Cenobamate for Seizures User Reviews (Page 2)
Brand names: Xcopri
Reviews for Cenobamate
- TST...
- Taken for 1 to 2 years
- June 8, 2024
"Along with two other medications, Xcopri has really helped with my drug-resistant focal bi-temporal epilepsy. It's the only medication that has stopped the convulsive-type seizures, which were getting very dangerous for me. I had fallen into the bathtub as I was having a seizure early one morning. When I first started taking Xcopri, I was just so relieved and so happy as I was at the end of my rope. It's been a lifesaver for me."
- mus...
- Taken for 6 months to 1 year
- December 16, 2024
Cenobamate "I have a brain tumor and experience simple focal seizures in my left foot/leg. Prior to medication, I was experiencing a seizure every other day. When I started taking Xcopri, I was taking Keppra and Vimpat. The main symptom that I have experienced with Xcopri is debilitating dizziness for about an hour after taking my daily dose in the AM (50 mg). I eat a large meal to mitigate the effects, but the dizziness is so bad that I cannot safely stand, even with a cane. The effectiveness of controlling my seizures is worth it, but that is the side effect that is most clear to me. I have to schedule my day around this side effect."
Frequently asked questions
- Nin...
- Taken for 6 months to 1 year
- April 20, 2024
"This medication has made me feel like a new person. Unfortunately, I will stop taking this because of the price. I am on Medicare and was told today that I have reached my gap. No more coverage until I pay $8000 for prescriptions. How can I pay that much?"
- Lia...
- Taken for 6 months to 1 year
- October 6, 2024
"I started taking cenobamate last August, starting slowly until maximum dosage 200 mg. I also have autism. I started initially with balance issues, though my seizures were getting under control. But later on, I started to get very aggressive and have nightmares and feel really tired. Things haven't improved much, though I have reduced the medication to 125 mg, but my life has changed for the worse."
Are you taking this medicine?
Your review helps others make informed decisions.- Anonymous
- Taken for 1 to 6 months
- June 17, 2023
Cenobamate "Xcopri has given me many side effects, including fainting, fast heartbeat, weakness, and more. The side effects I've experienced are not worth it."
- Xco...
- Taken for 6 months to 1 year
- February 11, 2024
Cenobamate "Has been excellent in terms of seizure control but needing to reduce dose due to side effects - not being able to wake up & aggression."
- Sco...
- Taken for less than 1 month
- August 15, 2024
Cenobamate "Seizures are great, but lots of side effects: slurred speech, off balance when I walk, constipation, weight gain, and tiredness. And these are some that I can think of."
- Anonymous
- August 30, 2022
Cenobamate "It works! It is 1,800 for a 30-day supply if you don't have the manufacturer coupon."
- Anonymous
- Taken for 1 to 2 years
- January 2, 2024
Cenobamate "Works, have the fewest seizures I've ever had, maybe one small one at night."
- Har...
- Taken for 1 to 6 months
- April 14, 2024
Cenobamate "Xcopri has been good during all increases up to 200mg. By day 5 at 200mg, we experienced dizziness, loss of balance, verbal confusion, headaches, heart palpitations, and overall fatigue and weakness."
- Edd...
- Taken for 1 to 6 months
- July 14, 2024
Cenobamate "Xcopri has been my favorite medicine for seizures since it blocks sodium ion channels and does good to GABA. The medicine has reduced my seizures to one per month."
- Tri...
- Taken for 1 to 6 months
- August 21, 2024
"Lack of sex drive, always feeling tired and lethargic."
- sei...
- Taken for 1 to 6 months
- January 17, 2025
Cenobamate "Fantastic! The only drug that has worked for me. It's my 5th drug. I'm taking it with Lacosamide. Side effects are dizzy and sleepy, but I'll take it."
- Kit...
- Taken for 6 months to 1 year
- March 3, 2024
Cenobamate "Very effective for focal seizures for about 9 months. The auras are creeping back over the past few months, and I had several breakthrough seizures during a recent bout of flu."
- Cal...
- Taken for 1 to 2 years
- October 18, 2024
Cenobamate "I still have seizures, but they aren't as bad, where I used to bite my tongue bad, I now stay more aware and can ride them out better."
- Ano...
- Taken for 2 to 5 years
- April 17, 2025
Cenobamate "Used along with Keppra, I take 250 mg daily, and it has cut down a lot of the amount of seizures I have to 1 occasionally. I use it to treat absence seizures."
- Tom...
- Taken for 1 to 2 years
- March 1, 2025
Cenobamate "I was prescribed Xcopri along with Lamotrigine and Topiramate. It is working for me very much."
Are you taking this medicine?
Your review helps others make informed decisions.Learn more about Seizures
Care guides
- Epilepsy
- Epilepsy and Pregnancy
- Generalized Tonic Clonic Seizures
- Nonepileptic Seizures
- Status Epilepticus
Medicine.com guides (external)
More about cenobamate
- Check interactions
- Compare alternatives
- Side effects
- Dosage information
- During pregnancy
- Drug class: carbamate anticonvulsants
- Breastfeeding
- En español
"This medication has drastically changed things. I’m more than a year seizure-free. I’ve had seizures for 36 years. Like many others, I take other medication, e.g., Keppra and others. I’ve reduced one of my medications and started slowly on cenobamate, where I now take 200 mg daily. Other factors might have contributed. I had lost quite a bit of weight, this was happening before I started to take cenobamate. I did find my diet changed. Foods that I liked, I would no longer eat, and I didn’t always want breakfast in the beginning of the change to cenobamate. Reducing my other meds, the seizures were intense, and I had more than one seizure at night. My seizures are all when I sleep. After a couple of months, when I was taking the regular dose, seizures stopped. Strange to say, I’ll put up with the strange eating habits and tiredness for no seizures."