Upadacitinib User Reviews & Ratings (Page 3)

• Mom
• Taken for 1 to 6 months
• January 14, 2021

Rinvoq (upadacitinib) for Rheumatoid Arthritis "I have tried many meds for RA. Was very successful with Xeljanz but had continual sinusitis. Now Rinvoq is not as successful for pain/RA but I get less sinusitis. Also developed very oily skin and acne about my neck face and shoulders. I am 58 and on HRT as well and MRX 10 mg"

• Jesus...
• Taken for less than 1 month
• March 28, 2023

Rinvoq (upadacitinib) for Ulcerative Colitis "I am 64 and have suffered from ulcerative colitis/Crohn’s disease for many years. I was having entyvio infusions every six weeks for three years. It did help me a lot until it just quit. Daily bleeding pain and clots were back. My specialist put me on Rinvoq 28 days ago today. It stopped the bleeding etc., in 2-3 days!! My stools are completely normal and I have no urgency to get to the bathroom. I’ve been on 45 mg for 28 days. Tomorrow I start 30 mg. I’m so thankful for this medicine."

• Anonymous
• Taken for 1 to 6 months
• October 23, 2022

Rinvoq (upadacitinib) for Atopic Dermatitis "I’ve been taking Rinvoq for roughly 4 months to treat my severe atopic dermatitis. I have finally decided to call my Dermatologist tomorrow to stop taking it due to severe acne it is causing me. I tried to stick it out but I’ve noticed the acne getting worse daily. The skin damage from the acne it’s causing me is much more damaging than the atopic dermatitis. It definitely helped with my original problem but has lowered my self esteem immensely. The type of acne it has caused for me is not the normal type. I’m not exactly sure what it is but it will not heal and is creating holes in my skin."

• BEWARE
• Taken for 1 to 6 months
• April 22, 2023

Rinvoq (upadacitinib) for Ankylosing Spondylitis "I have tried Enbrel, Humira, methotrexate, etc, and finally Rinvoq. At first, I had a positive response and started to feel much better but then after 8-10 weeks the 3-4+ pitting edema became unbearable and the shortness of breath was downright frightening coupled with total exhaustion. I was unable to maintain my daily routine and functioning. I had all of the signs and symptoms of congestive heart failure. It finally got to the point that I had such labored breathing my cardiologist and others were very concerned - and this was two weeks post-stopping Rinvoq. My afib was having a field day and I felt awful all of the time. At this point, I am three weeks out from stopping the Rinvoq and am wondering how long this will continue until my system has cleared this medication. It is black-boxed for cardiac amongst other things and this warning should be seriously taken under consideration before starting this medication. I felt like I was dying - think long and hard before you take it."

• Luano
• Taken for less than 1 month
• September 7, 2020

Rinvoq (upadacitinib) for Rheumatoid Arthritis "I have taken Methotrexate / prednisone / Humira / Xeljanz for Rheumatoid Arthritis. Due to inflammation I have been put on Rinvoq for 2 weeks now. I’m nauseous dry eyes blurred vision and fibromyalgia. I also have Type 1 Diabetes Pancreatitis on Fiasp / Toujeo on and Ulcerative Colitis."

• Flowb...
• Taken for 1 to 6 months
• January 27, 2023

Rinvoq (upadacitinib) for Ulcerative Colitis "I have had Ulcerative Colitis (UC) for over 10 years and have never had much success with any medications (have used Mesalamine, Humera, Imuran, Entivyo, Stelara, and Prednisone in the past). After a year-long severe flare with 3 hospital visits, I started taking 45 mg of Rinvoq and my symptoms improved after only two weeks of treatment. Within 2 months, I was having solid bowel movements with no urgency or blood. The only side effect is a low white blood cell count which caused an abdominal infection (handled out of the hospital with antibiotics). This drug has given me my life back!! I have more energy now and can eat foods like raw vegetables that used to knock me down with pain and bleeding. I started on 45 mg for 8 weeks and lowered the dosage to 30 mg. I had a small flare for about a month when the dose was lowered but after it improved. Make sure to get regular lab work done and get skin checks yearly by a dermatologist when taking this medicine."

