Treprostinil and Swelling: What Users Say

• Dee...
• Taken for 1 to 6 months
• June 2, 2019

For Pulmonary Arterial Hypertension "I was diagnosed 2 years ago with PH (Pulmonary Hypertension), and failed several drugs. I would have severe edema, nausea, anemia, and now that I have been on Tyvaso for 1 mo., the change in my breathing is remarkable. It has worked better for me than any drug I've tried. I take Adcirca and Tyvaso, and I'm doing very well on them. My Tyvaso is covered by Medicare Part B and my supplement. I have no out-of-pocket expenses."

• CMa...
• July 4, 2022

For Pulmonary Arterial Hypertension "Ease of use is cumbersome, and there has to be a better way. I am at a loss as side effects are face swelling, back pain. Learning the treatment is 29 thousand a month, the only one benefiting is United Therapeutics."

• chr...
• Taken for 6 months to 1 year
• August 14, 2024

For Pulmonary Arterial Hypertension "I was diagnosed with severe pulmonary hypertension. And that's when I found out the right side of my heart was also extremely enlarged. That was about a year ago. So I've been on Remodulin, and yes, all of the possible side effects have happened. I've had to adjust my whole life because of the side effects, but I'm alive today, almost a year later, and I'm able to breathe and very rarely have any dizzy attacks. I was shown to put my site on my stomach, which worked for a while, but I had to change up my sites and had to try my thigh. I've found that with a tubular bandage holding my pump and site to my leg, I don't have so many issues with snagging my tubing and not so many bad site reactions like I had on my belly-no blisters, and swelling isn't so bad at all. I still have to deal with pain for a week after moving the site, but after that, it's way more manageable. As long as I have the pump right by the site under the bandage, there's no snagging, and it's almost like it's not there until it's time to be filled-beep, beep, beep. But much better."