Ustekinumab User Reviews & Ratings (Page 3)

• Cri...
• Taken for less than 1 month
• February 9, 2018

Ustekinumab for Crohn's Disease "I am on week 2 of the initial Stelara IV infusion. So far, no side effects! (As I had with Humira, Cimzia, and Remicade.) I have noticed that I am able to tolerate milk a bit more than I was able to prior. Not as much gas or abdominal cramping. Looking forward and hoping the medicine will help me achieve remission!"

• Dru...
• January 30, 2016

Ustekinumab for Psoriasis "I am 41. I have had psoriasis since I was 3 and was misdiagnosed from the beginning as anything from warts to cradle cap. I've used coal tar, all of the lights (including PUVA), steroids, vitamin D, diet, Chinese herbs, acupuncture, and methotrexate (probably more I can't remember). I have never been more clear than I am now. I've had no side effects that I am aware of and couldn't be happier. I was afraid of biologics, but I should have embraced them sooner."

• RG1...
• September 12, 2016

Ustekinumab for Psoriasis "I've been battling severe scalp psoriasis for 6 years, as well as the beginning of psoriasis in my genital region. Topicals didn't come close to helping. I was on Otezla for 3 months, but the side effects (vomiting, diarrhea, and headaches) were horrible. I tried Humira for 5 months, but it didn't reduce the plaques enough. After my first Stelara injection, there was a dramatic decrease in my scalp psoriasis, and the few patches on my genital region disappeared completely. After the second injection, my scalp is 80% clear with no itching or burning. The injection itself is pain free, the needle is maybe half an inch. I haven't had any side effects either. Highly recommend, I'm so happy with the results!"

• Rac...
• Taken for 6 months to 1 year
• June 26, 2020

Ustekinumab for Crohn's Disease "Stelara put my severe Crohn’s disease into remission, and it has stayed that way for the past 6 months. The shots don’t hurt very badly, and it’s only 1 every 8 weeks for me! Side effects I’ve noticed: headaches, fatigue, groggy day after shot."

• Kdu...
• Taken for 6 months to 1 year
• May 18, 2017

Ustekinumab for Psoriasis "I have had severe plaque psoriasis for 32 years. I am a 50-year-old male. I have tried everything you can imagine over all those years. Even a 6-week program at the University of Michigan did not help the 85% coverage I have had since I was 18. Nothing worked until July of 2016 when I had my first Stelara injection. Within 3 months, I was almost clear, and almost a year later, I am clear except for a couple of spots under my fingernails. It is a miracle to me. If you have lived with it, you know what I mean."

• In ...
• Taken for 1 to 6 months
• August 4, 2012

Ustekinumab for Psoriasis "After going through the PUVA, topicals, vitamin E, fish oil, dry skin lotions, both tanning under the sun, and even meditation. The answer to my psoriasis has finally arrived after 10 years in the form of Stelara. I'm 47 years old, single, work out at the gym 2x a week, and mountain bike every weekend. Two weeks after my first shot in June 2012, I saw improvement in my skin: the scales were flatter, and I didn't itch as much, and my dry skin didn't seem to be as dry as it was. My face and scalp had the most obvious clearing, that my hair stylist asked what shampoo I was using. When I came back for my next injection in July 2012, I was 90 percent clear! Now I believe I am 100 percent clear. So far, no side effects. Thank you, Stelara."

• Mar...
• August 18, 2014

Ustekinumab for Psoriasis "Stelara is an excellent medication. I first contracted psoriasis through strep throat. I was covered in red spots from the neck down. Previously, I used a medication that cleared it up, but it was harsh and made my hair fall out! I switched to Stelara, and it cleared it up within days, I kid you not. The only side effect has been fatigue and maybe a mild case of depression (which I'm not sure can be attributed to the Stelara). I'm only giving it a 9 because it won't clear up the patches on my face, and it is very expensive (right now the cost is 19,000, but Johnson & Johnson is covering it). Highly recommend though."

• Cli...
• August 9, 2015

Ustekinumab for Psoriasis "Stelara is a wonder drug! It has cured up to 98% of the psoriasis I have suffered from for 50 years. No side effects (so far), apart from helping with arthritis of the knees. I can recommend this drug, although very expensive, from my personal experience."

• PJ ...
• February 7, 2010

Ustekinumab for Psoriasis "Stelara completely cleared 90% BSA, including severe palmar-plantar pustular psoriasis within 52 days of initiating treatment. Side effects included extreme fatigue lasting approximately 72 hours after each application. Feeling 'sunburned' was noted for several days after initial fatigue."