• Nebra...
• Taken for 1 to 6 months
• September 29, 2022

Rinvoq (upadacitinib) for Ulcerative Colitis "I have been on this med for about a month now for Ulcerative Colitis. I am losing my vision, I am getting mouth sores, I am breaking out in my scalp, my face, my cleavage, the back of my neck and upper back/shoulder area. I am exhausted, and I am still having stomach issues. I have decided that I am DONE. I am hoping my vision will improve now that I am no longer going to take this. It’s such a terrifying feeling to be losing your vision at only 42 years old. It’s miserable too. I can’t read anything without a pair of readers in the Strongest prescription. My eyes ache and throb. I shouldn’t be driving either."

• Sandra
• Taken for 6 months to 1 year
• September 16, 2021

Rinvoq (upadacitinib) for Rheumatoid Arthritis "I have been taking Rinvoq for 11.5 months now. This drug has changed my life. I noticed a big improvement in my pain symptoms about four weeks in. I am 95% pain free and most days I forget I have RA. I do get flares and bad pain every once in a while. The cons of this drug is that it gives me bad fatigue. The fatigue was very disruptive to my life for the first 6-7 months. I have a constant lingering feeling that I am getting sick but never actually get sick. I have also started breaking out around my chin and forehead, I am in my 20s and during puberty I did not suffer from any acne. Overall, this is a great drug for managing my RA and has given me a lot of my life back."

• Night...
• Taken for 1 to 6 months
• June 3, 2023

Rinvoq (upadacitinib) for Rheumatoid Arthritis "Many failed attempts from over six drugs for my RA, from oral to self-injections paired with methotrexate injections. I was put on Rinvoq in February 2023. Over time, headaches began, and I noticed elevated blood pressure. My PCP would tell me it's my OSA (obstructive sleep apnea). A couple of months later, the headaches and full-body pain became excruciating. Nothing I took would help. My blood pressure would not go down and even reached as high as 190/104. I also experienced a fast heartbeat. I was a miserable soul and wanted to dig a hole and jump in. An ER visit did nothing to alleviate my symptoms. I finally had to figure this out for myself. I decided to stop taking Rinvoq for a couple of days to see what would happen. I noticed a little improvement after day three, so I continued not taking it. I flushed the medication out with nothing but water. By day five, I felt so much better, and one week later, everything had stopped. All I was going through were my normal day-to-day struggles from RA, osteoarthritis, and fibromyalgia."

• Poppy
• Taken for 6 months to 1 year
• February 18, 2024

Rinvoq (upadacitinib) for Non-Radiographic Axial Spondyloarthritis "I noticed less pain in my SI joints and hip after 4 weeks. After 12 weeks, I had about 70-80% improvement. I basically had no side effects. However, after about 6 months on Rinvoq, my Sed Rate increased from 6 to 24, and I started having more pain and sciatica. Not sure why I have had such a lengthy and severe flare-up."

• misty
• Taken for 6 months to 1 year
• September 7, 2021

Rinvoq (upadacitinib) for Rheumatoid Arthritis "I have been on Rinvoq for about 9 months on and off, I have dry eyes constant runny nose now I have pins and needles in my hands 90% of the time, ulcers in my mouth and when I don't take the Rinvoq for a week or more the pins and needles are rarely. I think Im gonna stop it before it stops me."

• jamie
• Taken for less than 1 month
• September 14, 2022

Rinvoq (upadacitinib) for Rheumatoid Arthritis "I started this medicine after Enbrel and Humira failed me within a week of taking this medicine I got shingles rashes mouth sores awful stomach pain back pain my heart was racing at 120 beats a minute I tried to reason with my Dr she said the benefits outweigh the risk, I say not so I am quitting the med and hoping for the best"

• Eva
• Taken for 1 to 2 years
• November 3, 2021

Rinvoq (upadacitinib) for Rheumatoid Arthritis "I was using plaqueniI alone then the add methotrexate but gave me headaches. So they eliminated it for sulfasalazine. It makes it less painful. But dr said the I better use rinvoq. I have been taking Rinvoq for a year now with plaquenil and sulfasalazine. This addition make me feel a like gaining my normal life back. The problem is that I start to have continuous UTI infections in the last 8 month. Is very painful. So I am considering changing meds."

