Upadacitinib User Reviews & Ratings (Page 3)

• Brenda
• Taken for 1 to 2 years
• October 10, 2021

Rinvoq (upadacitinib) for Rheumatoid Arthritis "I have been on RINVOQ for about a year and a half. It was working great for the pain and stiffness, and then I started getting short of breath and a cough. It wasn’t too bad at first, but it has progressively gotten so bad that I cough all day, and the least little thing I do, I’m short of breath. I have stopped taking the medication, but I have still not improved. Does anyone know how long it takes for this medication to leave your system?"

• Steph...
• Taken for 2 to 5 years
• September 25, 2023

Rinvoq (upadacitinib) for Ankylosing Spondylitis "I started taking Rinvoq as part of a clinical research study and noticeably felt better within weeks of taking this medication. I had stabbing pain in my SI joints when I was walking, standing, or sitting. Severe stiffness in my hips and my spine felt like it had been inflated prior to medication. Rinvoq helped reduce the inflammation, making it less painful to move and function. I have experienced no side effects from the medication through my 2 years of taking 15mg tablets. It is easy to use, in a once daily pill form. The cost is overwhelming but I have been able to qualify for manufacturer discounts through a specialty pharmacy. This medication has changed my life for the better!"

• Still...
• Taken for 1 to 6 months
• February 4, 2023

Rinvoq (upadacitinib) for Ulcerative Colitis "I have been taking Rinvoq for around 6 months, but I have decided to stop. Although I think it has helped with my Ulcerative Colitis and stopped the bleeding, it is not a suitable medication for everyone. As a 52-year-old man, I have experienced various side effects that have gotten worse over time, such as fatigue, stomach pain, intestinal blockages, and severe acne on my face, neck, and scalp. Additionally, the insurance process for this medication has been a hassle."

• Julie
• Taken for 6 months to 1 year
• November 17, 2021

Rinvoq (upadacitinib) for Rheumatoid Arthritis "Been on Rinvoq about 8 months. Shortness of breath couldn't walk to the mailbox. All heart tests negative. Sitting here and realized these symptoms coordinated with taking this drug. Starting tomorrow, no more Rinvoq."

• barb
• Taken for 2 to 5 years
• March 7, 2022

Rinvoq (upadacitinib) for Rheumatoid Arthritis "I have had RA for 3 years, nothing worked except Rinvoq. I was almost normal, almost no pain, and could do normal activities. I am a 61-year-old woman. I have always had a cough, but it worsened with Rinvoq, but I continued with the drug. Went for a routine lung test, and they found fatty tissue on my lungs, did more X-rays and CT scans. Now they have found that my lymph nodes are abnormal, going for a biopsy next week. Seems this could be a side effect of Rinvoq, now I am scared."

• Anonymous
• Taken for 1 to 6 months
• January 4, 2023

Rinvoq (upadacitinib) for Ulcerative Colitis "Been on medication for 2 months and going on maintenance dose now. It has so far kept my UC under control after a 8 month flare up. However the last 3 weeks I have been suffering with dermatitis on my face, neck and chest. I’m struggling getting rid of it with topical treatment and don’t know if caused by Rinvoq. Also I feel like I have unexplained weight gain but not sure yet if caused by Rinvoq."

• Never...
• Taken for 1 to 6 months
• August 28, 2022

Rinvoq (upadacitinib) for Rheumatoid Arthritis "I was on this medication for several months, and had a stroke at 42! I stayed in the hospital over a month, had over 13 doctors during this time. 11 out of 13 doctors said that Covid shots and this medication were a bomb waiting to happen! Causing a major stroke! I had very little signs and symptoms but enough to know something wasn’t good. I suffered with dizziness, headaches, chest pain, shortness of breath, and all of this made me always think I had Covid! The same symptoms for Covid are pretty much the same symptoms for every medication in the world that you take! It’s really hard to determine what symptom goes with what diagnose this day and age! Don’t wait until it’s too late just stop taking this medication and try something else. It’s not worth it!"

• Luano
• Taken for less than 1 month
• September 7, 2020

Rinvoq (upadacitinib) for Rheumatoid Arthritis "I have taken methotrexate, prednisone, Humira, and Xeljanz for rheumatoid arthritis. Due to inflammation, I have been put on Rinvoq for 2 weeks now. I’m nauseous, have dry eyes, blurred vision, and fibromyalgia. I also have Type 1 diabetes, pancreatitis on Fiasp/Toujeo, and ulcerative colitis."

