Skip to Content

User Reviews for Colesevelam

Also known as: Welchol

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care. Learn more about Colesevelam.

Filter by:
Condition Avg. Ratings Reviews Compare
Diarrhea, Chronic
9.6
   
36 reviews 32 medications
Hyperlipoproteinemia...Ia, Elevated LDL
8.0
   
5 reviews 30 medications
High Cholesterol
7.2
   
9 reviews 51 medications
Diabetes, Type 2
5.8
   
6 reviews 143 medications
Summary of Colesevelam reviews 7.7 56 reviews

Reviews for Colesevelam

Sort by:

Welchol (colesevelam) for High Cholesterol: "Started taking Welchol in 2012. To date my LDL has dropped 30%. I recently took the time to read the insert with the medication and was appalled to see that this medication contains aspartame. This is the sugar substitute that I stopped using several years ago because of the muscle pain I was experiencing. Two weeks later the muscle pain was gone. I was also diagnosed with Stage IV Breast Cancer in April, 2015. Aspartame is suspected to be a cancer causing agent. What is this drug company thinking? Stevia is a sugar substitute that is safe and it's a natural sweetener. If a sweetener is necessary, why not use Stevia. I am weaning myself off of Welchol, and will consult with my cardiologist at my next visit."

   
5.0

Jan 2 (taken for 5 to 10 years) October 1, 2017

3 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

For Diabetes, Type 2: "I have been taking Welchol for a month. Out of the 3 years I have been testing my blood sugar, my fasting blood sugar has been the highest in the morning (I follow a strict low carb diet). I have normal numbers during the day, but when I wake up, it is anywhere from 10-30 points higher. Eating different bedtime snacks, eliminating bedtime snacks, changing Metformin time; nothing made any difference. Since Welchol, my fasting my is almost always the same as when I go to bed. The only negative side effect is heartburn if not taken with food. I prefer it before bed to lower my fasting, but I might have to change it to dinner time. Hopefully it will still help my morning fasting blood sugar. It's too soon to recheck my cholesterol."

   
8.0

SUZYA August 31, 2017

0 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

For Diarrhea, Chronic: "My story is similar to others. The first thing I would locate in a store or a restaurant was the bathroom because I knew I would have to go before we left there. I even turned down job opportunities because the bathroom was too far away from where I would sit in fear that I wouldn't make it in time. That is no way to live. After a colonoscopy and stool lab results my doctor put me on Welchol, which I call the poop pill. In my opinion, it is the miracle medicine. I take 3 every night before bedtime and I have not had any more issues. I can enjoy leaving the house and not worry about wearing white clothes. I am one happy camper!"

   
10

Anonymous (taken for 1 to 2 years) June 6, 2017

7 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

For Diarrhea, Chronic: "I had my gullbladder removed in 2004, resulting in always needing to know where a potty was at all times. After several Dr & 12 yrs of getting sick. I had a colonoscopy & endoscopy done where is came back normal to the naked eye but the biopsy didn't. It showed Mastocytosis (masked cell disease). Was put in Welchol before my procedure & it was like a miracle pill, after finding out what I had they changed me to Zertek & Zantak within three days I was back to getting sick. So back to Welchol I go & prob will never try anything else agian. Happy to finally not worry about when to eat & where the bathrooms are. Life is going to get better!"

   
10

MsLangham April 24, 2017

2 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

For Diarrhea, Chronic: "I stared having mild diarrhea around the age of 12, around 4/6 times a day as I got older this increased and caused me to stop exercising, as it I had chronic diarrhea! I tried everything to limit it, including massive doses of Imodium but nothing touched it, at the age of 31 whilst suffering painful chronic diarrhea 20+ times a day and suffering constant exhaustion I luckily found a news paper article that highlighted bile acid malabsorption and after a few visits and another year of harassing a consultant I was put on cholestagel 625mg (colesevelam) which changed my life!! Unfortunately serious intestinal damage had been done which still causes problems with users, prolapses, blood and mucus but the chronic diaherra is cured!"

   
10

Ed79 March 13, 2017

7 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

For Diarrhea, Chronic: "For 40 years I've had to spend a lot of time on the toilet. So much so that it has now become a habit that I spend as much as 30-40 mins at a time just reading or watching you tube. Then I met my new girlfriend who pretty much noticed from the start that something was not right. I had suffered kidney stones from my early 20's and always had cramps. Then I was referred to a doctor who had the time to listen to me, who took the time to try and find the cause. Turns out I have had a very severe case of Bile acid malabsorption (BAM) for my whole life. Who knew? I was prescribed colesevelam which I now have to take 6 a day but the change has been amazing. I'm not saying I'm cured but I can live again. Don't take no for an answer."

   
8.0

Wonderboy1974 (taken for 6 months to 1 year) February 14, 2017

5 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

For Diarrhea, Chronic: "I'm a 51 year old health professional. In 1983 at the age of 17 I had my gallbladder removed (cholecystectomy). Although my painful gallstone attacks ended, like others I began suffering irritable bowel symptoms for the next 25 years. These frequent bouts of cramping and urgent diarrhea impacted my work, travel and social life. In 2010 I changed my GP and he recommended the off-label use of Wechol as a solution to my GI problems. I cannot overemphasize the profound and positive impact this drug has had on my lifestyle. If you've had your gall bladder removed and are having GI problems, please talk with your doctor about this medication."

