Budesonide User Reviews & Ratings (Page 5)

• Tum...
• Taken for 2 to 5 years
• October 16, 2021

For Inflammatory Bowel Disease "Taken this 3 times over the course of 3 years, as well as Entocort and Prednisolone, each one for several months. I found this does work for the first week or two, but then gets less effective, and my symptoms come back with a vengeance after that time. Also noticed that on all 3, my levels continued to rise in stool tests, despite colonoscopy showing nothing visual, so I would say it can work but not in all cases. Side effects of the first two drugs were a weakened immune system, tiredness, and headaches in the later cycles."

• JEH...
• April 30, 2023

For Inflammatory Bowel Disease "I have been on this drug for 3 months. Went through a regimen and weaned off. Began to have diarrhea immediately. Went back on one budesonide 3 mg pill. I have no appetite, have weakness, and nausea. Going to get off this pill and see if I can get to feeling better. I don’t think you are supposed to stay on this steroid."

• Awe...
• Taken for 1 to 6 months
• March 9, 2023

For Ulcerative Colitis, Active "I am able to consume food and liquids without vomiting or experiencing blood in the toilet. This is the first time in nearly ten years that I have been able to maintain a weight of 85 lbs or above. However, there are several side effects that come with this accomplishment. These side effects include a persistent runny nose for the past three months, mood swings and suicidal thoughts that make it difficult to sleep and enjoy life, constipation that lasts for 4-7 days, and unbearable bloating, cramping, and gas pains. Despite taking 290 mcg of Linzess, my irritable bowel syndrome with constipation (IBS-C) remains the only condition left to plague me. Other unpleasant side effects include adult acne, migraines, Bartholin cysts, skipped periods (despite having gained weight), unexplained bruises and cuts that refuse to heal despite not being anemic, and thin skin on my face resulting in bleeding lines around my mouth and eyebrows if I try to groom them. During a recent out-of-town trip where I was without my medication for three days, I suffered a full-body edema attack that lasted for ten days. The process of tapering off my medication is also incredibly difficult and not to be taken lightly. I am counting down the days until I no longer have to endure these side effects, as they are taking a severe toll on my mental and physical health. I will never subject myself to this medication again."

• Goo...
• Taken for 1 to 6 months
• May 5, 2021

For Ulcerative Colitis, Active "I took 8 weeks of the oral budesonide and absolutely zero change. I have taken all the different meds, suppositories, prednisone, etc. I'm going to try Chinese herbs first - if no luck - I guess it's biologics, but they scare me. I have had this illness for over 30 years, with much of it spent in remission; however, this last year has been worse than ever!"

• MC ...
• Taken for 1 to 2 years
• March 17, 2024

"I have celiac and monitor my diet very closely. I've had bouts of severe diarrhea lasting 30 to 100 days. Started when I was 20 (45 years ago!) and usually resurfaces 2 or 3 times a year. Condition became intolerable 10 years ago when very occasional fecal incontinence started. Welchol helped sometimes, reducing alcohol, caffeine, NSAIDs helped sometimes - but symptoms would still return 2 or 3 times a year with a duration of 10 - 60 days. About 3 years ago I was finally diagnosed with MC (lympho.) and prescribed EC budesonide. I take 9 mg generic in the morning and continue for 2 weeks after symptoms are resolved. My symptoms resolve in 2-3 days. This med is extremely effective but understand my condition is chronic. It's not a cure for me but I will rely on it when I have flare-ups. I keep boatloads of Pepto-Bismol and Imodium on hand - and will probably always rely on them for fecal control when an episode starts."

• Loa...
• July 31, 2016

For Crohn's Disease "After taking it for a week, I have diarrhea and cramps. I take one in the morning before breakfast, one before lunch, and one before dinner. I better take prednisone. Wondering how many days it takes to take effect. Before that, I had a three-week flare, now, 8 days it flares, and it is expensive too."

