Prolia and Pain: What Users Say (Page 5)

• sea...
• Taken for 6 months to 1 year
• January 15, 2019

For Osteoporosis "After one injection, if there was pain, I did not feel it. I already had chronic pain and was taking meds. Right after the second one, I had a bad skin outbreak, and my doctor could not explain why, along with terrible itching. The last injection was six months ago, and I noticed bone growth in my upper palate. My doctor stopped Prolia because of more side effects. I have seen my dentist and doctor. I would never recommend this drug for anyone."

• Maj...
• August 29, 2019

For Osteoporosis "Pain, tooth problems, jaw pain, headaches after just one shot. I refuse another."

• Nan...
• Taken for 1 to 6 months
• November 9, 2017

For Osteoporosis "I wish that I had never heard of this medication. I have been on it for about 6 months now, and it has destroyed me and my family's life. I can't do anything that I was doing before I started this. I was very happy, active, loved to work, and really enjoyed playing with my grandchildren and taking vacations with all of my family. I don't know what I would have done if it had not been for my wonderful husband of 52 years. I have so much pain all over my entire body, and I feel so miserable all the time. My husband has had to take over the house cleaning, cooking, and shopping. It is also impossible to sleep because of pain in both hips and back. I am also losing a lot of my hair now. Prolia has taken the prize for being the worst medication ever."

• SDa...
• March 2, 2019

For Osteoporosis "Just read a recent comment listing weight loss and stomach pain as Prolia side effects. I have received two Prolia injections and the third one will be in May. For the last four weeks, my constipation problem has gone from bothersome to severe, and I have chronic lower abdominal and pelvic pain. In addition to the Prolia, I also began taking Repatha for my high LDL cholesterol. It had been high for many years, and interestingly after starting Prolia, it went higher, and the ratio of HDL:LDL altered negatively. In addition, I have a loss of appetite and weight loss. My family physician chalks all of this up to my irritable bowel, but I know my body and something else is going on. I have read that these rank ligand receptors that Prolia targets exist not just on bone but in other areas like the small and large bowel. Will call the endocrinologist on Monday. Would be very interested to hear from others who have experienced debilitating GI issues, specifically worsening constipation."

• You...
• Taken for 1 to 2 years
• February 1, 2019

For Osteoporosis "I'm a 44-year-old male with osteoporosis and now due for my fourth injection next month. I seriously don't want this garbage anymore. I'm sick and tired of aches and pains. I've been taking tramadol for pain relief that helped for a while, but now it's not working anymore. I'm not sure what to do anymore."

• Ms ...
• Taken for 1 to 6 months
• April 17, 2018

For Osteoporosis "I am 58 years old, an avid exerciser, walker, and healthy eater. I have solid hips, arms, and legs, but due to Hashimoto's disease, came down with osteo in my spine. My doctors recommended Prolia. Amgen does provide a $1,500 credit to persons who have insurance, so this helped with the cost as my insurance only covered $400. HOWEVER, I know these drugs will not be effective after 5 years and carry many health risks. For myself, within 2 months after my first injection, I gained 20 pounds, my skin is dry, back pain, arm and upper leg pain, not one solid stool, UTIs, cough, and who knows what else. I have decided not to continue with this or any other of its kind. I'll stick with regular exercise, vitamin D and calcium supplements, and a healthy dietary intake. I think the risks of these drugs outweigh the benefits."

• Kiy...
• Taken for less than 1 month
• June 6, 2018

For Osteoporosis "I had Prolia injection two weeks ago for the first time and developed bad gum pain and body ache. I want to stop taking it, however, if I do stop, I will have a side effect as well. They trap us both ways. Why do doctors recommend this horrible medication? I feel I am a victim of medical professionals and the pharmaceutical company that produces this medication."

• Hol...
• December 30, 2016

For Osteoporosis "I have been on Prolia for 2.5 years. Just this last one, I have noticed more pain in my arm. Going on 2 weeks. Other than that, I have had no problem prior. I will continue taking it as long as I can afford it."

