Upadacitinib User Reviews & Ratings (Page 5)

• Anonymous
• Taken for 1 to 2 years
• July 1, 2022

For Rheumatoid Arthritis "Been on Rinvoq for nearly two years. I started at 67 when I couldn't walk from bad rheumatoid arthritis. Both knees had cysts and shooting pain from a fall off my bike several years ago woke me up at night. Rinvoq worked miracles for me. Started gardening and cooking again. Only take every other day as I am about 120 lbs, 5 ft 6 inches tall. Also, as an elderly person, meds don't metabolize as quickly. However, I do stop taking it whenever I feel a scratchy throat or run down from cold symptoms. Also stop if I get a mouth sore from biting myself when chewing."

• Dar...
• February 28, 2022

For Rheumatoid Arthritis "I am a 61-year-old woman. I was diagnosed with RA years ago. My specialist had me on so many meds, I even had to take injections. They didn't work, I was in so much pain. I had a hard time getting up in the morning and walking around. I have it in my hands, fingers, toes, ankles, and knees. I started seeing a new specialist, and he put me on Rinvoq. I have been on it for almost 2 years. I have been noticing I am always tired and sleep a lot. I don't know if this is because of the meds, or is it just me. I have been breathing deeper too, so is this normal or what? But I do not have any pain. I can walk again without pain."

• Yog...
• Taken for 1 to 6 months
• July 21, 2023

For Ankylosing Spondylitis "I have HLA-B27 marker. Been on Sulfasalazine, Enbrel, and Cimzia during the last 15 years. During the last few years, the pain had become unbearable. My rheumatologist suggested RINVOQ. Been on it for the last four weeks. Pain has now become bearable and feel much, much better the way I used to feel a few years back. I do not know of its long-term impact, but am happy with it now."

• Not...
• Taken for less than 1 month
• December 3, 2021

For Rheumatoid Arthritis "I have been taking this medicine for a week. My blood pressure has been uncontrollable, and I have been having headaches. I was diagnosed with juvenile RA and haven't had to take any medicine. I was trying it to see if it helps for occasional pain. I believe I will stop it and do more natural things. Don't like how I was feeling."

• Pet...
• Taken for 6 months to 1 year
• April 10, 2023

For Rheumatoid Arthritis "Severe respiratory issues, shortness of breath, small skin sores all over my body, and fatigue. I've had severe rheumatoid arthritis for some 35 years now. I've been on pretty much every medication available, with some of them giving pretty severe reactions. In my case, Rinvoq has been one of the more difficult medications regarding the side effects I've experienced. Having said that, we're all different, what affects one may not cause the same issues with another."

• Stu...
• Taken for less than 1 month
• August 31, 2021

For Rheumatoid Arthritis "I have psoriatic arthritis, just got off of one medication that kept me sick 3/4 of the time and prescribed Rinvoq. After reading all these comments, I have decided not to take this. I would rather suffer with my arthritis than subject myself to more sickness. The last 3 months on the other medication have been a living nightmare, and I don't want that again."

• Anonymous
• Taken for less than 1 month
• June 9, 2022

For Rheumatoid Arthritis "Started Rinvoq 4-5 weeks ago, and the past 3 weeks I’ve had extreme cystic acne appear! It started on my scalp, then around my hairline, behind my ears on my neck. Now it’s all over my chest and my back. I’ve never had skin issues, and this is ruining my skin!"

• rob...
• Taken for 1 to 6 months
• June 28, 2023

For Ulcerative Colitis "I have had ulcerative colitis for forty plus years. I've been on steroids off and on, then had an infusion that did not work. So, I'm trying this. My situation is that they can't cut it out because it is the lower part. That would be a last resort."

• Tom...
• Taken for 2 to 5 years
• May 26, 2023

For Rheumatoid Arthritis "I have been taking Rinvoq for a number of years to combat my arthritis. I have seen incremental reduction in pain levels and local swelling after a few years of 15 mg/day. I haven't experienced any serious side effects while taking this drug."

• Lin...
• Taken for less than 1 month
• February 6, 2025

For Crohn's Disease "So far, I feel better with the Crohn’s. It has caused a decrease in libido and possible change in mood. Increased anxiety and depression since taking it. Not sure if that is linked. I have not experienced any other unwanted side effects. I have improved energy levels, and the Crohn’s feels under control."

