Secukinumab for Psoriatic Arthritis User Reviews

• Johnny...
• Taken for 1 to 2 years
• July 7, 2019

Cosentyx (secukinumab) "I was diagnosed with psoriatic arthritis 11 years ago and have not been able to find anything with to cut my pain and the debilitating effects of the disease. I have gone through assorted pain management programs and they are either ineffective or my body rejects them to the point of hospitization. Combining my disease with type 2 diabetes and massive amounts of neuropathy, I find, myself in a tough situation physically and mentally. When I take my monthly Cosentyx shots I get violently ill for a few days and then my joint pain increases for a few days followed by intense itching and redness. It has cleared up 80% of my skin and maybe 10% of my joint pain, but it doesn't help enough. Thank you for allowing me to share and vent a little because it is a lonely battle A tip of the cap and a hoist of the cup to the warriors who live it and the angels who support them."

• Batty
• Taken for 1 to 6 months
• December 5, 2018

Cosentyx (secukinumab) "I have had Moderate to Severe plaque psoriasis for 44yrs I'm 48 and Cosyntex has kicked my psoriasis to the curb it took about 6 injections and my skin looks absolutely normal and no side effects at all. Moving on to the Psoriatic Arthritis part of this drug and I have had NO IMPROVEMENT I'm so mad I use to be a super fit person until this disease turned my 48yrs old body into a 90 year old woman. I had high hopes for Cosentyx alleviating my psoriatic arthritis the way it did for my skin sadly it hasn't touch my psoriatic arthritis.....this pain is a monster!"

• Midwest...
• December 15, 2020

Cosentyx (secukinumab) "Was on methotrexate for ten years. Did well but thought it was causing some IBS type symptoms. Derm PA put me on Humira. Did nothing and flared really bad waiting the six months before insurance would let me switch. Next was Consentyx. Skin 100% clear in three weeks BUT---hives up and down my arms, back to back UTI's -five of them. I felt a little groggy and like I was wading through chest high water all the time. THEN--major bloody diarrhea. Major. By the time I had a colonoscopy I was a mess. Six weeks of non stop bloody diarrhea. Diagnosed with Cosentyx induced Ulcerative Colitis. Four months on prednisone trying to clear it up. Hoping it is not permanent. Gastroenterologist said he sees it from Cosentyx a lot. Now I have gained another fifteen pounds from the prednisone and back to being in terrible pain. Scalp starting to flare again. Cosentyx was NOT my miracle drug."

• Jeanne
• Taken for 1 to 6 months
• April 19, 2021

Cosentyx (secukinumab) "I have had 2 drugs for psoriatic arthritis. One was a pill and made me very ill with stomach problems. The other was cosentyx. Unfortunately it also did not work for me. I had diarrhea for 4 months. My hair started to fall out and now I have half the hair that I had before. Soon to be bald. Do not take this drug. If anyone else has taken it and had hair loss please let me know. Thank you"

• madrick
• Taken for 1 to 6 months
• August 21, 2018

Cosentyx (secukinumab) "to all you short timers. I too had some side affects and thought it did not help with my pain. I gave it 5 months and now l feel much better and I was almost disabled. Now I can do a lot more of the things I could not do just on anti inflammatory meds. The side affects have gone away ..so it is working for me."

• Heart...
• January 24, 2019

Cosentyx (secukinumab) "6 weeks after I began cosentyx I was cleared of 70% psoriasis coverage, & P.A & A.S were serious. Out of nowhere I had 10/10 pain in my abdomen. ER thought it colon cancer or perforated colon, with a bad infection & went for a surgery immediately to see what was putting me in shock. I woke up with a colostomy bag. Thank God I was told 2 weeks later the colon had no malignancies. I stayed in hospital a few weeks & pray I can have the is ostomy reversed within a year- if at all. According to my Rheumatologist, dermatologist & family doctors research- COSENTYX WAS THE CAUSE OF THE PERFORATED INTESTINE. I am mum of 3 my kids, husband & myself thought my psoriasis was disappearing! Maybe arthritis & A.S. SOON also! Never did I think I'd be in this situation. Stay AWAY from this POISON PLEASE. Psoriasis quickly returned. I don't want anyone else to drop off kids for school with a smile, hugs & kisses & then feel like you'll die from pain an hour later"

• Maddie
• Taken for 1 to 6 months
• June 6, 2019

Cosentyx (secukinumab) "I have been on Cosentyx now for 2 months. Still no change In my psoriatic arthritis. I’ve begun to get weird issues like cramping in my legs, excessive joint pain and this morning I had a vertigo attack! Wondering if anyone has experienced any of these side effects."

• sonomel
• Taken for 1 to 6 months
• March 20, 2019

Cosentyx (secukinumab) "I used Humira in the past but developed pulmonary embolisms. Now am on Cosentyx and have nothing but good things to say. My psoriasis is 95% cleared. My arthritis is 75% better. I was mostly effected in my right hip, knee and ankle. It was terrible!! Now I am good! It's been 4 months. I hope I am not jumping the fun!"

