Treprostinil and Headaches: What Users Say

• BRI...
• Taken for 1 to 6 months
• September 15, 2014

For Pulmonary Arterial Hypertension "I have been taking Tyvaso for approximately 6 months now and haven't had any adverse effects. There are side effects of the medicine, of course, which include cough, sore throat, hoarseness, and occasional headaches and muscle ache, but overall it is worth it for me."

• Jul...
• Taken for 1 to 2 years
• September 10, 2020

For Pulmonary Arterial Hypertension "Well, I tried Remodulin for 1.5 years and tried real hard to stay on it. The side effects I had were pain throughout my body, which became intolerable, i.e., jaw pain, headaches, total pretty much everything. I am sure this medication will work for some, but definitely need to be aware this is no joke on the side effects. When they say a lil diarrhea, this is a very much under-exaggeration. Just FYI, you've been warned. Best of luck on your journey."

• Llp...
• Taken for 1 to 6 months
• August 13, 2020

For Pulmonary Arterial Hypertension "I take this Remodulin subQ, and it has greatly increased my breathing. I lost weight, and I have a little diarrhea. I have no appetite. Headaches can be painful when titrating. Site pain is there until it falls asleep. Generally, it takes 7 days once a new port is put in place. You change out every 6 weeks or longer or shorter. I suggest good pain management for the bad week (the 7 days waiting on the site to go to sleep). Gabapentin with Acetaminophen-Hydrocodone cut my hell week to 4 days. With improvement, I'll be able to take the pill form, I hope. I hear the IV version is not painful as subQ."