User Reviews for Ingrezza to treat Tardive Dyskinesia
Ingrezza has an average rating of 2.3 out of 10 from a total of 7 ratings for the treatment of Tardive Dyskinesia. 14% of reviewers reported a positive experience, while 86% reported a negative experience.
“I am a parent of a son with schizophrenia. He most recently as been on Haldol for the last 2 1/2 years and started showing signs of TD (thrusting of his tongue). He tried Ingrezza first for 2 months. Started extreme drooling problems, limited speech, and vomiting. Discontinued Ingrezza but his psychiatrist said his symptoms were not from Ingrezza. Per the doctor, he again went on Ingrezza to help his Tardive Dyskinsia but within 2 days on this second try, MY SON HAD COMPLETE LACK OF ABILITY TO MOVE NOT ONLY HIS MOUTH BUT HIS ENTIRE BODY!!! HE DROOLED, COULD NOT SWALLOW, FROZEN IN PLACE STANDING IN THE HALLWAY. I had to help him move and the vomiting again happened. He could not even direct his head over a trash can to vomit. It just came spewing down his face. Did not work for my son!”
“Medication made me gain 70 pounds. That's right you heard me 70 pounds. Did not entirely stop my symptoms so doctor switched me to Vraylar and I dropped 20 pounds and have no symptoms. Stay away from this drug unless you want to be obese like I am now.”
“I started noticing my Tardive Dyskinesid when I went on Abilify injection to treat my bipolar disorder. I had uncontrollable mouth movements and would often get comments asking me if I am chewing gum or yawning. My doctor recommended me on this drug and warned me that it is a fairly new drug and is on trial stage. I started taking it and within a couple days I started drooling uncontrollably and even broke out in hives! I believe I was allergic to the drug. Also I did consume alcohol while on it and I almost fainted and had to vomit very quickly. Now I am on Lamictal for BD and don’t have TD anymore! :)”
“This medication is a great. I have been on it since Jan 2019, diagnosed with TD since 2015 and it has all but stopped all the symptoms. Previous treatments were Cogentin, Propanolol and Klonipin none of which seemed to have much of an effect. I have my life back thanks to this med.”
“Beware! Beware! This drug cured my Tardive Dyskinesia (TD) alright. And in exchange it gave me Parkinsonism! Now I have a bunch of diseases, including MS, but nothing in my life was worse than this. I couldn’t eat a bowl of cereal, get up off the couch, get into or out of bed by myself, walk, write, turn over in bed, carry a cup of coffee, or even wipe myself. My husband thought he was going to have to quit his job to take care of me. I had to wait months to get an appointment with a super-specialist, then months more to wean off the drug very slowly. And now I am severely obese to boot. I lost a year of my life. Thank you, Ingrezza.”
“Beware this drug. After about a week and a half of using Ingrezza (which had no positive effect on my TD in that time, incidentally) I had an anaphylactic reaction resulting in hospitalization. I'm very lucky I didn't die me, since it occurred very suddenly at night. I only lived through it because my mouth was so swollen that it was numb, and I woke up when I rolled over on that side and felt the strange sensation. That is the only time I've ever had an allergic reaction of any type. Again, beware.”
“It not only it didn't help I now have Parkinsonism and am severely bent over and require a cane and need help with Everything ‼️‼️‼️ I have no quality of life now thanks to this drug”
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This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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