• Joy...
• Taken for 1 to 6 months
• October 19, 2021

For Ulcerative Colitis "I am on this for microscopic collagenous colitis. What about UTI symptoms? Anyone? Been on just over 3 weeks, symptoms improved, and 5 more weeks to go (3 tablets 3 mg each = 9 mg per day, taking all at once in the AM), and then started having UTI symptoms. Sometimes incontinence (not making it to the BR in time) and low back on the right side cramping/throbbing. Urine sample resulted in NO UTI, but general PA doc telehealth over the weekend prescribed antibiotic and that stuff that turns urine orange. It worked pretty quickly, and now they messaged me through the Atrium portal that I do not have UTI, apparently, they did a culture, but who knows, and to stop taking the antibiotic! I don't want to stop taking it... it's only a 5-day thing and I have 3 more days. I am confused if budesonide can mimic a UTI. This stuff is so crazy! Anyone have the same issue? How does it resolve? Thank you."

• Cor...
• Taken for 1 to 6 months
• March 31, 2021

For Crohn's Disease "Budesonide was not able to control my Crohn's flare, and I had to move on to more powerful drugs. I noticed a slight improvement after 2 weeks, but it was never able to get me out of the flare. On a positive note, my only side effect was dry mouth. I'd say it's worth trying if you can get insurance to cover it since the side effects are minimal, and it works well for some people."

• fle...
• Taken for 1 to 6 months
• February 26, 2022

For Eosinophilic Esophagitis "I was on this steroid for about 2 months. Saw no improvement in the tight feeling in my throat. In fact, after I would swallow it, I’d notice it made my throat feel raw. I think it made the EOE worse, as it hindered the actual healing of the irritation and inflammation. Had to take it upon myself to wean off of it. My doctor was of no help."

• Bir...
• Taken for 1 to 6 months
• November 10, 2020

For Crohn's Disease "I have been on this medication for about 4 weeks now. I take 3 capsules of 3 mg a day. I started feeling a little better after about a week and a half. I have not had any side effects, which is great! It has only helped very little, though. I have a little less inflammation and no colon spasms, but I am still in pain. I will take it for one more month and see how it goes."

• Mar...
• Taken for less than 1 month
• June 11, 2018

"Made me feel much better. I am being treated for sarcoidosis, granulomas in the lymph nodes. After just 24 hours of starting with 3 capsules every morning. Before, I had nausea, feeling full after a very small amount of food, discomfort in the abdomen after even a drink of water! I lost 30 lbs in 4 months!"

• Ano...
• Taken for 10 years or more
• May 22, 2025

"I came down with this chronic condition 25 years ago. It is evidently rare and took a year to diagnose. Went on budesonide, which helped keep the diarrhea under control. But after about 20 years on this steroid drug, the skin on my arms was thinner than tissue paper and the bruising - OMG I can just look at something and get bruises. I haven't worn a sleeveless dress in years. Some days I look like I've been in a prize fight. Am now weaning off in favor of prescription Lomotil, which is working okay so long as I watch the clock. Hard to accept this is a lifetime condition."

• Ano...
• Taken for 1 to 6 months
• June 1, 2025

For Inflammatory Bowel Disease "I have been prescribed budesonide as a help to contain inflammation in my lower GI. It worked almost immediately on my pain, so I was given a second 90-day supply. Now I am experiencing a lot of bruising on my legs and extreme dryness in my nose. I will tell my GI doctor, but pain management in my stomach area is worth it."

• Anonymous
• Taken for 5 to 10 years
• March 18, 2025

Budesonide "On Entocort for 8 years. Worked perfectly. Tried to get off and diarrhea returned. Then Perrigo sold to a company in France. I can only get generic Budesonide EC now as a replacement. It does not work very well at all. Please! Will someone buy it back so we can get it in the United States? Please! It gives us sufferers quality of life."

• Bil...
• Taken for 1 to 6 months
• April 27, 2025

For Crohn's Disease, Active "I have had Crohn's for over forty years. I have taken prednisone for flare-ups but very little other medications. I have had a few major flares in the last 5 years that have landed me in the hospital. My GI doctor put me on budesonide for 2 months. During that time I had greatly reduced symptoms. This week I finished the course of budesonide. Within 3 days of discontinuing the drug, my symptoms of bloating, gas, lower right abdominal pain, and GERD have returned. The change was dramatic. It has only been a few days, but I'm wondering what the long-term effects of budesonide are."

• Tou...
• Taken for 1 to 6 months
• May 11, 2025

Budesonide for Asthma, Maintenance "I first took Symbicort to manage asthma, and that gave me tremors and dizziness. Now the doctor has prescribed Pulmicort, which is even more unsettling with headaches, stomach aches, dizziness, shaking, and impacting the nervous system severely. The medications help with breathing but make you a nervous wreck."