   
10

Anonymous (taken for 5 to 10 years) January 26, 2017

5 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

For Diarrhea, Chronic: "I've always had issues with going but, I had my gallbladder out in 2008 since then I've been getting worse and worse...I went to 3 different doctors who diagnosed me with ibs-d and sent me home saying take a prebiotic...finally I found a doctor early this year. He was determined to help me. I was always late to work and as soon as I got there is was in the bathroom. I went to the bathroom in excess of 10 times a day on a good day. I had to carry a change of clothes to work cause I had frequent accidents. And my belly pain was soo bad I felt as though I would fall unconscious.my doctor referred me to a specialist and he put me on 4 pills once a day...I still potty like 4 times a day but it's given me back my life!"

   
10

Motherofthree2016 November 8, 2016

4 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

For Diarrhea, Chronic: "This drug is a life saver for me as I have diagnosed with SeHCAT that I have idiopathic severe Bile Acid Malabsorption , we're talking decades of severe diarrhoea daily ,and being dismissed as an " it's all in the mind, non compliant patient" type. My only issue is that since taking it I've started tinnitus. However I'm hoping that a new med will come out shortly or trying to take less will help manage that as it's a very difficult thing to live with."

   
6.0

Lil Rose Red (taken for 1 to 2 years) September 23, 2016

5 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

For Diarrhea, Chronic: "In 2001 I had my gallbladder removed. And since then I have had chronic diaherra. I would spend 12 hours with explosive diaherra. It made my life miserable. I didn't know when I could leave the house. The delayed gastric emptying and the chronic diaherra I started taking the drug Welchol. And I feel so good. I have had to change my eating habits. Foods that I have loved, I can not eat anymore. I can except that, so the I am no miserable. Maybe I can start exercising and lose weight."

   
10

grannybubbles July 22, 2016

6 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

For Diarrhea, Chronic: "Thank God I came across this website and many thanks to all the others who went though what I did. For 3 years following my gallbladder removal I have IBS-D. I tried to modify my diet, limit portions, herbal medications, remove certain foods from my diet, exercise more, ox bile, digestive enzymes, etc. You name it, I tried it! The final straw was living on Imodium. While Imodium helped, I realized it was not going to be a long term solution, so I began searching for another answer and thankfully came across this website. High cholesterol was not a problem according to my recent blood work, so I would have never thought Welchol would be a solution. Wow, was I wrong. As soon as I took a print down of this paperwork to my PCP, they said"

   
9.0

One Happy Person! June 22, 2016

8 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

For Diarrhea, Chronic: "This was a life changer for me I was suffering with diarreah over 10 times a day and since starting on this I have finally got my life back and can do most of the thing I did before! I am not 100% back to how I was but I have not been on them for too long (about 8 weeks) but I can actually live again!"

   
9.0

Tomuehf May 20, 2016

5 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

Welchol (colesevelam) for High Cholesterol: "I had my gallbladder removed in 2002 and have been dealing with IBS after eating for 14 years and thought I had to just live with it as a consequence of surgery! I have had high cholesterol for years, so my primary care physician prescribed this drug. It stopped my IBS and will lower my cholesterol, it also helps with my hypoglycemia. win,win,win.... im 57 and before using this drug I wasn't enjoying life much worried about toilets and heart disease or expecting to live a long full life. Now 3 less thing's to worry about : )"

   
10

strega440 February 1, 2016

65 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

For Diarrhea, Chronic: "I have had diarrhea for the past 25 years. I also had my gall bladder removed in 2006 was running on 12 % for who knows how long. Quality of life socially was impaired by needing a bathroom w/o much of a warning at least 4 to 5 times a day. I would not go out in public for very long. And forget ever eating out! I tried everything over the counter and behind the counter and sometimes both with little to no relief. Finally my P/A and I put our heads together and came up with Welchor. it has been a big life changer. I am starting to do things that I haven't been able to do for quite some time. it's been a big life changer for me. 4 months now, 3 x 625 mg twice daily. No side effects as of yet. 52 yr/female."

   
10

Medusa2112 November 18, 2015

14 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

For Diarrhea, Chronic: "I had my gall bladder out in 2000. Then started the dreaded diarrhea! I would be getting ready to leave for work and a simple cough or sneeze would send me running for the the shower because I had accidentally leaked. I got to the point I couldn't take it anymore! It was truly ruining my life I had seriously considered something I won't mention here because my life was ruined with a cough or sneeze or lifting an object I was at my end. I started doing research on my own and found Welchol. I mentioned it to my Dr. On my next visit and she prescribed it. I've never been happier in my life!!!!! It helped a lot I had insurance then but unfortunately I haven't had insurance in 3 years so honestly I have to choose food or liquid poo!"

   
10

Sande1325 August 22, 2015

15 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

Welchol (colesevelam) for High Cholesterol: "Medicine worked initially to lower cholesterol but became less effective as time went on. Also, taking three of those "horse pills" twice a day is difficult! They are huge pills."

