve had to cut out many activities because I feel horrible and can barely get through my exercise class... my oncologist recommended I start on a bone strengthener in case my breast cancer spread. However, I have no evidence of cancer in my breast or anywhere at this point and refuse to feel this bad from a medication. Ladies, do your research before you follow everything your health care provider suggests!"

• DeD...
• Taken for 1 to 6 months
• July 10, 2019

For Osteoporosis "After going through numerous cancer treatments, my doctor insisted that I take a Prolia shot. BIG MISTAKE. My jawbone is deteriorating. I am losing teeth and now in the process of having to get dentures. There should be a class-action lawsuit as I would be the first to sign up. PLEASE, PLEASE think twice about taking this!"

• nan...
• Taken for less than 1 month
• May 6, 2021

For Osteoporosis "I had my 1st Prolia shot 2 weeks ago. 24 hours after injection, I got a severe headache which I still have. I am having bone and joint pain to the point I have to take prescription pain meds to even function. Previously, I had taken a Reclast infusion, I almost died from side effects. So, my doctor put me on Fosamax. I had no reaction to Fosamax, but my bone scan showed only minimal improvement. That's when my doctor suggested Prolia. I should have refused and stayed on Fosamax, but unfortunately I didn't."

• MRa...
• Taken for 1 to 6 months
• February 3, 2020

For Osteoporosis "Since Prolia, I experience intense muscle and joint pain and stiffness in my hips, thighs, and down my legs after exercises such as walking, running, climbing stairs, cycling, or gardening. The pain starts during the exercise activity but grows in severity in the hours and days following, depending on how long the activity was and how demanding. I have changed from being a very active person to someone who worries about all events involving weight-bearing exercises because of the subsequent pain and discomfort, which affects my sleep and rest. I am waiting and hoping the side effects will wear off as time goes on. I have decided not to continue with the treatment unless I get reassurance from healthcare professionals that this is a temporary side effect and the benefits will be worth it, such as the deterioration in my bone density subsides. As it is, I have advanced osteoporosis."

• Sus...
• Taken for 6 months to 1 year
• January 20, 2020

For Osteoporosis "I had my second shot of Prolia in January 2017. I experienced SEVERE bone pain and many other horrible side effects. I still suffer from many of those side effects today in January 2020, and it has completely changed my life for the worst. The effects of the drug never leave your system, and I will never be the same."

• Joe...
• Taken for 2 to 5 years
• September 6, 2018

For Osteoporosis "Prolia has been an absolute nightmare for me, and from the reviews of this drug, I am not alone. I wish I had done my homework before ever taking the first injection. I trusted my doctor! I have suffered most of the horrible side effects of Prolia, real drug Denosumab, now being used for bone cancer patients!! So yes, a form of chemotherapy?? I am not sure my body will ever be rid of this poison, and my last shot was in 2015!! I have reported it a number of times to the FDA, to no avail. I warn everyone and hope to spare others from the suffering I have and am still going through, BEWARE OF PROLIA!! Hope this post helps someone."

• Kry...
• Taken for 2 to 5 years
• September 23, 2014

For Osteoporosis "I have been on Prolia for 2 years. I am so happy. Before Prolia, for a couple of years, I had been on Forteo, and I was tired to shot myself into the stomach every day. Again comparing to Forteo, I have much better results with Prolia. What is the most important for me :) Yes, I have some bone pain (legs, back) especially for the first 2 months but, when I see my last Bone Density results, I can bear the pain :)) Thanks, Prolia! God is great!!"

• Til...
• May 30, 2017

For Osteoporosis "Three days after receiving my first Prolia injection, I developed a cough which turned into bronchitis and was treated with antibiotics - bad luck, a coincidence I thought. A month later, my life changed with severe bone pain in my right jaw. I had lockjaw five times. Pain in my right shoulder, ribs, and my neck was so stiff, but worse was my lack of mobility. My morning walk to the bathroom was just like watching Frankenstein walk, I couldn't move any faster because of the pain. Getting on and off the toilet was a major event. Turning in bed was excruciating and sometimes impossible. This lasted the whole summer of 2015, which eventually tapered off to where I am today. Worst experience of my life. No more Prolia for me."

