Prolia and Pain: What Users Say (Page 4)

• Ste...
• Taken for 1 to 2 years
• June 15, 2019

For Osteoporosis "I’m on my third round of Prolia. First round, I had no side effects. Second round, pain in hips and jaw on both sides of hip and jaw. Spoke to a nurse and was told they did not have any negative feedback to date. Third round, hip pain is present and now bone pain in left arm. The bone pain in all three locations is aching bone pain. It gets your attention. I’m just turning 50, not overweight, have osteoporosis on a low level. I’m now deciding I need to find an alternative. It is difficult to determine what is the Prolia side effects and other aspects of aging and some fibromyalgia that I have but I do feel, after reading other's experience, Prolia is causing further pain that was nonexistent prior to the shots."

• Ach...
• December 9, 2019

For Osteoporosis "I have all the side effect symptoms of what Prolia can cause as written in Amgen's literature. I have had tests to check if there are any other health problems, and have discussed at length with my GP. I did contact Amgen to ask if I stop the Prolia injections, will the aches and pains cease, and how long will it take. The person I spoke to said he would pass on my questions, and they would contact me. BUT alas, NO REPLY (the contact I made was six weeks ago), and you guessed, I am NOT impressed."

• Suz...
• Taken for 6 months to 1 year
• September 7, 2018

For Osteoporosis "It’s been 18 months since my 2nd shot of Prolia and I’m still suffering side effects. Feels like I’ll never be the same again. I do not recommend."

• Jus...
• Taken for 1 to 6 months
• October 24, 2019

For Osteoporosis "I took my first shot of Prolia in July 2019. I sure wished that I had seen this site prior to taking the shot. I had just trusted my GP and did not do any research. My legs are so weak and I have so much pain in my legs that I am finding it difficult to do anything. I work for 5 minutes and then rest for 5 minutes. I have already told my GP that I will not take any more shots. I am praying that my legs will eventually heal as I have always been active, and now I hurt so much that I just can't do what I normally do."

• Can...
• Taken for 6 months to 1 year
• August 30, 2018

For Osteoporosis "This is a terrible drug! Two days after my last injection, I developed a horrendous sinus infection that took ten days to clear up with an antibiotic. That was just the beginning of the nightmare though. Three months later, I still have unbelievable jaw pain that is unrelenting. The pain doesn't respond to anything, I have tried Advil, etc., but nothing works. Doctors are prescribing this because of the very aggressive pharmaceutical reps they hired specifically to sell this drug. Pharma is making a fortune from this medication. Horrible side effects, not worth it! Please do not agree to take this drug."

• CFa...
• Taken for 1 to 6 months
• November 30, 2019

For Osteoporosis "I started to have muscular pain within a week, which increased to the point of pain at rest enough to disturb my sleep. It is now six months since I had the injection, and the pain has decreased over the past month. I won’t have it again as it doesn’t agree with my body for some reason. However, my friend has been having it for some time with no ill effect and an actual increase in bone density. We are both in our mid-sixties."

• ska...
• Taken for 1 to 6 months
• August 2, 2017

For Osteoporosis "My GP recommended I have this injection, replacing Evista. I've had only one injection in February 2017. About three weeks later, I had terrible ear/jaw pain and went to the doctor. She diagnosed a sinus/allergy infection and gave me meds for that. It did clear up. However, after reading more about Prolia later, I found out that one of the side effects is jaw pain. Also, since I had the injection, I have had continuous itching of the face and excessive hair loss, which I also read are side effects. I am scheduled for another injection at the end of August, but I am going to cancel and will not have another injection. I don't know what the benefits would be but don't think they are worth the irritation. Will consult again with my GP."

• Anonymous
• November 27, 2019

For Osteoporosis "I had a Prolia injection six weeks ago. Everything seemed fine for the first week, then the side effects began. I had severe jaw and ear pain, and new back pain as well. I have also been severely fatigued. My life has been slowed down considerably, and I deal with regular bouts of nausea. At first, I thought I was coming down with a bug, but that was not the case. I will not entertain a second injection as an option. I will be speaking with my oncologist, who insists that I take this in case my breast cancer returns and metastasizes to the bones. At this point, I am cancer-free and can’t imagine feeling this bad to be “healthy”! I am stuck with this in my body until April and can only hope that the side effects lessen."

• mon...
• Taken for 1 to 6 months
• January 9, 2019

For Osteoporosis "I had 1 shot of Prolia Dec. 2017. I have not taken any more. My physical life has changed. Very bad pain in my back and legs. My skin dried out terribly, and I aged 5 years or more in looks. I was super active before this. Anyone reading this, do not take Prolia. It should be removed from the market. It is a wonder there are not several lawsuits to this provider drug company. They should be put out of business."

