Budesonide User Reviews & Ratings (Page 3)

• Eano
• November 2, 2018

Uceris (budesonide) for Ulcerative Colitis "I felt like I was going into a UC flare so my doctor told me to take Uceris for two months. We wanted to avoided the harsh side effects of pred. (Just found out I have osteopenia at 23 because of my pred usage) Within a week of me taking it I started having extremely watery stool... I would go 10-15 times a day and dealt with this for the two months (the duration of the uceris course). My doctor finally tested me for C-Diff and I was positive! I can’t imagine I got the cdiff from anything BUT using this medicine because it happened a week after I started. I’ve never had C-Diff in the past. It was a NIGHTMARE! Because I got the infection, it put me back in a horrible flare- the combo sent me into the hospital for a week. I’m currently doing the Uceris rectal foam and that is working WONDERS for me!! My effected area tends to be in my lower colon so the foam put me into remission after about two weeks! Zero side effects."

• Kilt
• Taken for 1 to 6 months
• December 31, 2012

For Inflammatory Bowel Disease "This drug was prescribed to me by my family doctor to help with my ulcerative colitis. I think that after three years of off and on flares with colitis and prednisone usage, I am now steroid resistant. This medicine has worked very poorly for me. At the highest dose of 9 mg, my symptoms are not nearly under control."

• Chill...
• Taken for less than 1 month
• February 2, 2018

Uceris (budesonide) for Ulcerative Colitis, Active "I’ve battled this illness off and on for 16 yrs and have pretty much tried it all. I’m usually in full remission when I’m just on remicade and lialda (unsure how effective this really is), but I recently was forced to postpone my scheduled bi monthly remicade and promptly fell ill. I was able to get the remicade at about week 11, but by then was in a full blown flare so it didn’t throw me back into full remission as I was still bleeding, had rectal pain, and frequent trips to the bathroom. I was prescribed this foam and within 2 days noticed a substantial improvement without all the side effects of oral steroids like prednisone (horrible drug). Highly recommend this is your pain and inflammation is in your rectum / sigmoid. You can ask for lidocaine lubricant too to apply on the applicator for peace of mind."

• Anonymous
• September 15, 2009

Entocort EC (budesonide) for Eosinophilic Esophagitis "I have an unexplained food allergy that causes my esophagus (only esophagus) to close up completely with food in it. Cannot swallow saliva, as it builds up and makes me gag and choke as it goes down my windpipe when it builds up high enough. I was instructed to take 9mg (3, 3mg capsules) by removing the pellets from the capsules and eating them without water so they touch my esophagus directly. No side effects that I notice and it makes me able to eat. A God send - a must have for me. "

• Malll...
• January 25, 2016

Pulmicort Flexhaler (budesonide) for Asthma, Maintenance "I can tell a marked difference when I am without this, in between prescriptions. This takes the usage of my rescue inhaler down significantly. No negative side effects for me. Expensive, but worth it as peace of mind for someone whose asthma is a daily nuisance."

• UCWar...
• Taken for 1 to 6 months
• January 22, 2019

Uceris (budesonide) for Ulcerative Colitis, Active "This is my last week using the Uceris foam. I have not noticed any significant differences over the past 6 weeks while using this. So unfortunate because I thought since the foam was going right to my ulcers it would really heal them, but instead I’m still going to the bathroom 6-10 times a day with fresh blood, painful gas and pressure. Doctor said my next choices are switching my diet drastically, prednisone or a biologic. Scared of biologics but think prednisone and a different enema will really help. Wish me luck!"

• Elina
• Taken for 10 years or more
• August 16, 2019

"I was diagnosed with Cologenous colitis over 10 years ago, I took budesonide the whole time. Then I found myself without insurance. I could not afford and have not taken for 18 months. My problems came back with a vengeance. I had a colonoscopy this month and told it is severe. I just picked up my prescription and am so grateful for relief soon. It is very expensive even with insurance. But I need this to get me back to feeling better."

• vgemini
• Taken for 1 to 6 months
• February 11, 2016

For Ulcerative Colitis "I was diagnosed with this Microscopic Colitis three years ago and the only medication that has helped me is Budesonide. Well, I was on it for three months and I finally felt like myself again. Then my doctor informed me that I should stop which I did. After a couple of weeks I had the same symptoms again. Because it is a steroid it should not be used for any length of time I was told. So like most everyone else I had tried Apriso, Lialda with no relief at all. I am now starting again with Budesonide for another course of treatment. For me I put on weight and got lots of nasty black hairs around my chin which I didn't like. That is one of the reason why I don't look forward to taking this again. However I will use this again for a rest."