• Anonymous
• Taken for 1 to 2 years
• May 10, 2023

Rinvoq (upadacitinib) for Rheumatoid Arthritis "Rinvoq is a life-changing medication. I have had RA for 31 years. I have been on every treatment available but none gave me the relief this once a pill has. Not any infusion or injection could produce the life this has given me back. No more morning stiffness, no more swollen joints, no more nodules developing on my hands or wrists. I highly recommend this treatment for those that are struggling."

• Lizzy
• Taken for 1 to 2 years
• July 4, 2022

Rinvoq (upadacitinib) for Rheumatoid Arthritis "I have RA and Ménière’s (inner ear problem.) Rinvoq worsens my inner ear problem causing increased vertigo. Stopped Rinvoq temporarily for another reason. Vertigo episodes disappeared! Restarted Rinvoq: vertigo returned a week later. Stopped the Rinvoq for 3 weeks again: vertigo disappeared. Restarted Rinvoq: vertigo returned. When I take Rinvoq every other day instead of daily, vertigo episodes are +/- one per month. When I take Rinvoq daily, vertigo episodes are 1 or 2 per day. Rinvoq exacerbates my inner ear problem making Ménière’s more difficult to control resulting in more frequent vertigo. Several reviews mention vertigo and dizziness on Rinvoq, but vertigo doesn’t show up in the official side effects list. If you’re having vertigo, spinning sensation, dizziness on Rinvoq, please post here, tell MD, and tell specialty pharmacy. They won’t list it as an uncommon side effect if they don’t know about it. They won’t know about it unless we tell them."

• meghan
• Taken for 1 to 2 years
• August 19, 2021

Rinvoq (upadacitinib) for Rheumatoid Arthritis "I have been on Rinvog for over a year. I previously tried Xaljanz and Olumient. I have had many problems with dizziness and vertigo. Has anyone else experienced these problems while on this class of drugs? I would appreciate any information on this debilitating problem. Thanks."

• Joe
• Taken for 1 to 6 months
• July 17, 2023

Rinvoq (upadacitinib) for Ankylosing Spondylitis "I have been on Rinvoq for 5 months. I noticed relief as soon as 4 weeks on this medication and I have continued to slowly get better and better. I'm hoping and praying it continues to work for me. My only complaint is a lot of depression, which is something I have never experienced in my whole life and I am 58 years old, so I'm certain it is Rinvoq. The only reason I have been determined to tolerate it is because I have gotten such good relief from the symptoms of ankylosing spondylitis."

• Olive
• Taken for 2 to 5 years
• September 6, 2022

Rinvoq (upadacitinib) for Rheumatoid Arthritis "I started this medication 5 yrs after my RA diagnosis. Went through and failed all the others from methotrexate to humira and enbrel. I was a shell of my former self when I started Rinvoq. Much to my surprise it worked immediately. With it came abdominal pain and gastric distress several bouts of diverticulitis, UTI, and kidney infection. That being said I went from immobile to mobile which is a huge consideration. Due to the many infections my rheumatologist recommended 3 x a week dosing 15 mg. Much to my dismay the infections continue. I was just off this med entirely for 6 weeks and returned due to onset of pain and stiffness in my joints. I do plan on using half my prescribed dose from here on out. If infections persist I'm gonna have to call it quits. There are side effects to antibiotics (Levofloxacin) such as spontaneous tendon rupture that pale in comparison to my worst RA day. Do my best to eat right stay in a normal weight range and walk and hope for the best."

• Color...
• November 4, 2023

Rinvoq (upadacitinib) for Rheumatoid Arthritis "My improvement was both astonishing and quick. Within 4 days of taking Rinvoq, the 'me' I was before RA was coming back. As seven medicines had already failed me, I began Rinvoq, as usual, optimistic but fatalistic. Even if it worked, my RA history made me only cautiously optimistic—one previous Rx had worked but sent my liver enzymes high, forcing me to stop. So, when I started to feel immensely better by that first weekend, with more energy, with pain & swelling reduced to almost nothing, I was incredulous. I could not believe the difference. Five months later, I am a huge fan. My energy is almost all back (hurray!), I've had only one very, very minor flare, and after two blood tests my ALT remains only mildly elevated. So, yes, I am an enthusiastic fan with a close-to-normal schedule of life. I take a daily 15mg pill, easy to do. For me, this medicine has results that I'd lost hope for. I have 'me' back."