• Maz...
• October 16, 2018

For Osteoporosis "My doctor gave me the prescription for Prolia yesterday. I explained to her I would research the drug before making a decision. I was horrified after reading ALL the possible side effects. However, after reading the above reviews, I will never take this drug. Thank you to all the people who wrote reviews. I am shocked that this drug could ever be approved by the FDA."

• G10...
• July 20, 2016

For Osteoporosis "1 shot, due another in August and wondering. Constipation very severe, fatigue, hip pain, upper arm pain and shooting pains in head. I do not know if there are other options available and scared to take second shot in case things get worse."

• LSt...
• Taken for 2 to 5 years
• April 4, 2017

For Osteoporosis "I was diagnosed with osteo in 2010 and was put on Fosamax, along with a daily dose of calcium-VitD tablet. In 2014, the doctor changed my prescription to Prolia due to its stronger potency, along with the continued Cal-VitD tablet. Though my bone density increased 10% since taking Prolia, I feel the side effects may outweigh any positive bone density increases. With constant jaw pain, I also have unusual problems with my teeth: constant infections, pain in one tooth or another, and root canal treatments needed. I suffer from insomnia, something I never had pre-Prolia. With no warning or trigger, I have constant blood blisters in my mouth, some as big as 5 cent pieces. My cholesterol has increased. I feel unusually tired and have regular leg cramps."

• Nic...
• March 8, 2016

For Osteoporosis "Headaches, lower back pain, visual problems, increased reflux, foot swelling, fatigue"

• Ver...
• Taken for 1 to 6 months
• January 20, 2020

For Osteoporosis "My GP recommended I have the Prolia injection for my bone density. I read about the side effects but hadn’t seen this website, so went ahead on 5 Nov 2019. Within 24 hours, I experienced terrible pain in my left arm. The pain was in the bone. This occurred two days running before it subsided. I saw my GP two days later and told her of the pain and I said never again will I have this injection. She agreed. The pain went away but other symptoms attacked me. Extreme irritability, lethargy, bloating, loss of appetite. I visited my GP twice about the side effects. The second time (10 days ago), she recommended a strong probiotic. I took it and in two days the bloating had gone and my appetite began to return. The Prolia drug had attacked the good bacteria in my gut. After 10 days on the probiotic, I feel normal again. Three months and two weeks later, and it is out of my system."

• Cin...
• November 4, 2019

For Osteoporosis "I am stuck on this drug Prolia after 8 years on one injection to the stomach twice a year. I am too scared to continue and too scared to stop. My specialist has said we will review it at the 10 year mark. I worry about how my bones will be at the 10 year mark. I am 71 years old and was healthy except for two fractures in 2 years. I wish I had not started the drug in the first place. I wake up with pain during the night. I seem to need to sit down after walking in the shopping centre for 15 minutes. My thick hair has been falling out for the last 3 years. My skin and eyes are very dry. I have a wrinkled face of someone 15 years older. I am concerned that I will be in a wheelchair at some stage. I go to an exercise physiologist for strength and resistance training it has helped a lot. However over 1 year my abilities have reduced due to severe attacks of vertigo. I have also evidence (through MRI) of a few small strokes which I was not aware of. I only add this in case useful for others."

• No ...
• January 22, 2020

For Osteoporosis "After a diagnosis of osteoporosis and researching this medication, I have declined my doctor's advice and will NOT be injected with this poison. I will increase my calcium and vitamin D."