• Heather
• Taken for less than 1 month
• June 10, 2019

Pulmicort Respules (budesonide) for Asthma, Maintenance "Dr started me on this for adult late onset asthma, I was 46 when diagnosed. The first week was good and my breathing improved. then I started to get a burning sensation in my chest. After the 2 week I knew something was not "right", the burning sensation was lasting for 2-6 hours after a treatment and I had the worst swollen sore throat. I stopped treatments and my throat soreness was gone within 4 days. I was switched to a different powder inhaler that then gave me hives. Hate my new disease!"

• phe
• March 1, 2010

Entocort EC (budesonide) for Eosinophilic Esophagitis "Entocort has been good to me and my Eosinophilic Esophagitis problem. It's not as effective as Prednisone, but WAY easier to handle. I could usually last 3 to 4 weeks off of Prednisone. I can only go about a week without Entocort. My side effects have been occasional dizziness, occasional indigestion / heartburn, and sometimes just feeling tired. After several years of Prednisone, this is still much better and easier to handle. I take one 3mg pill (3 times a day) and break it apart and pour it into my mouth and try to let the individual bits of medicine stay in my throat as long as I can. I've been doing well with this and I am happy with the results."

• Acorn
• Taken for 1 to 6 months
• February 16, 2019

For Ulcerative Colitis "I have Collengenous/microscopic colitis and have used this medication on and off for 6 years. I really haven’t had any side effects that I realized. I completed a 3 month dosage on Dec 29, 2018. I was diarrhea free for about 2.5 weeks then it slowly started again so I am back on it. I am on Medicare. I found out using Drug RX coupon works. However you must have your Doctor write the prescription for 90 pills x 3 per day for only 30 days . If it goes over 30 days (31 or 90) days it will be over $300. But it is written for 30 day My is only $100. The key is the number of Day not the amount of pills in the prescription . Crazy isn’t. Someone is making lots of money off of this. Check with your Medicare insurance about the # of pills vs. # of days. There should not be tiers for drugs on Medicare. Medicare need to be revised for drug prices."

• Roxanne
• June 15, 2020

Uceris (budesonide) for Ulcerative Colitis "I have had UC for over 20 years. Been on Remicade, Humira, zeljanz, Asocol, prednisone. You name it I tried it. I am now strictly on Lialda and have been in a flare for about a month. I was prescribed Uceris and the problem I have is, since I have severe urgency it is hard to keep the foam from wanting to come back out. My UC is in the lower colon and I go to bathroom between 10 and 20 times per day. It is very painful to try to hold in the foam. Suggestions?"

• Dolam...
• Taken for 1 to 6 months
• July 27, 2014

Pulmicort Turbuhaler (budesonide) for Asthma, Maintenance "Pulmicort works beautifully, really stops the cough. I took it for 3 months. then I lost my sense of taste and by the end of the 4th month I developed the most awful taste in my mouth so I stopped it. The horrible taste gradually disappeared after one year and my sense of taste has "almost" come back. It has now been 17 months since I stopped the medicine. my coughing is not gone when I exhale, but very much improved and no attacks. It's the only medicine that works for me during attacks. I think once I improved I should have cut the dose way down."

• AIHer
• Taken for 2 to 5 years
• November 21, 2020

For Autoimmune Hepatitis "After 3 years on prednisone for Autoimmune Hepatitis , I have been switched to budesonide for another 3 years. I started at 9mg and eventually tapered to 3mg. I lost all of my prednisone weight (20lbs) in about 3 months. My moon face went away. My hair started growing straight again. It has been amazing to get relief from these side effects. Even better, my liver enzymes are lower than ever!"

• Wpano
• Taken for 2 to 5 years
• July 9, 2021

Uceris (budesonide) for Ulcerative Colitis, Active "A Mayo doc prescribed Uceris foam in April 2019 after several months of severe tenesmus controlled primarily with bentyl. The medicine started working rather quickly and all was good for about a year. Experience told me I had another attack coming a year after first use and I had doctor prescribe another round of treatment in May of 2020. It knocked our the symptoms again quickly. Here I am again about 14 months later and I think the symptoms are coming back. I will try again as it beats getting on the infusion treadmill for the rest of my life"

• 12...
• Taken for 1 to 6 months
• March 9, 2017

Uceris (budesonide) for Ulcerative Colitis "I have UC for 12 years, I was in remission for a few years and then all of a sudden I had a flare up, I have been one this medication for almost 2 months. When I first started on it, it helped for like a week or so. I had swelling in my face and joints and sore muscles and headaches. My doctor told me to stick with it so my body could adjust properly and it helped but didnt stop my issues. For the last week I have been going to the bathroom 10 times a day. Me and my doctor are now trying to figure out the next step."