• gui...
• Taken for 6 months to 1 year
• January 11, 2019

For Osteoporosis "Since I cannot take Fosamax and was so severe even after Forteo. I was told Prolia was the answer. I already suffer from autoimmune issues, which I was given shots to reduce pain in my back, only to find my lower discs are osteoporotic, and my knees and hips have lost bone density. I opted for Prolia. The first shot seemed to have no pain, after the second shot, loss of hair, pains throughout my body. Muscles knot up in shoulder and neck pain, toes hurt, legs and ankles swell. A rash lasted two months. I don't know how much longer I can go on without a bone-building medication. I was turned down for Tlymos because I took Forteo. My insurance company isn't worried about me being sick, or they would have approved Tlymos, a bone-building substance, and forgotten about the fact I took a bone builder. So far, that is what I have left to take, but even the insurance turned me away."

• gui...
• Taken for 6 months to 1 year
• January 11, 2019

For Osteoporosis "Since I cannot take Fosamax and was so severe even after Forteo. I was told Prolia was the answer. I already suffer from autoimmune issues, which I was given shots to reduce pain in my back, only to find my lower discs are osteoporotic, and my knees and hips have lost bone density. I opted for Prolia. The first shot seemed to have no pain, after the second shot, loss of hair, pains throughout my body. Muscles knot up in shoulder and neck pain, toes hurt, legs and ankles swell. A rash lasted two months. I don't know how much longer I can go on without a bone-building medication. I was turned down for Tlymos because I took Forteo. My insurance company isn't worried about me being sick, or they would have approved Tlymos, a bone-building substance, and forgotten about the fact I took a bone builder. So far, that is what I have left to take, but even the insurance turned me away."

• Not...
• Taken for 1 to 6 months
• February 8, 2018

For Osteoporosis "Whew! Had the injection 3 months ago and haven’t been the same since! Excruciating pain in both knees and one shoulder! My knees hurt all night long. In the morning, my knee joints are so stiff I can hardly walk. I cannot get up or down off the floor, can no longer kneel without pain! I was healthy and would walk several miles a day! Now it hurts to walk to the car! I too wish I had done more reading about this drug before taking it! Nervous to stop it, but more nervous to ever feel like this again! Anyone hear anything about a class action suit?"

• gra...
• Taken for 6 months to 1 year
• October 3, 2017

For Osteoporosis "Prolia is killing me, too. My leg and buttocks are in constant pain that just doesn't stop. It's hard to lay down, it's hard to stand up, it's hard to just sit here without shifting position every three seconds. Here's the thing with stopping Prolia before finishing the drug. You are apt to have vertebrae break spontaneously. Which is worse? A broken back or pain that is almost unbearable? We should have been informed about these side effects. I bet Blythe Danner never even really took the shot or she wouldn't be happy up there on stage. Point is, don't stop till it's done. You could be sorry."

• Gem...
• Taken for 5 to 10 years
• May 28, 2018

For Osteoporosis "My mom was given Prolia in injection form approximately six years ago, and overall her bone density improved. Over these years, she has had extreme insomnia and pain in her back, neck, wrists, fingers, legs, toes, and now recently her hip. She had an X-ray, and they found that her upper femur had a partial break. It just broke, no fall, and the area it broke was weak, but the rest of her femur was strong. She immediately had surgery, and they put a metal nail in to stabilize. Doctors are convinced that it was the extended use of Prolia. Now they want her on Forteo. Reading the side effects from that is horrifying, and it is a 2-year medicine, after that, they say Prolia again... Which is NOT going to happen. My advice, try diet and exercise first, and if on Prolia, only use it for a limited time."

• Rob...
• Taken for 1 to 6 months
• May 15, 2023

For Osteoporosis "My first injection of Prolia was on January 26, 2023, and it will be my last! Within 1 day of the injection until now (May 14, 2023), I experienced severe body pain, including hip, thigh, groin, swollen knees, severe muscle twitching, blurred vision, hair loss, and the list goes on. So far, I have not experienced ONJ (jaw bone disease). DO NOT USE! I did not research this drug, nor was I informed of the side effects by my doctor. Also, you can't just quit Prolia! You have to relay off with another bisphosphonate in order to not have PROBABLE, not possible, spinal compression fractures!! I will be using IV Reclast as my relay drug."

• Rob...
• Taken for 1 to 6 months
• May 15, 2023

For Osteoporosis "My first injection of Prolia was on January 26, 2023, and it will be my last! Within 1 day of the injection until now (May 14, 2023), I experienced severe body pain, including hip, thigh, groin, swollen knees, severe muscle twitching, blurred vision, hair loss, and the list goes on. So far, I have not experienced ONJ (jaw bone disease). DO NOT USE! I did not research this drug, nor was I informed of the side effects by my doctor. Also, you can't just quit Prolia! You have to relay off with another bisphosphonate in order to not have PROBABLE, not possible, spinal compression fractures!! I will be using IV Reclast as my relay drug."