• Jja...
• Taken for less than 1 month
• September 12, 2018

For Osteoporosis "DO NOT TAKE THIS! My grandmother took this needle on a Tuesday, her behavior changed almost immediately. She became very weak, could not stay awake, her breathing changed and as the week progressed, she got worse. Sunday of the same week, her heart rate was jumping between 70 and 120 bpm, and her oxygen went down to 90. She was rushed to the hospital and has rashes, water in the lungs, she can't talk because she is so congested, and has to be on a special mask for oxygen. She is definitely not the same in a matter of 5 days. I've also noticed she has developed a lot of involuntary movements all over her body - arms, legs, hands, and even eyes. We actually thought she was going to pass away on the Monday after being admitted to the hospital. We were called to have an emergency meeting with the doctor. She only has had one shot and WILL NOT have any more. Please do your research before taking this needle. Biggest mistake."

• Sus...
• Taken for 6 months to 1 year
• June 4, 2017

For Osteoporosis "I submitted my first review on April 13. Today it's June 4th and still SUFFERING with daily pain from the drug."

• Ann...
• Taken for 1 to 2 years
• October 1, 2016

For Osteoporosis "This drug is a life saver. I tried Actonel and Fosamax with poor results. I experienced bone pain and flu-like symptoms for weeks on end. After seeing an endocrinologist, it was decided I try Prolia. NO side effects at all. Not even soreness at the injection site. I just received my 3rd injection and 2nd bone density test. Density is up 7-8% in spine and hip. I am thrilled."

• Ann...
• May 30, 2020

For Osteoporosis "Agonizing severe pain in thigh muscle. Unable to walk after subcutaneous injection. No analgesics reduce pain. How long will this go on for?"

• BJa...
• Taken for 1 to 6 months
• December 26, 2019

For Osteoporosis "I am a 76-year-old female. First shot of Prolia on Nov 1, 2019. Side effects started after 3 days. I have always had very low BP. I felt so bad for 2 weeks, someone took my BP and it was very high. Other side effects include joint, shoulder, neck, and knee pain. Day and night sweats are very severe. My side effects aren't nearly as bad as some, so I shouldn't complain. Will not get a second shot."

• jdl...
• Taken for 5 to 10 years
• October 13, 2018

For Osteoporosis "I had been fighting osteoporosis for years when Prolia was suggested. I was on it for about six years. Then a change in doctors at the medical center caused a short delay. In a few weeks after that shot was due, I had three terrifically painful vertebral compression fractures. Now, eight months later, I'm a semi-invalid in the sense that I cannot be upright (sitting or standing) for more than an hour or two before the pain becomes more than I can bear. I was formerly very active; now my life is extremely confined. The more I learn about this drug, the worse I see that it is. My doctor and I have reported this to the FDA. Amgen has no advice as to how to get off safely. 'Ask your doctor,' they tell me. So far, the docs have been unable to show me a safe way to get off this horrible drug."

• Sue...
• November 4, 2014

For Osteoporosis "Just had my second shot last month. No side effects at all."

• Rob...
• Taken for 1 to 2 years
• June 12, 2015

For Osteoporosis "So far I have had two shots and am due for my third one next week. I have not had any side effects at all. In fact, strangely, before my first shot, I would have constant dull aching and soreness/pain in my hips and pelvic area. Within a month of my first shot, that was gone. It returned a month before my second shot and again left once that shot got into my system. Again, this last month the pain has returned and I am due for the shot next week, so I hope the pain goes away again. I know that Prolia isn't meant to help with pain, but it seems to be doing something there for me. I am not due for a DEXA until 2016, so I don't yet know how effective it is for my bones yet."

• Suz...
• Taken for 1 to 2 years
• April 7, 2019

For Osteoporosis "I’ve decided to come back to this site to leave an update on my last review. I received my 2nd shot of Prolia in January 2017. The side effects were very severe for 9 months. They are tolerable now, but I realize I will never be the same and will always suffer pain from this medicine. The damage is done and just has to be dealt with. I do not recommend this drug. I believe my doctor took the word of the drug rep instead of doing her own research about this drug as she had never heard of any bad side effects. Please do your research before starting this drug. The damage is permanent."

• Puf...
• February 3, 2016

For Osteoporosis "Severe leg pain, cramping in legs and feet, bruising. Not a good med for me."