• Ann...
• Taken for 1 to 2 years
• August 23, 2018

For Osteoporosis "Where do I start, rash on face, loss of hair at one stage, fatigue, jumping out of bed at night with severe cramps in the legs, itchiness all over, pain in the knee, pain in the joints, pain in the side of the head, pain in the feet and big toes, sick in stomach, hearing loss, general weakness, mood change very angry, frequent urinating, weight gain, breathing difficulty, aware of heart rate changing, slight soreness in the mouth nose run-off and on like sinus problem, numbness in hands and arms, I have just had my third shot wish I never did"

• Maj...
• September 5, 2019

For Osteoporosis "3 months now after first shot, and my teeth ache and are very, very sensitive. All my labs are off the chart bad. Liver up for sure. I ache constantly now. I have had a constant sinus problem, jaw pain, teeth pain. I can’t wait until I hope this Prolia gets out of me in 3 months."

• Can...
• Taken for 1 to 6 months
• March 13, 2019

For Osteoporosis "Please do not try Prolia. I had excruciating jaw pain for 3 months after taking this drug. It was relentless pain and difficult to even go to work. I had to hold ice packs on my jaw while at the office! My doctor did not research what side effects Prolia can have and therefore didn't warn me about anything. I later read that this drug company trained and dispatched drug reps just to push this one drug alone (because they're making a fortune from it). Trust me, they don't care. My doctor told me afterwards that the drug rep laughed at him."

• Cha...
• April 26, 2019

For Osteoporosis "I do not recommend this drug. 10 days after receiving Prolia injection, I developed severe hip pain (both hips), excruciating lower back and pelvic pain, and extreme pain into the left groin and down the left leg. I could not weight bear. Several trips to doctors and hospital - X-rays, CT scan, ultrasound - nothing showed. Physiotherapy at the hospital said it was muscular ligaments, etc., and gave me exercises. Walking on crutches by then. After several weeks, I had an MRI revealing atypical, unexplained, spontaneous multiple pelvic fractures. Doctors and professors say it could not be the Prolia. What else caused this? Needless to say, it took months to heal, extreme pain, and loss of quality of life. The rheumatologist professor wants me to continue with Prolia. I asked him, 'What happens if this happens again?' He said to take Panadol. What hope do we have? There are new drugs on the market that work differently - Australia is way behind in treatments for osteoporosis. I will never take Prolia again!"

• Cha...
• April 26, 2019

For Osteoporosis "I do not recommend this drug. 10 days after receiving Prolia injection, I developed severe hip pain (both hips), excruciating lower back and pelvic pain, and extreme pain into the left groin and down the left leg. I could not weight bear. Several trips to doctors and hospital - X-rays, CT scan, ultrasound - nothing showed. Physiotherapy at the hospital said it was muscular ligaments, etc., and gave me exercises. Walking on crutches by then. After several weeks, I had an MRI revealing atypical, unexplained, spontaneous multiple pelvic fractures. Doctors and professors say it could not be the Prolia. What else caused this? Needless to say, it took months to heal, extreme pain, and loss of quality of life. The rheumatologist professor wants me to continue with Prolia. I asked him, 'What happens if this happens again?' He said to take Panadol. What hope do we have? There are new drugs on the market that work differently - Australia is way behind in treatments for osteoporosis. I will never take Prolia again!"

• Jan...
• Taken for 1 to 6 months
• May 20, 2023

For Osteoporosis "I have found my back pain is worse than ever, my immune system has declined, my cholesterol went way up, I developed a skin rash, and I still have a lack of appetite, muscle pain, headaches, nausea, swelling, jaw pain, chills, mouth and legs tingling, pain in my arms, sore throat, trouble sleeping, and more pain. I do not recommend the Prolia injection. It is bad, bad, bad, you start feeling miserable because the pain is unbearable."

• Jan...
• Taken for 1 to 6 months
• May 20, 2023

For Osteoporosis "I have found my back pain is worse than ever, my immune system has declined, my cholesterol went way up, I developed a skin rash, and I still have a lack of appetite, muscle pain, headaches, nausea, swelling, jaw pain, chills, mouth and legs tingling, pain in my arms, sore throat, trouble sleeping, and more pain. I do not recommend the Prolia injection. It is bad, bad, bad, you start feeling miserable because the pain is unbearable."