• Ljano
• Taken for 6 months to 1 year
• January 20, 2020

Cosentyx (secukinumab) "I’ve been on Cosentyx for about 8 months for PsA. About 4 months in my right eye started twitching. My rheumatologist said it was due to me being overly tired or under a great deal of stress. Neither of which I am. Has anyone else had a similar reaction? Overall it has helped my PsA but the twitching is very annoying!"

• Kel
• Taken for 1 to 6 months
• June 24, 2019

Cosentyx (secukinumab) "I have had vertigo symptoms, extreme joint pain, fatigue, as a result of all medications that supposedly treat psoriatic arthritis and ankylosis spondylitis. So far, every medication I’ve tried has made me much worse. Humira attacked my heart and almost killed me. The steroids caused panic attacks, shortness of breath, and high blood pressure. That’s just to name a few! I think these medications are poison to anyone’s system. I have decided to avoid medications all together. I still have pain but at least I don’t have ten to twenty other awful side effects to go with it. Not to mention, none of the medications ever helped with my pain anyway. If anything, they only made my pain worse."

• Suz
• Taken for 5 to 10 years
• March 29, 2020

Cosentyx (secukinumab) "I have been on Cosentyx for over 6 years now after trying enbrel, methotrexate and a 3 year stint in a clinical trial. It has done wonders for me. My skin is 97% clear. I do have 3 tiny patches but I am okay with that. I am not hiding and have more self esteem, I sleep better at night, no more cracking skin and blood spots on my sheets or clothing. I have had PSA for almost 20 years. I know when I get sick (I had strep throats last year) my skin cracks up so I try to keep healthy. Does anyone know if I can still use Costenyx if I get pregnant? My joints are manageable now as well. I love this life saving drug!!!"

• Celt
• Taken for 1 to 2 years
• August 2, 2019

Cosentyx (secukinumab) "Been on for over a year. Psoriasis is gone and arthritis for the most part lessened but for my hands. I need to treat them with pain relieving roll ons and lotions every day. I can live with that situation but am having real trouble with exhaustion as some days I cannot get out of my own way. It really effects my daily life as three to four days out of the week I am very limited in doing much at all."

• Anonymous
• Taken for 1 to 6 months
• January 15, 2017

Cosentyx (secukinumab) "Experienced headaches, exhaustion and uti symptoms while on this drug. Also several areas of psoriasis seems worse, redder and painful. Did help slightly with accompanying joint pain but not enough to warrant tolerating the side effects."

• kologa
• Taken for 6 months to 1 year
• August 19, 2019

Cosentyx (secukinumab) "1000 Characters is not enough space to put down the information for these kind of medications. I tried to summarize Diagnoses: January 2018 Cosentyx: January 2019 Current Date: August 2019 Disease: Psoriatic Arthritis Side Effects: Next to none besides some mild diarrhea Time to Work: 24 Hours Full Effect: Month I cannot walk without medication and am in horrendous pain all the time. With this the pain is MOSTLY gone with some bad flair ups but it keeps everything manageable and I no longer need a cane. It is expensive and you will have to try NSAID and DMARD before getting approval. They dealt with my insurance directly. It has worked great. I would say slightly less effective since I started but going strong and I will stay on it. Give it a try if you are able."

• JaneDoe
• Taken for 1 to 6 months
• May 13, 2019

Cosentyx (secukinumab) "Took the 4 week loading dose of Cosentyx then took 2 months of 150mg then have taken two months at 300mg. I have had zero improvement in my plaque psoriasis and while I am able to function physically, I definitely am not pain free like I was when on Enbrel. Switched from Enbrel to Consentyx to try and combat the psoriasis. Have had diarrhea consistently ever since starting the drug. Will not be continuing Cosentyx as it doesn't do its job."

• Sammy...
• Taken for 1 to 6 months
• August 2, 2016

Cosentyx (secukinumab) "I have been taking the med for two months and I have as of yet had any recognizable side effects and the med seems to exacerbate the reason I'm taking it for, the pain and psoriasis symptoms. So far I can say OK."

• Dg63
• Taken for 1 to 6 months
• December 30, 2016

Cosentyx (secukinumab) "Was given my first two shot booster and nothing happened at all. After 5 weeks with one shot a week I have no improvement at all. Suddenly felt sick and sleepy all the time and got the worst vaginal yeast infection I have ever had a long with urinary tract issues. Not going to continue this treatment. Just glad that my medical insurance didn't pay the 16 thousand dollars that big pharma mercy wanted for a three month treatment!"