• Ano...
• Taken for less than 1 month
• May 12, 2025

For Crohn's Disease, Active "It has helped my Crohn's symptoms tremendously, especially my abdominal pain and nausea. Later, my diarrhea was much improved, going from all (5-8) loose stools per day to 2-4 solid or semi-solid stools a day. For the first week, I was extremely tired with this medication, sleeping 12+ hours for a few days. That improved quickly, and I was able to manage after that with increased caffeine intake. If I had known about this, I would have started my course on a Thursday or Friday morning to be ready for the next week. It also cleared a small spot of what was believed to be psoriasis on my wrist. That cleared up after about 3 weeks, and I saw a dermatologist for it at week 4. Based on a photo and the Crohn's, it was assumed to be psoriasis. I'm taking budesonide 3 mg delayed-release capsules, 3 capsules each morning. My original course was 28 days. I started to decline quickly after stopping, so I am back on it. My GI, rheumatologist, and dermatologist are probably putting me on Humira."

• bet...
• Taken for 1 to 6 months
• March 2, 2025

For Ulcerative Colitis, Active "Took 9 mg tablets for 8 weeks. Doctor told me to stop cold turkey, no taper. A few days later, feeling extremely unwell: fever, confusion, swollen legs, irregular heartbeat. Went to GP, told to go straight to the hospital, pulmonary embolism, DVT. 5 days in the hospital, over 5 months later, still recovering. Should taper from 9 mg, be mandatory."

• Ano...
• Taken for 1 to 6 months
• April 28, 2025

For Asthma "When I first started taking it, it worked great. The longer I took it, I noticed it was immediately making me sleepy/tired. Also started having some hot flashes (sweats) and build up of mucus in the throat. I looked up the side effects online and read that these are some of them. I am going to stop using it."

• Ano...
• Taken for 6 months to 1 year
• April 23, 2025

For Ulcerative Colitis "My ulcerative colitis has been controlled using budesonide for the last nine months. The major downside has been the 45 pounds of weight gain that has occurred during this time. I was not aware that this could happen."

• Ano...
• Taken for 5 to 10 years
• May 8, 2025

"I have been taking oral budesonide (3 pills daily) for more than 5 years. While it has controlled my symptoms, it does come with some side effects, including headaches, hoarseness, mild weight loss, skin irritations, and others. As I have never gone into remission, I expect to take this medication for the rest of my life."

• Dr ...
• Taken for 2 to 5 years
• April 14, 2025

For Asthma, Maintenance "I use budesonide once a day combined with albuterol in an inhalation machine. I choose to use it in the morning thinking it helps me to breathe during the day. It takes about 30 minutes for the treatment. I have a chronic hoarse voice from inhalation, increased urination at night but lessened if I use my CPAP. I have a little skin bruising made worse by playing with the dog. If I don't use it for a week, I find myself very short of breath, therefore, I like it and need it."

• Ano...
• Taken for less than 1 month
• April 4, 2025

For Ulcerative Colitis, Active "I have had terrible diarrhea for 7 months this time, and the NP put me on 90 mg a day and also put me on Metamucil, 1 Tbs a day. The diarrhea this time was like urinating through my rectum, and the budesonide so far has helped the diarrhea. It is now a very soft stool. I have only been on it for 3 weeks. This is not my first time. I was on it two and a half years ago for diarrhea as well."

• Ano...
• Taken for 1 to 6 months
• May 8, 2025

"Received this prescription following a colonoscopy in January this year. I had been getting bouts of diarrhea periodically, but it would stay for days at a time. Husband and I are retired and like to do lots of traveling. This condition made it hard for me to go anywhere. Since taking the budesonide 2+ times per day with hardly any diarrhea incidents. Recently started having a sore throat for 3 weeks."

• Wen...
• Taken for 10 years or more
• April 4, 2025

Budesonide for Asthma, Maintenance "I’ve been taking Pulmicort Flexhaler since it was first introduced in 2006. It’s truly been a game changer for me to control my asthma. I can’t remember the last time I needed to use my Ventolin rescue inhaler, even with a cold or flu. Unfortunately, my insurance no longer includes it in their formulary, and I was forced to switch to another steroid inhaler. I hope Pulmicort becomes generic soon because it’s super expensive without insurance coverage. It’s been a great medication for me, and I will truly miss it."