   
5.0

MAPster July 28, 2015

21 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

For Diarrhea, Chronic: "I have bile salt malasorbtion colitis due to a right hemicolectomy years ago and after several more operations and only been given codeine to help slow things down .I have tried questran and colestid but found them gave me sickness. My new consultant recommended these but warned that they were hard to find. But they have completely given me my life back. I never thought that I would be pain free and diahorea free. My only problem is my chemist finds it hard to get them for me and the two other chemists do not keep them on their list. They are my life saver and I can now finally eat a whole meal!!!"

   
10

foxy27 May 25, 2015

12 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

For Diarrhea, Chronic: "I had my gall bladder removed in 2007. Afterwards life was miserable! My GI dr had no real explanation and after few tests put me on cholestramine powder and life was good. But after 10 years and i am someone who travels frequently and also a volunteer firefighter it was bothersome to have a juice and bottle to mix the powder every morning. Also the meds didnt always provide 24 hr relief if i wasnt able to take dose at the same time everyday. I finally checked on welchol and although pricey after just 2 wks and 1 pill daily its almost like a miracle pill!! I can now say life is great!! No break through random episodes of diarrhea!!! Im now more relaxed to travel and enjoy not worrying if ill have an accident!!!!"

   
10

Yay for me November 22, 2014

16 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

Welchol (colesevelam) for Diarrhea, Chronic: "Love Welchol...... Thanks to my family doctor I can feel normal again"

   
9.0

Soccer mom for 3 October 27, 2014

57 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

Welchol (colesevelam) for Diarrhea, Chronic: "After 41 years of horrible pain, diarrhea and incontinency, I met a GI Dr. Who Ordered Welchol. I thought he was nuts. Within 4 days I was normal. I would willing mortgage my house to pay for this medicine. Max dose 6/day. I now have a Life. It's so nice not to be told I was nuts, nervous, anxious, need a shrink and all the other crap I listened to for 41 years. I have been fine for almost 6 years with only 2 one day relapses. My gallbladder is fine. I am one happy camper. True story folks."

   
10

Tin Type lizzie October 22, 2014

113 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

For Diarrhea, Chronic: "I had my appendix removed along with some bowel some large and small intestines AND an ovary( due to infection... I was full of it... another story) and after 2 months of explosive diarrhea I to was given LODALIS (Canadian version of Colesevelam) I only take 1 a day but 2 if I go on road trips and I really don't eat because I'm afraid I will have to go but after reading these stories I will eat again. Thanks."

   
10

stefanny August 26, 2014

13 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

Welchol (colesevelam) for Hyperlipoproteinemia Type IIa, Elevated LDL: "My Cardio. wants my LDL lower than the 88 it is now, because of my having a bypass surgery in 1999, he wants it below 70. After about a week of taking 4- 625 mg pills per day I have noticed a change in bowl movement. I used to go once at breakfast, then about an hour later had another Bowel Motion, but more violent and loose. Would stay in the restaurant until 2nd Bowel Motion most of the time, or make sure I was close to one of my usual emergency rest stops--Dr. office, gas station, Port-John or rest room at the mall when doing post breakfast walk. Now, if this works on my A1c (now 7.5) and lowers LDL, without extreme side effects, I will be very happy. After this short period of time I'm feeling pretty safe about not being caught unprepared."

   
8.0

NittanyLion July 13, 2014

27 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

Welchol (colesevelam) for Diarrhea, Chronic: "I had my gall bladder removed in 2011. I was planning my life around a restroom and it was affecting my social life. I would not go on trips, and did not want to go to anyone's house to eat for fear of an episode. Welchol has been a miracle for me. I only take them as I need them. Sometimes even 1 or 2 a week. It is very expensive, so I'm glad I don't have to take them everyday."

   
10

what the heck January 31, 2014

113 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

Welchol (colesevelam) for Diarrhea, Chronic: "I have had severe diarrhea for years after getting gall bladder removed. Had many tests run, tried everything. Eat, bathroom, eat, bathroom I was miserable. I signed up for medication study program after trying many different studies a wonderful caring nurse who led the studies suggested this medicine. WOW, I'm living again. I was spending a large amount of my life in the ladies room now I'm regular. They prescribed me three pills a day it caused consipation. One a day every morning keeps me regular. What a lifesaver, I was miserable."

wezzie (taken for 1 to 6 months) January 27, 2014

133 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

Welchol (colesevelam) for High Cholesterol: "Five months ago my total cholesterol was 281 (LDL was 199). I can't tolerate statins so my doctor suggested Welchol. I started eating a plant-based diet (no meat or dairy) and began going for walks in the morning. Yesterday my latest blood test showed that my total cholesterol is now 193 and my LDL is 125. That's the first time in 15 years that my cholesterol has been under 200. The diet and exercise certainly had an impact and I'm sure Welchol pushed the numbers even lower."

   
9.0

Jack9999 September 25, 2013

56 users found this comment helpful.
Did you? Yes  No  |  Report inappropriate

Page 1 2 3 Next
Hide