Ustekinumab User Reviews & Ratings (Page 4)

• min...
• Taken for 6 months to 1 year
• June 3, 2012

Ustekinumab for Psoriasis "This medication just makes me ask the question, WHY DO PEOPLE STILL TAKE METHOTREXATE AND 6-MP FOR PSORIASIS? I've been on this medication for about a year now, and it's been a lifesaver. It took me from 80% body coverage (very thick plaques under all hair follicles, eyebrows would crack and bleed, just horrible) to just having a few little spots within 8 weeks. If your doctor is going to give you a TNF blocker, tell him you want Stelara. So much more effective, convenient, and with fewer side effects. It's now classified by my insurance as the same coverage as Enbrel for psoriasis and is even covered to a greater degree than Humira. In turn, you may be able to get it as a first-line biologic if you request it."

• Anonymous
• July 27, 2011

Ustekinumab for Psoriasis "I am 38 and have had psoriasis all my life. I have used everything I could get my hands on and only had brief relief over the years. I started Stelara in March 2011, and 3 weeks after my first shot, I was 100% clear. I just took my 3rd shot, and I am still 100% clear. If anyone has the facility to try this, they should, this medicine really works. Thanks to the creators of Stelara, I wish I had started it before. I go everywhere I possibly can without a shirt now... yeah!"

• Lul...
• February 22, 2016

Ustekinumab for Psoriasis "This has been great for me. I've struggled with psoriasis for 16 years, then this last year, I developed psoriatic arthritis too. I was given Stelara after much struggle with the insurance company. The 45 mg dose helped and did more for my psoriasis than my arthritis, but the 90 mg dose has changed everything. My hands and my feet are almost completely free of psoriasis, and my arthritis is nothing like it was this time last year. Crazy expensive, but it has changed my life."

• ann...
• December 26, 2015

Ustekinumab for Psoriasis "Had psoriasis for 14 years, started in the palm of my hands, which was really bad for 8 years. Then my legs, past three years spread all over 90%, no sleep, severe itching at night, skin shred every day from room to room, embarrassed to go anywhere, wore clothing all over, even gloves. I have not even visited family. I was depressed. I had PUVA, UV treatment, tar cream, endless cream and ointment, all failed. December 4th, 2015, had my first shot of Stelara. I must say they have saved my life, no more bleeding, no shredding. I still have a long way to go, but my skin shows so much improvement. Thank you, I feel so much better. This is a miracle drug for all of us who suffer from Psoriasis. Thank you, Annette."

• Bob...
• Taken for 1 to 6 months
• July 16, 2018

Ustekinumab for Psoriatic Arthritis "Had a mild case of psoriasis - just one patch and some dandruff scales. Had psoriatic arthritis for about two years - morning stiffness, swollen small joints, and knee pains - I endured these for almost two years. On doctor's advice, started Stelara. After the starter dosage, she also prescribed Remicade for a few weeks. However, it took almost a week for my pharmacy to fill Remicade. Within 3-4 days of taking this medicine, I felt slightly better and stopped my daily Celebrex. And when my pharmacy called me to pick up Remicade, I said I don't need it! Within two weeks, I could feel better enough to stop Celebrex. I took my second shot about 6 weeks ago. At this point, my joint pains are 90% gone. I am almost back to normal. I am able to wear my wedding ring that I removed before my finger started swelling. I am back to going to the gym - building my muscles back up. Life is good!"

• Tan...
• Taken for 2 to 5 years
• November 7, 2018

Ustekinumab for Psoriasis "I wish I could post a picture. My arms, legs, and torso were covered in guttate and plaque psoriasis, and now I just have a couple small spots of guttate that pop up around my calves/ankles. I wore a short-sleeved dress that came just below the knee to go to dinner with my boyfriend for my birthday, and I felt and looked so great. It helps that I've also worked hard to lose 40 lbs. But I honestly don't know if I would have worked so hard to lose weight if I would still have had to cover up all the time anyway. The best is that I can wear shorts and tank tops in hot weather again! I know Stelara helps people with much bigger problems. But being comfortable in your own skin is definitely important."

• dot...
• June 21, 2010

Ustekinumab for Psoriasis "I have psoriatic arthritis. I took my first shot on 5/26/10 and so far I am really pleased with the results. I take my second shot on 6/22/10. I was on Humira for 10 months. Then it quit working. My body was 80% covered, and I was miserable. Now my body is almost back to normal. The only side effect I had was insomnia and was tired for the first 10 days, then it went away. Hope it continues to work. Will keep you up to date after this shot."

