Doptelet for Immune Thrombocytopenia User Reviews

• Sci...
• Taken for 1 to 2 years
• January 2, 2021

"Tried steroids, rituximab, IVIG, nothing works as well as Doptelet. I take it 2x each week, and my platelets are around 50k. No side effects except when I first started taking it and had mild headaches. For me, it's a godsend."

• Joe...
• Taken for 2 to 5 years
• October 22, 2024

"I'm a 64-year-old male, and I've had chronic Immune Thrombocytopenia Purpura (ITP) for three years now. The first year, I took Rituximab (Rituxan) infusions that lasted for one year, unfortunately (expected better). However, the side effects of suppressing my immune system were not good: low energy, shortness of breath, risk of infection, and susceptibility to viruses. So, my hematologist and I decided to try 20 mg Doptelet tablets, after tuning the dose over six months to one daily. I have none of the side effects of the Rituximab, and I'm happy that my immune system is not suppressed any longer. The only side effects I experience are reduced stamina and slight shortness of breath after exertion. But that could be due to my sedentary lifestyle, and I plan to get more active to counter those effects, if possible. I also take vitamin supplements daily. The cost of the medicine is very high, and I hit maximum out-of-pocket early each year. I try to budget for that, but it's hard (wish it wasn't so high)."

• Win...
• May 13, 2020

"After Promacta started losing its effect on platelets, we started with Doptelet, and the results after two cycles showed no improvement over Promacta at the time we decided to change medications. My doctor and I are now considering other medications."

• Mik...
• Taken for 1 to 6 months
• May 9, 2024

"After my ITP became refractory to Dexamethasone, my Hematologist tried Eltrombopag with minimal results after months. He decided to switch me to Avatrombopag and it worked great. After 3 months of taking it, my platelet counts reached the normal range, and we discontinued the use of the medication. That was 2 years ago."

• Nat...
• Taken for 1 to 6 months
• March 18, 2025

"I take one tablet a day, and my platelets stay above forty. There are no bleeding episodes. Side effects - constant fatigue, frequent headaches, and for some reason, I've started gaining weight. Not as much as with prednisone, but still an unpleasant factor. I'm also plagued by constant bloating and my hair is falling out severely."

• Cir...
• Taken for less than 1 month
• November 24, 2023

"Attempting to get off steroids, I was given Doptelet tablets (4) days ago. Within the first day, the headache started and hasn't gotten better. 'Mind fog' since starting the medication and times of confusion. I believe my eyesight is also affected as it is difficult to focus on items or read printed materials."

• Anonymous
• Taken for 1 to 2 years
• February 4, 2025

"I am a very active (hikes, walks, bike riding, golf, travel 3 months a year) 81-year-old man who was diagnosed with chronic ITP in 2005. Best for me was Promacta, which just quit working after several years. Retuxin completely wiped me out and didn’t work. Nplate worked great for many years combined with IVIG but made travel difficult as we had to find doctors all over the country for shots and restricted overseas travel. Doptelet has been working okay for a couple of years now when combined with IVIG every 7 weeks. Take 40 mg a day. Wish platelets were a little higher, but anything better than 50 keeps me in the game. I don’t know if being tired is from being old, the medications, or being outdoors a lot."