Xeljanz for Psoriatic Arthritis User Reviews
Reviews for Xeljanz
- Dol...
- December 4, 2019
"I was on this medication for a year. It works, it kept my pain down, and inflammation markers looked good. I just got off the medication because my liver enzymes were going up, and I have gained a lot of weight since taking it. Other than that, no other side effects, like a lot of people on here have had."
- Jsr...
- Taken for 6 months to 1 year
- October 25, 2020
"I was on Xeljanz XL for about 7 months. It seemed to be doing a decent job with my PsA joint pain and fatigue. After about 3 months, I noticed a shortness of breath that was getting worse. We presumed heart blockage, but cath showed no blockage. Turned out pulmonary embolism was the likely culprit with Xeljanz. Wish I had checked PE as the cause first. Lots of time and $ looking at heart. I know this drug can work, it just depends on your body and its possible reactions."
Frequently asked questions
- What are the new drugs for rheumatoid arthritis (RA)?
- What are JAK inhibitors and how do they work?
- Which JAK inhibitors are approved in the U.S?
- What happens when you stop taking Xeljanz?
- Ali...
- Taken for less than 1 month
- January 11, 2019
"I took one dose of this medication, and within one hour, both of my arms went completely numb. Numbness and tingling started in my lips and jaw. The next two nights, I woke up in the night with complete numbness again in my arms, which took 30 minutes to return to tingling. Numbness and tingling have continued through this whole week, in my feet and ankles, and lips and arms, even though I stopped taking it after the one disaster dose. Headaches and eye inflammation started three days after stopping use of this drug. I hope I can be symptom-free soon, and without lasting neurological effects. This was (and still is) an utterly frightening experience. I wouldn't recommend this drug to anyone."
- Ouc...
- September 16, 2019
"I was put on this medication 2 months ago. I wasn't sure at first how much it helped for my arthritis (psoriatic) because I was put on prednisone. Now I'm off the prednisone, and my joints hurt so bad. My skin psoriasis is slowly getting better, but my fingers have gone back to hurting, hips, knees, back. It gives me daily headaches. It helps me more than Humira and Enbrel, but I'm still experiencing pain and swelling."
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Your review helps others make informed decisions.- Sec...
- Taken for 6 months to 1 year
- June 27, 2019
"I have been on Xeljanz for about 6 months for psoriatic arthritis. For the most part, it was doing good... psoriasis cleared up, and my joints were doing great. Now, the joints are still okay, but I am experiencing new breakouts all over, and the plaque on my arms is getting thicker. I gave myself Humira shots, then went to Stelara, but this is worse than the psoriasis has been in about 6 years."
- Dia...
- Taken for 2 to 5 years
- March 9, 2023
"I’ve had psoriatic arthritis for 32 years. This drug is the best of all that I’ve been on, which was Remicade, Humira, Stelara, and Otezla, the latter two had no effect on my arthritis or psoriasis. This is the first one that has completely eliminated psoriasis on my scalp. Overall, I am about 90% improved on the psoriasis on other parts of the body. My arthritis is so much better and few flare-ups. It started working after about two weeks. I highly recommend this drug for both my severe arthritis and my psoriasis."
More FAQ
- How long does Xeljanz take to work?
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- Can I drink alcohol while taking Xeljanz?
- What is Xeljanz used for and is it a biologic?
- 198...
- Taken for 1 to 6 months
- August 14, 2019
"I was not optimistic about Xeljanz, but it has worked very well. Five years on Enbrel, and it was great. Two injections of Humira, and it was horrible. So I have to say, it's not that bad, it really isn't great."
- Ven...
- February 7, 2019
"On my 5th week, and my pain is gone, however, I had a herpes flare at 4 weeks and it came back a week later. I just realized today that it might be causing severe anxiety, and my husband noticed this because I’m acting paranoid and obsessive. So scary. I have the same problem with prednisone, and it nearly drove me to suicide. My doctor should have known better."
- Kay...
- Taken for 1 to 6 months
- June 1, 2019
"I found relief from inflammation pain after 4 weeks on Xeljanz. Just as I was feeling fairly well, I was diagnosed with influenza, therefore, I was advised to temporarily discontinue Xeljanz until I was better. Eight weeks after resuming, my symptoms gradually became worse, not better. I'm really disappointed and do not understand how this could happen. 2.5 days after the discontinuation, I actually feel a little better. Again, this makes no rational sense to me, since I have not started another biologic yet."
- luc...
- Taken for 10 years or more
- July 21, 2019
"I've been on Remicade for 15 years, and from day one it has produced excellent results. Hate the two hours of sitting, but it cleared up 100% of my psoriasis. However, my insurance company cut off the rheumatologists I had for 13 years, and I had to get a referral to another doctor. Problem was it took 7 months to get into the new doctor to get back on Remicade. I begged my old doctor to help me, and he got me on Xeljanz. But Xeljanz did not work. I was covered with plaques everywhere, like I was 20 years ago. I just think the delivery system is everything with our disease. A pill takes time to take effect, which an infusion gets right to the problem quickly. I am back on Remicade and completely clear skin with no side effects. I love Remicade, but I'm worried that the preexisting condition part of ACA will be shot down in court and then in the Supreme Court. But Remicade is great, and they have a program that makes it reasonable and literally pays off my deductibles."
- kle...
- Taken for 6 months to 1 year
- February 7, 2019
"You can buy any biologics in Germany for 1,000 a month, whereas they charge Medicare 15,000.00 a month. Why? It does absolutely nothing. I take it with Tremfya, it also does nothing. Otezla helps but gives you diaper rash, bad bowels, and Jakavi, which grows back cartilage, gums are healing, but does nothing for plaques. If I used four at a time, it would cost me one with insurance, and none do anything. It is only good for big pharma profits."
- Jus...
- Taken for 2 to 5 years
- January 27, 2022
"Used for psoriatic arthritis. Only thing that controls the psoriasis. The others, Embryl, Humira, methotrexate, and Otezla did not touch it. Humira caused sickness after each shot."
- War...
- Taken for 6 months to 1 year
- April 28, 2019
"I think Xeljanz is easy to take compared with an injection, but even with methotrexate it does not seem effective. Especially if the sedimentation rate keeps being high after 6 months of treatment."
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"I was diagnosed with psoriasis at 19 and started experiencing PsA symptoms at 32 (now 37). A few months ago, my arthritis spread and flared horribly, and the stiffness in the morning became unbearable. I broke down and finally made an appointment to see a rheumatologist. The first medication he prescribed for me is Xeljanz, and after a month and a half, I’ve probably seen an 80% improvement in my condition, with morning stiffness all but eliminated. I do still have some lingering issues with a few finger joints and the back of my feet, but hopefully, those will get better with time. I haven’t noticed any side effects thus far into taking the medicine. Unfortunately, I wished it would have had a bigger impact on my psoriasis. Patches are still red, but the scales do not grow near as thick. Once again, this could get better with time. Overall, I’ve been extremely happy with Xeljanz thus far and would highly recommend you give it a try for your PsA."