• Anonymous
• Taken for 1 to 6 months
• December 12, 2021

For Rheumatoid Arthritis "I was diagnosed with RA in 2020. I was first put on hydroxychloroquine, then methotrexate, which did not work for me, then Rinvoq. I took Rinvoq for 3 months and started to feel the drug working well on the RA. I had less stiffness and pain, but between the third and fourth month, I started to feel my heart beating rapidly, like it was on a treadmill. I had to stop taking it, and now I have to see a cardiologist. The drug was working, but my heart could not tolerate it."

• Ano...
• Taken for 1 to 6 months
• March 28, 2025

For Ankylosing Spondylitis "This drug has been a lifesaver. I was in so much pain I could hardly walk. Between the back pain and the pain in both knees, I was going crazy. I'm finally on my way to healing. I thank God my doctor put me on Rinvoq."

• Nor...
• Taken for less than 1 month
• May 12, 2023

For Rheumatoid Arthritis "My doctor has recently asked me to start Rinvoq. I’ve had RA for 24 years and have been on Methotrexate, sulfasalazine, Plaquenil, Enbrel, Orencia, Kevzara, and Cimzia. I’ve had multiple foot surgeries to correct deformities. I’m so bad now I’m wondering if I can continue to drive a car. I can barely lace my shoes. I finally acquired a bad infection and have spent months on IV meds plus another surgery. I thought things couldn’t be much worse, but after reading the reports of all of these horrible side effects, I realize things could be MUCH worse. I’ll eat the cost of this drug this month, but I won’t take it. How does the FDA allow drugs like this to be released? How can it be effective when you pay for it in misery?"

• Pam...
• Taken for less than 1 month
• February 2, 2023

For Rheumatoid Arthritis "I started Rinvoq 3 weeks ago, and it eased the pain right away. However, after taking it for a week, I felt fatigued and tired all the time, had low energy, and was irritable. Then my vision started getting bad, and I became overly hungry. After 2 weeks, I had enough and stopped taking the medication. I have been off the medication for almost a week now, and my vision is coming back."

• Anonymous
• May 3, 2020

For Rheumatoid Arthritis "Has anyone tried this after Humira? I was on Humira for years and did great, but had to stop when I couldn't afford it because I was student teaching. Fast forward about 4 years later and wanted to get back on it... been on for a year but not seeing the same result after restarting... granted, I haven't always been able to be consistent with it because the mail-order specialty pharmacy my insurance uses is a mess."

• Bab...
• January 17, 2023

For Psoriatic Arthritis "Rinvoq has been a lifesaver for me. I went from being invalid, so fatigued that emptying the dishwasher had me experiencing excruciating flares, to being able to put in a 5-hour day around the house with very little pain. I was on prednisone, methotrexate, and Cimzia and had a very bad reaction to one of those drugs. The longer I have been on Rinvoq, the better my symptoms improve. I have a very low dose, but I may talk to my rheumatologist about going up to the next dose. No regrets."

• Anonymous
• Taken for 1 to 6 months
• September 13, 2022

For Rheumatoid Arthritis "I’ve had RA for 20 years, treated with a dozen different meds. Started Rinvoq about a month after having Covid and soon developed strong headaches; I’ve never really had headaches before (I’m 54). It hurt to move my eyes; difficult to even watch TV. My rheumatologist told me to drop Rinvoq, and the headaches got better immediately… but didn’t 100% disappear. Now just low-grade. I started wondering if they were a leftover issue from Covid, so after 2 weeks, I restarted Rinvoq. Noticed my energy level and mood dropped right away, BUT joint pain did, too. I switched to taking it at night, and that helped with fatigue. But, a month and a half in, the headaches are returning daily, I’m dragging through the day, and I’m feeling discouraged, wondering if this will just be life from now on. Joint pain seems to be returning, too. I used to think crushing fatigue was a result of RA flares, and now I’m beginning to think it’s actually from the meds."