• Jan...
• Taken for 1 to 6 months
• May 20, 2023

For Osteoporosis "I have found my back pain is worse than ever, my immune system has declined, my cholesterol went way up, I developed a skin rash, and I still have a lack of appetite, muscle pain, headaches, nausea, swelling, jaw pain, chills, mouth and legs tingling, pain in my arms, sore throat, trouble sleeping, and more pain. I do not recommend the Prolia injection. It is bad, bad, bad, you start feeling miserable because the pain is unbearable."

• bon...
• Taken for 1 to 6 months
• July 16, 2017

For Osteoporosis "Received 1st Prolia shot on May 15th. Went to the doctor on July 14th to find out why my upper legs hurt so bad. X-rays didn't show anything, so I was being referred to physical therapy to see if that would help. And then I saw a commercial about Prolia with one of the side effects being leg pain! Unbelievable, I thought. Have some of the other side effects too. Urgent urination and rapid weight gain. I should have googled side effects before having the shot. No more shots for me."

• Mel...
• Taken for 1 to 6 months
• December 6, 2018

For Osteoporosis "After one shot of Prolia, I started to have pain in my left foot and right hand. I felt like I had arthritis all over my fingers and toes. I had some dizziness. The middle of my body at my waist felt paralyzed for minutes at a time, then after a while, I could begin to move again and start to walk. Tenderness on the soles of my feet. I know that I’m not the same active person as I was before I had Prolia. I have gained over 4 lbs just in three months since I had the injection. I spend most of the day on the sofa. I continue eating very healthy, but do not move a lot so my weight continues going up. No more Prolia for me. I do not take any other medication, so it's most probably the Prolia. Well, I take vitamins and magnesium as supplements."

• sde...
• Taken for 1 to 6 months
• June 18, 2021

For Osteoporosis "After one injection in April 2021, I have been miserable! My hair is coming out in clumps (I am so depressed), I have muscle aches, night sweats, jaw pain, and headaches. I feel like a bone on the outside of my foot broke just from walking. I will never take another Prolia injection! I feel like I’m on my own with medical care, as I have lost confidence in my doctor after this horrible experience!"

• cbe...
• Taken for 6 months to 1 year
• August 27, 2018

For Osteoporosis "Second shot in June 2018 - terrible ringing in ears now, jaw pain, sinus pain, night leg cramps, insomnia, bleeding in eyes. Not going to have any more shots! Regret like mad that I ever agreed to this."

• sam...
• Taken for 1 to 6 months
• August 5, 2018

For Osteoporosis "My doctor recommended Prolia, noting that it is a drug that can actually reverse osteoporosis. Unfortunately, I did not carefully review all the literature concerning Prolia before the first injection. Prior to injection, I had a lot of arm muscle and joint pain due to lupus. I also had leg pain. Within 2-3 weeks following the injection, I started having severe arm muscle pain and also leg pain. My knees started to bother me, and one knee got really swollen. It is very hard in the mornings-painful to move my arms and painful to walk. I have also had increased pain in my hands/feet and some neck/jaw pain. In general, this has been horrible. I will not take this drug again."

• sam...
• Taken for 1 to 6 months
• August 5, 2018

For Osteoporosis "My doctor recommended Prolia, noting that it is a drug that can actually reverse osteoporosis. Unfortunately, I did not carefully review all the literature concerning Prolia before the first injection. Prior to injection, I had a lot of arm muscle and joint pain due to lupus. I also had leg pain. Within 2-3 weeks following the injection, I started having severe arm muscle pain and also leg pain. My knees started to bother me, and one knee got really swollen. It is very hard in the mornings-painful to move my arms and painful to walk. I have also had increased pain in my hands/feet and some neck/jaw pain. In general, this has been horrible. I will not take this drug again."

• Kat...
• Taken for 1 to 2 years
• October 22, 2019

For Osteoporosis "The worst thing I ever did was take this Prolia injection. I had three lots of it and will not be doing a fourth. I have the worst dental and jaw pain, resulting in many dentist trips and money spent on infection in my gums, and I'm waiting to be able to have a tooth extracted. I had the worst tooth pain, even after a root canal, the pain came back. I was never warned about these side effects of this injection by my doctor."

• PAM...
• Taken for 1 to 2 years
• August 3, 2018

For Osteoporosis "Shot number 2 gave me severe abdominal pain, bloating, IBS, and pain in my jaw, arms, and legs. I also had dizziness. Then shot number 3 - my last shot - put me in the hospital with colitis, jaw pain, dizziness, and mucus and blood flowing from my butt. The list of horrors goes on! Prolia is dangerous!"