• Bgu...
• Taken for 1 to 6 months
• June 21, 2015

Ustekinumab for Psoriasis "I'm 53. I've had psoriasis for as long as I can remember. It has been moderate most of that time. About a year ago, it started getting bad. My dermatologist tried the new oral medication. After three months, it was still getting worse. I got to 95%. I couldn't sleep from the intense burning and itching. They decided to put me on Stelara. Within a week, I noticed a huge difference. I just got my 1-month shot. My upper body is completely clear. I only have a few spots left on my lower legs and feet. I was actually on Enbrel 8 years ago. It did work, but this Stelara is incredible. I can't remember when my skin was this clear. My girlfriend just bought me a bunch of short sleeve shirts. It is totally amazing."

• ase...
• September 7, 2013

Ustekinumab for Psoriasis "Wow, what can I say? This medicine has changed my life. My head was the worst, completely covered. Had to put oil on it and leave it on most of the day or overnight. My head would be stiff after 3 days with the buildup. After one treatment, it was completely gone. So happy now. Was thinking about going on disability, but now I don't have to."

• Kar...
• Taken for 6 months to 1 year
• April 19, 2021

Ustekinumab for Crohn's Disease "I was diagnosed 20 years ago and had a right hemicolectomy 15 years ago. Humira stopped working for me, so I was changed to Stelara 6 months ago. The first couple of doses caused intermittent headaches and I felt tired but kept on them. Started with urinary infections, bad constipation resulting in internal bleeding and hemorrhoids, really tired and depressed caused by the constant headaches and joint pain, so I'm giving up on them."

• Joa...
• Taken for 2 to 5 years
• February 1, 2019

Ustekinumab for Psoriasis "When I started on Stelara, I was covered from head to toe. I’ve been on it now for 4 years, and I have no psoriasis! No side effects! I have a pixie haircut now for the first time! It’s changed my life!"

• NYC...
• April 9, 2017

Ustekinumab for Psoriasis "I am a registered nurse and have had psoriasis since I was 12. I am now 56. It was mostly contained to my scalp during the winter months. But I started experiencing psoriatic arthritis, which was getting worse in my hands and feet. One month after starting Stelara, I noticed a difference. It has been 9 months, and I have no more psoriasis or arthritis pain. I did not experience any side effects. I highly recommend this product."

• TDa...
• June 25, 2015

Ustekinumab for Psoriasis "I've had psoriasis and some psoriatic arthritis since I was 12. I'm 40 now. I had 95% body coverage and started taking Stelara as one of the first trial patients in Canada in early 2009... what a difference. No more throbbing knees, and I hover between 5-10% coverage now. It was at 0% for a couple of years, but I had an injury and gained a bunch of weight, so that is why it's up now (maybe 3 kids doesn't help either ;-). The only issues I have are the price (thankfully it's covered) and the fact that I am more susceptible to colds and flu, and will get sunburn easily if I don't watch out."

• Har...
• July 22, 2015

Ustekinumab for Psoriasis "64-year-old male, chronic plaque psoriasis since age 12. Hospitalized many times. Previously tried everything including PUVA, UVB & tar, dithranol, topical steroids, topical calcipotriol, acitretin, cyclosporin, methotrexate, fumaric acid esters, infliximab (Remicade), and finally now Stelara. All treatments, with the exception of acitretin and cyclosporin, have been effective to some degree up to full clearance, but the relapse time was always short. Was on Remicade for 3.5 years, which was very effective but lost its effect over the last 6 months. Have just had my 3rd set of injections (2 at a time) and am as clear as I have ever been in 52 years. Truly life-changing. Paid for by NHS!"

• Cal...
• Taken for 2 to 5 years
• November 29, 2023

Ustekinumab for Ulcerative Colitis "It's been more than two years since my initial infusion with Stelara, followed by an injection every 8 weeks. This drug has been a true miracle for me. Prior to it, I was convinced I was going to die: Ulcerative colitis had created a true nightmare of the most awful GI symptoms you can imagine. I was in pain daily, and everything was worsening. It took THREE specialists before one ultimately prescribed me Stelara after lesser therapies had no effect. I was anxious and doubtful because NOTHING had worked, the illness was progressing. Symptoms eased within two weeks of my initial infusion, and after my first home injection, they had improved by about 85%. After my second injection, symptoms improved almost completely. Within a year, my doctor said I had no signs of the disease. At two years, he has said I am officially 'in remission.' My only side effect worth noting is EXTREME fatigue starting 24 hours after injection, lasting for about 24 hours after that. I simply plan for a 'nap day.'"