• Lad...
• Taken for 1 to 6 months
• February 9, 2017

Ustekinumab for Psoriatic Arthritis "I've had psoriasis for 48 years. I had my 3rd shot a few weeks ago. My psoriasis has cleared up 85% and is helping arthritis. I had tried everything you could think of. I'm glad my dermatologist suggested this to me."

• Cru...
• Taken for 1 to 2 years
• December 29, 2015

Ustekinumab for Psoriatic Arthritis "I have had psoriatic arthritis for the past 12 years, every treatment failed on me, including photo therapy, Humira, Enbrel, etc. I was covered approximately 70% and completely covered on my face and head. I tried Stelara, and after 6 months got decent clearance, I could see my face again. I am at one year now, and at month 10 it just failed hard, I'm right back where I started. I can just shake my head, hair, and face over a sink and completely cover it with scales, chunks, paste, and slough from my psoriasis. I am very frustrated. No one should have to live through this. I haven't been on a date in over a decade. No one even talks to me, I am in complete isolation. I hate Stelara because it gave me hope."

• Ney...
• December 5, 2015

Ustekinumab for Psoriasis "I have Crohn's disease and was put on Remicade to treat it, and then I developed medication-induced psoriasis. It's so bad and painful, I can't walk some days, and I have a hard time opening things like doors. All of my hair fell out, and being a 24-year-old girl, I was devastated. I was put on Stelara at an abnormally high dose of 90 mg once a month. For a few months now, I'm at 6 weeks, the goal is to get me to 8 weeks. Stelara has made an improvement, my hair has started to grow back in, and right after the shot, I can walk and my hands start to heal. But within a couple of weeks, I backslide again. But Stelara has really helped me not lose my mind completely. If I were a normal psoriasis person, maybe it would be better."

• Ann...
• Taken for 1 to 2 years
• September 19, 2016

Ustekinumab for Psoriatic Arthritis "I have had psoriatic arthritis for 20 years. Mostly attempting to control the arthritis, which at times has been debilitating, to say the least. For the first year, my skin was clear after the loading doses. I wore shorts and went swimming without fear! And while I'm still very happy with Stelara, I've noticed it doesn't control my arthritis as well (still manageable), and I have small patches beginning to appear. I'm well under the 200 lb weight for the higher dose."

• Vic...
• Taken for 1 to 6 months
• April 17, 2015

Ustekinumab for Psoriasis "I was 65 when I got psoriasis, tried everything possible until I told my derm. I have to have something. I have received 2 inj. & feel it has pretty much saved my life (not really), but I'm so much more comfortable. However, I retired in Jan. & my ins. changed to Humana, which will not cover Stelara, so at this time I am stressing (worst thing you can do) about how I can continue this inj. without having to pay the enormous price, so I am researching everything possible... Long story short, I have definitely benefited from the Stelara..."

• sun...
• November 11, 2013

Ustekinumab for Psoriasis "I had never had psoriasis until age 50, it came on all of a sudden, pretty much all over my body, and nothing worked to get rid of it. I started the Stelara injections on 10-7-13 and was amazed at how it cleared. I also was using the vitamin D cream at night. Just had my second injection on 11-7-13, yet this time it did not work near as well. The psoriasis is back and getting as bad as it was prior to the first shot. It's a bummer because the next injection won't be for 3 months. Just so happens I had my yearly blood work on 10-14, and my cholesterol was 280/170, it has never been that high. I am also a breast cancer survivor and remembered the first time to have them inject my right arm, as I had lymph nodes removed from the left side. Wonder if that matters."

• Nda...
• November 7, 2015

Ustekinumab for Psoriasis "I have been on Stelara for over 1 year now. Had psoriasis on the palms of my hands and feet very badly. It has worked very well and I only get occasional little flares now as opposed to not being able to walk. Side effects have been acceptable, I noticed I get sick more easily and am prone to migraines when first taking a shot. Overall, I would recommend Stelara for someone who is suffering."

• mak...
• March 2, 2016

Ustekinumab for Psoriasis "At the start, after 2 injections, I was 99.5% cured. Then the NHS decided to stop my treatment on the retirement of my doctor. In 5 weeks, the psoriasis returned, worse than it had ever been. After 8 weeks, still no treatment forthcoming. My whole body was burning red hot and 75% scaly. Had an injection 3 months ago, 99.9% of my body had cleared of psoriasis in 2 months. I am due for my next one next week. The NHS is holding it back again. I am dreading what is going to happen to me and my body if I don't get the next injection."