• Cha...
• Taken for 1 to 6 months
• August 27, 2022

For Rheumatoid Arthritis "I was diagnosed with RA in 2019. I tried Rinvoq first with side effects of depression, acne, etc. I stopped taking that, then my RA doctor put me on Methotrexate, the shots. Lucky I had very good insurance, very expensive. The side effects are bad, I learned it was a chemo drug when all my hair fell out. Stopped taking that. My doctor said I would have to start infusion, really. I asked about other alternatives, e.g., diet or herbal remedies. The doctor did not want to hear it. I no longer have a job, no insurance, and no doctor. I keep looking for relief and pray every day to God. I pray each of you will find relief. Take care, and God bless you. CB"

• Rob...
• Taken for 1 to 6 months
• June 29, 2023

For Ankylosing Spondylitis "I was on TNF blockers, and after a while, they stopped working. I switched to Rinvoq, and I've been much happier. I still have stiffness and pain, but on a way smaller scale than before. It went from an 8 down to a 4, which makes me happy. I did have a shingles problem which is clearing up. I also had a plugged tear duct problem. I had to have it drained four times. The other thing is I'm really tired, but I'm not sure if it's the medication or stress from work. I've been slowly losing weight, but I'm able to walk and exercise, so I think it's from that more than the medication. Overall, I'm really happy with it."

• Cee...
• Taken for 1 to 2 years
• September 4, 2024

For Atopic Dermatitis "For years (>20) I suffered from atopic dermatitis over 80% of my body. Symptoms were severe itching, red, sore patches that were worsened by scratching. I was treated with many medications, including topical ointments such as Diprosone, methotrexate, cyclosporine, and biologic injections. None of these treatments, including UVA treatments, relieved the symptoms to any extent, they controlled the condition to a small degree, but at night time I would scratch without realizing until I woke to see my arms blackened by bruising and sometimes bleeding. Eventually, I was placed on Rinvoq as a trial and found this to be a lifesaver. One 15 mg tablet a day has stopped all my itching, and my skin has returned to normal. On the odd occasion where I have forgotten to take the tablet, the next day the itching skin returns, so I know Rinvoq is certainly controlling my eczema. I haven't noticed any adverse side effects from this medication, so I am very happy with the results."

• Win...
• Taken for 1 to 6 months
• September 5, 2023

For Psoriatic Arthritis "This medication is excellent so far. I have been taking it for about 4 or 5 months, and I can tell a noticeable difference in my flares and pain levels for the psoriatic arthritis. The most incredible thing about this medication is that it cleared my skin in only a few weeks. I have psoriasis on my joints (over knuckles, knees, elbows, etc.), the palms of my hands, the soles of my feet, and my wrists. They are all much better. I hope they approve this for just the skin condition soon so those who need it can find relief."

• Flu...
• Taken for 2 to 5 years
• May 27, 2023

For Rheumatoid Arthritis "My lab results are good. My level of fatigue did not change, but seems to work as good as Enbrel, Humira, and Actemra. They all worked well up until 3 years, and then they stopped. Coming up on the 3-year mark with Rinvoq."

• Anonymous
• May 2, 2023

For Atopic Dermatitis "With my asthma and atopic dermatitis (AD), I’ve been on various medications. I’ve never had reactions. Two days in using Rinvoq, I had severe eye swelling, lip swelling, and face swelling. Pins and needles all over my body. I also had zero energy, vomiting, and intense dizziness. This drug has a black box warning for a reason. There are so many other options, truly not worth it."

• Mar...
• Taken for 1 to 6 months
• July 29, 2023

For Atopic Dermatitis "I'm a 60-year-old male and have had atopic dermatitis for around 12 years. It appeared suddenly with no apparent cause. Over the years, I've been on ciclosporin, dupilumab, and tralokinumab. All resulted in side effects - opportunistic infections with ciclosporin and significant eye irritation and inflammation with the biologics. Started taking Rinvoq 30 mg daily in Autumn 2022, and at first, it was very effective - no skin irritation or itching. However, I developed a nasty herpes simplex viral infection after around 5 months, which floored me completely. Felt as bad or even worse than I had with COVID. Only cleared up after a course of antivirals (acyclovir). After discussion with my dermatologist, I stopped taking Rinvoq, but now my eczema has returned with a vengeance. Large patches of inflammation all over my body, and it's now starting to keep me awake at night. Feel I have no option but to restart Rinvoq, but going to try a lower dose of 15 mg per day as suggested by my dermatologist."

• Tad...
• Taken for 1 to 2 years
• February 2, 2024

For Rheumatoid Arthritis "Rinvoq has been the only medicine that has helped, minus steroids, in my 3-year battle with severe RA. It has come with its fair share of side effects, with the most prominent one being dizziness and vertigo spells lasting long periods of time daily. Mild cases of heart discomfort and acne. It's hard to weigh in if it's worth it, as it's the only medication, minus steroids, as mentioned before, that has worked. I've tried just about all besides one more, so it's alarming that I'm on my last two options, so I'm continuing for now."