• Anonymous
• Taken for 1 to 6 months
• August 28, 2019

Cosentyx (secukinumab) "Easy to use without injection pain at all. Had two pens that only injected 1/2 meds (replaced free). Very supportive cust service. 5 loading doses and one monthly dose Itchy flaky scalp is 90% improved. Actually joint pain is worse Sleeping 12-14 hrs/day and horrible vertigo to passing out and falling on my face. Hoping for some joint pain relief soon"

• last-...
• Taken for 1 to 6 months
• July 5, 2017

Cosentyx (secukinumab) "I am not sure yet if it is coincident or not, but shortly after starting Cosentyx, I experienced extreme pain while urinating to the point of even passing blood. I was taken off the medication for approximately 2 months for other medical issue including UTI and started seeing a slight improvement. (at this time we didn't consider that this could be a side effect) I was given the start up dose again because of the gap in treatment and by 3rd shot (start up dose) I was experiencing extreme pain again. I have been taken off the medication again to see if the bladder pain will improve. Not thinking what I am experiencing is worth taking the medication. While on the medication I do not feel there was any improvement to the arthritis pain."

• Jim
• February 14, 2018

Cosentyx (secukinumab) "Cleared up my plaque psoriasis about 95% -- could tell a difference after after first or second dose. Psoriatic arthritis pain has been significantly improved. Still some pain the fingers, but that's probably just osteoarthritis. TMJ (PA related perhaps?) pain and jaw clicking went away completely. No side effects noted after 6 months (knock on wood)."

• Hubsy
• Taken for 1 to 6 months
• June 6, 2019

Cosentyx (secukinumab) "I've had psoriatic arthritis for over 55 years. Embrel was the new wonder drug that is until I started to suffer with scrotal abscesses. I stopped Embrel and hoped my body would stay clear of psoriasis. No such luck. Psoriasis came back with a vengeance. I'm now trying Cosentyx. Ist injection 21-05-19, the skin is starting to clear but and here is the but I've got a sore throat, I'm wheezy, ache all over and feel tired all the time"

• Frank
• Taken for 1 to 6 months
• August 23, 2018

Cosentyx (secukinumab) "I would give this medication a 1/10 for PsA and 7/10 for psoriasis. My psoriasis was and has been fairly mild for some time but within 6 weeks of taking cosentyx I was all clear pretty much. I took the 5 week loading dose and 4 consecutive months following that and was forced to stop due to switching insurances and trying to get re-approved. I did not experience any improvement in my PsA symptoms and in fact would say that my general joint ache, stiffness and pain was worse. Besides seeing no improvement in my primary complaint, I have had 4-5 week long sinus infections, a thrush infection and several days in between with general stomach upset I hadn’t had prior to starting this medication. In switching insurances, they wanted me to try Enbrel first prior to re-ordering cosentyx for some reason. I will try that as I am curious to see the difference in effectiveness as well as side effects. I’ll also be taking Enbrel through the winter which will give me a better idea."

• KimL
• Taken for 1 to 6 months
• April 6, 2018

Cosentyx (secukinumab) "So far I have done the 4 loading doses and one monthly dose of the Cosentyx. My body is killing me. Elbows are on fire, fingers are sore and swollen, all of my muscles are killing me. I am trying to give this med 3 months to work as that's what it states, but I'm having a real tough time. I feel like a truck hit me, backed up, and ran me over again. I tried Humira before but that did nothing for me. I was on Remicade infusion and that actually seemed to be working. Then I had my 4th infusion and ended up with the worst sinus and double ear infections I have ever had in my 55 years! Not to mention that after each infusion I came down with a small cold for a few days. So my Dr put me on Cosentyx. He wants me to take 6mp with it but I refuse as this is such a major anti-rejection drug. He doesn't want me to take methotrexate with the Cosentyx for fear of another infection but I would rather take that than the 6mp. Hoping for the best!"

• SamiC
• Taken for 2 to 5 years
• December 23, 2017

Cosentyx (secukinumab) "Have been on Cosentyx, monthly, along with methotrexate, weekly, going on two years for psoriatic arthritis. After about a year, my finger joint pain, stiffness and swelling seemed to lessen quite a bit to the point where I didn’t need to take an anti inflammatory on a regular basis. A couple of months ago I experienced a very bad flare up which seems to be getting worse. Also a recent X-ray of my hands shows increased joint damage, which leaves me to wonder if the Cosentyx is actually working. My Rheumatologist wants to double the Cosentyx dose to see if it makes a difference before she starts me on Humira. I’m wondering if Humira is consistently more effective for PSA than Cosentyx?"

• NHGAL
• Taken for less than 1 month
• June 4, 2020

Cosentyx (secukinumab) "Injection 1 caused a hive over my eyebrow, wasn't sure if it was a mosquito bite, injection 2 hives all over my arms, back, leg and my throat started to close. Antihistamines were taken BEFORE I injected and the hives lasted 3 days! Please have antihistamines nearby."