• Wor...
• Taken for 1 to 6 months
• March 1, 2017

Ustekinumab for Psoriasis "Do not use Stelara. I wish I hadn't. I have had nothing but stomach/immune system issues since taking Stelara about 1 year ago. It did reduce the psoriasis but at a cost that no one should pay. I have several scans and an endoscopy only to have the gastrointestinal specialist tell me that my issues appear to be related to the Stelara and that my immune system has potentially been compromised indefinitely. STAY AWAY from all biological drugs, they are not safe in my opinion."

• Ric...
• May 31, 2013

Ustekinumab for Psoriasis "45 years with psoriasis. Tried everything - no luck. On Stelara for three years now. Wonderful experience. Only side effect is I am always tired, but I can live with that as I no longer have any symptoms. Wonderful medicine but very expensive. This would be the last medicine I would give up if I had to give up my meds."

• Yan...
• Taken for 1 to 6 months
• November 29, 2016

Ustekinumab for Psoriatic Arthritis "Amazing! Stelara saved my life. It worked within my first injection, and by the next month, I was 90% clear. I just got my 12-week follow-up, and I'm 100% clear, still taking my injection, but clear. I was covered head to toe 3 months ago."

• Zig...
• May 24, 2017

Ustekinumab for Psoriasis "Dear all. I am 49 years old (M) just started the treatment. I just would like to let you know after a week my affected skin spectacularly improved. Improved means I do not have any peeling areas… :-) I will get another injection for next month, and after every quarter. I am starting to believe again it will work after many other useless alternative treatments. Although I do not know the side effects... I'm a little frightened of what I read... but I am so happy :-)"

• Joe...
• Taken for 6 months to 1 year
• November 24, 2020

Ustekinumab for Crohn's Disease "Stelara was a 1 star for the first 24 weeks. The waiting period was ridiculous. I just did my third at-home injection, so today puts me at 32 weeks. I did not see any results until about 24 weeks on the medication. Stelara works for Crohn's, you just have to give it time to work. Now we are starting to work on the dosing schedule to prevent flare-ups around dosage time."

• Jun...
• Taken for 1 to 2 years
• February 1, 2022

Ustekinumab for Crohn's Disease "I've had Crohn's for 30 years. Tried Remicade, Humira, now Stelara. The only thing it's doing is worsening my diarrhea. Not helping the Crohn's, but the day of treatment and for weeks after, diarrhea is greatly increased. No other effects. Would be a great medication for those with chronic constipation!"

• dfh...
• October 3, 2010

Ustekinumab for Psoriasis "I had my first Stelara injection 2 months ago (and a booster 30 days ago). The difference is amazing, I have no more flakes, the redness is down to pink. I can wear shorts in public and not be embarrassed. No side effects at all! This is a fantastic drug."

• Chr...
• May 26, 2020

For Crohn's Disease "I was diagnosed with Crohn’s disease at age 22; I am currently 34. For 10 years, my disease was unmanageable, and I suffered a great deal. I have tried every biologic and every Crohn’s medication with no luck. Two years ago, I began using Stelara, and this drug has saved my life and offered me a shot at remission. I did still flare for the first six months, but I have basically achieved a full remission. During my remission on Stelara, I was able to carry to term my first pregnancy; a true miracle that wouldn’t have been possible without this medication. I decided to withhold my injection in the third trimester and postpartum so I could breastfeed. I am one and a half months postpartum, and I am developing a flare-up, so I will resume my injection. Baby and I are both healthy so far. I wanted to share my story because I know that I wasn’t able to find a similar account when I was looking for answers."

• Cre...
• July 22, 2016

Ustekinumab for Psoriasis "What a life changer! I started Stelara 2 months ago. It took about a month for me to start seeing some relief, and now at the end of my second month, no more itching, redness, and almost all of the psoriasis is gone. I only wish I had started this sooner! Make sure you check out the patient assistance card that can be used in conjunction with your medical insurance."

• MsP...
• March 11, 2012

Ustekinumab for Psoriasis "I'm 26 and was diagnosed with psoriasis about 5 years ago. I have psoriasis all over. I've tried everything from topical ointments to PUVA light treatments. The lights helped externally, but with psoriasis, we need help from the inside out. I've tried Enbrel and Humira. I've been on a waiting list for Stelara. I finally received my first shot last week, and this is amazing. Within this one week, all of the flakiness is gone, and my patches are reduced to a soft pink flesh color and are no longer warm to the touch. I can tell it's slowly working and cannot wait for my next shot. The only side effect that hit me was an upper respiratory infection, which included coughing and a sore throat and only lasted a week."