Treprostinil and Diarrhea: What Users Say
Brand names: Remodulin, Tyvaso, Tyvaso DPI, Orenitram
Reviews for Treprostinil
- Jul...
- Taken for 1 to 2 years
- September 10, 2020
For Pulmonary Arterial Hypertension "Well, I tried Remodulin for 1.5 years and tried real hard to stay on it. The side effects I had were pain throughout my body, which became intolerable, i.e., jaw pain, headaches, total pretty much everything. I am sure this medication will work for some, but definitely need to be aware this is no joke on the side effects. When they say a lil diarrhea, this is a very much under-exaggeration. Just FYI, you've been warned. Best of luck on your journey."
- Llp...
- Taken for 1 to 6 months
- August 13, 2020
For Pulmonary Arterial Hypertension "I take this Remodulin subQ, and it has greatly increased my breathing. I lost weight, and I have a little diarrhea. I have no appetite. Headaches can be painful when titrating. Site pain is there until it falls asleep. Generally, it takes 7 days once a new port is put in place. You change out every 6 weeks or longer or shorter. I suggest good pain management for the bad week (the 7 days waiting on the site to go to sleep). Gabapentin with Acetaminophen-Hydrocodone cut my hell week to 4 days. With improvement, I'll be able to take the pill form, I hope. I hear the IV version is not painful as subQ."
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For Pulmonary Arterial Hypertension "I’ve been taking Tyvaso for almost a year now. I notice a change in my breathing and energy levels after about 3-4 months of usage. I have more energy to do things that would have normally tired me after 5-10 mins of movement. My shortness of breath has decreased, and now I’m able to walk up 14 steps without feeling short-winded and fatigued. My only complaint is the diarrhea that’s reoccurring, it’s so irritating."