• Color...
• November 4, 2023

Rinvoq (upadacitinib) for Rheumatoid Arthritis "My improvement was both astonishing and quick. Within 4 days of taking Rinvoq, the 'me' I was before RA was coming back. As seven medicines had already failed me, I began Rinvoq, as usual, optimistic but fatalistic. Even if it worked, my RA history made me only cautiously optimistic—one previous Rx had worked but sent my liver enzymes high, forcing me to stop. So, when I started to feel immensely better by that first weekend, with more energy, with pain & swelling reduced to almost nothing, I was incredulous. I could not believe the difference. Five months later, I am a huge fan. My energy is almost all back (hurray!), I've had only one very, very minor flare, and after two blood tests my ALT remains only mildly elevated. So, yes, I am an enthusiastic fan with a close-to-normal schedule of life. I take a daily 15mg pill, easy to do. For me, this medicine has results that I'd lost hope for. I have 'me' back."

• Mom
• Taken for 1 to 6 months
• January 14, 2021

Rinvoq (upadacitinib) for Rheumatoid Arthritis "I have tried many meds for RA. Was very successful with Xeljanz but had continual sinusitis. Now Rinvoq is not as successful for pain/RA, but I get less sinusitis. Also developed very oily skin and acne about my neck, face, and shoulders. I am 58 and on HRT as well and MRX 10 mg."

• BEWARE
• Taken for 1 to 6 months
• April 22, 2023

Rinvoq (upadacitinib) for Ankylosing Spondylitis "I have tried Enbrel, Humira, methotrexate, etc, and finally Rinvoq. At first, I had a positive response and started to feel much better but then after 8-10 weeks the 3-4+ pitting edema became unbearable and the shortness of breath was downright frightening coupled with total exhaustion. I was unable to maintain my daily routine and functioning. I had all of the signs and symptoms of congestive heart failure. It finally got to the point that I had such labored breathing my cardiologist and others were very concerned - and this was two weeks post-stopping Rinvoq. My afib was having a field day and I felt awful all of the time. At this point, I am three weeks out from stopping the Rinvoq and am wondering how long this will continue until my system has cleared this medication. It is black-boxed for cardiac amongst other things and this warning should be seriously taken under consideration before starting this medication. I felt like I was dying - think long and hard before you take it."

• Paula...
• Taken for 2 to 5 years
• July 2, 2023

Rinvoq (upadacitinib) for Ulcerative Colitis "This is an amazing drug that I have now used for about two years. My UC was so bad, I could not leave the house. I have tried all the others with no success, including Entyvio and Stelar. I have my life back! The only side effects are folliculitis on the scalp and possible weight gain. For me, it's a godsend. I'm on the maintenance dose of 30 mg."

• Anonymous
• Taken for 1 to 2 years
• May 10, 2023

Rinvoq (upadacitinib) for Rheumatoid Arthritis "Rinvoq is a life-changing medication. I have had RA for 31 years. I have been on every treatment available but none gave me the relief this once a pill has. Not any infusion or injection could produce the life this has given me back. No more morning stiffness, no more swollen joints, no more nodules developing on my hands or wrists. I highly recommend this treatment for those that are struggling."

• Night...
• Taken for 1 to 6 months
• June 3, 2023

Rinvoq (upadacitinib) for Rheumatoid Arthritis "Many failed attempts from over six drugs for my RA, from oral to self-injections paired with methotrexate injections. I was put on Rinvoq in February 2023. Over time, headaches began, and I noticed elevated blood pressure. My PCP would tell me it's my OSA (obstructive sleep apnea). A couple of months later, the headaches and full-body pain became excruciating. Nothing I took would help. My blood pressure would not go down and even reached as high as 190/104. I also experienced a fast heartbeat. I was a miserable soul and wanted to dig a hole and jump in. An ER visit did nothing to alleviate my symptoms. I finally had to figure this out for myself. I decided to stop taking Rinvoq for a couple of days to see what would happen. I noticed a little improvement after day three, so I continued not taking it. I flushed the medication out with nothing but water. By day five, I felt so much better, and one week later, everything had stopped. All I was going through were my normal day-to-day struggles from RA, osteoarthritis, and fibromyalgia."

• Sandra
• Taken for 6 months to 1 year
• September 16, 2021

Rinvoq (upadacitinib) for Rheumatoid Arthritis "I have been taking Rinvoq for 11.5 months now. This drug has changed my life. I noticed a big improvement in my pain symptoms about four weeks in. I am 95% pain-free, and most days I forget I have RA. I do get flares and bad pain every once in a while. The cons of this drug are that it gives me bad fatigue. The fatigue was very disruptive to my life for the first 6-7 months. I have a constant lingering feeling that I am getting sick but never actually get sick. I have also started breaking out around my chin and forehead. I am in my 20s, and during puberty, I did not suffer from any acne. Overall, this is a great drug for managing my RA and has given me a lot of my life back."