• mds...
• November 5, 2014

Ustekinumab for Psoriasis "Have been on Stelara for about a year and a half. When started, I had 50-60% coverage. It was down to about 10-15% by the time I had my second injection, and down to about 5% by the time I had my third. It has remained about that level since, but now only consists of flat pinkish spots that barely itch at all and look more like old scars than the scabby, cracked, bleeding mess they were before. As for the side effects, I seem to be more prone to various infections than before. I seem to catch colds more easily. Also, I usually feel some muscle pain and fatigue starting the day after my injection and lasting for a couple of days (easily dealt with by scheduling my appointments on Friday afternoons and taking it easy over the weekend)."

• Kyb...
• Taken for 1 to 2 years
• July 26, 2016

Ustekinumab for Psoriasis "I was 90% covered. The dermatologist took one look at me and put me on Stelara. Within a week, people started remarking that the plaques along my hairline seemed to be fading. After the booster, all but my scalp and back of thighs had cleared, and both of those were greatly diminished. Within six months, the raised red areas where the plaques had been were clear. At one year, all that's left is minor plaques on my scalp that could be mild dandruff. I have noticed that things like bruises and bug bites seem to take a long time to heal, but given the action of the drug, that seems to make sense. My insurance covers the majority of the (expensive!) medication, and there is a program that covers the rest, so I have no out-of-pocket expense on it."

• AMA...
• Taken for 2 to 5 years
• September 2, 2013

Ustekinumab for Psoriasis "I have suffered from severe plaque psoriasis for ten years. I have taken every biologic medicine that is available, and Stelara has been by far the BEST. It has totally changed my life the past two years, and the GOOD news is my dermatologist said it is not one of the medicines that eventually stops working like the others. If it clears you and you are healthy with no major side effects, it's possible to live a psoriasis-free life for years! The side effects of many biologics were harsh, especially Remicade, but the last two years on Stelara, I have only noticed a bit of fatigue and only one upper respiratory infection."

• Ada...
• October 20, 2015

Ustekinumab for Psoriasis "28-year-old male. Been on Stelara for 2.5 months, went from 70% covered to almost 0%. It had worked amazingly. Just a question: does anyone know how long it takes to start seeing some of the red go away that was in the really bad spots? Thanks all, and good luck."

• Gwy...
• April 17, 2010

Ustekinumab for Psoriasis "Psoriasis diagnosis: I received my first injection the end of December 2009, and I saw an immediate difference within the first two weeks. The second injection was due; however, I was ill with an upper respiratory virus, in which my doctor indicated to wait until it was resolved. I was about 1.5 weeks late with the second injection. I was flared and received the second injection with itching down 50% and cleared approximately 40%. Two weeks after the second injection, I developed moderate arthritis symptoms in my shoulder, right knee, and my finger joints. It was time for the third injection after waiting 3 months. I remained at the 40% clearing. I discontinued this medicine due to joint issues and flaring increase by the end of the third month."

• Met...
• Taken for 1 to 2 years
• October 5, 2013

Ustekinumab for Psoriasis "Back when Stelara was first approved for psoriasis, my dermatologist went ahead and put me on it. I cleared in one shot, took the next 2, and we laid off. Minor side effects - some swollen tonsils and sinus issues. Fast forward a year and a half - went back on it - after my second shot, I spent the next 6 months going through a continual round of sinus infections that required injected antibiotics and got confirmed influenza A despite being vaccinated. Tests showed likely my immune system couldn't handle."

• Kat...
• Taken for 1 to 2 years
• July 12, 2024

Ustekinumab for Ulcerative Colitis "This is the best medication I've tried for UC after being on Remicade and Humira altogether for 3 years without much success. Stelara works great. I've been in remission for almost a year. It started working immediately after infusion, and then on my first injection, I felt so much better. My only complaint is that it gives me some joint pain for a few days, and then I'm back to normal again."

• The...
• Taken for 1 to 6 months
• October 25, 2016

For Crohn's Disease "Wow. I have tried every medication: 6MP, methotrexate, Humira, infliximab, vedolizumab, etc., all failed in the end, and my latest try, vedolizumab, didn't work at all. I was in a flare for 8 months, my consultant said the only option left was to remove my colon. I have never been in so much pain and weight loss. Then I got a call from the hospital saying the drug company was willing to offer me ustekinumab. It's not licensed in the UK yet for Crohn's, so I wasn't sure. But OMG, within 9 days of treatment, I've never felt so good. I must admit in those 9 days when I never felt anything, I thought it wasn't going to work, then boom! I woke up one day and felt amazing. If you get offered this amazing drug, just give it time and it will work wonders."