Topiramate for Seizure Prevention User Reviews (Page 3)
Brand names: Topamax, Trokendi XR, Eprontia, Qudexy XR
Topiramate has an average rating of 5.9 out of 10 from a total of 63 reviews for the treatment of Seizure Prevention. 51% of reviewers reported a positive experience, while 33% reported a negative experience.
Reviews for Topiramate
- Shay
- Taken for 1 to 6 months
- March 17, 2018
Topamax (topiramate) "No problems the first four weeks @25mg. Later @75mg, I began to have cognitive difficulties. Felt like I was becoming a drug induced moron. Trouble developing thought formation, loss of words, lethargic. I was on Lithium for 15 years, developed chronic kidney disease. Looking for something for Bipolar 1 (mixed manic) without damage to body and shutting off the brain."
- Barbi...
- Taken for 2 to 5 years
- July 15, 2017
"I take Topamax for seizure prevention. I had already given up soda/ junk food, etc. I was at 198lb and slowly losing. I was put on 200 mg twice a day. I became the incredible shrinking woman! Down to 135 within 6 -8 months. It takes care of my major migraines I had. Only real problem I have is several months ago I became very ill and lost 5 pounds each time. I cannot gain any weight back at all. I have given up all soda/ junk like I said and have not gone back in almost 3 years."
Frequently asked questions
- Does topiramate cause weight loss?
- Does topiramate cause hair loss?
- How long do you stay on Topamax for migraines?
- How long does it take for Topamax to start working?
- Aimerz
- July 10, 2009
"I've only had a seizure once, but I take it for seizures and migraines. I am getting off it. I take 400mg a day. The side effects are too much for me. If this works for you and you are on a smaller dosage great. It's made me suffer the entire time I have been on it, granted I do take a higher dosage than probably most of you. I do have to admit, as far as migraines go, I haven't had as many and I normally do."
- Tsalagi
- Taken for 6 months to 1 year
- November 16, 2021
"Topiramate has saved me both terrible migraines and focal seizures caused by a TBI. Starting low and slow is important 25mg once a day for a week then twice a day and increased as needed but my 3x per day seizures stopped and I haven't had a migraine in 10 months since starting it. My hair is getting thinner, I'm taking biotin and silica; I still have headaches managed with braids; and I do search for words and stutter some, but it's totally worth it to not have the debilitating migraines and I've only had 4 breakthrough seizures in 10 months so that's pretty darn great...and I've lost 25 lbs comfortably."
Are you taking this medicine?
- Anonymous
- March 22, 2009
Topamax (topiramate) "I have been taking Topamax now for ten years. I love it. It has controlled my seizures and the side effects are minimal. I still get tired but not as bad as the other drugs I have been on."
- tnl
- Taken for 2 to 5 years
- November 15, 2012
Topamax (topiramate) "Confusion, forget, tingling, lights in the corner of eye shining, drops of water dripping on head at times, but the weight loss was good, but its not worth it for me. "
More FAQ
- How long does Topamax stay in your system?
- How does Trokendi XR help with weight loss?
- Are Topamax and Trokendi XR the same thing?
- What is topiramate used to treat?
- Anonymous
- March 9, 2008
Topamax (topiramate) "Topamax has really decreased my seisure activity, and as a bonus my headaches. However; I do still take a nap everyday after school. It is a must."
- fireh...
- October 1, 2009
Topamax (topiramate) "I have had extremely positive effects from this drug, but I do have to take Prozac with it as it causes mood swings or depression with me."
- LauraK
- February 23, 2009
Topamax (topiramate) "This medication has really helped my seizures plus my migraines. It is really convenient because I have both problems and I don't have to take two medications for both problems. Topamax is great."
- KarenHG
- February 19, 2009
Topamax (topiramate) "I have to take a very low dose or suffer from stomach problems and diarrhea. If I miss just one day can allow mild seizures to come through. Otherwise it works well."
- Seizu...
- August 16, 2008
Topamax (topiramate) "Years on it. Yes the headaches are gone...woopie!"
- Knell
- Taken for 2 to 5 years
- January 24, 2015
"This medication has been probably the best one I've been on for my seizures.. As long as I take it as prescribed it's worked wonders for me..."
- Bald...
- Taken for 1 to 6 months
- February 13, 2016
"I lost every piece of my beautiful long black hair in just over 3 months! Md's asured me it would pass. Never did."
- Dick...
- April 6, 2017
"I'm the only person in the World that gained weight while taking this med. 25mg 2/day for 10 months, gained 30lbs."
- 33yrs...
- July 15, 2016
Topamax (topiramate) "Used it for a mth and having the weirdest seizures ever"
- Giggles
- Taken for 10 years or more
- March 25, 2020
Topamax (topiramate) "Topamax controlled my grandmals seizures, but I still have my other seizures every month"
- Calluna
- September 24, 2016
Topamax (topiramate) "Great and Keppra too"
- Anonymous
- Taken for 5 to 10 years
- June 29, 2012
"I hate the side effects but it controls my seizures."
- Sunsh...
- Taken for 1 to 6 months
- November 16, 2017
"Follow up comment, finally got on scale. 25 weight loss so far."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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Topamax, Trokendi XR, Eprontia, Qudexy XR
"So I don't just use this for seizure prevention, I use it for migraines as well. I'm only giving it a 7 out of 10 because while it has stopped me from seizing so often, I'm still twitching uncontrollably at times (which aren't seizures, they're twitches) and I'm still having my cluster headaches which leave me with vertigo attacks once the migraines pass, and as you can guess... when that happens I have to stop whatever I'm doing entirely and just go home. My days are still 100% dictated by my head injury that's frankly, unpredictable. No miracle drug and I never expected it to be. I'm still going to take topiramate. I need to if I don't want to end up unconscious in public again. But I don't know if it's the medicine or the doctors who refuse to take me seriously. It doesn't help enough. I'm still tethered to both this and 4 to 6 tablets of 200mg of advil on a daily basis to keep pain at bay."