• NWB
• Taken for less than 1 month
• June 2, 2019

For Ulcerative Colitis "I have been taking Uceris for 3 weeks for my Ulcerative Proctitis. It has not given much relief yet but I see some reviews here that say it took weeks to work for some. I notice no side effects at all so far. I was first given Prednisone and that was working well but my Doctor was worried about problems from long term usage. I was shocked at the price. At pharmacy for a 30 day supply is $1815.00. Thankfully with my health insurance my co-pay is $10.00"

• Kimmer
• Taken for 5 to 10 years
• May 15, 2018

Entocort EC (budesonide) for Crohn's Disease, Maintenance "I have been on it for 8 years. Have tried to wean off but always start to have Crohn’s symptoms again. I still have flares periodically on the medication but they are minimal. Happy it works for me."

• Jenmn...
• June 2, 2017

For Ulcerative Colitis "With my insurance from AARP, I used to pay $352 for the 3mg using three per day for one month. Today at Walmart, they charged me $767.76!!!!! I have been taking Prednisone for the last six months, but do not feel comfortable taking this steroid for long-term since my condition is from celiac, causing my colitis. The pharmacist informed me that this, along with many other pharmaceuticals have doubled their pricing. This is absolutely unaffordable for people with my problems. Isn't there any type of coupons or discounts that I can get? Any assistance would be appreciated. Thank you."

• Steph...
• Taken for 1 to 6 months
• February 8, 2020

For Eosinophilic Esophagitis "My husband uses budesonide for his nasal polyps and it’s helped him. He can breathe better and even smell a little. My son uses it for his Eosinophilic Esophagitis (EoE). I have to mix it in syrup to make a slurry. It’s a pain but it seems to be helping. He is starting to eat more and not need formula fed as much (he’s 7). I think it’s helping. We find out for sure in about a month. I’m giving it a 7 because it helps my husband and my kiddo is finally eating again."

• Bunny...
• Taken for 2 to 5 years
• April 9, 2019

Pulmicort Turbuhaler (budesonide) for Asthma, Maintenance "Pulmicort works well for my asthma. Problem is can cause thrush or just a coating on tongue. So I rinse with water thoroughly immediately after inhaling. Then rinse with biotene. This really helps with coating on tongue."

• Jaggie
• Taken for 1 to 6 months
• May 6, 2018

For Autoimmune Hepatitis "Changed to Budesonide from prenisolone as I couldn't tolerate the side effect of the pred. I've been taking 3 mg of budesnonide for autoimmune hepatitis, for the past 5 weeks. I'm feeling very tired to the point of exhaustion, nauseous, bruising easily, moon face and various other mild aches and pains and feeling very low spirited. Some days worse than others. Hoping to come of this drug soon, but worried about feeling worse through the reduction phase."

• Lisa...
• Taken for 1 to 6 months
• November 4, 2021

For Ulcerative Colitis "I suffered frequent diarrhea, gas and stomach pains for four months and lost 25 pounds with Collagenous colitis. Finally started on Budesonide at 9 MG a day for first month then 6 MG for month two and 3mg for month three. This dosage tapering off approach is important when taking steroids. It took 2 weeks before it started to work but then my symptoms began to abate and became fully resolved by the end of month three with zero side effects. After I stopped the medication the symptoms started to return after two weeks and I thought I was doomed but I took some Imodium and that did the trick. I have been symptom free for 8 months now. Thankfully I have a drug plan and live in Canada so I only had to pay a very small amount for these very expensive pills."

• Mel...
• September 19, 2017

For Ulcerative Colitis "Was diagnosed with ulcerative colitis approx 4 mo ago; tried lialda and apriso as sample; lialda tore my stomach up and apriso worked better but not that well after a short time; I then filled my prescription at one pharmacy thru my Medicare d plan; tier 4 drug; I was astounded at price $773 for a 30 day supply; I found out after the fact I could have gotten some where else for $258, wow 1/3 the cost. Drug has worked; I also order thru Canadian pharmacies for 3 mo supply; nice price difference; unfortunately medicine has stopped working for me and I have been in hospital; still very diarrhea; am looking for better days. Hope this helps"

• Brenda
• Taken for less than 1 month
• March 25, 2020

For Crohn's Disease "Budesonide worked so well on my Crohns by day 5 but side effect of the sore throat it gave me was not worth it. Each day after day 5 the sore throat got worse and worse and each day I felt like I had the flu. (I didn't have the flu or COVID -19) . My breath tasted like a dog poop in my mouth. Within a day of going off the Budesonide my sore throat was almost gone, by day 2 it was gone. I tried this twice and both time the same result. It was nice to be symptom free for a few days. For my Crohns issues I'd give this drug an 8"