• RBM
• Taken for 1 to 6 months
• May 24, 2022

Rinvoq (upadacitinib) for Rheumatoid Arthritis "I was taking methotrexate ($67 a month) for 14 years. I still had a little pain and inflammation in my joints. My rheumatologist prescribed Rinvoq ($6,300 a month). I took it for 3 months. The first 3 weeks, it worked because I still had methotrexate in my body but after that my pain came back a lot stronger! Finally I went back to methotrexate but for some reason methotrexate did not work as good anymore as it worked before I started taking Rinvoq. I am totally disabled to the point that I can’t even do simple things I used to do before I took Rinvoq. I think Rinvoq changed something in my body that is not repairable. This is a very bad drug."

• john...
• Taken for 1 to 6 months
• April 14, 2023

Rinvoq (upadacitinib) for Atopic Dermatitis "I had uncontrollable itching and tried all sorts of things to help and was finally prescribed Rinvoq. With no insurance, I was able to sign up for a free Rx. Rinvoq gave me my life back. The itching was gone!!! Then I started seeing the side effects of shortness of breath, my legs breaking out in what appeared to be massive acne, and I am getting headaches, and a slight cough. I have taken it for 3 months and a little of the itching has come back, I am definitely looking for an alternative."

• Robyn
• Taken for 1 to 6 months
• October 21, 2021

Rinvoq (upadacitinib) for Rheumatoid Arthritis "I have severe chronic RA and was diagnosed when I was 30 years old. I have suffered with this disease for 20 years. I'm amazed! I just can't believe the difference this medication has made. I've been on a 4 week trial and after 2 weeks, I have not had one flare. I can move my wrists freely and my knuckles and fingers are pain free. So far I haven't noticed any side effects. I am also taking methotrexate in conjunction with Rinvoq once a week. I find taking Rinvoq daily is a big chore and would like to have it in a weekly or monthly dose!"

• Dave
• Taken for 2 to 5 years
• August 24, 2022

Rinvoq (upadacitinib) for Rheumatoid Arthritis "5 years ago I got diagnosed with rheumatoid arthritis. I was 32 years old and it was crippling. Considering my second son was just born it was not good timing. I tried every medicine. I felt like a guinea pig. Nothing really worked. My rheumatologist was getting a little desperate and that scared me for sure. I tried all types of diets the carnivore diet definitely worked the best and getting rid of carbs was big. Some days I still could barely walk. Renvoq was amazing I’ve been on it about two years plus years and I’m 92% better. I can’t say much about many side effects. I have an eczema sun rash but nobody really knows if that’s from the medicine. Small price to pay if it is. I wish I knew more diet stuff earlier. The best for me was carnivore diet (no carbs )but I didn’t really try the full vegan diet long enough to tell.. In any case diets really help but they have to be strict!!! Overall the renvoq was the game changer. Hopefully no long-term side effects. :)"

• Kch
• Taken for 1 to 6 months
• July 6, 2023

Rinvoq (upadacitinib) for Rheumatoid Arthritis "I have been on Rinvoq for 1 month. I had my labs drawn today and my results of my CBC are alarming! Low WBC, RBC, Platelets and more. I'm stopping this med and calling my Dr first thing in the morning."

• Tom
• Taken for 6 months to 1 year
• January 6, 2024

Rinvoq (upadacitinib) for Atopic Dermatitis "It's not a miracle cure like they say. I believe there is a 60% improvement in my eczema after being on it for about half a year. No side effects that I've noticed, which is good. Overall, I suppose it's better than nothing, but it's just a little sad to realize there is still no medication that can cure eczema by at least 90% or more, though I realize that biologics work almost fully for some people. I'm just not one of them."