• misty
• Taken for 6 months to 1 year
• September 7, 2021

Rinvoq (upadacitinib) for Rheumatoid Arthritis "I have been on Rinvoq for about 9 months on and off. I have dry eyes, constant runny nose. Now I have pins and needles in my hands 90% of the time, ulcers in my mouth, and when I don't take the Rinvoq for a week or more, the pins and needles are rare. I think I'm gonna stop it before it stops me."

• esses
• Taken for 1 to 6 months
• November 27, 2022

Rinvoq (upadacitinib) for Atopic Dermatitis "I've only been on Rinvoq for a month to treat Atopic Dermatitis but am calling my Dermatologist tomorrow. The dermatitis has cleared up but at the expense of severe nausea, headaches, chills, cold sores and acne. I'm typically very active with running, biking, and hiking but in the last month of taking this I feel so bad all I want to do is sleep. In Rinvoq defence my body does not react well to most drugs so maybe it is just me but I've never had this bad of a reaction to any drug."

• Scien...
• Taken for 1 to 6 months
• July 14, 2022

Rinvoq (upadacitinib) for Ulcerative Colitis "So far so good - It's keeping my UC in check after about 1 month of taking 3x/day. I will be dropping down to the maintenance dose after 2 months assuming all continues to go well. The only side effect has been some pretty noticeable fatigue from time to time."

• Sue
• Taken for 6 months to 1 year
• April 21, 2023

Rinvoq (upadacitinib) for Atopic Dermatitis "I've been taking Rinvoq for almost a year now and had to increase from 15mg to 30mg because the itching and inflammation came back after about 20 hours of taking it. I've gained almost 15 kg!!! and I can't get it off without starving myself. The cholesterol and kidney values ​​are also noticeable but not yet worrying. All in all a completely new life and wouldn't want to have to vegetate without this effect anymore!"

• Jenny...
• Taken for 1 to 2 years
• January 4, 2024

Rinvoq (upadacitinib) for Rheumatoid Arthritis "Two and a half years ago, I was diagnosed with RA. Over a little more than a year and a half ago, the doctor tried methotrexate, Humira (2 shots monthly), and Inflectra infusions (every 2 months). I would improve a bit early on (from bad pain and stiffness) after the treatments, then I’d fall apart. Flare-ups, allergic reactions, bad pain & sadness would creep in. Within 2 days of taking Rinvoq, I felt great! I’m sorry to read the other reviews, as my experience has been very positive. Any infections I’ve gotten can be explained - and stopping Rinvoq for a few days helps my immune system catch up. Knock on wood it keeps working for me! I respond well to taking Rinvoq every day! Thank you for inventing and investing in Rinvoq!!"

• Eva
• Taken for 1 to 2 years
• November 3, 2021

Rinvoq (upadacitinib) for Rheumatoid Arthritis "I was using plaqueniI alone then the add methotrexate but gave me headaches. So they eliminated it for sulfasalazine. It makes it less painful. But dr said the I better use rinvoq. I have been taking Rinvoq for a year now with plaquenil and sulfasalazine. This addition make me feel a like gaining my normal life back. The problem is that I start to have continuous UTI infections in the last 8 month. Is very painful. So I am considering changing meds."

• Robyn
• Taken for 1 to 6 months
• October 21, 2021

Rinvoq (upadacitinib) for Rheumatoid Arthritis "I have severe chronic RA and was diagnosed when I was 30 years old. I have suffered with this disease for 20 years. I'm amazed! I just can't believe the difference this medication has made. I've been on a 4 week trial and after 2 weeks, I have not had one flare. I can move my wrists freely and my knuckles and fingers are pain free. So far I haven't noticed any side effects. I am also taking methotrexate in conjunction with Rinvoq once a week. I find taking Rinvoq daily is a big chore and would like to have it in a weekly or monthly dose!"

• jamie
• Taken for less than 1 month
• September 14, 2022

Rinvoq (upadacitinib) for Rheumatoid Arthritis "I started this medicine after Enbrel and Humira failed me within a week of taking this medicine I got shingles rashes mouth sores awful stomach pain back pain my heart was racing at 120 beats a minute I tried to reason with my Dr she said the benefits outweigh the risk, I say not so I am quitting the med and hoping for the best"

• Molly
• December 26, 2022

Rinvoq (upadacitinib) for Atopic Dermatitis "Been taking this Rinvoq for 3 weeks and it is nothing short of a miracle. Went from being so itchy that I couldn’t sleep to having everything cleared in just a few days. No more itching. I haven’t felt this good in years"

• meghan
• Taken for 1 to 2 years
• August 19, 2021

Rinvoq (upadacitinib) for Rheumatoid Arthritis "I have been on Rinvog for over a year. I previously tried Xaljanz and Olumient. I have had many problems with dizziness and vertigo. Has anyone else experienced these problems while on this class of drugs? I would appreciate any information on this debilitating problem. Thanks."