• Rob...
• Taken for 1 to 6 months
• May 15, 2023

For Osteoporosis "My first injection of Prolia was on January 26, 2023, and it will be my last! Within 1 day of the injection until now (May 14, 2023), I experienced severe body pain, including hip, thigh, groin, swollen knees, severe muscle twitching, blurred vision, hair loss, and the list goes on. So far, I have not experienced ONJ (jaw bone disease). DO NOT USE! I did not research this drug, nor was I informed of the side effects by my doctor. Also, you can't just quit Prolia! You have to relay off with another bisphosphonate in order to not have PROBABLE, not possible, spinal compression fractures!! I will be using IV Reclast as my relay drug."

• PAM...
• Taken for 1 to 2 years
• May 29, 2018

For Osteoporosis "After the 2nd and 3rd (the 3rd being my last), my life is a living hell. I have digestive issues, tons of mucus in stools, lots of severe pain in abdomen, both hips, both thighs, arms, cold sweats, jaw bone pain, and I feel weak, dizzy, and no appetite. It feels like I am dying. Don't take this prescription, it is very, very dangerous!!"

• PAM...
• Taken for 1 to 2 years
• May 29, 2018

For Osteoporosis "After the 2nd and 3rd (the 3rd being my last), my life is a living hell. I have digestive issues, tons of mucus in stools, lots of severe pain in abdomen, both hips, both thighs, arms, cold sweats, jaw bone pain, and I feel weak, dizzy, and no appetite. It feels like I am dying. Don't take this prescription, it is very, very dangerous!!"

• PAM...
• Taken for 1 to 2 years
• May 29, 2018

For Osteoporosis "After the 2nd and 3rd (the 3rd being my last), my life is a living hell. I have digestive issues, tons of mucus in stools, lots of severe pain in abdomen, both hips, both thighs, arms, cold sweats, jaw bone pain, and I feel weak, dizzy, and no appetite. It feels like I am dying. Don't take this prescription, it is very, very dangerous!!"

• Lor...
• April 4, 2019

For Osteoporosis "Pain in legs, particularly in thighs and knees."

• Lor...
• April 4, 2019

For Osteoporosis "Pain in legs, particularly in thighs and knees."

• mar...
• Taken for 6 months to 1 year
• April 4, 2018

For Osteoporosis "I received my first Prolia injection in June 2017 and the second injection on December 19, 2017. I did experience back, hip, and jaw pain with the first; however, it has been much worse after the second. I’m taking six Advil per day with little relief. The pain is interfering with activity at work, home, etc. I will have to talk to my nurse practitioner. My bone density has improved; however, due to the pain, I wish I had not taken the medication."

• mar...
• Taken for 6 months to 1 year
• April 4, 2018

For Osteoporosis "I received my first Prolia injection in June 2017 and the second injection on December 19, 2017. I did experience back, hip, and jaw pain with the first; however, it has been much worse after the second. I’m taking six Advil per day with little relief. The pain is interfering with activity at work, home, etc. I will have to talk to my nurse practitioner. My bone density has improved; however, due to the pain, I wish I had not taken the medication."

• Can...
• Taken for less than 1 month
• June 28, 2018

For Osteoporosis "The first shot of Prolia I had, I asked the doctor to break it up into 2 sessions a month apart from each other. Then I had no side effects. The second shot I thought would be fine full force, but BIG mistake! Now I have a terrible sinus infection (apparently a common side effect for women 60+) and gum pain. This all happened within a few days of the injection. Hoping things improve this second week. I'm not going to take Prolia again."

• gcr...
• Taken for 5 to 10 years
• March 5, 2018

For Osteoporosis "I have taken Prolia for six years. Last summer, my muscles in my knee, that I had a replacement, would tighten up so I couldn't walk. I had another shot in November 2017, not knowing that the Prolia shot could be causing my pain. My endocrinologist told me in December that it was the shot causing my problem. The muscle spasms have been severe this last month. I am afraid to go anywhere by myself. The pain will come on in a matter of seconds. Other pain in hands, feet, and arms. Can anyone tell me how long it will take to get this out of my system? No more Prolia!!!!"